메뉴 건너뛰기




Volumn 23, Issue 5, 2015, Pages 569-576

Balancing needs as a family caregiver in Huntington's disease: A qualitative interview study

Author keywords

Caregivers; Chronic diseases; Coping; Huntington's disease; Support

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; CAREGIVER; DISEASE COURSE; FEMALE; HUMAN; HUNTINGTON CHOREA; INTERVIEW; MALE; MIDDLE AGED; NORWAY; NURSING; PSYCHOLOGY; QUALITATIVE RESEARCH; SOCIAL SUPPORT;

EID: 84937073117     PISSN: 09660410     EISSN: 13652524     Source Type: Journal    
DOI: 10.1111/hsc.12174     Document Type: Article
Times cited : (42)

References (33)
  • 1
    • 0036481436 scopus 로고    scopus 로고
    • Health promoting self-care in family caregivers
    • Acton G.J. (2002) Health promoting self-care in family caregivers. Western Journal of Nursing Research 24 (1), 73-86.
    • (2002) Western Journal of Nursing Research , vol.24 , Issue.1 , pp. 73-86
    • Acton, G.J.1
  • 2
    • 84867059604 scopus 로고    scopus 로고
    • 'All the burden on all the carers': exploring quality of life with family caregivers of Huntington's disease patients
    • Aubeeluck A.V., Buchanan H. & Stupple E.J. (2012) 'All the burden on all the carers': exploring quality of life with family caregivers of Huntington's disease patients. Quality of Life Research 21 (8), 1425-1435.
    • (2012) Quality of Life Research , vol.21 , Issue.8 , pp. 1425-1435
    • Aubeeluck, A.V.1    Buchanan, H.2    Stupple, E.J.3
  • 7
    • 80052630481 scopus 로고    scopus 로고
    • Healthcare experiences of families affected by Huntington disease: need for improved care
    • Etchegary H. (2011) Healthcare experiences of families affected by Huntington disease: need for improved care. Chronic Illness 7 (3), 225-238.
    • (2011) Chronic Illness , vol.7 , Issue.3 , pp. 225-238
    • Etchegary, H.1
  • 8
    • 84889651346 scopus 로고    scopus 로고
    • Caring for people with early and advanced chronic obstructive pulmonary disease: how do family carers cope?
    • Figueiredo D., Gabriel R., Jacome C. & Marques A. (2014) Caring for people with early and advanced chronic obstructive pulmonary disease: how do family carers cope? Journal of Clinical Nursing 23, 211-220.
    • (2014) Journal of Clinical Nursing , vol.23 , pp. 211-220
    • Figueiredo, D.1    Gabriel, R.2    Jacome, C.3    Marques, A.4
  • 9
    • 0033940921 scopus 로고    scopus 로고
    • Can addressing family relationships improve outcomes in chronic disease? Report of the National Working Group on Family-Based Interventions in Chronic Disease
    • Fisher L. & Weihs K.L. (2000) Can addressing family relationships improve outcomes in chronic disease? Report of the National Working Group on Family-Based Interventions in Chronic Disease. Journal of Family Practice 49 (6), 561-566.
    • (2000) Journal of Family Practice , vol.49 , Issue.6 , pp. 561-566
    • Fisher, L.1    Weihs, K.L.2
  • 10
    • 84881423702 scopus 로고    scopus 로고
    • The critical role of caregivers in achieving patient-centered care
    • Gillick M.R. (2013) The critical role of caregivers in achieving patient-centered care. Journal of the American Medical Association 310 (6), 575-576.
    • (2013) Journal of the American Medical Association , vol.310 , Issue.6 , pp. 575-576
    • Gillick, M.R.1
  • 11
    • 84875550490 scopus 로고    scopus 로고
    • Using meta-ethnography to understand the emotional impact of caring for people with increasing cognitive impairment
    • Grose J., Frost J., Richardson J. & Skirton H. (2013) Using meta-ethnography to understand the emotional impact of caring for people with increasing cognitive impairment. Nursing and Health Sciences 15 (1), 113-123.
    • (2013) Nursing and Health Sciences , vol.15 , Issue.1 , pp. 113-123
    • Grose, J.1    Frost, J.2    Richardson, J.3    Skirton, H.4
  • 13
    • 84888874894 scopus 로고    scopus 로고
    • Support interventions for caregivers of physically disabled adults: a systematic review
    • Lawang W., Horey D., Blackford J., Sunsern R. & Riewpaiboon W. (2013) Support interventions for caregivers of physically disabled adults: a systematic review. Nursing and Health Sciences 15 (4), 534-545.
    • (2013) Nursing and Health Sciences , vol.15 , Issue.4 , pp. 534-545
    • Lawang, W.1    Horey, D.2    Blackford, J.3    Sunsern, R.4    Riewpaiboon, W.5
  • 15
    • 83555164923 scopus 로고    scopus 로고
    • Can we move beyond burden and burnout to support the health and wellness of family caregivers to persons with dementia? Evidence from British Columbia, Canada
    • Lilly M.B., Robinson C.A., Holtzman S. & Bottorff J.L. (2012) Can we move beyond burden and burnout to support the health and wellness of family caregivers to persons with dementia? Evidence from British Columbia, Canada. Health and Social Care in the Community 20 (1), 103-112.
    • (2012) Health and Social Care in the Community , vol.20 , Issue.1 , pp. 103-112
    • Lilly, M.B.1    Robinson, C.A.2    Holtzman, S.3    Bottorff, J.L.4
  • 16
    • 25644443120 scopus 로고    scopus 로고
