A qualitative analysis of relatives', health professionals' and service users' views on the involvement in care of relatives in Bipolar Disorder

BMC Psychiatry

Volumn 15, Issue 1, 2015, Pages

  Chatzidamianos, Gerasimos ^a   Lobban, Fiona ^b   Jones, Steven ^b  

^a LANCASTER UNIVERSITY   (United Kingdom)

^b LANCASTER UNIVERSITY   (United Kingdom)

Author keywords

Barrier; Bipolar disorder; Carers; Framework analysis; Mental health; Policy making; Qualitative; Relative involvement; Relatives

Indexed keywords

ADULT; ARTICLE; ATTITUDE; ATTITUDE TO HEALTH; BIPOLAR DISORDER; CLINICAL ARTICLE; CULTURAL FACTOR; CULTURAL IDENTIFICATION; FAMILY RELATION; HEALTH BELIEF; HEALTH CARE ACCESS; HEALTH CARE CONCEPTS; HEALTH CARE POLICY; HEALTH CARE SYSTEM; HEALTH PERSONNEL ATTITUDE; HUMAN; INTERPERSONAL COMMUNICATION; MENTAL HEALTH CARE; MIDDLE AGED; PRACTICE GUIDELINE; QUALITATIVE ANALYSIS; RELATIVE ATTITUDE; RELATIVE INVOLVEMENT IN CARE; SERVICE USER ATTITUDE; SOCIAL ASPECT; THINKING; WORLDVIEW; CAREGIVER; FAMILY; FEMALE; MALE; NURSING; PSYCHOLOGY; QUALITATIVE RESEARCH;

ATTITUDE OF HEALTH PERSONNEL; BIPOLAR DISORDER; CAREGIVERS; FAMILY; FEMALE; HUMANS; MALE; MIDDLE AGED; QUALITATIVE RESEARCH;

EID: 84942162792     PISSN: None     EISSN: 1471244X     Source Type: Journal    
DOI: 10.1186/s12888-015-0611-x     Document Type: Article

References (71)

