Uncertainty and anxiety in the cancer of unknown primary patient journey: A multiperspective qualitative study

BMJ Supportive and Palliative Care

Volumn 5, Issue 4, 2015, Pages 366-372

  Richardson, A ^a   Wagland, R ^b   Foster, R ^b   Symons, J ^c   Davis, C ^a   Boyland, L ^d   Foster, C ^b   Addington Hall, J ^b  

^a SOUTHAMPTON GENERAL HOSPITAL   (United Kingdom)

^b UNIVERSITY OF SOUTHAMPTON   (United Kingdom)

^c Cancer of Unknown Primary Foundation   (United Kingdom)

^d Oakhaven Hospice Trust   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ANXIETY; CANCER OF UNKNOWN PRIMARY SITE; CAREGIVER; DOCTOR PATIENT RELATION; FEMALE; HUMAN; MALE; MIDDLE AGED; PALLIATIVE THERAPY; PATIENT CARE; PSYCHOLOGY; QUALITATIVE RESEARCH; UNCERTAINTY;

ADULT; AGED; ANXIETY; CAREGIVERS; CONTINUITY OF PATIENT CARE; FEMALE; HUMANS; MALE; MIDDLE AGED; NEOPLASMS, UNKNOWN PRIMARY; PALLIATIVE CARE; PHYSICIAN-PATIENT RELATIONS; QUALITATIVE RESEARCH; UNCERTAINTY;

EID: 84947930708     PISSN: 2045435X     EISSN: 20454368     Source Type: Journal    
DOI: 10.1136/bmjspcare-2013-000482     Document Type: Article

References (24)

1. Shaw P, Adams R, Jordan C, et al. A clinical review of the investigation and management of carcinoma of unknown primary in a single cancer network. Clin Oncol 2007;19:87-95.
2. National Institute of Health and Care Excellence. Metastatic malignant disease of unknown primary origin. Diagnosis and management of metastatic malignant disease of unknown primary origin: full guideline, NICE clinical guideline 104, National Collaborating Centre for Cancer, Cardiff, 2010.
3. Pavlidis N. Forty years' experience of treating cancer of unknown primary. Acta Oncol 2007;46:592-601.
4. Greco F, Pavlidis N. Treatment for patients with unknown primary carcinoma and unfavourable prognostic factors. Semin Oncol 2009;36:65-74.
5. Macmillan Cancer Support & Cancerbackup. Coping with cancer of unknown primary. Vol. 2012 Macmillan Cancer Support & Cancerbackup, London, 2011.
6. Boyland L, Davis C. Patients' experiences of carcinoma of unknown primary site: dealing with uncertainty. Palliat Med 2008;22:177-83.
7. Hoskin P, Makin W. Malignancy of unknown primary site. In: Hoskin P, Makin W. eds Oncology for palliative medicine. Oxford: Oxford University Press, 2003:253-61.
8. Ryan RC, Lawlor PG, Walshe JM. Cancer of unknown primary: addressing the communicative, ethical and medical challenges in clinical practice-a perspective from palliative care and supportive oncology. Prog Palliat Care 2010;18:291-6.
9. James N, Symons J. Chasing the primary. Cancer Nurs Pract 2010;9:10.
10. Fizazi K, Greco FA, Pavlidis N, et al. Cancers of unknown primary site: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up. Ann Oncol 2011;22(Suppl 6): vi64-8.
11. Yin RK. Case study research: design and methods. Sage Publications Inc., Thousand Oaks, California, 2003.
12. Ritchie J, Spencer L, O'Connor W. Carrying out qualitative analysis. In: Ritchie J, Lewis J, eds. Qualitative research practice: a guide for social science students and researchers. London: Sage Publications, 2003:219-62.
13. Dey I. Grounding grounded theory. San Diego, CA: Academic Press, 1999.
14. Freeman G, Hughes J. Continuity of care and the patient experience. London: The Kings Fund, 2010.
15. Mishel M. Reconceptualization of the uncertainty in illness theory. J Nurs Scholarsh 1990;20:225-32.
16. Shaha M, Cox C, Talman K, et al. Uncertainty in breast, prostate and colorectal cancer: implications for supportive care. J Nurs Scholarsh 2008;40:60-7.
17. Wiggins S, Whyte P, Higgins M, et al. The psychological consequences of predictive testing for Huntington's disease. N Engl J Med 1992;327:1402-5.
18. Symons J. Dilemmas in managing patients with cancer of unknown primary. Cancer Nurs Pract 2009; 8:27-32.
19. Politi M, Han P, Col N. Communicating uncertainty of harms and benefits of medical interventions. Med Decis Making 2008;27:681-95.
20. Politi M, Clark M, Ombao H, et al. Communicating uncertainty can lead to less decision satisfaction: necessary cost of involving patients in shared decision making. Health Expect 2011;14:84-91.
21. Gordon EJ, Daugherty CK. 'Hitting you over the head': oncologists' disclosure of prognosis to advanced cancer patients. Bioethics 2003;17:142-68.
22. Department of Health. NHS cancer plan. London: Department of Health, 2000.
23. NHS Confederation. Co-ordinated cancer care: better for patients, more efficient. Briefing 203, 2010.
24. Haggerty J, Reid R, Freeman G, et al. Continuity of care: a multidisciplinary review. BMJ 2003;327:1219-21.