The Impact of Online Social Support on Patients’ Quality of Life and the Moderating Role of Social Exclusion

Journal of Service Research

Volumn 18, Issue 3, 2015, Pages 369-383

  Yao, Tang ^a   Zheng, Qiuying ^b   Fan, Xiucheng ^c  

^a BEIHANG UNIVERSITY   (China)

^b BEIJING UNIVERSITY OF CHINESE MEDICINE   (China)

^c FUDAN UNIVERSITY   (China)

Author keywords

hepatitis B; online social support; quality of life; social exclusion; stigmatized patient

Indexed keywords

EID: 84936951168     PISSN: 10946705     EISSN: 15527379     Source Type: Journal    
DOI: 10.1177/1094670515583271     Document Type: Article

References (83)

1. F.E.AboudFrances E.D.R.SinglaDaisy R. (2012), “Challenges to Changing Health Behaviours in Developing Countries: A Critical Overview,” Social Science and Medicine, 75 (4), 589–594.
2. L.A.AdayLu A. (2004), Evaluating the Healthcare System: Effectiveness, Efficiency, and Equity. Chicago: Health Administration Press.
3. C.L.AndersonCatherine L.R.AgarwalRitu (2011), “The Digitization of Healthcare: Boundary Risks, Emotion, and Consumer Willingness to Disclose Personal Health Information,” Information Systems Research, 22 (3), 469–490.
4. C.A.AnsonCarol A.D.J.StanwyckDouglas J.J.S.KrauseJames S. (1993), “Social Support and Health Status in Spinal Cord Injury,” Paraplegia, 31 (10), 632–638.
5. A.BambinaAntonina (2007), Online Social Support: The Interplay of Social Networks and Computer-Mediated Communication. Youngstown, NY: Cambridge Press.
6. A.BanduraAlbert (1997), Self-Efficacy: The Exercise of Control. New York: Freeman.
7. S.Bar-LevShirly (2008), “We Are Here to Give You Emotional Support: Performing Emotions in an Online HIV/AIDS Support Group,” Qualitative Health Research, 18 (4), 509–521.
8. R.F.BaumeisterRoy F.C.Nathan DeWallN.J.CiaroccoNatalie J.J.M.TwengeJean M. (2005), “Social Exclusion Impairs Self-Regulation,” Journal of Personality and Social Psychology, 88 (4), 589–604.
9. R.F.BaumeisterRoy F.M.R.LearyMark R. (1995), “The Need to Belong: Desire for Interpersonal Attachments as a Fundamental Human Motivation,” Psychological Bulletin, 117 (3), 497–529.
10. N.BayramNuranF.BilgelFiratN.G.BilgelNazan G. (2012), “Social Exclusion and Quality of Life: An Empirical Study from Turkey,” Social Indicators Research, 105 (1), 109–120.
11. L.F.BerkmanLisa F.T.GlassThomasI.BrissetteIanT.E.SeemanTeresa E. (2000), “From Social Integration to Health: Durkheim in the New Millennium,” Social Science and Medicine, 51 (6), 843–857.
12. L.BerryLeonardN.BendapudiNeeli (2007), “Health Care: A Fertile Field for Service Research,” Journal of Service Research, 10 (2), 111–122.
13. D.E.BrashersDale E.J.L.NeidigJudith L.D.J.GoldsmithDaena J. (2004), “Social Support and the Management of Uncertainty for People Living with HIV or AIDS,” Health Communication, 16 (3), 305–331.
14. B.R.BurlesonBrant R. (2003), “Emotional Support Skills,” in Handbook of Communication and Social Interaction Skills, J.O.GreeneB.R.Burleson, eds. Mahwah, NJ: Erlbaum, 551–594.
15. M.CastellsManuel (1996), The Rise of the Network Society, Volume I of the Information Age: Economy, Society and Culture. Cambridge, MA: Blackwell Publishing.
