Development and psychometric properties of the Pulmonary-specific Quality-of-Life Scale in lung transplant patients

Journal of Heart and Lung Transplantation

Volumn 34, Issue 8, 2015, Pages 1058-1065

  Hoffman, Benson M ^a   Stonerock, Gregory L ^a   Smith, Patrick J ^a   O'Hayer, C Virginia F ^b   Palmer, Scott ^a   Davis, Robert D ^a   Kurita, Keiko ^c   Carney, Robert M ^d   Freeland, Kenneth ^d   Blumenthal, James A ^a  

^a DUKE UNIVERSITY MEDICAL CENTER   (United States)

^b DREXEL UNIVERSITY COLLEGE OF MEDICINE   (United States)

^c NEW YORK UNIVERSITY SCHOOL OF MEDICINE   (United States)

^d WASHINGTON UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

COPD; cystic fibrosis; lung transplant; pulmonary fibrosis; quality of life

Indexed keywords

ADULT; ANXIETY; ARTICLE; BECK DEPRESSION INVENTORY; BRONCHIECTASIS; CHRONIC OBSTRUCTIVE LUNG DISEASE; CONTROLLED STUDY; CONVERGENT VALIDITY; COPING BEHAVIOR; CRONBACH ALPHA COEFFICIENT; CYSTIC FIBROSIS; DAILY LIFE ACTIVITY; DISEASE SEVERITY; DYSPNEA; EMOTIONAL STRESS; FEMALE; FIBROSING ALVEOLITIS; FORCED EXPIRATORY VOLUME; HUMAN; INTERNAL CONSISTENCY; INTERNAL VALIDITY; LUNG DISEASE; LUNG EMPHYSEMA; LUNG SARCOIDOSIS; LUNG TRANSPLANTATION; MAJOR CLINICAL STUDY; MALE; MIDDLE AGED; MOOD; MULTICENTER STUDY; PERCEIVED SOCIAL SUPPORT SCALE; POSTOPERATIVE PERIOD; PRIORITY JOURNAL; PSYCHOMETRY; PULMONARY HYPERTENSION; PULMONARY SPECIFIC QUALITY OF LIFE SCALE; PULMONARY VASCULAR DISEASE; QUALITY OF LIFE; QUESTIONNAIRE; RANDOMIZED CONTROLLED TRIAL; RATING SCALE; RELIABILITY; SCORING SYSTEM; SHORT FORM 36; SHORTNESS OF BREATH QUESTIONNAIRE; SKILL; SOCIAL SUPPORT ASSESSMENT; STATE TRAIT ANXIETY INVENTORY; TEST RETEST RELIABILITY; ADAPTIVE BEHAVIOR; HOSPITAL ADMISSION; LUNG DISEASES; PSYCHOLOGY; REPRODUCIBILITY; SENSITIVITY AND SPECIFICITY; YOUNG ADULT;

ADAPTATION, PSYCHOLOGICAL; ADULT; FEMALE; HUMANS; LUNG DISEASES; LUNG TRANSPLANTATION; MALE; MIDDLE AGED; PSYCHOMETRICS; QUALITY OF LIFE; REPRODUCIBILITY OF RESULTS; SENSITIVITY AND SPECIFICITY; SURVEYS AND QUESTIONNAIRES; WAITING LISTS; YOUNG ADULT;

EID: 84943582702     PISSN: 10532498     EISSN: 15573117     Source Type: Journal    
DOI: 10.1016/j.healun.2015.03.005     Document Type: Article

References (26)

