Incidence of narcolepsy in Germany

Sleep

Volumn 38, Issue 10, 2015, Pages 1619-1628

  Oberle, Doris ^a   Drechsel Bäuerle, Ursula ^a   Schmidtmann, Irene ^b   Mayer, Geert ^c   Keller Stanislawski, Brigitte ^a  

^a PAUL EHRLICH INSTITUT   (Germany)

^b JOHANNES GUTENBERG UNIVERSITY   (Germany)

^c Hephata Klinik   (Germany)

Author keywords

Epidemiology; Germany; Incidence; Narcolepsy

Indexed keywords

ADOLESCENT; ADOLESCENT DISEASE; ADULT; ADULT DISEASE; ALLERGIC RHINITIS; ARTICLE; CHILD; CHILDHOOD DISEASE; EPIDEMIOLOGICAL MONITORING; FEMALE; GERMANY; HUMAN; INCIDENCE; INFANT; MAJOR CLINICAL STUDY; MALE; MOTOR DYSFUNCTION; NARCOLEPSY; OBESITY; OBSERVATIONAL STUDY; PRIORITY JOURNAL; RETROSPECTIVE STUDY; SLEEP DISORDERED BREATHING; SLEEP WALKING; SOMATOFORM DISORDER; YOUNG ADULT; ADVERSE EFFECTS; IMMUNOLOGY; INFLUENZA; INFLUENZA A VIRUS (H1N1); NEWBORN; PRESCHOOL CHILD; SEASON; SLEEP; STATISTICS AND NUMERICAL DATA; VACCINATION; VIROLOGY;

IMMUNOLOGICAL ADJUVANT; INFLUENZA VACCINE;

ADJUVANTS, IMMUNOLOGIC; ADOLESCENT; ADULT; CHILD; CHILD, PRESCHOOL; FEMALE; GERMANY; HUMANS; INCIDENCE; INFANT; INFANT, NEWBORN; INFLUENZA A VIRUS, H1N1 SUBTYPE; INFLUENZA VACCINES; INFLUENZA, HUMAN; MALE; NARCOLEPSY; RETROSPECTIVE STUDIES; SEASONS; SLEEP; VACCINATION; YOUNG ADULT;

EID: 84934311217     PISSN: 01618105     EISSN: 15509109     Source Type: Journal    
DOI: 10.5665/sleep.5060     Document Type: Article

References (38)