    • Avoidance as a strategy of (not) coping: qualitative interviews with carers of Huntington's disease patients
    • Lowit A. & Van Teijlingen E. (2005) Avoidance as a strategy of (not) coping: qualitative interviews with carers of Huntington's disease patients. BMC Family Practice 6, 38.
    • (2005) BMC Family Practice , vol.6 , pp. 38
    • Lowit, A.1    Van Teijlingen, E.2
  • 17
    • 0035845256 scopus 로고    scopus 로고
    • Qualitative research: standards, challenges, and guidelines
    • Malterud K. (2001) Qualitative research: standards, challenges, and guidelines. Lancet 358, 483-488.
    • (2001) Lancet , vol.358 , pp. 483-488
    • Malterud, K.1
  • 18
    • 84870586746 scopus 로고    scopus 로고
    • Systematic text condensation: a strategy for qualitative analysis
    • Malterud K. (2012) Systematic text condensation: a strategy for qualitative analysis. Scandinavian Journal of Public Health 40 (8), 795-805.
    • (2012) Scandinavian Journal of Public Health , vol.40 , Issue.8 , pp. 795-805
    • Malterud, K.1
  • 19
    • 84856323216 scopus 로고    scopus 로고
    • Why are some people with neurological illness more resilient than others?
    • McCabe M.P. & O'Connor E.J. (2012) Why are some people with neurological illness more resilient than others? Psychology of Health Medicine 17 (1), 17-34.
    • (2012) Psychology of Health Medicine , vol.17 , Issue.1 , pp. 17-34
    • McCabe, M.P.1    O'Connor, E.J.2
  • 20
    • 50549093575 scopus 로고    scopus 로고
    • Work and recreational changes among people with neurological illness and their caregivers
    • McCabe M.P., Roberts C. & Firth L. (2008) Work and recreational changes among people with neurological illness and their caregivers. Disability and Rehabilitation 30 (8), 600-610.
    • (2008) Disability and Rehabilitation , vol.30 , Issue.8 , pp. 600-610
    • McCabe, M.P.1    Roberts, C.2    Firth, L.3
  • 21
    • 70349974995 scopus 로고    scopus 로고
    • A comparison of mood and quality of life among people with progressive neurological illnesses and their caregivers
    • McCabe M.P., Firth L. & O'Connor E. (2009) A comparison of mood and quality of life among people with progressive neurological illnesses and their caregivers. Journal of Clinical Psychology Medical Settings 16 (4), 355-362.
    • (2009) Journal of Clinical Psychology Medical Settings , vol.16 , Issue.4 , pp. 355-362
    • McCabe, M.P.1    Firth, L.2    O'Connor, E.3
  • 22
    • 0034923922 scopus 로고    scopus 로고
    • Working with family carers: towards a partnership approach
    • Nolan M. (2001) Working with family carers: towards a partnership approach. Reviews in Clinical Gerontology 11 (1), 91-97.
    • (2001) Reviews in Clinical Gerontology , vol.11 , Issue.1 , pp. 91-97
    • Nolan, M.1
  • 27
    • 67650569496 scopus 로고    scopus 로고
    • Well-being of family caregivers of persons with late-stage Huntington's disease: lessons in stress and coping
    • Roscoe L.A., Corsentino E., Watkins S., McCall M. & Sanchez-Ramos J. (2009) Well-being of family caregivers of persons with late-stage Huntington's disease: lessons in stress and coping. Health Communication 24 (3), 239-248.
    • (2009) Health Communication , vol.24 , Issue.3 , pp. 239-248
    • Roscoe, L.A.1    Corsentino, E.2    Watkins, S.3    McCall, M.4    Sanchez-Ramos, J.5
  • 28
    • 84978909397 scopus 로고    scopus 로고
    • Caregiver roles in families affected by Huntington's disease: a qualitative interview study
    • [Epub ahead of print].
    • Røthing M., Malterud K. & Frich J.C. (2013) Caregiver roles in families affected by Huntington's disease: a qualitative interview study. Scandinavian Journal of Caring Sciences doi:10.1111/scs.12098. [Epub ahead of print].
    • (2013) Scandinavian Journal of Caring Sciences
    • Røthing, M.1    Malterud, K.2    Frich, J.C.3
  • 29
    • 84937074025 scopus 로고    scopus 로고
    • 006Huntington's disease: difficulties of family caregivers
    • Soares H. (2012) 006Huntington's disease: difficulties of family caregivers. Journal of Neurology, Neurosurgery, and Psychiatry 83 (Suppl 1), A51-A52.
    • (2012) Journal of Neurology, Neurosurgery, and Psychiatry , vol.83 , Issue.Suppl 1 , pp. A51-A52
    • Soares, H.1
  • 30
    • 44949131027 scopus 로고    scopus 로고
    • Exploring supportive care for individuals affected by Huntington disease and their family caregivers in a community setting
    • Soltysiak B., Gardiner P. & Skirton H. (2008) Exploring supportive care for individuals affected by Huntington disease and their family caregivers in a community setting. Journal of Clinical Nursing 17 (7B), 226-234.
    • (2008) Journal of Clinical Nursing , vol.17 , Issue.7 B , pp. 226-234
    • Soltysiak, B.1    Gardiner, P.2    Skirton, H.3
  • 32
    • 77954746528 scopus 로고    scopus 로고
    • Stigma, history and Huntington's disease
    • Wexler A. (2010) Stigma, history and Huntington's disease. The Lancet 376 (9734), 18-19.
    • (2010) The Lancet , vol.376 , Issue.9734 , pp. 18-19
    • Wexler, A.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.