Control: User-Controlled Research

Handbook of Service User Involvement in Mental Health Research

Volumn , Issue , 2009, Pages 181-197

  Beresford, Peter ^a  

^a BRUNEL UNIVERSITY   (United Kingdom)

Author keywords

Defining user controlled research; Emergence of emancipatory disability research; Involve's 2005 review of user controlled research concerned with identifying components for good practice; Mental health service user survivor research; Realities of user control in discriminatory society; User controlled research; User controlled research linked with emancipatory disability research and 'survivor research'; User controlled research, emancipatory disability research and survivor research; Ways forward for user controlled research

Indexed keywords

EID: 84948759946     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.1002/9780470743157.ch13     Document Type: Chapter

References (53)

1. Barnes, C. and Mercer, G. (Eds) (1997) Doing Disability Research, Leeds: The Disability Press.
2. Barnes, C. and Mercer, G. (Eds) (2005) The Social Model Of Disability, Europe And The Majority World, Leeds: The Disability Press.
3. Barnes, C. Oliver, M. and Barton, L. (Eds) (2002) Disability Studies Today, Cambridge: Polity.
4. Becker, S., Bryman, A. and Sempik, J. (2006) Defining 'Quality' In Social Policy Research: Views, perceptions and framework for discussion, Lavenham: Social Policy Association.
5. Beresford, P. (2003) It's Our Lives: A short theory of knowledge, distance and experience, London:Citizen Press in association with Shaping Our Lives.
6. Beresford, P. (2004) Madness, Distress, Research and a Social Model. In: C. Barnes and G. Mercer (Eds) Implementing the Social Model of Disability: Theory and research, Leeds: Disability Press, pp 208-222.
7. Beresford, P. (2005a) Theory and practice of user involvement in research: making the connection with public policy and practice. In: L. Lowes and I. Hulatt (Eds) Involving Service Users In Health And Social Care Research, London: Routledge, pp 6-17.
8. Beresford, P. (2005b) Where would we be without the pharmaceutical industry? A service user's view, Psychiatric Bullet: The Journal of psychiatric practice, 29(3), 84-85.
9. Beresford, P. and Branfield, F. (2006) Developing Inclusive Partnerships: User defined outcomes, networking and knowledge - a case study, Health And Social Care in the Community, 14(5), 436-444.
10. Beresford, P. and and Wallcraft, J. (1997) Psychiatric system survivors and emancipatory research:issues, overlaps and differences. In: C. Barnes and G. Mercer (Eds) Doing Disability Research, Leeds: The Disability Press, pp 67-87.
11. Beresford P., Harrison, C. and Wilson, A. (2002) Mental health, service users and disability:implications for future strategies, Policy & Politics, 30(3), 387-396.
12. Beresford, P., Shamash, O., Forrest, V. et al. (2005) Developing Social Care: Service users' vision for adult support, (Report of a consultation on the future of adult social care), Adult Services Report 07, London, Social Care Institute for Excellence in association with Shaping Our Lives.
13. Branfield, F., Beresford, P., Andrews, E.J. et al. (2006) Making User Involvement Work: Supporting service user networking and knowledge, York: Joseph Rowntree Foundation.
14. Campbell, J. and Oliver,M. (1996) Disability Politics: Understanding our past, changing our future, London: Routledge.
15. Campbell, P. (1996) The history of the user movement in the United Kingdom. In: T. Heller, J. Reynolds, R. Gomm, R. Muston and S. Pattison (Eds) Mental Health Matters: A reader, Basingstoke: Macmillan, in association with the Open University, pp 218-225.
16. Chamberlin, J. (1988) On Our Own: Patient controlled alternatives to the mental health system, London: Mind.
17. Cohen, A.M., Stavri, P.Z. and Hersh, W.R. (2004) A categorisation and analysis of the criticism of evidence-based medicine, International Journal of Medical Informatics, 73, 35-43.
18. Crow, L. (1996) Renewing the social model of disability, Coalition, July, Greater Manchester Coalition of Disabled People, Manchester, pp 5-9.
19. Department of Health (2002) Report of the Service User Panel, Appendix 5, Strategic Reviews of Research And Development - Mental Health Report Appendices, London: DH.
20. Department of Health (1999) National Service Framework for Mental Health: Modern standards and service models, London: Department of Health.
21. Faulkner, A. (2004) The Ethics of Survivor Research: Guidelines for the ethical conduct of research carried out by mental health users and survivors, Bristol: Policy Press.
22. Faulkner, A. and Layzell, S. (2000) Strategies for Living: A report of user-led research into people's strategies for living with mental distress, London: Mental Health Foundation.
23. Faulkner, A. and Nicholls, V. (1999) The DIY Guide To Survivor Research, London: Mental Health Foundation.
