Studying hospitalizations and mortality in the Netherlands: Feasible and valid using two-step medical record linkage with nationwide registers

PLoS ONE

Volumn 10, Issue 7, 2015, Pages

  Sieswerda, Elske ^a   Font Gonzalez, Anna ^a   Dijkgraaf, Marcel G W ^b   Geskus, Ronald B ^b   Heinen, Richard C ^a   Van Der Pal, Helena J ^a,b   Van Leeuwen, Flora E ^c   Caron, Huib N ^a   Kremer, Leontien C ^a   Reitsma, Johannes B ^d  

^a EMMA CHILDREN S HOSPITAL   (Netherlands)

^b ACADEMIC MEDICAL CENTER   (Netherlands)

^c NETHERLANDS CANCER INSTITUTE   (Netherlands)

^d UNIVERSITY MEDICAL CENTER UTRECHT   (Netherlands)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; CANCER MORTALITY; CANCER PROGNOSIS; CANCER REGISTRY; CANCER SURVIVOR; CHILDHOOD CANCER; FEASIBILITY STUDY; FEMALE; FOLLOW UP; HEALTH CARE UTILIZATION; HOSPITALIZATION; HUMAN; MAJOR CLINICAL STUDY; MALE; MEDICAL RECORD; NETHERLANDS; POPULATION RESEARCH; TREND STUDY; ADOLESCENT; CHILD; DISEASE FREE SURVIVAL; EPIDEMIOLOGY; FACTUAL DATABASE; INFANT; MORTALITY; NEOPLASMS; NEWBORN; PRESCHOOL CHILD; REGISTER; RETROSPECTIVE STUDY; SURVIVAL RATE;

ADOLESCENT; CHILD; CHILD, PRESCHOOL; DATABASES, FACTUAL; DISEASE-FREE SURVIVAL; FEMALE; HOSPITALIZATION; HUMANS; INFANT; INFANT, NEWBORN; MALE; NEOPLASMS; NETHERLANDS; REGISTRIES; RETROSPECTIVE STUDIES; SURVIVAL RATE;

EID: 84940417288     PISSN: None     EISSN: 19326203     Source Type: Journal    
DOI: 10.1371/journal.pone.0132444     Document Type: Article

References (18)

1. Geenen MM, Cardous-Ubbink MC, Kremer LC, van den Bos C, van der Pal H, Heinen RC, et al. Medical assessment of adverse health outcomes in long-term survivors of childhood cancer. JAMA. 2007; 297(24):2705-15. PMID: 17595271.
2. Mertens AC, Liu Q, Neglia JP, Wasilewski K, Leisenring W, Armstrong GT, et al. Cause-specific late mortality among 5-year survivors of childhood cancer: The Childhood Cancer Survivor Study. JNatlCancer Inst. 2008; 100:1368-79.
3. Oeffinger KC, Mertens AC, Sklar CA, Kawashima T, Hudson MM, Meadows AT, et al. Chronic health conditions in adult survivors of childhood cancer. N Engl J Med 2006; 355:1572-82. PMID: 17035650.
4. Reulen RC, Winter DL, Frobisher C, Lancashire ER, Stiller CA, Jenney ME, et al. Long-term cause-specific mortality among survivors of childhood cancer. JAMA. 2010; 304:172-9. doi:10.1001/jama.2010.923 PMID: 20628130.
5. Reulen RC, Frobisher C, Winter DL, Kelly J, Lancashire ER, Stiller CA, et al. Long-term risks of subsequent primary neoplasms among survivors of childhood cancer. JAMA. 2011; 305:2311-9. doi:10.1001/jama.2011.747 PMID: 21642683.
6. Reitsma JB, Kardaun JW, Gevers E, de Bruin A, van der Wal J, Bonsel GJ. [Possibilities for anonymous follow-up studies of patients in Dutch national medical registrations using the Municipal Population Register: A pilot study]. Ned Tijdschr Geneeskd. 2003; 147:2286-90. PMID: 14655296.
7. Metcalfe C, Thompson SG, Cowie MR, Sharples LD. The use of hospital admission data as a measure of outcome in clinical studies of heart failure. Eur Heart J. 2003; 24:105-12. PMID: 12559942.
8. Dijkgraaf MGW, Luijben AHP, Postma MJ, Borleffs JCC, Schrijvers AJP, Jager JC. Lifetime hospitalization profiles for symptomatic, HIV-infected persons. Health Policy. 1996; 35:13-32. PMID: 10157040.
9. Sieswerda E, Mulder RL, van Dijk IW, van Dalen EC, Knijnenburg SL, van der Pal HJ, et al. The EKZ/AMC childhood cancer survivor cohort: methodology, clinical characteristics, and data availability. J Cancer Surviv 2013; 7:439-54. doi:10.1007/s11764-013-0283-9PMID: 23625157.
10. Prins CJ. Dutch population statistics based on population register data.: Statistics Netherlands; 2000 [1 Sep 2014]. Available from: http://www.cbs.nl/NR/rdonlyres/E7EB5E2A-3988-4974-922F-7E2C96B3D1DF/0/b150200.pdf.
11. de Bruin A, de Bruin EI, Gast A, Kardaun WP, van Sijl M, Verweij GCG. Koppeling van LMR- en GBA gegevens: methode, resultaten en kwaliteitsonderzoek: Centraal Bureau voor de Statistiek; 2003 [1 Sep 2014]. Available from: http://www.cbs.nl/NR/rdonlyres/BAF2D6C5-7A77-4771-859B-338CC2F6F589/0/koppelingLMGBAgegevens1203.pdf.
12. Dutch Hospital Data. Documentation report of Hospital Discharge Register (LMR) 2011V1 [Document in Dutch]: Statistics Netherlands; 2013 [1 Sep 2014]. Available from: http://www.cbs.nl/NR/rdonlyres/AA18B546-CA6E-40C6-8B17-1BB976F1C4E5/0/lmrmicrodata.pdf.
13. Paas GR, Veenhuizen KC. Research on the validity of the LMR. Utrecht: Prismant; 2002 2002.
14. de Bruin A, Kardaun JWPF, Gast A, de Bruin EI, van Sijl M, Verweij GCG. Record linkage of hospital discharge register with population register: experiences at Statistics Netherlands. Statistical Journal of the United Nations Economic Commission for Europe. 2004; 21:23-32.
15. Council of the Federation of Medical Scientific Societies. Code of Conduct for Medical Research 2004. Available from: http://www.federa.org/sites/default/files/bijlagen/coreon/code-of-conduct-for-medical-research-1.pdf.
16. Howards PP, Hertz-Picciotto I, Poole C. Conditions for bias from differential left truncation. Am J Epidemiol 2007; 165:444-52. PMID: 17150983.
17. Recognition of hospitalizations and death in cohort studies using Dutch population registers. A collaboration between Statistics Netherlands, Prismant and the Academic Medical Center. Voorburg: Statistics Netherlands; 2001 2001.
18. van Veen E-B. Patient data for health research: A discussion paper on anonymisation procedures for the use of patient data for health research. The Hague: MedLawconsult; 2011.