Transitions between health care settings in the final three months of life in four EU countries

European Journal of Public Health

Volumn 25, Issue 4, 2015, Pages 569-575

  Van Den Block, Lieve ^a   Pivodic, Lara ^a   Pardon, Koen ^a   Donker, Gé ^b   Miccinesi, Guido ^c   Moreels, Sarah ^d   Vega Alonso, Tomas ^e   Deliens, Luc ^a   Onwuteaka Philipsen, Bregje ^f  

^a GHENT UNIVERSITY   (Belgium)

^b NETHERLANDS INSTITUTE FOR HEALTH SERVICES RESEARCH   (Netherlands)

^c CANCER RESEARCH AND PREVENTION INSTITUTE ISPO   (Italy)

^d SCIENTIFIC INSTITUTE OF PUBLIC HEALTH   (Belgium)

^e Ministry of Health   (Spain)

^f VU UNIVERSITY MEDICAL CENTER   (Netherlands)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; AGED; CAUSE OF DEATH; DEMENTIA; EUROPE; FEMALE; HOSPICE; HOSPITALIZATION; HUMAN; MALE; MIDDLE AGED; ORGANIZATION AND MANAGEMENT; RETROSPECTIVE STUDY; STATISTICS AND NUMERICAL DATA; TERMINAL CARE; TRANSITIONAL CARE; VERY ELDERLY; YOUNG ADULT;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; CAUSE OF DEATH; DEMENTIA; EUROPE; FEMALE; HOSPICES; HOSPITALIZATION; HUMANS; MALE; MIDDLE AGED; RETROSPECTIVE STUDIES; TERMINAL CARE; TRANSITIONAL CARE; YOUNG ADULT;

EID: 84939616946     PISSN: 11011262     EISSN: 1464360X     Source Type: Journal    
DOI: 10.1093/eurpub/ckv039     Document Type: Article

References (42)