16. S.CobbSidney (1976), “Presidential Address-1976. Social Support as a Moderator of Life Stress,” Psychosomatic Medicine, 38 (5), 300–314.
17. J.CohenJacobP.CohenPatriciaS.WestStephenL.AikenLeona (2002), Applied Multiple Regression/Correlation Analysis for the Behavioral Sciences. Mahwah, NJ: Lawrence Erlbaum.
18. S.R.CohenS. RobinB.M.MountBalfour M.M.G.StrobelMichael G.F.BuiFrance (1995), “The McGill Quality of Life Questionnaire: A Measure of Quality of Life Appropriate for the People with Advanced Disease. A Preliminary Study of Validity and Acceptability,” Palliative Medicine, 9 (3), 207–219.
19. S.CohenSheldon (2004), “Social Relationships and Health,” American Psychologist, 59 (8), 676–684.
20. S.CohenSheldonT.A.WillsThomas A. (1985), “Stress, Social Support, and the Buffering Hypothesis,” Psychological Bulletin, 98 (2), 310–357.
21. N.S.CoulsonNeil S. (2005), “Receiving Social Support Online: An Analysis of a Computer-Mediated Support Group for Individuals Living with Irritable Bowel Syndrome,” CyberPsychology and Behavior, 8 (6), 580–584.
22. C.E.CutronaCarolyn E.D.W.RussellDaniel W. (1990), “Type of Social Support and Specific Stress: Toward a Theory of Optimal Matching,” in Social Support: An Interactional View, B.R.SarasonI.G.SarasonG.R.Pierce, eds. Oxford: Wiley, 319–366.
23. T.S.DaggerTracey S.J.C.SweeneyJillian C.L.W.JohnsonLester W. (2007), “A Hierarchical Model of Health Service Quality Scale Development and Investigation of an Integrated Model,” Journal of Service Research, 10 (2), 123–142.
24. K.P.DavisonKathryn P.J.W.PennebakerJames W.S.S.DickersonSally S. (2000), “Who Talks? The Social Psychology of Illness Support Groups,” American Psychologist, 55 (2), 205–217.
25. K.DebnamKatrinaC.L.HoltCheryl L.E.M.ClarkEddie M.D.L.RothDavid L.P.SouthwardPenny (2012), “Relationship between Religious Social Support and General Social Support with Health Behaviors in a National Sample of African Americans,” Journal of Behavioral Medicine, 35 (2), 179–189.
26. E.L.DeciEdward L.R.M.RyanRichard M. (2000), “The ‘What’ and ‘Why’ of Goal Pursuits: Human Needs and the Self-Determination of Behavior,” Psychological Inquiry, 11 (4), 227–268.
27. E.L.DeciEdward L.R.M.RyanRichard M. (1985), “The General Causality Orientations Scale: Self-Determination in Personality,” Journal of Research in Personality, 19 (2), 109–134.
28. J.J.DuchnickJennifer J.E.A.LetschElizabeth A.G.CurtissGlenn (2009), “Coping Effectiveness Training During Acute Rehabilitation of Spinal Cord Injury/Dysfunction: A Randomized Clinical Trial,” Rehabilitation Psychology, 54 (2), 123–132.
29. L.M.ElfströmLundgren M.M.KreuterMargaretaA.RydénAnnaL.-O.PerssonLars-OlofM.SullivanMarianne (2002), “Effects of Coping on Psychological Outcome When Controlling for Background Variables: A Study of Traumatically Spinal Cord Lesioned Persons,” Spinal Cord, 40 (8), 408–415.
30. E.C.FerransEstwing C. (1990), “Quality of Life: Conceptual Issues,” Seminars in Oncology Nursing, 6 (4), 248–254.
31. B.R.FerrellBetty R.C.WisdomCherylC.WenzlCarol (1989), “Quality of Life as an Outcome Variable in the Management of Cancer Pain,” Cancer, 63 (11), 2321–2327.
32. J.FinnJerry (1999), “An Exploration of Helping Processes in an Online Self-Help Group Focusing on Issues of Disability,” Health and Social Work, 24 (3), 220–231.
