The adolescents experience when a parent has advanced cancer: A qualitative inquiry

Palliative Medicine

Volumn 29, Issue 9, 2015, Pages 851-858

  Phillips, Farya ^a   Lewis, Frances M ^b  

^a UNIVERSITY OF TEXAS AT AUSTIN   (United States)

^b UNIVERSITY OF WASHINGTON   (United States)

Author keywords

Adolescents; advanced cancer; metastatic; parental cancer

Indexed keywords

ADOLESCENT; ADOLESCENT BEHAVIOR; ADVANCED CANCER; ARTICLE; ATTITUDE TO ILLNESS; BREAST CANCER; CANCER STAGING; CARCINOID; CHILD; CHILD DEVELOPMENT; CHILD PARENT RELATION; CLINICAL ARTICLE; COLORECTAL CANCER; COPING BEHAVIOR; DISEASE DURATION; FAMILY RELATION; FAMILY STRESS; FEMALE; HUMAN; INTERPERSONAL COMMUNICATION; LIFE EVENT; MALE; MALIGNANT NEOPLASTIC DISEASE; PARENTAL CANCER; QUALITATIVE RESEARCH; SCHOOL CHILD; SELF CARE; SELF CONCEPT; SEMI STRUCTURED INTERVIEW; SOCIAL SUPPORT; ADAPTIVE BEHAVIOR; CHILD PSYCHOLOGY; ETIOLOGY; MENTAL STRESS; NEOPLASM; PSYCHOLOGY;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; CHILD; COMMUNICATION; FEMALE; HUMANS; MALE; NEOPLASMS; PARENT-CHILD RELATIONS; PSYCHOLOGY, ADOLESCENT; QUALITATIVE RESEARCH; STRESS, PSYCHOLOGICAL;

EID: 84941958893     PISSN: 02692163     EISSN: 1477030X     Source Type: Journal    
DOI: 10.1177/0269216315578989     Document Type: Article

References (36)

