Long-term impact of stroke on family caregiver well-being: A population-based case-control study

Neurology

Volumn 84, Issue 13, 2015, Pages 1323-1329

  Haley, William E ^a   Roth, David L ^b   Hovater, Martha ^c   Clay, Olivio J ^d  

^a UNIVERSITY OF SOUTH FLORIDA   (United States)

^b JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

^c University School of Public Health   (United States)

^d UNIVERSITY OF ALABAMA AT BIRMINGHAM   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; CAREGIVER; CEREBROVASCULAR ACCIDENT; CHRONIC LUNG DISEASE; CONTROLLED STUDY; COPING BEHAVIOR; DEPRESSION; DISTRESS SYNDROME; EDUCATIONAL STATUS; FEMALE; HUMAN; INCOME; LEISURE; LIFE SATISFACTION; LONG TERM CARE; MAJOR CLINICAL STUDY; MALE; MENTAL HEALTH; POPULATION BASED CASE CONTROL STUDY; PRIORITY JOURNAL; PSYCHOLOGICAL WELL BEING; QUALITY OF LIFE; TELEPHONE INTERVIEW; ADAPTIVE BEHAVIOR; CASE CONTROL STUDY; MIDDLE AGED; NURSING; PSYCHOLOGY; SATISFACTION; SURVIVOR;

ADAPTATION, PSYCHOLOGICAL; CAREGIVERS; CASE-CONTROL STUDIES; DEPRESSION; FEMALE; HUMANS; MALE; MIDDLE AGED; PERSONAL SATISFACTION; QUALITY OF LIFE; STROKE; SURVIVORS;

EID: 84937822039     PISSN: 00283878     EISSN: 1526632X     Source Type: Journal    
DOI: 10.1212/WNL.0000000000001418     Document Type: Article

References (32)