1. Teno JM, Gozalo PL, Bynum JP, et al. Change in end-of-life care for Medicare beneficiaries: site of death, place of care, and health care transitions in 2000, 2005, and 2009. JAMA 2013; 309: 470-7
2. Gozalo P, Teno JM, Mitchell SL, et al. End-of-life transitions among nursing home residents with cognitive issues. N Engl J Med 2011; 365: 1212-21
3. Coleman EA. Falling through the cracks: challenges and opportunities for improving transitional care for persons with continuous complex care needs. J Am Geriatr Soc 2003; 51: 549-55
4. Gomes B, Calanzani N, Gysels M, Hall S, Higginson IJ. Heterogeneity and changes in preferences for dying at home: a systematic review. BMC Palliat Care 2013; 12: 7
5. Meeussen K, Van Den Block L, Bossuyt N, et al. GPs' awareness of patients' preference for place of death. Br J Gen Pract 2009; 59: 665-760
6. Ko W, Beccaro M, Miccinesi G, et al. Awareness of general practitioners concerning cancer patients' preferences for place of death: evidence from four European countries. Eur J Cancer 2013; 49: 1967-74
7. Boockvar K, Fishman E, Kyriacou CK, et al. Adverse events due to discontinuations in drug use and dose changes in patients transferred between acute and long-term care facilities. Arch Intern Med 2004; 164: 545-50
8. National Institutes of Health. NIH State-of-the-Science Conference Statement on Improving End-of-Life Care. NIH Consensus and State-of-the-Science Statements, Vol. 21. Bethesda, MD: U.S. Department of Health and Human Services, 2004
9. Van Den Block L, Deschepper R, Bilsen J, et al. Transitions between care settings at the end of life in Belgium. JAMA 2007; 298: 1638-9
10. Abarshi E, Echteld M, Van Den Block L, et al. Transitions between care settings at the end of life in the Netherlands: results from a nationwide study. Palliat Med 2010; 24: 166-74
11. Kaspers PJ, Pasman HR, Onwuteaka-Philipsen BD, Deeg DJ. Changes over a decade in end-of-life care and transfers during the last 3 months of life: a repeated survey among proxies of deceased older people. Palliat Med 2013; 27: 544-52
12. Klinkenberg M, Visser G, van Groenou MI, et al. The last 3 months of life: care, transitions and the place of death of older people. Health Soc Care Community 2005; 13: 420-30
13. Cohen J, Bilsen J, Addington-Hall J, et al. Population-based study of dying in hospital in six European countries. Palliat Med 2008; 22: 702-10
14. Gomes B, Higginson IJ. Where people die (1974-2030): past trends, future projections and implications for care. Palliat Med 2008; 22: 33-41
15. Van Den Block L, Onwuteaka-Philipsen B, Meeussen K, et al. Nationwide continuous monitoring of end-of-life care via representative networks of general practitioners in Europe. BMC Fam Pract 2013; 14: 73
16. Fleming DM, Schellevis FG, Paget WJ. Health monitoring in sentinel practice networks. Eur J Public Health 2003; 13(suppl 3): 80-84
17. Vega T, Zurriaga O, Galmes A, et al. Guide to the principles and methods of health sentinel networks in Spain. Gac Sanit 2006; 20(suppl 3): 52-60
18. Abarshi E, Echteld MA, Van Den Block L, et al. Use of palliative care services and general practitioner visits at the end of life in the Netherlands and Belgium. J Pain Symptom Manage 2011; 41: 436-48
19. Meeussen K, Van Den Block L, Echteld MA, et al. End-of-life care and circumstances of death in patients dying as a result of cancer in Belgium and the Netherlands: a retrospective comparative study. J Clin Oncol 2011; 29: 4327-34
20. Van Den Block L, Deschepper R, Bossuyt N, et al. Care for patients in the last months of life: the Belgian Sentinel Network Monitoring End-of-Life Care study. Arch Intern Med 2008; 168: 1747-54
21. Evans N, Costantini M, Pasman HR, et al. End-of-life communication: a retrospective survey of representative general practitioner networks in four countries. J Pain Symptom Manage 2014; 47: 604-19
22. Meeussen K, Van Den Block L, Echteld M, et al. Older people dying with dementia: a nationwide study. Int Psychogeriatr 2012; 24: 1581-91
23. Van Den Block L, Van Casteren V, Deschepper R, et al. Nationwide monitoring of end-of-life care via the Sentinel Network of General Practitioners in Belgium: the research protocol of the SENTI-MELC study. BMC Palliat Care 2007; 6: 6
24. Van der Heide A, Deliens L, Faisst K, et al. End-of-life decision-making in six European countries: descriptive study. Lancet 2003; 362: 345-50
25. Bilsen J, Cohen J, Chambaere K, et al. Medical end-of-life practices under the euthanasia law in Belgium. N Engl J Med 2009; 361: 1119-21
26. Abarshi E, Onwuteaka-Philipsen B, Donker G, et al
27. Murray SA, Kendall M, Boyd K, et al. Illness trajectories and palliative care. BMJ 2005; 330: 1007-11
28. Davies E, Higginson IJ. Palliative Care: The Solid Facts. Copenhagen: World Health Organization, 2004
29. Addington-Hall J, Fakhoury W, McCarthy M. Specialist palliative care in nonmalignant disease. Palliat Med 1998; 12: 417-27
30. Perrels AJ, Fleming J, Zhao J, et al. Place of death and end-of-life transitions experienced by very old people with differing cognitive status: retrospective analysis of a prospective population-based cohort aged 85 and over. Palliat Med 2014; 28: 220-33
31. Quill TE, Abernathy AP. Generalist plus specialist palliative care-creating a more sustainable model. N Engl J Med 2013; 368: 1173-5
32. Houttekier D, Cohen J, Van Den Block L, et al. Involvement of palliative care services strongly predicts place of death in Belgium. J Palliat Med 2010; 13: 1461-8
33. Gomes B, Calanzani N, Curiale V, et al. Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers. Cochrane Database Syst Rev 2013; 6
34. Jordhøy MS, Fayers P, Saltnes T, et al. A palliative-care intervention and death at home: a cluster randomised trial. Lancet 2000; 356: 888-93
35. OECD. Long-term care beds in institutions and hospitals. Health at a Glance 2013: OECD Indicators, 2013. Available at: http://www.oecd-ilibrary.org/social-issuesmigration-health/health-at-a-glance-2013/long-term-care-beds-in-institutions-andhospitals- health-glance-2013-78-en (17 December 2014, date last accessed
36. OECD. Key tables from OECD: Hospital beds density per 1000 population. Available at: http://www.oecd-ilibrary.org/social-issues-migration-health/hospitalbeds- 20758480-table5 (17 December 2014, date last accessed
37. Evans N, Pasman HR, Vega Alonso T, et al. End-of-life decisions: a cross-national study of treatment preference discussions and surrogate decision-maker appointments. PLoS One 2013; 8: e57965
38. Costantini M, Morasso G, Montella M, et al. Diagnosis and prognosis disclosure among cancer patients. Results from an Italian mortality follow-back survey. Ann Oncol 2006; 17: 853-9
39. Pivodic L, Van Den Block L, Pardon K, et al. Burden on family carers and carerelated financial strain at the end of life: a cross-national population-based study. Eur J Public Health 2014; 24: 819-26
40. Evans N, Pasman HR, Vega Alonso T, et al. End-of-life decisions: a cross-national study of treatment preference discussions and surrogate decision-maker appointments. PLoS One 2013; 8: e57965
41. Pivodic L, Pardon K, Van Den Block L, et al. Palliative care service use in four European countries: a cross-national retrospective study via representative networks of general practitioners. PLoS One 2013; 8: e84440
42. Hank K, Jürges H. The last year of life in Europe: regional variations in functional status and sources of support. Ageing Soc 2010; 30: 1041-54