메뉴 건너뛰기




Volumn 100, Issue 7, 2015, Pages 623-629

Paediatric multiple sclerosis: A qualitative study of families' diagnosis experiences

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADOLESCENT DISEASE; ARTICLE; CHILD; CHILD HEALTH CARE; CHILDHOOD DISEASE; CLINICAL ARTICLE; CONSTANT COMPARATIVE METHOD; EARLY DIAGNOSIS; FEMALE; HUMAN; INFORMATION SEEKING; MALE; MEDICAL SPECIALIST; MULTIPLE SCLEROSIS; PARENT; PATIENT REFERRAL; PERSONAL EXPERIENCE; PRIORITY JOURNAL; QUALITATIVE RESEARCH; SEMI STRUCTURED INTERVIEW; SYMPTOM; UNITED KINGDOM; ATTITUDE TO HEALTH; CLINICAL COMPETENCE; HUMAN RELATION; INTERPERSONAL COMMUNICATION; PRESCHOOL CHILD; PSYCHOLOGY;

EID: 84933182091     PISSN: 00039888     EISSN: 14682044     Source Type: Journal    
DOI: 10.1136/archdischild-2014-306523     Document Type: Article
Times cited : (16)

References (40)
  • 1
    • 34548619970 scopus 로고    scopus 로고
    • Multiple sclerosis in children: Clinical diagnosis, therapeutic strategies, and future directions
    • Banwell B, Ghezzi A, Bar-Or A, et al. Multiple sclerosis in children: clinical diagnosis, therapeutic strategies, and future directions. Lancet Neurol 2007;6:887-902.
    • (2007) Lancet Neurol , vol.6 , pp. 887-902
    • Banwell, B.1    Ghezzi, A.2    Bar-Or, A.3
  • 2
    • 34250749606 scopus 로고    scopus 로고
    • Natural history of multiple sclerosis with childhood onset
    • Renoux C, Vukusic S, Mikaeloff Y, et al. Natural history of multiple sclerosis with childhood onset. N Engl J Med 2007;356:2603-13.
    • (2007) N Engl J Med , vol.356 , pp. 2603-2613
    • Renoux, C.1    Vukusic, S.2    Mikaeloff, Y.3
  • 3
    • 84872674877 scopus 로고    scopus 로고
    • Long-term outcome of paediatric-onset multiple sclerosis: A population-based study
    • Harding KE, Liang K, Cossburn MD, et al. Long-term outcome of paediatric-onset multiple sclerosis: a population-based study. J Neurol Neurosurg Psychiatry 2013;84:141-7.
    • (2013) J Neurol Neurosurg Psychiatry , vol.84 , pp. 141-147
    • Harding, K.E.1    Liang, K.2    Cossburn, M.D.3
  • 4
    • 84872286226 scopus 로고    scopus 로고
    • Paediatric acquired demyelinating syndromes: Incidence, clinical and magnetic resonance imaging features
    • Absoud M, Lim MJ, Chong WK, et al. Paediatric acquired demyelinating syndromes: incidence, clinical and magnetic resonance imaging features. Mult Scler J 2013;19:76-86.
    • (2013) Mult Scler J , vol.19 , pp. 76-86
    • Absoud, M.1    Lim, M.J.2    Chong, W.K.3
  • 5
    • 84879778997 scopus 로고    scopus 로고
    • International Pediatric Multiple Sclerosis Study Group criteria for pediatric multiple sclerosis and immune-mediated central nervous system demyelinating disorders: Revisions to the 2007 definitions
    • Krupp LB, Tardieu M, Amato MP, et al. International Pediatric Multiple Sclerosis Study Group criteria for pediatric multiple sclerosis and immune-mediated central nervous system demyelinating disorders: revisions to the 2007 definitions. Mult Scler J 2013;19:1261-7.
    • (2013) Mult Scler J , vol.19 , pp. 1261-1267
    • Krupp, L.B.1    Tardieu, M.2    Amato, M.P.3
  • 7
    • 78650728243 scopus 로고    scopus 로고
    • Pediatric multiple sclerosis
    • Multiple Sclerosis
    • Mowry EM, Waubant E. Pediatric multiple sclerosis. Continuum (Minneap Minn) 2010;16(5, Multiple Sclerosis):181-92.