33. M.A.FlynnMark A.A.StanaAlexandru (2012), “Social Support in a Men’s Online Eating Disorder Forum,” International Journal of Men’s Health, 11 (2), 150–169.
34. S.GrzeskowiakStephanJ.M.SirgyJoseph M. (2007), “Consumer Well-Being (CWB): The Effects of Self-Image Congruence, Brand-Community Belongingness, Brand Loyalty, and Consumption Recency,” Applied Research in Quality of Life, 2 (4), 289–304.
35. D.H.GustafsonDavid H.R.HawkinsRobertF.McTavishFionaS.PingreeSuzanneW.C.ChenWei ChihK.VolrathongchaiKanitthaW.StengleWilliamJ.A.StewartJames A.R.C.SerlinRonald C. (2008), “Internet-Based Interactive Support for Cancer Patients: Are Integrated Systems Better?” Journal of Communication, 58 (2), 238–257.
36. G.T.HenryGary T. (1990), Practical Sampling. Thousand Oaks, CA: Sage.
37. O.R.HolstiOle R. (1969), Content Analysis for the Social Sciences and Humanities. Reading, MA: Addison-Wesley.
38. Homans, George Caspar (1961), Social Behavior: Its Elementary Forms. New York: Harcourt, Brace & World.
39. J.P.KassirerJerome P. (2000), “Patients, Physicians, and the Internet,” Health Affairs, 19 (6), 115–123.
40. S.C.KimSojung ClaireD.V.ShahDhavan V.K.NamkoongKangF.M.McTavishFiona M.D.H.GustafsonDavid H. (2013), “Predictors of Online Health Information Seeking Among Women with Breast Cancer: The Role of Social Support Perception and Emotional Well-Being,” Journal of Computer-Mediated Communication, 18 (2), 98–118.
41. L.LambergLynn (2003), “Online Empathy for Mood Disorders-Patients Turn to Internet Support Groups,” American Medical Association, 289 (23), 3073–3077.
42. M.R.LearyMark R. (1990), “Responses to Social Exclusion: Social Anxiety, Jealousy, Loneliness, Depression, and Low Self-Esteem,” Journal of Social and Clinical Psychology, 9 (2), 221–229.
43. L.LeungLouis (2011), “Loneliness, Social Support, and Preference for Online Social Interaction: The Mediating Effects of Identity Experimentation Online Among Children and Adolescents,” Chinese Journal of Communication, 4 (4), 381–399.
44. J.LiJieH.ZhuangHui (2012), “Advance in Epidemiology of Virus Hepatitis,” Chinese Hepatology, 17 (1), 2–5.
45. Y.S.LincolnYvonna S.E.G.GubaEgon G. (1985), Naturalistic Inquiry. Thousand Oaks, CA: Sage.
46. R.S.K.LoRaymond S. K.J.WooJeanK.C.H.ZhocKaren C. H.C.Y.P.LiCharlotte Y. P.W.YeoWinnieP.JohnsonPhilipY.MakYvonne (2001), “Cross-Cultural Validation of the McGill Quality of Life Questionnaire in Hong Kong Chinese,” Palliative Medicine, 15 (5), 387–397.
47. G.MacDonaldGeoffM.R.LearyMark R. (2005), “Why Does Social Exclusion Hurt? The Relationship between Social and Physical Pain,” Psychological Bulletin, 131 (2), 202–223.
48. J.K.ManerJon K.C.Nathan DeWallR.F.BaumeisterRoy F.M.SchallerMark (2007), “Does Social Exclusion Motivate Interpersonal Reconnection? Resolving the ‘Porcupine Problem,’” Journal of Personality and Social Psychology, 92 (1), 42–55.
49. M.A.McCollMary A.R.ArnoldRobertS.CharlifueSusanK.GerhartKenneth (2001), “Social Support and Aging with a Spinal Cord Injury: Canadian and British Experiences,” Topics in Spinal Cord Injury Rehabilitation, 6 (3), 83–101.
50. J.R.McColl-KennedyJanet R.S.L.VargoStephen L.T.S.DaggerTracey S.J.C.SweeneyJillian C.Y.V.KasterenYasmin van (2012), “Health Care Customer Value Cocreation Practice Styles,” Journal of Service Research, 15 (4), 370–389.
