Contemporary survival of adults with congenital heart disease

Heart

Volumn 101, Issue 24, 2015, Pages 1989-1995

  Van Der Bom, Teun ^a,b   Mulder, Barbara J M ^a,b   Meijboom, Folkert J ^c   Van Dijk, Arie P J ^d   Pieper, Petronella G ^e   Vliegen, Hubert W ^f   Konings, Thelma C ^g   Zwinderman, Aeilko H ^a   Bouma, Berto J ^a  

^a ACADEMIC MEDICAL CENTER   (Netherlands)

^b ROYAL NETHERLANDS ACADEMY OF ARTS AND SCIENCES   (Netherlands)

^c UNIVERSITY MEDICAL CENTER UTRECHT   (Netherlands)

^d RADBOUD UNIVERSITY MEDICAL CENTER   (Netherlands)

^e UNIVERSITY MEDICAL CENTER GRONINGEN   (Netherlands)

^f LEIDEN UNIVERSITY MEDICAL CENTER   (Netherlands)

^g VU UNIVERSITY MEDICAL CENTER   (Netherlands)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; CARDIOVASCULAR RISK; CONGENITAL HEART DISEASE; CONTROLLED STUDY; DISEASE SEVERITY; FEMALE; FOLLOW UP; HEART FAILURE; HUMAN; LONG TERM SURVIVAL; MAJOR CLINICAL STUDY; MALE; NETHERLANDS; PRIORITY JOURNAL; PROSPECTIVE STUDY; PULMONARY HYPERTENSION; SENSITIVITY ANALYSIS; SEX DIFFERENCE; SUDDEN DEATH; AGE; HEART DEFECTS, CONGENITAL; KAPLAN MEIER METHOD; MIDDLE AGED; MORTALITY; ODDS RATIO; PROGNOSIS; PROPORTIONAL HAZARDS MODEL; REGISTER; RISK FACTOR; SEVERITY OF ILLNESS INDEX; STATISTICAL MODEL; SURVIVOR; TIME; YOUNG ADULT;

ADULT; AGE FACTORS; FEMALE; HEART DEFECTS, CONGENITAL; HUMANS; KAPLAN-MEIER ESTIMATE; LINEAR MODELS; LOGISTIC MODELS; MALE; MIDDLE AGED; NETHERLANDS; ODDS RATIO; PROGNOSIS; PROPORTIONAL HAZARDS MODELS; PROSPECTIVE STUDIES; REGISTRIES; RISK FACTORS; SEVERITY OF ILLNESS INDEX; SURVIVORS; TIME FACTORS; YOUNG ADULT;

EID: 84949185067     PISSN: 13556037     EISSN: 1468201X     Source Type: Journal    
DOI: 10.1136/heartjnl-2015-308144     Document Type: Article

References (33)