    • (2010) Continuum (Minneap Minn) , vol.16 , Issue.5 , pp. 181-192
    • Mowry, E.M.1    Waubant, E.2
  • 8
    • 34247192638 scopus 로고    scopus 로고
    • Clinical features of children and adolescents with multiple sclerosis
    • Ness JM, Chabas D, Sadovnick AD, et al. Clinical features of children and adolescents with multiple sclerosis. Neurology 2007;68(16 Suppl 2):S37-45.
    • (2007) Neurology , vol.68 , Issue.16 , pp. S37-S45
    • Ness, J.M.1    Chabas, D.2    Sadovnick, A.D.3
  • 9
    • 34247273114 scopus 로고    scopus 로고
    • Treatment of pediatric multiple sclerosis and variants
    • Pohl D, Waubant E, Banwell B, et al. Treatment of pediatric multiple sclerosis and variants. Neurology 2007;68(16 Suppl 2):S54-65.
    • (2007) Neurology , vol.68 , Issue.16 , pp. S54-S65
    • Pohl, D.1    Waubant, E.2    Banwell, B.3
  • 10
    • 84882927157 scopus 로고    scopus 로고
    • Therapeutic advances in pediatric multiple sclerosis
    • Van Haren K, Waubant E. Therapeutic advances in pediatric multiple sclerosis. J Pediatr 2013;163:631-7.
    • (2013) J Pediatr , vol.163 , pp. 631-637
    • Van Haren, K.1    Waubant, E.2
  • 11
    • 78649528800 scopus 로고    scopus 로고
    • Emerging concepts in pediatric-onset multiple sclerosis and related disorders
    • Tenembaum SN. Emerging concepts in pediatric-onset multiple sclerosis and related disorders. Curr Opin Pediatr 2010;22:726-30.
    • (2010) Curr Opin Pediatr , vol.22 , pp. 726-730
    • Tenembaum, S.N.1
  • 12
    • 72749106610 scopus 로고    scopus 로고
    • Fatigue and quality of life in pediatric multiple sclerosis
    • MacAllister WS, Christodoulou C, Troxell R, et al. Fatigue and quality of life in pediatric multiple sclerosis. Mult Scler 2009;15:1502-8.
    • (2009) Mult Scler , vol.15 , pp. 1502-1508
    • MacAllister, W.S.1    Christodoulou, C.2    Troxell, R.3
  • 13
    • 77958128392 scopus 로고    scopus 로고
    • Psychosocial issue in children and adolescents with multiple sclerosis
    • Goretti B, Ghezzi A, Portaccio E, et al. Psychosocial issue in children and adolescents with multiple sclerosis. Neurol Sci 2010;31:467-70.
    • (2010) Neurol Sci , vol.31 , pp. 467-470
    • Goretti, B.1    Ghezzi, A.2    Portaccio, E.3
  • 14
    • 84898936514 scopus 로고    scopus 로고
    • Psychiatric diagnoses and cognitive impairment in pediatric multiple sclerosis
    • Weisbrot D, Charvet L, Serafin D, et al. Psychiatric diagnoses and cognitive impairment in pediatric multiple sclerosis. Mult Scler 2014;20:588-93.
    • (2014) Mult Scler , vol.20 , pp. 588-593
    • Weisbrot, D.1    Charvet, L.2    Serafin, D.3
  • 15
    • 34250157392 scopus 로고    scopus 로고
    • Clinically isolated syndromes: Predicting and delaying multiple sclerosis
    • Thrower BW. Clinically isolated syndromes: predicting and delaying multiple sclerosis. Neurology 2007;68:S12-15.
    • (2007) Neurology , vol.68 , pp. S12-S15
    • Thrower, B.W.1
  • 16
    • 77951775381 scopus 로고    scopus 로고
    • A comparison of MRI criteria for diagnosing pediatric ADEM and MS
    • Ketelslegers IA, Neuteboom RF, Boon M, et al. A comparison of MRI criteria for diagnosing pediatric ADEM and MS. Neurology 2010;74:1412-15.
