Oximetry-supported self-management for chronic obstructive pulmonary disease: Mixed method feasibility pilot project

BMC Health Services Research

Volumn 15, Issue 1, 2015, Pages

  MacNab, Michele ^a   Lee, Siew Hwa ^b   McCloughan, Lucy ^a   Hanley, Janet ^c   McKinstry, Brian ^a   Pinnock, Hilary ^a  

^a UNIVERSITY OF EDINBURGH   (United Kingdom)

^b UNIVERSITY OF LIMERICK   (Ireland)

^c EDINBURGH NAPIER UNIVERSITY   (United Kingdom)

Author keywords

Chronic obstructive pulmonary disease (COPD); Delivery of care; Primary care; Self management; Telemonitoring

Indexed keywords

AGED; ANXIETY; DEPRESSION; EVALUATION STUDY; FEASIBILITY STUDY; FEMALE; HOTLINE; HUMAN; INFORMATION PROCESSING; MALE; OXIMETRY; PILOT STUDY; PROCEDURES; PSYCHOLOGY; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; QUESTIONNAIRE; SELF CARE;

AGED; ANXIETY; DEPRESSION; FEASIBILITY STUDIES; FEMALE; FOCUS GROUPS; HOTLINES; HUMANS; MALE; OXIMETRY; PILOT PROJECTS; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; SELF CARE; SURVEYS AND QUESTIONNAIRES;

EID: 84945151758     PISSN: None     EISSN: 14726963     Source Type: Journal    
DOI: 10.1186/s12913-015-1135-2     Document Type: Article

References (40)

