Opting out of dialysis - Exploring patients' decisions to forego dialysis in favour of conservative non-dialytic management for end-stage renal disease

Health Expectations

Volumn 18, Issue 5, 2015, Pages 1018-1029

  Seah, Angeline S T ^a,b   Tan, Fiona ^c   Srinivas, Subramaniam ^d,e   Wu, Huei Yei ^f   Griva, Konstadina ^d  

^a NATIONAL UNIVERSITY OF SINGAPORE   (Singapore)

^b KHOO TECK PUAT HOSPITAL   (Singapore)

^c INSTITUTE OF MENTAL HEALTH   (Singapore)

^d NATIONAL UNIVERSITY OF SINGAPORE   (Singapore)

^e NATIONAL UNIVERSITY HEALTH SYSTEM   (Singapore)

^f TAN TOCK SENG HOSPITAL   (Singapore)

Author keywords

Conservative management; Decision making; Dialysis; Palliative

Indexed keywords

ADVERSE EFFECTS; AGED; CROSS-SECTIONAL STUDY; DECISION MAKING; FEMALE; HOSPITALIZATION; HUMAN; INTERVIEW; KIDNEY FAILURE, CHRONIC; MALE; MIDDLE AGED; PALLIATIVE THERAPY; PATIENT CARE; PROGNOSIS; PSYCHOLOGY; RENAL REPLACEMENT THERAPY; SINGAPORE; TREATMENT REFUSAL; VERY ELDERLY;

AGED; AGED, 80 AND OVER; CROSS-SECTIONAL STUDIES; DECISION MAKING; FEMALE; HOSPITALIZATION; HUMANS; INTERVIEWS AS TOPIC; KIDNEY FAILURE, CHRONIC; MALE; MIDDLE AGED; PALLIATIVE CARE; PATIENT CARE TEAM; PROGNOSIS; RENAL DIALYSIS; SINGAPORE; TREATMENT REFUSAL;

EID: 84942295892     PISSN: 13696513     EISSN: 13697625     Source Type: Journal    
DOI: 10.1111/hex.12075     Document Type: Article

References (20)

1. Grassmann A, Gioberge S, Moeller S, Brown G. ESRD patients in 2004: global overview of patient numbers, treatment modalities and associated trends. Nephrology, Dialysis, Transplantation, 2005; 20: 2587-2593.
2. National Kidney Foundation Singapore. Understanding End Stage Renal Disease [Internet]. 2009 [cited 2012 Mar 27]. Available from: http://www.nkfs.org/index.php?option=com_content&task=view&id=72&Itemid=101.
3. Murtagh FEM, Addington-Hall JM, Edmonds PM et al. Symptoms in advanced renal disease: a cross-sectional survey of symptom prevalence in stage 5 chronic kidney disease managed without dialysis. J Palliat Med, 2007; 10: 1266-1276.
4. Munshi SK, Vijayakumar N, Taub NA, Bhullar H, Lo TCN, Warwick G. Outcome of renal replacement therapy in the very elderly. Nephrology, Dialysis, Transplantation, 2001; 16: 128-133.
5. Murtagh FEM, Cohen LM, Germain MJ. The "No Dialysis" Option. Adv Chronic Kidney Dis, 2011; 18: 443-449.
6. Leggat JE Jr, Bloembergen WE, Levine G, Hulbert-Shearon TE, Port FK. An analysis of risk factors for withdrawal from dialysis before death. Journal of the American Society of Nephrology, 1997; 8: 1755-1763.
7. Fujimaki H, Kasuya Y, Kawaguchi S et al. Refusal of initiation of dialysis by elderly patients with chronic renal failure. Jpn J Geriatr, 2005; 42: 417-422.
8. Visser A, Dijkstra GJ, Kuiper D et al. Accepting or declining dialysis: considerations taken into account by elderly patients with end-stage renal disease. J Nephrol, 2009; 22: 794-799.
9. Lyons E, Coyle A. Analysing qualitative data in psychology [Internet]. Sage Publications Ltd; 2007 [cited 2012 Sep 8]. Available from: http://books.google.com.sg/books?hl=en&lr=&id=ImxS-Qu_VkC&oi=fnd&pg=PR5&dq=Analysing+Qualitative+Data+in+Psychology&ots=nqsnQ69DuP&sig=1Q9TKqGBjgNTmSc418OT-iCk2WY
10. Sprangers MA, Schwartz CE. Integrating response shift into health-related quality of life research: a theoretical model. Social Science and Medicine, 1999; 48: 1507-1515.
11. Schwartz C, Bode R, Repucci N, Becker J, Sprangers M, Fayers P. The clinical significance of adaptation to changing health: a meta-analysis of response shift. Quality of Life Research, 2006; 15: 1533-1550.
12. Noble H, Meyer J, Bridges J, Kelly D, Johnson B. Patient experience of dialysis refusal or withdrawal - A review of the literature. J Ren Care, 2008; 34: 94-100.
13. Neely KJ, Roxe DM. Palliative care/hospice and the withdrawal of dialysis. J Palliat Med, 2000; 3: 57-67.
14. Ashby M, op't Hoog C, Kellehear A et al. Renal dialysis abatement: lessons from a social study. Palliative Medicine, 2005; 19: 389-396.
15. Johnston S, Noble H. Factors influencing patients with stage 5 chronic kidney disease to opt for conservative management: a practitioner research study. Journal of Clinical Nursing, 2012; 21: 1215-1222.
16. Noble H, Meyer J, Bridges J, Kelly D, Johnson B. Reasons renal patients give for deciding not to dialyze: a prospective qualitative interview study. Dial Transplant, 2009; 38: 82-89.
17. Chan CH, Noble H, Lo SH, Kwan TH, Lee Slan, Sze WK. Palliative care for patients with end-stage renal disease: experiences from Hong Kong. Int J Palliat Nurs, 2007; 13: 310-314.
18. Maslow AH. A theory of human motivation. Psychological Review, 1943; 50: 370-396.
19. Kurella M, Mapes DL, Port FK, Chertow GM. Correlates and outcomes of dementia among dialysis patients: the dialysis outcomes and practice patterns study. Nephrology, Dialysis, Transplantation, 2006; 21: 2543-2548.
20. Murray AM. Cognitive impairment in the aging dialysis and chronic kidney disease populations: an occult burden. Adv Chronic Kidney Dis, 2008; 15: 123-132.