    • (2010) Neurology , vol.74 , pp. 1412-1415
    • Ketelslegers, I.A.1    Neuteboom, R.F.2    Boon, M.3
  • 17
    • 84888324645 scopus 로고    scopus 로고
    • Rare inflammatory diseases of the white matter and mimics of multiple sclerosis and related disorders
    • Tardieu M, Deiva K. Rare inflammatory diseases of the white matter and mimics of multiple sclerosis and related disorders. Neuropediatrics 2013;44(EFirst):302-8.
    • (2013) Neuropediatrics , vol.44 , Issue.EFIRST , pp. 302-308
    • Tardieu, M.1    Deiva, K.2
  • 18
    • 54549122739 scopus 로고    scopus 로고
    • Vanishing MS T2-bright lesions before puberty: A distinct MRI phenotype?
    • Chabas D, Castillo-Trivino T, Mowry EM, et al. Vanishing MS T2-bright lesions before puberty: a distinct MRI phenotype? Neurology 2008;71:1090-3.
    • (2008) Neurology , vol.71 , pp. 1090-1093
    • Chabas, D.1    Castillo-Trivino, T.2    Mowry, E.M.3
  • 19
    • 84873124102 scopus 로고    scopus 로고
    • Disease-modifying therapy of pediatric multiple sclerosis
    • Chitnis T. Disease-modifying therapy of pediatric multiple sclerosis. Neurotherapeutics 2013;10:89-96.
    • (2013) Neurotherapeutics , vol.10 , pp. 89-96
    • Chitnis, T.1
  • 20
    • 43149090973 scopus 로고    scopus 로고
    • Experiences of diagnosis and treatment among people with multiple sclerosis
    • Edwards RG, Barlow JH, Turner AP. Experiences of diagnosis and treatment among people with multiple sclerosis. J Eval Clin Pract 2008;14:460-4.
    • (2008) J Eval Clin Pract , vol.14 , pp. 460-464
    • Edwards, R.G.1    Barlow, J.H.2    Turner, A.P.3
  • 21
    • 50549084786 scopus 로고    scopus 로고
    • What can we learn from the personal insights of individuals living and coping with multiple sclerosis?
    • Malcomson KS, Lowe-Strong AS, Dunwoody L. What can we learn from the personal insights of individuals living and coping with multiple sclerosis? Disabil Rehabil 2008;30:662-74.
    • (2008) Disabil Rehabil , vol.30 , pp. 662-674
    • Malcomson, K.S.1    Lowe-Strong, A.S.2    Dunwoody, L.3
  • 22
    • 33748646564 scopus 로고    scopus 로고
    • From symptom to diagnosis: Illness experiences of multiple sclerosis patients
    • Isaksson AK, Ahlström G. From symptom to diagnosis: illness experiences of multiple sclerosis patients. J Neurosci Nurs 2006;38:229-37.
    • (2006) J Neurosci Nurs , vol.38 , pp. 229-237
    • Isaksson, A.K.1    Ahlström, G.2
  • 23
    • 33847280974 scopus 로고    scopus 로고
    • Into the unknown: The experiences of individuals living with multiple sclerosis
    • Barker-Collo S, Cartwright C, Read J. Into the unknown: the experiences of individuals living with multiple sclerosis. J Neurosci Nurs 2006;38:435.
    • (2006) J Neurosci Nurs , vol.38 , pp. 435
    • Barker-Collo, S.1    Cartwright, C.2    Read, J.3
  • 24
    • 84860163586 scopus 로고    scopus 로고
    • Effect of the disclosure of MS diagnosis on anxiety, mood and quality of life of patients: A prospective study
    • Mattarozzi K, Vignatelli L, Baldin E, et al. Effect of the disclosure of MS diagnosis on anxiety, mood and quality of life of patients: a prospective study. Int J Clin Pract 2012;66:504-14.