24. Fisher,M. and Marsh, P. (2003) Social work research and the 2001 Research Assessment Exercise: an initial overview, Social Work Education, 22(1), 71-80.
25. Gambrill, E. (2002) I am not a rubber stamp: my experience as a non-UK RAE adviser. Journal of Social Work, 2(2), 169-185.
26. Glasby, J. and Beresford, P. (2006) Who knows best?: Evidence based practice and the service user contribution, Commentary and Issues, Critical Social Policy, 26(1), 268-284.
27. Hickey, G. and Kipping, C. (1998) Exploring the concept of user involvement in mental health through a participation continuum, Journal of Clinical Nursing, 7, 83-88.
28. Holden, C. and Beresford, P. (2002) Globalization and disability, In: C. Barnes, M. Oliver and L. Barton (Eds) Disability Studies Today, Cambridge: Polity, pp 190-209.
29. Involve (2007) User-ControlledResearch, JargonBuster, Public InformationPack:Howto get actively involved in NHS, public health and social care research, No 4, Eastleigh, Involve Support Unit.
30. Lindow, V. (2001) Survivor research. In: C. Newnes, G. Holmes and C. Dunn (Eds) (2001) This Is Madness Too, Ross on Wye: PCCS Books, pp. 135-146.
31. Mercer, G. (2002) Emancipatory disability research. In: C. Barnes, M. Oliver and L. Barton (Eds) Disability Studies Today, Cambridge: Polity.
32. Muijen, M. (1998) Users monitoring mental health services, Q-Net, 6(1).
33. Nicholls, V. (2001) Doing Research Ourselves, Strategies For Living, London: Mental Health Foundation.
34. Office for Disability Issues (2008) Independent Living: A cross-government strategy about independent living for disabled people, London: The Stationery Office.
35. O'Hagan, M. (1993) Stopovers On My Way Home From Mars: A Winston Churchill Fellowship report on the psychiatric survivor movement in the USA, Britain and the Netherlands, London: Survivors Speak Out.
36. Oliver, M. (1996) Understanding Disability, Basingstoke: Macmillan.
37. Oliver, M. and Barnes, C. (1998) Disabled People and Social Policy: From exclusion to inclusion, London: Longman.
38. Oliver, M. (1992) Changing the social relations of research production, Disability, Handicap and Society, 7, pp 101-115.
39. Oliver, M. and Barnes, C. (1998) Disabled People and Social Policy: From exclusion to inclusion, London: Longman.
40. Pilgrim, D. and Rogers, A. (1999) A Sociology of Mental Health and Illness, Second Edition, Buckingham: Open University Press.
41. Rose, D. (2001) Users' Voices, London: Sainsbury Centre for Mental Health.
42. Shaping Our Lives National User Network, Black User Group (West London), Ethnic Disabled Group Emerged (Manchester), Footprints, Waltham Forest Black Mental Health Service User Group (North London), Service Users' Action Forum (Wakefield) (2003) Shaping Our Lives - From outset to outcome: What people think of the social care services they use, York: Joseph Rowntree Foundation.
43. Shardlow, S., Huntington, A., Lawson, J. et al. (2004) The Research Assessment Exercise (RAE) 2001 (Social Work): A Report Prepared by Salford Centre for Social Work Research for The Research Sub-Committee of the Joint University Committee/Social Work Education. Salford: Salford Centre for Social Work Research, University of Salford. Available online at: http://www.chssc.salford.ac.uk/scswr/projects/Research%20Assessment%20Exercise%20_Exec.pdf, accessed 28/ 10/08.
44. Stickley, T. (2006) Should service user involvement be consigned to history?: a critical realist perspective. Journal of Psychiatric and Mental Health Nursing, 13, pp. 570-577.
45. Stone, E. (Ed) (1999) Disability and Development: Learning from action and research in the majority world, Leeds: The Disability Press.
46. SURE (2002) SURE: Service User Research Enterprise, Annual Report, 2001-2002, SURE, Health Service Research, London: Institute of Psychiatry.
47. Swain, J., French, S., Barnes, C. and Thomas, C. (Eds) (2004) Disabling Barriers - Enabling Environments, London: Sage.
48. Taylor, J.,Williams, V., Johnson, R. et al. (2007) We Are Not Stupid, London: Shaping Our Lives and People First Lambeth.
49. Tew, J. (Editor) (2005) Social Perspectives in Mental Health: Developing social models to understand and work with mental distress, London: Jessica Kingsley.
50. Turner, M. and Beresford, P. (2005a) User-Controlled Research: Its meanings and potential, Final report, Shaping Our Lives and the Centre for Citizen Participation, Brunel University, Eastleigh, Involve.
51. Turner, M. and Beresford, P. (2005b) Contributing On Equal Terms: Service user involvement and the benefits system, Adult Services Report 08, London: Social Care Institute for Excellence.
52. Turner, M. (1997) Shaping Our Lives: Interim Report, London: Shaping Our Lives, National Institute for Social Work.
53. Turner, M. (1998) Shaping Our Lives: Project Report, London: Shaping Our Lives, National Institute for Social Work.