51. A.McCormackAbby (2010), “Individuals with Eating Disorders and the Use of Online Support Groups as a Form of Social Support,” Computers Informatics Nursing, 28 (1), 12–19.
52. M.McMullanMirriam (2006), “Patients Using the Internet to Obtain Health Information: How This Affects the Patient Health Professional Relationship,” Patient Education and Counseling, 63 (1), 24–28.
53. F.M.McTavishFiona M.S.PingreeSuzanneR.HawkinsRobertD.GustafsonDavid (2003), “Cultural Differences in Use of an Electronic Discussion Group,” Journal of Health Psychology, 8 (1), 105–117.
54. W.B.MendesWendy B.S.McCoyShannonB.MajorBrendaJ.BlascovichJim (2008), “How Attributional Ambiguity Shapes Physiological and Emotional Responses to Social Rejection and Acceptance,” Journal of Personality and Social Psychology, 94 (2), 278–291.
55. P.K.H.MoPhoenix K. H.N.S.CoulsonNeil S. (2012), “Developing a Model for Online Support Group Use, Empowering Processes and Psychosocial Outcomes for Individuals Living with HIV/AIDS,” Psychology and Health, 27 (4), 445–459.
56. P.K.H.MoPhoenix K. H.N.S.CoulsonNeil S. (2008), “Exploring the Communication of Social Support within Virtual Communities: A Content Analysis of Messages Posted to an Online HIV/AIDS Support Group,” CyberPsychology and Behavior, 11 (3), 371–374.
57. R.MüllerRolfC.PeterClaudioA.CiezaAlarcosS.GeyhSzilvia (2012), “The Role of Social Support and Social Skills in People with Spinal Cord Injury—A Systematic Review of the Literature,” Spinal Cord, 50 (2), 94–106.
58. L.NaLingB.NaBing (2013), “A Revolutionary Road: An Analysis of Persons Living with Hepatitis B in China,” Journal of Health Communication, 18 (1), 71–91.
59. B.NausheenBinaY.GidronYoriR.PevelerRobertR.Moss-MorrisRona (2009), “Social Support and Cancer Progression: A Systematic Review,” Journal of Psychosomatic Research, 67 (5), 403–415.
60. A.L.OstromAmy L.M.J.BitnerMary J.S.W.BrownStephen W.K.A.BurkhardKevin A.M.GoulMichaelV.Smith-DanielsVickiH.DemirkanHulukE.RabinovichElliot (2010), “Moving Forward and Making a Difference: Research Priorities for the Science of Service,” Journal of Service Research, 13 (1), 4–36.
61. C.PollardClairP.KennedyPaul (2007), “A Longitudinal Analysis of Emotional Impact, Coping Strategies and Post-Traumatic Psychological Growth Following Spinal Cord Injury: A 10-Year Review,” British Journal of Health Psychology, 12 (3), 347–362.
62. R.RajeswariM.MuniyandiR.BalasubramanianRaniP.R.Narayanan (2005), “Perceptions of Tuberculosis Patients About Their Physical, Mental and Social Well-Being: A Field Report From South India,” Social Science and Medicine, 60 (8), 1845–1853.
63. M.S.RosenbaumMark S.J.WardJamesB.A.WalkerBeth A.A.L.OstromAmy L. (2007), “A Cup of Coffee with a Dash of Love an Investigation of Commercial Social Support and Third-Place Attachment,” Journal of Service Research, 10 (1), 43–59.
64. R.M.RyanRichard M.E.L.DeciEdward L. (2002), “Overview of Self-Determination Theory: An Organismic Dialectical Perspective,” in Handbook of Self-Determination Research, E.L.DeciR.M.Ryan, eds. Rochester, NY: University of Rochester Press, 3–33.