1. Lozano R, Naghavi M, Foreman K, Lim S, Shibuya K, Aboyans V, et al. Global and regional mortality from 235 causes of death for 20 age groups in 1990 and 2010: a systematic analysis for the Global Burden of Disease Study 2010. Lancet. 2012;380:2095-128.
2. Barnett K, Mercer SW, Norbury M, Watt G, Wyke S, Guthrie B. Epidemiology of multimorbidity and implications for health care, research, and medical education: a cross-sectional study. Lancet. 2012;380:37-43.
3. Seemungal TAR, Donaldson GC, Bhowmik A, Jeffires DJ, Wedzicha JA. Time course and recovery of exacerbations in patients with chronic obstructive pulmonary disease. Am J of Respir Crit Care Med. 2000;161:1608-13.
4. Seemungal TAR, Donaldson GC, Paul EA, Bestall JC, Jeffries DJ, Wedzicha JA. Effect of exacerbation on quality of life in patients with chronic obstructive pulmonary disease. Am J of Respir Crit Care Med. 1998;157:1418-22.
5. Liddell A, Adshead S, Burgess E. Technology in the NHS: transforming the patient's experience of care. London: The King's Fund; 2008.
6. Stroetmann K, Kubitschke L, Robinson S, Stroetmann V, Cullen K, McDaid D. How can telehealth help in the provision of integrated care? EU Policy brief 13. Copenhagen: World Health Organization; 2010.
7. World Health Organization. 2008-2013 action plan for the global strategy for the prevention and control of noncommunicable diseases. Geneva: WHO; 2008.
8. Ure J, Pinnock H, Hanley J, Kidd G, McCall Smith E, Tarling A, et al. Piloting tele-monitoring in COPD: a mixed methods exploration of issues in design and implementation. Prim Care Respir J. 2012;21:57-64.
9. Jaana M, Pare G, Sicottle C. Home Telemonitoring for respiratory conditions: a systematic review. Am J Manag Care. 2009;15:313-20.
10. Casas A, Troosters T, Garcia-Aymerich J, Roca J, Hernandez C, Alonso A, et al. Integrated care prevents hospitalisations for exacerbations in COPD patients. Eur Respir J. 2006;28:1-8.
11. Sharma U, Clarke M. Nurses' and community support workers' experience of telehealth: a longitudinal case study. BMC Health Serv Res. 2014;14:164.
12. Sanders C, Rogers A, Bowen R, Bower P, Hirani S, Cartwright M, et al. Exploring barriers to participation and adoption of telehealth and telecare within the Whole System Demonstrator trial: a qualitative study. BMC Health Serv Res. 2012;12:220.
13. Pinnock H, Hanley J, McCloughan L, Todd A, Krishan A, Lewis S, et al. Effectiveness of telemonitoring integrated into existing clinical services on hospital admission for exacerbation of chronic obstructive pulmonary disease: researcher blind, multicentre, randomised controlled trial. BMJ. 2013;347:f6070.
14. Stoddart A, van der Pol M, Pinnock H, Hanley J, McCloughan L, Todd A, et al. Impact of telemonitoring for chronic obstructive pulmonary disease (COPD) on hospitalisation: cost and cost-utility analysis of a randomised controlled trial. J Telemed Telecare. 2015;21:108-18.
15. Fairbrother P, Pinnock H, Hanley J, McCloughan L, Sheikh A, Pagliari C, et al. Exploring telemonitoring and self-management by patients with chronic obstructive pulmonary disease: a qualitative study embedded in a randomized controlled trial. Pat Ed Counsel. 2013;93:403-10.
16. Craig P, Dieppe P, Macintyre S, Michie S, Nazareth I, Petticrew M. Developing and evaluating complex interventions: the new Medical Research Council guidance. Available http://www.mrc.ac.uk/documents/pdf/complex-interventions-guidance (Accessed July 2015)
17. Bestall JC, Paul EA, Garrod R, Garnham R, Jones PW, Wedzicha JA. Usefulness of the Medical Research Council (MRC) dyspnoea scale as a measure of disability in patients with chronic obstructive pulmonary disease. Thorax. 1999;54:581-6.
18. Jones PW, Quirk FH, Baveystock CM. The St Georges respiratory questionnaire. Respir Med. 1991;85:25-31.
19. Zigmond A, Snaith R. The hospital anxiety and depression scale. Acta Psychiatrica Scandinavia. 1983;67:361-70.
20. Brooks R, Rabin R, de Charro F, editors. The measurement and valuation of health status using EQ-5D: a European perspective: evidence from the EuroQol BIO MED research programme. Rotterdam: Kluwer Academic Publishers; 2003.
21. Hibbard J, Stockard J, Mahoney E, Tusler M. Development of the Patient Activation Measure (PAM): conceptualizing and measuring activation in patients and consumers HSR. Health Serv Res. 2004;39:1005-26.
22. Hibbard J, Cunningham P. How engaged are consumers in their health and health care, and why does it matter? HSC Res Brief. 2008;8:1-9.
23. Ritchie J, Spencer L. Qualitative data analysis for applied social research. In: Bryman A, Burgess RG, editors. Analysing qualitative data. London: Routledge; 1994. p. 173-93.
24. Jones PW. Interpreting thresholds for a clinically significant changes in health status in asthma and COPD. Eur Respir J. 2002;19:398-404.
25. Malterud K. Qualitative research: standards, challenges and guidelines. Lancet. 2001;358:483-8.
26. Pinnock H, Slack R, Pagliari C, Price D, Sheikh A. Understanding the potential role of mobile phone based monitoring on asthma self-management: qualitative study. Clin Exp Allergy. 2007;3:794-802.
27. Gibson CH. A concept analysis of empowerment. J Adv Nurs. 1991;16:354-61.
28. Walderstein N, Bernstein E. Empowerment education. Freire's ideas adapted to health education. Health Educ Q. 1988;15:379-94.
29. Dowling M, Murphy K, Cooney A, Casey D. A concept analysis of empowerment in chronic illness from the perspective of the nurse and the client living with chronic obstructive disease. J Nurs Healthcare Chronic Illness. 2011;3:476-87.
30. Williams V, Hardinge M, Ryan S, Farmer A. Patients' experience of identifying and managing exacerbations in COPD: a qualitative study. NPJ Prim Care Respir Med. 2014;24:14062.
31. Schermer T, Leenders J, In't Veen H, van den Bosch W, Wissink A, Smeele I, et al. Pulse oximetry in family practice: indications and clinical observations in patients with COPD. Fam Pract. 2009;26:524531.
32. Burton C, Pinnock H, McKinstry B. Changes in physiological measures with symptoms and decision to treat exacerbations of chronic obstructive pulmonary disease: analysis of telemonitoring data. J Telemed Telecare. 2014; Published on-line before print. doi:10.1177/1357633X14562733
33. Willis KF, Robinson A, Wood-Baker R, Turner P, Walters EH. Participating in research: exploring participation and engagement in a study of self-management for people with chronic obstructive pumonary disease. Qual Health Res. 2011;21:1273-82.
34. Rodwell C. An analysis of the concept of empowerment. J Adv Nurs. 1996;23:305-13.
35. Watson PB, Town GI, Holbrook N, Dwan C, Toop LJ, Drennan CJ. Evaluation of a self-management plan for chronic obstructive pulmonary disease. Eur Respir J. 1997;10:1267-71.
36. Fairbrother P, Pinnock H, Hanley J, McCloughan L, Sheikh A, Pagliari C, et al. Continuity, but at what cost? The impact of telemonitoring COPD on continuities of care: a qualitative study. Prim Care Respir J. 2012;21:322-8.
37. Kielmann T, Huby G, Powell A, Sheikh A, Price D, Williams S, et al. From support to boundary: a qualitative study of the border between self care and professional care. Pat Ed Counsel. 2010;79:55-61.
38. Bourbeau J, van der Palen J. Promoting effective self-management programmes to improve COPD. Eur Respir J. 2009;33:461-3.
39. Jones M, MacGillivray S, Kroll T, Zohoor AR, Connaghan J. A thematic analysis of the conceptualisation of self-care, self-management and self-management support in the long-term conditions management literature. J Nurs Healthcare Chronic Illness. 2011;3:174-85.
40. Bucknall CE, Miller G, Lloyd SM, Cleland J, McCluskey S, Cotton M, et al. Glasgow supported self-management trial (GSuST) for patients with moderate to severe COPD: randomized controlled trial. BMJ. 2012;344:e1060.