1. Goodwin FK, Jamison KR. Manic-Depressive Illness. Bipolar Disorders and Recurrent Depression. 2nd ed. USA: Oxford University Press; 2007.
2. World Health Organisation. The World health report: 2001; Mental health: new understanding, new hope. Geneva, Switzerland: World Health Organisation; 2001.
3. Moltz DA. Bipolar Disorder and the Family: An Integrative Model. Fam Process. 1993;32(4):409-23.
4. Perlick DA, Hohenstein JM, Clarkin JF, Kaczynski R, Rosenheck RA. Use of mental health and primary care services by caregivers of patients with bipolar disorder: a preliminary study. Bipolar Disord. 2005;7(2):126-35.
5. Girón M, Fernández-Yañez A, Mañá-Alvarenga S, Molina-Habas A, Nolasco A, Gómez-Beneyto M. Efficacy and effectiveness of individual family intervention on social and clinical functioning and family burden in severe schizophrenia: a 2-year randomized controlled study. Psychol Med. 2010;40(01):73-84.
6. Maji KR, Sood M, Sagar R, Khandelwal SK. A follow-up study of family burden in patients with bipolar affective disorder. Int J Soc Psychiatry. 2012;58(2):217-23.
7. Ogilvie AD, Morant N, Goodwin GM. The burden on informal caregivers of people with bipolar disorder. Bipolar Disord. 2005;7:25-32.
8. Steele A, Maruyama N, Galynker I. Psychiatric symptoms in caregivers of patients with bipolar disorder: A review. J Affect Disord. 2010;121(1-2):10-21.
9. Stalker K. Carers: An overview of concepts, developments and debates. In: Stalker K, editor. Reconceptualising Work with 'Carers': New Directions for Policy and Practice. London: Jessica Kingsley; 2003. p. 15-36.
10. Wallcraft J, Amering M, Freidin J, Davar B, Froggatt D, Jafri H, et al. Partnerships for better mental health worldwide: WPA recommendations on best practices in working with service users and family carers. World Psychiatry. 2011;10(3):229-36.
11. Ward-Griffin C, Schofield R, Vos S, Coatsworth-Puspoky R. Canadian Families Caring for Members With Mental Illness: A Vicious Cycle. J Fam Nurs. 2005;11(2):140-61.
12. Department of Health. Caring about Carers: A National Strategy for Carers. London: Her Majesty's Stationery Office; 1999.
13. Department of Health. The NHS Improvement Plan. Putting People at the Heart of Public Services. London: Her Majesty's Stationery Office; 2004.
14. Department of Health. Carers at the heart of 21st century families and communities: a caring system on your side, a life of your own. London: Her Majesty's Stationery Office; 2008.
15. Department of Health. Report of the Standing Commission on Carers 2007 to 2009: Carers at the heart of 21st century families and communities. London: Her Majesty's Stationery Office; 2009.
16. Department of Health. Recognised, valued and supported: next steps for the Carers Strategy. London: Her Majesty's Stationery Office; 2010.
17. Government HM. Carers (Recognition and Services) Act 1995. London: Her Majesty's Stationery Office; 1995.
18. Government HM. Carers and Disability Children Act 2000. London: Her Majesty's Stationery Office; 2000.
19. Government HM. Carers (Equal Opportunities) Act 2004. London: Her Majesty's Stationery Office; 2004.
20. SAMHSA. Transforming mental health care in America-The federal action agenda: First steps. In: Edited by United States Department of Health and Human Services: Substance Abuse & Mental Health Services Administration (SAMHSA). Rockville, USA: Department of Health and Human Services; 2009.
21. Australian Government. Carer Recognition Act. Australia: Australian Govenrment; 2010.
22. Mitchell PB. Australian and New Zealand clinical practice guidelines for the treatment of bipolar disorder. Aust N Z J Psychiatry. 2004;38(5):280-305.
23. NICE. Bipolar disorder: the assessment and management of bipolar disorder in adults, children and young people in primary and secondary care. In: Edited by National Institute for Health and Clinical Excellence, vol. 185. London, U.K.: National Clinical Practice Guideline; 2014.
24. American Psychiatric Association. Practice guideline for the treatment of patients with major depressive disorder, vol. 159. 3rd ed. Arlington (VA): American Psychiatric Association; 2010.
25. Geddes JR, Miklowitz DJ. Treatment of bipolar disorder. Lancet. 2013;381(9878):1672-82.
