Will European Reference Networks herald a new era of care for patients with rare and complex diseases?

European Journal of Public Health

Volumn 25, Issue 3, 2015, Pages 362-363

  Azzopardi Muscat, Natasha ^a,b   Brand, Helmut ^a  

^a MAASTRICHT UNIVERSITY   (Netherlands)

^b UNIVERSITY OF MALTA   (Malta)

Author keywords

[No Author keywords available]

Indexed keywords

COOPERATION; EUROPEAN UNION; HUMAN; PATIENT CARE; PROCEDURES; PUBLIC HEALTH; RARE DISEASE;

COOPERATIVE BEHAVIOR; EUROPEAN UNION; HUMANS; PATIENT CARE; PUBLIC HEALTH; RARE DISEASES;

EID: 84939554463     PISSN: 11011262     EISSN: 1464360X     Source Type: Journal    
DOI: 10.1093/eurpub/cku144     Document Type: Editorial

References (6)

1. Azzopardi Muscat N. EU cross-border health care and public health. Eur J Public Health 2010;20:128-9.
2. European Commission. Commission delegated decision of 10 March 2014, setting out criteria and conditions that European Reference Networks and healthcare providers wishing to join a European Reference Network must fulfil (2014/286/EU). Official J Eur Union 2014 17/05/2014;L147/71.
3. European Commission. Commission implementing decision of 10 March 2014 setting out criteria for establishing and evaluating European Reference Networks and their Members and for facilitating the exchange of information and expertise on establishing and evaluating such Networks (2014/287/EU). Official J Eur Union 2014 17/05/2014;L147/79.
4. EURORDIS Rare Diseases Europe. EURORDIS Position Paper on 'Centres of Expertise and European Reference Networks for Rare Diseases'. 2008. Available at: http://www. eurordis. org/sites/default/files/publications/position-paper-EURORDIS-centres-excellence-networksFeb08. pdf (8 February 2014, date last accessed).
5. Hannemann-Weber H, Kessel M, Schultz C. Research performance of centers of expertise for rare diseases-The influence of network integration, internal resource access and operational experience. Health Policy 2012;105:138-45.
6. Harrison A. Assessing the relationship between volume and outcome in hospital services: implications for service centralization. Health Serv Manage Res 2012;25:1-6.