1. Weaver KE, Rowland JH, Alfano CM, et al. Parental cancer and the family. Cancer 2010; 116 (18): 4395-4401.
2. Semple CJ, McCance T,. Parents experience of cancer who have young children: a literature review. Cancer Nurs 2010; 33 (2): 110-118.
3. Christ GH, Siegel K, Sperber D,. Impact of parental terminal cancer on adolescents. Am J Orthopsychiatry 1994; 64 (4): 604-613.
4. Siegel K, Karus D, Raveis VH,. Adjustment of children facing the death of a parent due to cancer. J Am Acad Child Adolesc Psychiatry 1996; 35 (4): 442-450.
5. Huizinga GA, Visser A, Zelders-Steyn YE, et al. Psychological impact of having a parent with cancer. Eur J Cancer 2011; 47 (Suppl. 3): S239-S246.
6. Spira M, Kenemore E,. Adolescent daughters of mothers with breast cancer: impact and implications. Clin Soc Work J 2000; 28 (2): 183-195.
7. Pedersen S, Revenson TA,. Parental illness, family functioning, and adolescent well-being: a family ecology framework to guide research. J Fam Psychol 2005; 19 (3): 404-419.
8. Davey M, Gulish L, Askew J, et al. Adolescents coping with moms breast cancer: developing family intervention programs. J Marital Fam Ther 2005; 31 (2): 247-258.
9. Sears HA, Sheppard HM,. I just wanted to be the kid: adolescent girls experiences of having a parent with cancer. Can Oncol Nurs J 2004; 14 (1): 18-25.
10. Stiffler D, Haase J, Hosei B, et al. Parenting experiences with adolescent daughters when mothers have breast cancer. Oncol Nurs Forum 2008; 35 (1): 113-120.
11. Erikson EH,. Identity and the life cycle. New York; London: W. W. Norton & Company, 1994.
12. Zeman J, Garber J,. Display rules for anger, sadness, and pain: it depends on who is watching. Child Dev 1996; 67 (3): 957-973.
13. Northouse LL, Cracchiolo-Caraway A, Appel CP,. Psychologic consequences of breast cancer on partner and family. Semin Oncol Nurs 1991; 7: 216-223.
14. Phillips F,. Adolescents living with a parent with advanced cancer: a review of the literature. Psychooncology 2014; 23: 1323-1339.
15. Turner J, Clavarino A, Yates P, et al. Development of a resource for parents with advanced cancer: What do parents want? Palliat Support Care 2007; 5 (2): 135-145.
16. Turner J, Clavarino A, Yates P, et al. Enhancing the supportive care of parents with advanced cancer: development of a self-directed educational manual. Eur J Cancer 2008; 44 (12): 1625-1631.
17. Saldinger A, Cain AC, Porterfield K, et al. Facilitating attachment between school-aged children and a dying parent. Death Stud 2004; 28 (10): 915-940.
18. OCallaghan C, OBrien E, Magill L, et al. Resounding attachment: cancer inpatients song lyrics for their children in music therapy. Support Care Cancer 2009; 17 (9): 1149-1157.
19. Bell K, Ristovski-Slijepcevic S,. Metastatic cancer and mothering: being a mother in the face of a contracted future. Med Anthropol 2011; 30 (6): 629-649.
20. Turner J, Kelly B, Swanson C, et al. Psychosocial impact of newly diagnosed advanced breast cancer. Psychooncology 2005; 14 (5): 396-407.
21. Sheehan DK, Draucker CB,. Interaction patterns between parents with advanced cancer and their adolescent children. Psychooncology 2011; 20 (10): 1108-1115.
22. Rainville F, Dumont S, Simard S, et al. Psychological distress among adolescents living with a parent with advanced cancer. J Psychosoc Oncol 2012; 30 (5): 519-534.
23. Sigal JJ, Perry JC, Robbins JM, et al. Maternal preoccupation and parenting as predictors of emotional and behavioral problems in children of women with breast cancer. J Clin Oncol 2003; 21 (6): 1155-1160.
24. Kuhne F, Krattenmacher T, Bergelt C, et al. Parental palliative cancer: psychosocial adjustment and health-related quality of life in adolescents participating in a German family counselling service. BMC Palliat Care 2012; 11 (1): 21.
25. Lazarus RS, Folkman S,. Stress, appraisal, and coping. New York: Springer, 1984.
26. Compas BE, Worsham NL, Epping-Jordan JE, et al. When mom or dad has cancer: markers of psychological distress in cancer patients, spouses, and children. Health Psychol 1994; 13 (6): 507-515.
27. Compas BE, Worsham NL, Ey S, et al. When mom or dad has cancer: II. Coping, cognitive appraisals, and psychological distress in children of cancer patients. Health Psychol 1996; 15 (3): 167-175.
28. Lazarus R,. Coping theory and research: past, present, and future. Psychosom Med 1993; 55 (3): 234-247.
29. Lewis F,. The familys stuck points in adjusting to cancer. In: Holland JC, Breitbart WS, Jacobsen PB, et al. (eds) Psychooncology. New York: Oxford University Press, 2010, pp. 511-515.
30. Glaser B, Strauss A,. Grounded theory: the discovery of grounded theory. New York: Aldine de Gruyter, 1967.
31. Lewis FM, Deal LW,. Balancing our lives: a study of the married couples experience with breast cancer recurrence. Oncol Nurs Forum 1995; 22 (6): 943-953.
32. Moustakas C,. Phenomenological research methods. Thousand Oaks, CA: SAGE, 1994.
33. Grbich C,. Qualitative data analysis: an introduction. London: SAGE, 2007.
34. Strauss A, Corbin J,. Grounded theory methodology: an overview. In: Denzin NK, Lincoln YS, (eds) Handbook of qualitative research. Thousand Oaks, CA: SAGE, 1994.
35. Guba EG, Lincoln YS,. Naturalistic inquiry. Newbury Park, CA: SAGE, 1985.
36. Issel LM, Ersek M, Lewis F,. How children cope with mothers breast cancer. Oncol Nurs Forum 1990; 17 (3): 5-12.