26. Miklowitz DJ, Axelsen DA, Birmaher B, George EL, Taylor DO, Schneck CD, et al. Family-focused treatment for adolescents with bipolar disorder: results of a 2-year randomized trial. Arch Gen Psychiatry. 2008;65:1053-61.
27. Miklowitz DJ, Schneck CD, Singh MK, Taylor DO, George EL, Cosgrove VE, et al. Early intervention for symptomatic youth at risk for bipolar disorder: a randomized trial of family-focused therapy. J Am Acad Child Adolesc Psychiatry. 2013;52(2):121-31.
28. Perlick DA, Miklowitz DJ, Lopez N, Chou J, Kalvin C, Adzhiashvili V, et al. Family-focused treatment for caregivers of patients with bipolar disorder. Bipolar Disord. 2010;12(6):627-37.
29. Reinares M, Colom F, Sanchez-Moreno J, Torrent C, Martinez-Aran A, Comes M, et al. Impact of caregiver group psychoeducation on the course and outcome of bipolar patients in remission: a randomized controlled trial. Bipolar Disord. 2008;10(4):511-9.
30. Morriss RK, Faizal MA, Jones AP, Williamson PR, Bolton C, McCarthy JP. Interventions for helping people recognise early signs of recurrence in bipolar disorder. Cochrane Database Syst Rev. 2007;24(1):CD004854.
31. D'Souza R, Piskulic D, Sundram S. A brief dyadic group based psychoeducation program improves relapse rates in recently remitted bipolar disorder: a pilot randomised controlled trial. J Affect Disord. 2010;120(1):272-6.
32. Peters S, Pontin E, Lobban F, Morriss R. Involving relatives in relapse prevention for bipolar disorder: a multi-perspective qualitative study of value and barriers. BMC Psychiatry. 2011;11(1):172.
33. Worthington A, Rooney P. The Triangle of Care; Carers included: A guide to best practice in acute mental health care. London: The Princess Royal Trust for Carers and the National Mental Health Development Unit; 2010.
34. Worthington A, Rooney P, Hannan R. The Triangle of Care. Carers Included: A Guide to Best Practice in Mental Health Care in England. 2nd ed. London: Carers Trust; 2013.
35. Miklowitz DJ. Bipolar disorder: a family-focused treatment approach. 2nd ed. New York; London: Guilford; 2008.
36. Pompili M, Harnic D, Gonda X, Forte A, Dominici G, Innamorati M, et al. Impact of living with bipolar patients: Making sense of caregivers' burden. World J Psychiatry. 2014;4(1):1-12.
37. Fadden G. Training and disseminating family interventions for schizophrenia: developing family intervention skills with multi-disciplinary groups. J Fam Ther. 2006;28(1):23-38.
38. Burbach FR. Developing systemically-oriented secondary care mental health services. Plymouth: Plymouth University; 2013.
39. Pontin E, Peters S, Lobban F, Rogers A, Morriss R. Enhanced relapse prevention for bipolar disorder: a qualitative investigation of value perceived for service users and care coordinators. Implement Sci. 2009;4(1):4.
40. Office for National Statistics. Socio-demographic differences in general practice consultation rates for psychiatric disorders among patients aged 16-64. London: UK Statistics Authority; 2001.
41. Ritchie J, Spencer L. Qualitative data analysis for applied policy research. In: Bryman A, Burgess RG, editors. Analyzing qualitative data. London: Routledge; 1994. p. 173-94.
42. Srivastava A, Thomson SB. Framework Analysis: A Qualitative Methodology for Applied Policy Research. JOAAG. 2009, 4(2)
43. INVOLVE. Briefing notes for researchers: involving the public in NHS, public health and social care research. Eastleigh INVOLVE; 2012
44. Clark JP. How to peer review a qualitative manuscript. In: Godlee F, Jefferson T, editors. Peer Review in Health Sciences. 2nd ed. London: BMJ Books; 2003. p. 219-35.
45. First MB, Gibbon M, Spitzer RL, Williams JBW, Benjamin LS. Structured Clinical Interview for DSM-IV Axis II Personality Disorders, (SCID-II). Washington, DC: American Psychiatric Press, Inc; 1997.
46. First MB, Spitzer RL, Gibbon M, Williams JBW. Structured Clinical Interview for DSM-IV Axis I Disorders, Clinician Version (SCID-CV). Washington, DC: American Psychiatric Press, Inc; 1996.
47. Nicholson TRJ, Cutter W, Hotopf M. Assessing mental capacity: the Mental Capacity Act. BMJ. 2008;336(7639):322-5.
48. Gale NK, Heath G, Cameron E, Rashid S, Redwood S. Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC Med Res Methodol. 2013;13:117.
49. Lewins A, Silver C. Using software in qualitative research: A step-by-step guide. London: Sage; 2007.
