Inconsistent Approaches to Research Involving Cognitively Impaired Adults: Why the Broad View of Substituted Judgment Is Our Best Guide

American Journal of Bioethics

Volumn 15, Issue 10, 2015, Pages 66-67

  Yarborough, Mark ^a  

^a UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

COGNITIVE DEFECT; ETHICS; HUMAN; NON-THERAPEUTIC RESEARCH; PATIENT SELECTION;

COGNITION DISORDERS; HUMANS; NONTHERAPEUTIC HUMAN EXPERIMENTATION; PATIENT SELECTION;

EID: 84945128228     PISSN: 15265161     EISSN: 15360075     Source Type: Journal    
DOI: 10.1080/15265161.2015.1075803     Document Type: Note

References (10)

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3. J.W.Berg, 1996. Legal and ethical complexities of consent with cognitively impaired research subjects: Proposed guidelines. Journal of Law, Medicine & Ethics 24: 18–35.
4. K.C.Glass,, and M.Speyer-Ofenberg. 1996. Incompetent persons as research subjects and the ethics of minimal risk. Cambridge Quarterly Healthcare Ethics 5: 362–72.
5. National Bioethics Advisory Commission. 1998. Research involving persons with mental disorders that may affect decisionmaking capacity: Report and recommendations, vol. 1. Rockville MD: NBAC. Available at: http://hdl.handle.net/1805/21
6. National Institutes of Health, Office of Extramural Research. 2009. Research involving individuals with questionable capacity to consent: Points to consider. Available at: http://grants1.nih.gov/grants/policy/questionablecapacity.htm
7. Presidential Commission for the Study of Bioethical Issues. 2015. Gray Matters, vol. 2: Topics at the intersection of neuroscience, ethics, and society. Washington, DC. Available at: http://bioethics.gov/node/4704
8. U.S. Department of Health and Human Services, Office for Human Subjects Research. 1979. Belmont report. Ethical principles and guidelines for the protection of human subjects of research. Available at http://www.hhs.gov/ohrp/humansubjects/guidance/belmont.html
9. M.Yarborough, 2002. Adults are not big children: Examining surrogate consent to research using adults with dementia. Cambridge Quarterly of Healthcare Ethics 11: 160–68.
10. M.Yarborough, 2005. Deciding for others at the end of life: Storytelling and moral agency. Journal of Clinical Ethics 16: 127–43.