1. Organ Procurement and Transplantation Network (OPTN) and Scientific Registry of Transplant Recipients (SRTR) OPTN/SRTR 2011 Annual Data Report 2012 Department of Health and Human Services, Health Resources and Services Administration, Healthcare Systems Bureau, Division of Transplantation Rockville, MD
2. C.A. Finlen Copeland, D.M. Vock, K. Pieper, D.B. Mark, and S.M. Palmer Impact of lung transplantation on recipient quality of life: a serial, prospective, multicenter analysis through the first posttransplant year Chest 143 2013 744 750
3. L. Myaskovsky, M.A. Dew, M.L. McNulty, and et al. Trajectories of change in quality of life in 12-month survivors of lung or heart transplant Am J Transplant 6 2006 1939 1947
4. C. Kugler, M. Strueber, U. Tegtbur, J. Neidermeyer, and A. Haverich Quality of life 1 year after lung transplantation Prog Transplant 14 2004 331 336
5. J.P. Singer, J. Chen, P.D. Blanc, and et al. A thematic analysis of quality of life in lung transplant: the existing evidence and implications for future directions Am J Transplant 12 2013 839 850
6. J.E. Ware Jr, and C.D. Sherbourne The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection Med Care 30 1992 473 483
7. S.M. Hunt, and J. McEwen The development of a subjective health indicator Sociol Health Illn 2 1980 231 246
8. L. Goetzmann, R. Klaghofer, R. Wagner-Huber, and et al. Quality of life and psychosocial situation before and after a lung, liver or an allogeneic bone marrow transplant Swiss Med Wkly 136 2006 281 290
9. K.M. Vermeulen, E.M. TenVergert, E.A. Verschuuren, M.E. Erasmus, and W. van der Bij Pre-transplant quality of life does not predict survival after lung transplantation J Heart Lung Transplant 27 2008 623 627
10. P.W. Jones, F.H. Quirk, and C.M. Baveystock The St George's Respiratory Questionnaire Respir Med 85 Suppl B 1991 25 31 discussion 33-7
11. J.T. Barr, G.E. Schumacher, S. Freeman, M. LeMoine, A.W. Bakst, and P.W. Jones American translation, modification, and validation of the St. George's Respiratory Questionnaire Clin Ther 22 2000 1121 1145
12. K. Stavem, O. Bjortuft, M.B. Lund, K. Kongshaug, O. Geiran, and J. Boe Health-related quality of life in lung transplant candidates and recipients Respiration 67 2000 159 165
13. E.G. Eakin, P.M. Resnikoff, L.M. Prewitt, A.L. Ries, and R.M. Kaplan Validation of a new dyspnea measure: the UCSD Shortness of Breath Questionnaire. University of California San Diego. Chest 113 1998 619 624
14. M.A. Napolitano, M.A. Babyak, S. Palmer, V. Tapson, R.D. Davis, and J.A. Blumenthal Effects of a telephone-based psychosocial intervention for patients awaiting lung transplantation Chest 122 2002 1176 1184
15. J.A. Blumenthal, M.A. Babyak, F.J. Keefe, and et al. Telephone-based coping skills training for patients awaiting lung transplantation J Consult Clin Psychol 74 2006 535 544
16. Methodology Committee of the Patient-Centered Outcomes Research Institute (PCORI) Methodological standards and patient-centeredness in comparative effectiveness research: the PCORI perspective JAMA 307 2012 1636 1640
17. B.B. Reeve, K.W. Wyrwich, A.W. Wu, and et al. ISOQOL recommends minimum standards for patient-reported outcome measures used in patient-centered outcomes and comparative effectiveness research Qual Life Res 22 2013 1889 1905
18. M.A. Hlatky, R.E. Boineau, M.B. Higginbotham, and et al. A brief self-administered questionnaire to determine functional capacity (the Duke Activity Status Index) Am J Cardiol 64 1989 651 654
19. A.L. Ries Minimally clinically important difference for the UCSD Shortness of Breath Questionnaire, Borg Scale, and Visual Analog Scale COPD 2 2005 105 110
20. G.R. Norman, J.A. Sloan, and K.W. Wyrwich Interpretation of changes in health-related quality of life: the remarkable universality of half a standard deviation Med Care 41 2003 582 592
21. A.T. Beck, R.A. Steer, and G.K. Brown Manual for the Beck Depression Inventory II 1996 Psychological Corporation San Antonio, TX
22. J. Viljoen, G. Iverson, S. Griffiths, and T. Woodward Factor structure of the Beck Depression Inventory-II in a medical outpatient sample J Clin Psychol Med Settings 10 2003 289 291
23. C.D. Spielberger Manual for the State-Trait Anxiety Inventory STAI (Form Y) 1983 Mind Garden Palo Alto, CA
24. J.A. Blumenthal, M.M. Burg, J. Barefoot, R.B. Williams, T. Haney, and G. Zimet Social support, type A behavior, and coronaryartery disease Psychosom Med 49 1987 331 340
25. ATS Committee on Proficiency Standards for Clinical Pulmonary Function Laboratories AST Statement: Guidelines for the six-minute walk test Am J Respir Crit Care Med 166 2002 111 117
26. J.L. Hankinson, J.R. Odencrantz, and K.B. Fedan Spirometric reference values from a sample of the general U.S. population Am J Respir Crit Care Med 159 1999 179 187