50. van der Voort TY, Goossens PJ, van der Bijl JJ. Alone together: A grounded theory study of experienced burden, coping, and support needs of spouses of persons with a bipolar disorder. Int J Ment Health Nurs. 2009;18(6):434-43.
51. Eisner E, Barrowclough C, Lobban F, Drake R. Qualitative investigation of targets for and barriers to interventions to prevent psychosis relapse. BMC Psychiatry. 2014;14(1):201.
52. Kaas MJ, Suzanne L, Peitzinan C. Barriers to Collaboration Between Mental Health Professionals and Families in the Care of Persons with Serious Mental Illness. Issues Ment Health Nurs. 2003;24(8):741.
53. Winefield HR, Burnett PL. Barriers to an alliance between family and professional caregivers in chronic schizophrenia. J Ment Health. 1996;5(3):223-32.
54. Wong DFK. Stress factors and mental health of carers with relatives suffering from schizophrenia in Hong Kong: implications for culturally sensitive practices. Br J Soc Work. 2000;30(3):365-82.
55. Time-to-Change. Family matters: A report into attitudes towards mental health problems in the South Asian community in Harrow, North West London. London: Time-to-Change; 2011.
56. Herrman H, Saxena S, Moodie R. Promoting Mental Health: Concepts, Emerging Evidence, Practice. Report of the WHO, Department of Mental Health and Substance Abuse in collaboration with the Victorian Health Promotion Foundation and the University of Melbourne. Geneva, Switzerland: Organisation WH; 2005.
57. Rowe J. Great expectations: a systematic review of the literature on the role of family carers in severe mental illness, and their relationships and engagement with professionals. J Psychiatr Ment Health Nurs. 2012;19(1):70-82.
58. Stiberg E, Holand U, Olstad R, Lorem G. Teaching Care and Cooperation with Relatives: Video as a Learning Tool in Mental Health Work. Issues Ment Health Nurs. 2012;33(8):528-35.
59. Dixon LB, McFarlane WR, Lefley H, Lucksted A, Cohen M, Falloon I, et al. Evidence-based practices for services to families of people with psychiatric disabilities. Psychiatr Serv. 2001;52(7):903-10.
60. Allison S, Fadden G, Hart D, Launer M, Siddle J. Carers and confidentiality in mental health. Issues involved in information sharing. In: Partners in Care Campaign. London: Royal College of Psychiatrists; 2004.
61. Cordess C. Confidentiality and Mental Health. London: Jessica Kingsley Publishers; 2001.
62. Pinfold V, Corry P. Who cares? The experiences of mental health carers accessing services and information. London: Rethink Publication; 2003.
63. Slade M, Pinfold V, Rapaport J, Bellringer S, Banerjee S, Kuipers E, et al. Best practice when service users do not consent to sharing information with carers. Brit J Psychiatry. 2007;190(2):148-55.
64. Pinfold V, Farmer P, Rapaport J, Bellringer S, Huxley P, Murray J, et al. Positive and Inclusive? Effective ways for professionals to involve carers in information sharing. Kingston-Upon-Thames: Rethink severe mental illness; 2004.
65. Bauer MS. A review of quantitative studies of adherence to mental health clinical practice guidelines. Harv Rev Psychiatry. 2002;10(3):138-53.
66. Francke A, Smit M, de Veer A, Mistiaen P. Factors influencing the implementation of clinical guidelines for health care professionals: A systematic meta-review. BMC Med Inform Decis Mak. 2008;8(1):38.
67. Kim HW, Salyers MP. Attitudes and Perceived Barriers to Working with Families of Persons with Severe Mental Illness: Mental Health Professionals' Perspectives. Community Ment Hlt J. 2008;44(5):337-45.
68. Heru AM. Basic Family Skills for an Inpatient Psychiatrist: Meeting Accreditation Council for Graduate Medical Education Core Competency Requirements. Fam Syst Health. 2004;22(2):216-27.
69. Cleary M, Horsfall J, Happell B. Establishing clinical supervision in acute mental health inpatient units: acknowledging the challenges. Issues Ment Health Nurs. 2010;31(8):525-31.
70. Fazio RH, Pietri ES, Rocklage MD, Shook NJ. Chapter Three-Positive Versus Negative Valence: Asymmetries in Attitude Formation and Generalization as Fundamental Individual Differences. In: James MO, editor. Advances in Experimental Social Psychology. Volume 51. Mark PZ: Academic; 2015. p. 97-146.
71. McLennan D, Barnes H, Noble M, Davies J, Garratt E, Dibben C. The English Indices of Deprivation 2010. Department for Communities and Local Government. London: Her Majesty's Stationery Office; 2011. p. 145.