1. Cameron JI, Cheung AM, Streiner DL, Coyte PC, Stewart DE. Stroke survivor depressive symptoms are associated with family caregiver depression during the first 2 years poststroke. Stroke 2011;42:302-306.
2. Visser-Meily A, Post M, van de Port I, Maas C, Forstberg-Warleby G, Lindeman E. Psychosocial functioning of spouses of patients with stroke from initial inpatient rehabilitation to 3 years poststroke: course and relations with coping strategies. Stroke 2009;40:1399-1404.
3. Gaugler JE. The longitudinal ramifications of stroke caregiving: a systematic review. Rehabil Psychol 2010;55:108-125.
4. Haley WE, Roth DL, Perkins MM, Kissela B, Howard G. Quality of life after stroke: a prospective longitudinal study. Qual Life Res 2011;20:799-806.
5. Howard VJ, Cushman M, Pulley L, et al. The REasons for Geographic and Racial Differences in Stroke study: Objectives and design. Neuroepidemiology 2005;25: 135-143.
6. Howard G, Safford MM, Meschia JF, et al. Stroke symptoms in individuals reporting no stroke or transient ischemic attack are associated with a decrease in indices of mental and physical functioning. Stroke 2007;38:2446-2452.
7. Clay OJ, Grant JS, Wadley VG, Perkins MM, Haley WE, Roth DL. Correlates of health-related quality of life in African American and Caucasian stroke caregivers. Rehabil Psychol 2013;58:28-35.
8. Grant JS, Keltner NL, Clay OJ, et al. Does caregiver wellbeing predict stroke survivor depressive symptoms? A mediation analysis. Top Stroke Rehabil 2013;20:44-51.
9. Haley WE, Allen JY, Grant JS, Clay OJ, Perkins MM, Roth DL. Problems and benefits reported by stroke family caregivers: results from a prospective epidemiological study. Stroke 2009;40:2129-2133.
10. Roth DL, Haley WE, Clay OJ, et al. Race and gender differences in stroke outcomes one year following firsttime stroke events. Stroke 2011;42:626-631.
11. Radloff LS. The CES-D Scale: a self-report depression scale for research in the general population. Appl Psychol Meas 1977;1:385-401.
12. Ware JE, Kosinski M, Keller SD. A 12-item short-form health survey: construction of scales and preliminary tests of reliability and validity. Med Care 1996;34:220-233.
13. Wood V, Wylie ML, Sheafor B. An analysis of a short selfreport measure of life satisfaction: Correlation with rater judgments. J Gerontol 1969;24:465-469.
14. Stevens AB, Arguelles S, Belle S, et al. Measurement of leisure time satisfaction in family caregivers. Aging Ment Health 2004;8:450-459.
15. Singer JD, Willett JB. Applied Longitudinal Data Analysis: Modeling Change and Event Occurrence. New York: Oxford University Press; 2003.
16. Littell RC, Milliken GA, Stroup WW, Wolfinger RD, Schabenberger O. SAS for Mixed Models, 2nd ed. Cary, NC: SAS Institute; 2006.
17. Feingold A. Effect sizes for growth-modeling analysis for controlled clinical trials in the same metric as for classical analysis. Psychol Methods 2009;14:43-53.
18. Schulz R, Beach SR. Caregiving as a risk factor for mortality: the Caregiver Health Effects Study. JAMA 1999; 282:2215-2219.
19. Pinquart M, Sorensen S. Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis. Psychol Aging 2003;18:250-267.
20. Roth DL, Perkins M, Wadley VG, Temple E, Haley WE. Family caregiving and emotional strain: associations with psychological health in a national sample of community-dwelling middle-aged and older adults. Qual Life Res 2009;18: 679-688.
21. Roth DL, Haley WE, Hovater M, Perkins M, Wadley VG, Judd S. Family caregiving and all-cause mortality: findings from a population-based propensitymatched analysis. Am J Epidemiol 2013;178:1571-1578.
22. Liao D, Myers R, Hunt S, et al. Familial history of stroke and stroke risk: the family heart study. Stroke 1997;28:1908-1912.
23. Williams RR, Hunt SC, Heiss G, et al. Usefulness of cardiovascular family history data for population-based preventive medicine and medical research (The Health Family Tree Study and the NHLBI Family Heart Study). Am J Cardiol 2001;87:129-135.
24. Sackett DL, Anderson GD, Milner R, Feinleib M, Kannell WB. Concordance for coronary risk factors among spouses. Circulation 1975;52:589-595.
25. Haley WE, Levine EG, Brown SL, Bartolucci AA. Stress, appraisal, coping, and social support as predictors of adaptational outcome among dementia caregivers. Psychol Aging 1987;2:323-330.
26. Haley WE, Roth DL, Coleton MI, et al. Appraisal, coping, and social support as mediators of well-being in black and white family caregivers of patients with Alzheimer's disease. J Consult Clin Psychol 1996;64:121-129.
27. Roth DL, Haley WE, Owen JE, Clay OJ, Goode KT. Latent growth models of the longitudinal effects of dementia caregiving: a comparison of African-American and white family caregivers. Psychol Aging 2001;16:427-436.
28. Cameron JI, Stewart DE, Streiner DL, Coyote PC, Cheung AM. What makes family caregivers happy during the first 2 years post stroke? Stroke 2014;45:1084-1089.
29. Kissela B, Schneider A, Kleindorfer D, et al. Stroke in a biracial population: the excess burden of stroke among blacks. Stroke 2004;35:426-431.
30. Dilworth-Anderson P, Williams IC, Gibson BE. Issues of race, ethnicity, and culture in caregiving research: a 20-year review (1980-2000). Gerontologist 2002;42:237-272.
31. Clay OJ, Roth DL, Wadley VG, Haley WE. Changes in social support and their impact on psychosocial adjustment of African American and white dementia caregivers over a five-year period. Int J Geriatr Psychiatry 2008;23:857-862.
32. Goode KT, Haley WE, Roth DL, Ford GR. Predicting longitudinal changes in caregiver physical and mental health: a stress process model. Health Psychol 1998;17:190-198.