Medical Communication-related Informational Need and Resource Preferences Among Family Caregivers for Head and Neck Cancer Patients

Journal of Cancer Education

Volumn 30, Issue 4, 2015, Pages 786-791

  Longacre, Margaret L ^a   Galloway, Thomas J ^a   Parvanta, Claudia F ^b   Fang, Carolyn Y ^a  

^a FOX CHASE CANCER CENTER   (United States)

^b UNIVERSITY OF THE SCIENCES   (United States)

Author keywords

Caregiving; Head and neck cancer; Information seeking

Indexed keywords

ADAPTIVE BEHAVIOR; CAREGIVER; CROSS-SECTIONAL STUDY; EDUCATION; FEMALE; FOLLOW UP; HEAD AND NECK NEOPLASMS; HEALTH CARE PLANNING; HEALTH SERVICE; HUMAN; INFORMATION DISSEMINATION; INTERPERSONAL COMMUNICATION; MALE; MENTAL STRESS; MIDDLE AGED; NEEDS ASSESSMENT; PSYCHOLOGY;

ADAPTATION, PSYCHOLOGICAL; CAREGIVERS; COMMUNICATION; CROSS-SECTIONAL STUDIES; FEMALE; FOLLOW-UP STUDIES; HEAD AND NECK NEOPLASMS; HEALTH RESOURCES; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; INFORMATION DISSEMINATION; MALE; MIDDLE AGED; NEEDS ASSESSMENT; STRESS, PSYCHOLOGICAL;

EID: 84944514432     PISSN: 08858195     EISSN: 15430154     Source Type: Journal    
DOI: 10.1007/s13187-015-0814-3     Document Type: Article

References (21)

1. Murphy BA et al (2007) Quality of life research in head and neck cancer: a review of the current state of the science. Crit Rev Oncol Hematol 62(3):251–267
2. Ronis DL et al (2008) Changes in quality of life over 1 year in patients with head and neck cancer. Arch Otolaryngol Head Neck Surg 134(3):241–248
3. Epstein JBWD, Fischer DJ, Kim YO, Villines D (2009) Neuropathic and nociceptive pain in head and neck cancer patients receiving radiation therapy. Head Neck Oncol 1(26)
4. Hammerlid EA-EM, Bjordal K, Biörklund A, Evensen J, Boysen M, Jannert KSM, Sullivan M, Westin T (1999) A prospective multicentre study in Sweden and Norway of mental distress and psychiatric morbidity in head and neck cancer patients. Br J Cancer 80(5–6):766–774
5. Chen SC et al (2009) Distress and care needs in newly diagnosed oral cavity cancer patients receiving surgery. Oral Oncol 45(9):815–820
6. Gil FCG, Hilker I, Benito L (2012) First anxiety, afterwards depression: psychological distress in cancer patients at diagnosis and after medical treatment. Stress Health 28(5):362–367
7. Henry M HL, Morrison M, Yang JW, Li XJ, Lin S, Zeitouni A, Payne R, and Macdonald MAC, Kost K, Black M, Hier M (2013) Head and neck cancer patients want us to support them psychologically in the posttreatment period: survey results. Palliat Support Care: p. 1–13
8. Rodriguez CS, Blischak DM (2010) Communication needs of nonspeaking hospitalized postoperative patients with head and neck cancer. Appl Nurs Res 23(2):110–115
9. Chen SC et al (2014) Unmet supportive care needs and characteristics of family caregivers of patients with oral cancer after surgery. Psycho-Oncology
10. IOM (2008) Retooling for an aging America: building the health care workforce. The National Academies, Washington, DC
11. Glajchen M (2004) The emerging role and needs of family caregivers in cancer care. J Support Oncol 2(2):145–155
12. Clayman ML et al (2005) Autonomy-related behaviors of patient companions and their effect on decision-making activity in geriatric primary care visits. Soc Sci Med 60(7):1583–1591
13. Wright AA et al (2008) Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA 300(14):1665–1673
14. Shin DW et al (2013) Preferences for and experiences of family involvement in cancer treatment decision-making: patient-caregiver dyads study. Psychooncology 22(11):2624–2631
15. Longacre ML (2013) Cancer caregivers information needs and resource preferences. J Cancer Educ 28(2):297–305
16. Basch EM et al (2004) Use of information resources by patients with cancer and their companions. Cancer 100(11):2476–2483
17. James N et al (2007) A study of information seeking by cancer patients and their carers. Clin Oncol (R Coll Radiol) 19(5):356–362
18. DuBenske LL et al (2008) Caregivers’ differing needs across key experiences of the advanced cancer disease trajectory. Palliat Support Care 6(3):265–272
19. Fang CY et al (2012) Informational needs of head and neck cancer patients. Health Technol (Berl) 2(1):57–62
20. National Alliance for Caregiving & AARP (2004) Caregiving in the U.S.
21. Bredart A, Bouleuc C, Dolbeault S (2005) Doctor-patient communication and satisfaction with care in oncology. Curr Opin Oncol 17(4):351–354