1. van der Bom T, Bouma BJ, Meijboom FJ, et al. The prevalence of adult congenital heart disease, results from a systematic review and evidence based calculation. Am Heart J 2012;164:568-75.
2. Moons P, Bovijn L, Budts W, et al. Temporal trends in survival to adulthood among patients born with congenital heart disease from 1970 to 1992 in Belgium. Circulation 2010;122:2264-72.
3. Warnes CA. The adult with congenital heart disease: Born to be bad? J Am Coll Cardiol 2005;46:1-8.
4. Nieminen HP, Jokinen EV, Sairanen HI. Late results of pediatric cardiac surgery in Finland: A population-based study with 96% follow-up. Circulation 2001;104:570-5.
5. Morris CD, Menashe VD. 25-year mortality after surgical repair of congenital heart defect in childhood. A population-based cohort study. JAMA 1991;266:3447-52.
6. Moons P, Sluysmans T, De Wolf D, et al. Congenital heart disease in 111 225 births in Belgium: Birth prevalence, treatment and survival in the 21st century. Acta Paediatr 2009;98:472-7.
7. Meberg A, Otterstad JE, Frøland G, et al. Outcome of congenital heart defects-a population-based study. Acta Paediatr 2000;89:1344-51.
8. Moller JH, Anderson RC. A 43-to 54-year follow-up of 1,000 patients with congenital heart disease. Am J Cardiol 2013;111:1496-500.
9. van der Bom T, Zomer AC, Zwinderman AH, et al. The changing epidemiology of congenital heart disease. Nat Rev Cardiol 2011;8:50-60.
10. Baumgartner H, Bonhoeffer P, De Groot NMS, et al. ESC Guidelines for the management of grown-up congenital heart disease (new version 2010): The Task Force on the Management of Grown-up Congenital Heart Disease of the European Society of Cardiology (ESC). Eur Heart J 2010;31:2915-57.
11. Warnes CA, Williams RG, Bashore TM, et al. ACC/AHA 2008 guidelines for the management of adults with congenital heart disease: A report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines (Writing Committee to Develop Guidelines on the Management of Adults With Congenital Heart Disease). Developed in Collaboration With the American Society of Echocardiography, Heart Rhythm Society, International Society for Adult Congenital Heart Disease, Society for Cardiovascular Angiography and Interventions, and Society of Thoracic Surgeons. J Am Coll Cardiol 2008;52:e143-263.
12. Klein JP, Moeschberger ML. Survival analysis: Techniques for censored and truncated data. Springer, 2003.
13. Westreich D, Cole SR, Tien PC, et al. Time scale and adjusted survival curves for marginal structural cox models. Am J Epidemiol 2010;171:691-700.
14. Cologne J, Hsu W-L, Abbott RD, et al. Proportional hazards regression in epidemiologic follow-up studies: An intuitive consideration of primary time scale. Epidemiology 2012;23:565-73.
15. Vander Velde ET, Vriend JWJ, Mannens MMAM, et al. CONCOR, an initiative towards a national registry and DNA-bank of patients with congenital heart disease in the Netherlands: Rationale, design, and first results. Eur J Epidemiol 2005;20:549-57.
16. Mitchell SC, Korones SB, Berendes HW. Congenital heart disease in 56,109 births incidence and natural history. Circulation 1971;43:323-32.
17. De Paepe A, Devereux RB, Dietz HC, et al. Revised diagnostic criteria for the Marfan syndrome. Am J Med Genet 1996;62:417-26.
18. Vis JC, van der Velde ET, Schuuring MJ, et al. Wanted! 8000 heart patients: Identification of adult patients with a congenital heart defect lost to follow-up. Int J Cardiol 2011;149:246-7.
19. Franklin RCG, Anderson RH, Daniëls O, et al. Report of the coding committee of the association for European Paediatric Cardiology. Cardiol Young 2002;12:611-18.
20. Warnes CA, Liberthson R, Danielson GK, et al. Task force 1: The changing profile of congenital heart disease in adult life. J Am Coll Cardiol 2001;37:1170-5.
21. Lamarca R, Alonso J, Gómez G, et al. Left-truncated data with age as time scale: An alternative for survival analysis in the elderly population. J Gerontol A Biol Sci Med Sci 1998;53:M337-343.
22. Verheugt CL, Uiterwaal CSPM, van der Velde ET, et al. Mortality in adult congenital heart disease. Eur Heart J 2010;31:1220-9.
23. Engelfriet P, Boersma E, Oechslin E, et al. The spectrum of adult congenital heart disease in Europe: Morbidity and mortality in a 5 year follow-up period. The Euro Heart Survey on adult congenital heart disease. Eur Heart J 2005;26:2325-33.
24. Zomer AC, Ionescu-Ittu R, Vaartjes I, et al. Sex differences in hospital mortality in adults with congenital heart disease: The impact of reproductive health. J Am Coll Cardiol 2013;62:58-67.
25. Afilalo J, Therrien J, Pilote L, et al. Geriatric congenital heart disease: Burden of disease and predictors of mortality. J Am Coll Cardiol 2011;58:1509-15.
26. Marelli A, Gauvreau K, Landzberg M, et al. Sex differences in mortality in children undergoing congenital heart disease surgery: A United States population-based study. Circulation 2010;122:S234-40.
27. Verheugt CL, Uiterwaal CSPM, van der Velde ET, et al. Gender and outcome in adult congenital heart disease. Circulation 2008;118:26-32.
28. Zomer AC, Verheugt CL, Vaartjes I, et al. Surgery in adults with congenital heart disease. Circulation 2011;124:2195-201.
29. Koyak Z, Harris L, de Groot JR, et al. Sudden cardiac death in adult congenital heart disease. Circulation 2012;126:1944-54.
30. Zomer AC, Vaartjes I, Uiterwaal CSPM, et al. Circumstances of death in adult congenital heart disease. Int J Cardiol 2012;154:168-72.
31. Zomer AC, Vaartjes I, van der Velde ET, et al. Heart failure admissions in adults with congenital heart disease; risk factors and prognosis. Int J Cardiol 2013;168:2487-93.
32. Wren C, O'Sullivan JJ. Survival with congenital heart disease and need for follow up in adult life. Heart 2001;85:438-43.
33. ZOmEr AC, Vaartjes I, Uiterwaal CSP, et al. Social burden and lifestyle in adults with congenital heart disease. Am J Cardiol 2012;109:1657-63.