65. C.D.RyffCarol D. (1995), “Psychological Well-Being in Adult Life,” Current Directions in Psychological Science, 4 (4), 99–104.
66. A.SchopenhauerArthur (1964), The Pessimist’s Handbook. Lincoln: University of Nebraska Press.
67. R.SchwarzerRalfU.SchulzUte (2003), “Social Support in Coping with Illness: The Berlin Social Support Scales (BSSS),” Diagnostica, 49 (2), 73–82.
68. J.M.SirgyJoseph M.T.CornwellTerri (2001), “Further Validation of the Sirgy et al.’s Measure of Community Quality of Life,” Social Indicators Research, 56 (2), 125–143.
69. J.M.SirgyJoseph M. (1996), “Strategic Marketing Planning Guided by the Quality-of-Life (QOL) Concept,” Journal of Business Ethics, 15 (3), 241–259.
70. M.F.StegerMichael F.T.B.KashdanTodd B.S.OishiShigehiro (2008), “Being Good by Doing Good: Daily Eudaimonic Activity and Well-Being,” Journal of Research in Personality, 42 (1), 22–42.
71. Triandis, Harry Charalambos (1995), Individualism and Collectivism. Boulder, CO: Westview Press.
72. D.TschoppDaniel (2003), “It’s Time for Triple Bottom Line Reporting,” The CPA Journal, 73 (12), 11.
73. J.M.TwengeJean M.R.F.BaumeisterRoy F.C.Nathan DeWallN.J.CiaroccoNatalie J.B.J.MichaelBartels J. (2007), “Social Exclusion Decreases Prosocial Behavior,” Journal of Personality and Social Psychology, 92 (1), 56–66.
74. J.B.WaltherJoseph B.S.PingreeSuzanneR.P.HawkinsRobert P.D.B.BullerDavid B. (2005), “Attributes of Interactive Online Health Information Systems,” Journal of Medical Internet Research, 7 (3), 1–10.
75. B.WellmanBarryS.WortleyScot (1990), “Different Strokes From Different Folks: Community Ties and Social Support,” American Journal of Sociology, 96 (3), 558–588.
76. L.WhiteLeroyB.CantBob (2003), “Social Networks, Social Support, Health and HIV-Positive Gay Men,” Health and Social Care in the Community, 11 (4), 329–334.
77. WHOQOL Group (1994), “Development of the WHOQOL: Rationale and Current Status,” International Journal of Mental Health, 23 (3), 24–56.
78. T.A.WillsThomas A.M.G.AinetteMichael G. (2012), “Social Networks and Social Support,” in Handbook of Health Psychology, A.BaumT.A.RevensonJ.E.Singer, eds. New York: Psychology Press, 465–492.
79. R.B.WoodruffRobert B.S.GardialSarah (1996), Know Your Customer: New Approaches to Customer Value and Satisfaction. Cambridge, MA: Blackwell Business.
80. K.WrightKevin (2002), “Social Support within an On-Line Cancer Community: An Assessment of Emotional Support, Perceptions of Advantages and Disadvantages, and Motives for Using the Community From a Communication Perspective,” Journal of Applied Communication Research, 30 (3), 195–209.
81. K.WrightKevin (2000), “Computer-Mediated Social Support, Older Adults, and Coping,” Journal of Communication, 50 (3), 100–118.
82. W.YooWoohyunK.NamkoongKangM.ChoiMinaD.V.ShahDhavan V.S.TsangStephanieY.HongYangsunM.AguilarMichaelD.H.GustafsonDavid H. (2014), “Giving and Receiving Emotional Support Online: Communication Competence as a Moderator of Psychosocial Benefits for Women with Breast Cancer,” Computers in Human Behavior, 30 (January), 13–22.
83. S.ZieblandSueA.ChappleAlisonC.DumelowCarolJ.EvansJulieS.PrinjhaSumanL.RozmovitsLinda (2004), “How the Internet Affects Patients’ Experience of Cancer: A Qualitative Study,” British Medical Journal, 328 (7439), 564–569.