1. Hublin C, Kaprio J, Partinen M, et al. The prevalence of narcolepsy: an epidemiological study of the Finnish Twin Cohort. Ann Neurol 1994;35:709-16.
2. Longstreth WTJ, Koepsell TD, Ton TG, Hendrickson AF, van Belle G. The epidemiology of narcolepsy. Sleep 2007;30:13-26
3. Ohayon MM, Priest RG, Caulet M, Guilleminault C. Hypnagogic and hypnopompic hallucinations: pathological phenomena? Br J Psychiatry 1996;169:459-67.
4. Silber MH, Krahn LE, Olson EJ, Pankratz VS. The epidemiology of narcolepsy in Olmsted County, Minnesota: a population-based study. Sleep 2002;25:197-202.
5. MPA. Registerstudie med fokud pa neurologiska och immunrelaterade sjukdomar efter vaccination med Pandemrix. 2013. http://www.lakemedelsverket.se/upload/nyheter/2013/PDX%20Rapport%20 SV%20-%20registerstudie%207%20landsting%20regioner%202013-03-26.pdf. Accessed March 2013.
6. Nohynek H, Jokinen J, Partinen M, et al. AS03 adjuvanted AH1N1 vaccine associated with an abrupt increase in the incidence of childhood narcolepsy in Finland. PLoS One 2012;7:e33536.
7. Miller E, Andrews N, Stellitano L, et al. Risk of narcolepsy in children and young people receiving AS03 adjuvanted pandemic A/H1N1 2009 influenza vaccine: retrospective analysis. BMJ 2013;346:f794.
8. European Centre for Disease Control and Prevention. Narcolepsy in association with pandemic influenza vaccination-a multi-country European epidemiological investigation. http://www.ecdc.europa.eu/en/publications/Publications/Forms/ECDC-DispForm.aspx?ID=959.2013. Accessed September 2012.
9. Dauvilliers Y, Arnulf I, Lecendreux M, et al. Increased risk of narcolepsy in children and adults after pandemic H1N1 vaccination in France. Brain 2013;136:2486-96.
10. Persson I, Granath F, Askling J, Ludvigsson JF, Olsson T, Feltelius N. Risks of neurological and immune-related diseases, including narcolepsy, after vaccination with Pandemrix: a populationand registry-based cohort study with over 2 years of follow-up. J Intern Med 2014;275:172-90.
11. O'Flanagan D, Barret AS, Foley M, et al. Investigation of an association between onset of narcolepsy and vaccination with pandemic influenza vaccine, Ireland April 2009-December 2010. Euro Surveill 2014;19:15-25.
12. Montplaisir J, Petit D, Quinn M, et al. Risk of narcolepsy associated with inactivated adjuvanted (AS03) A/H1N1 (2009) pandemic influenza vaccine in Quebec. PLoS One 2014;9:e108489.
13. Partinen M, Saarenpaa-Heikkila O, Ilveskoski I, et al. Increased incidence and clinical picture of childhood narcolepsy following the 2009 H1N1 pandemic vaccination campaign in Finland. PLoS One 2012;7:e33723.
14. Szakacs A, Darin N, Hallbook T. Increased childhood incidence of narcolepsy in western Sweden after H1N1 influenza vaccination. Neurology 2013;80:1315-21.
15. Wijnans L, Lecomte C, de VC, et al. The incidence of narcolepsy in Europe: before, during, and after the influenza A(H1N1)pdm09 pandemic and vaccination campaigns. Vaccine 2012;31:1246-54.
16. Heier MS, Gautvik KM, Wannag E, et al. Incidence of narcolepsy in Norwegian children and adolescents after vaccination against H1N1 influenza A. Sleep Med 2013;14:867-71.
17. Berner R, Bialek R, Forster J. Erhebungseinheit für seltene pädiatrische Erkrankungen in Deutschland (ESPED). Monatsschr Kinderheilk. 2004;152:7779. Available at: http://www.esped.uni-duesseldorf.de/jabe2002-r.htm#narko. Accessed January 2015.
18. Handwerker G. Narkolepsie im Kindes-und Jugendalter. Monatsschr Kinderheilk. Monatsschrift Kinderheilk. 2005;2:153.
19. Kail RV, Cavanaugh JC. Human development: a life-span view. 5th ed. Australia, Belmont, CA: Wadsworth Cengage Learning, 2010.
20. Daly L. Simple SAS macros for the calculation of exact binomial and Poisson confidence limits. Comput Biol Med 1992;22:351-61.
21. Hook EB, Regal RR. Capture-recapture methods in epidemiology: methods and limitations. Epidemiol Rev 1995;17:243-64.
22. Petersen CG. The yearly immigration of young plaice into the Limfiord from the German Sea. Rep Dan Biol Stn 1896;6:5-84.
23. Ruckinger S, Boneberger A. [Epidemiologic challenges in rare diseases]. Bundesgesundheitsblatt. Gesundheitsforschung. Gesundheitsschutz 2008;51:483-90.
24. Chao A. Estimating the population size for capture-recapture data with unequal catchability. Biometrics 1987;43:783-91.
25. Sekar CC, Deming WE. On a method of estimating birth and death rates and the extent of registration. J Am Stat Assn 1949;44:102-5.
26. Chapman DG. Some properties of the hypergeometric distribution with applications to zoological sample censuses. University of California Publication in Statistics 1951;1:1131-60.
27. Zelterman D. Robust estimation in truncated discrete distributions with application to capture-recapture experiments. J Stat Plan Inference 1988;18:225-7.
28. Stokes M, Koch G. Up to speed with categorical data analysis. 2011. Available at: https://support.sas.com/resources/papers/proceedings11/346-2011. Accessed February 2014.
29. Eurostat European Commission. Revision of the European Standard Population. Report of Eurostat's Task Force. 2013. http://epp.eurostat.ec.europa.eu/cache/ITY-OFFPUB/KS-RA-13-028/EN/KS-RA-13-028-EN.pdf. Accessed February 2014.
30. Ramsay CR, Matowe L, Grilli R, Grimshaw JM, Thomas RE. Interrupted time series designs in health technology assessment: lessons from two systematic reviews of behavior change strategies. Int J Technol Assess Health Care 2003;19:613-23.
31. Zhang XZ, Penzel T, Han F. Increased incidence of narcolepsy following the 2009 H1N1 pandemic. Somnologie 2013;17:90-3.
32. Han F, Lin L, Warby SC, et al. Narcolepsy onset is seasonal and increased following the 2009 H1N1 pandemic in China. Ann Neurol 2011;70:410-17.
33. Choe YJ, Bae G, Lee D. No association between influenza A(H1N1) pdm09 vaccination and narcolepsy in South Korea: an ecological study. Vaccine 2012;30:7439-42.
34. Nohynek H et al. Increased risk of narcolepsy observed also among adults vaccinated with Pandemrix in Finland. 2013. http://www.thl.fi/en-US/web/en/pressrelease?id=33516. Accessed May 2013.
35. Buda S, Köpke K, Luchtenberg M, et al. Bericht zur Epidemiologie der Influenza Saison 2009/2010. Epidemiologisches Bulletin 2010;21.
36. Walter D, Böhmer MM, an der Heiden M, Reiter S, Krause G, Wichmann O. Monitoring pandemic influenza A(H1N1) vaccination coverage in Germany 2009/10-results from thirteen consecutive cross-sectional surveys. Vaccine 2011;29:4008-12.
37. Deutsche Gesellschaft für Neurologie. AWMF-Leitlinien-Register Nr. 030/056: "Narkolepsie." 2008. http://www.awmf.org/uploads/tx-szleitlinien/030-056-S1-Narkolepsie-10-2008-10-2013.pdf. Accessed February 2011.
38. Deutsche Gesellschaft für Neurologie. AWMF-Leitlinien-Register Nr. 030/056: "Narkolepsie." 2012. http://www.awmf.org/leitlinien/detail/ll/030-056.html. Accessed February 2014.