    • (2012) Int J Clin Pract , vol.66 , pp. 504-514
    • Mattarozzi, K.1    Vignatelli, L.2    Baldin, E.3
  • 26
    • 0003203365 scopus 로고    scopus 로고
    • Can't talk, won't talk? Methodological issues in researching children
    • Harden J, Scott S, Backett-Milburn K, et al. Can't talk, won't talk? Methodological issues in researching children. Sociol Res Online 2000;5.
    • (2000) Sociol Res Online , pp. 5
    • Harden, J.1    Scott, S.2    Backett-Milburn, K.3
  • 27
    • 0038797921 scopus 로고    scopus 로고
    • Research with children: The same or different from research with adults?
    • Punch S. Research with children: the same or different from research with adults? Childhood 2002;9:321-41.
    • (2002) Childhood , vol.9 , pp. 321-341
    • Punch, S.1
  • 29
    • 0036417122 scopus 로고    scopus 로고
    • A purposeful approach to the constant comparative method in the analysis of qualitative interviews
    • Boeije H. A purposeful approach to the constant comparative method in the analysis of qualitative interviews. Qual Quant 2002;36:391-409.
    • (2002) Qual Quant , vol.36 , pp. 391-409
    • Boeije, H.1
  • 30
    • 0035845256 scopus 로고    scopus 로고
    • Qualitative research: Standards, challenges, and guidelines
    • Malterud K. Qualitative research: standards, challenges, and guidelines. Lancet 2001;358:483-8.
    • (2001) Lancet , vol.358 , pp. 483-488
    • Malterud, K.1
  • 31
    • 78650408570 scopus 로고    scopus 로고
    • Living without a diagnosis: The parental experience
    • Lewis C, Skirton H, Jones R. Living without a diagnosis: the parental experience. Genet Test Mol Biomarkers 2010;14:807-15.
    • (2010) Genet Test Mol Biomarkers , vol.14 , pp. 807-815
    • Lewis, C.1    Skirton, H.2    Jones, R.3
  • 32
    • 0035799137 scopus 로고    scopus 로고
    • Parents' accounts of obtaining a diagnosis of childhood cancer
    • Dixon-Woods M, Findlay M, Young B, et al. Parents' accounts of obtaining a diagnosis of childhood cancer. Lancet 2001;357:670-4.
    • (2001) Lancet , vol.357 , pp. 670-674
    • Dixon-Woods, M.1    Findlay, M.2    Young, B.3
  • 33
    • 57149098451 scopus 로고    scopus 로고
    • Rare childhood diseases: How should we respond?
    • Zurynski Y, Frith K, Leonard H, et al. Rare childhood diseases: how should we respond? Arch Dis Child 2008;93:1071-4.
    • (2008) Arch Dis Child , vol.93 , pp. 1071-1074
    • Zurynski, Y.1    Frith, K.2    Leonard, H.3
  • 35
    • 78149248491 scopus 로고    scopus 로고
    • Access to pediatric rheumatology care - A major challenge to improving outcome in juvenile idiopathic arthritis
    • Foster H, Rapley T. Access to pediatric rheumatology care - a major challenge to improving outcome in juvenile idiopathic arthritis. J Rheumatol 2010;37:2199-202.
    • (2010) J Rheumatol , vol.37 , pp. 2199-2202
    • Foster, H.1    Rapley, T.2
  • 37
    • 84861131262 scopus 로고    scopus 로고
    • 'You know what boys are like': Pre-diagnosis experiences of parents of children with autism spectrum conditions
    • Ryan S, Salisbury H. 'You know what boys are like': pre-diagnosis experiences of parents of children with autism spectrum conditions. Br J Gen Pract 2012;62: e378-e83.
    • (2012) Br J Gen Pract , vol.62 , pp. e378-e383
    • Ryan, S.1    Salisbury, H.2
  • 38
    • 25844451134 scopus 로고    scopus 로고
    • Delayed diagnosis of cystic fibrosis and the family perspective
    • Kharrazi M, Kharrazi LD. Delayed diagnosis of cystic fibrosis and the family perspective. J Pediatr 2005;147(3 Suppl):S21-5.
    • (2005) J Pediatr , vol.147 , Issue.3 , pp. S21-S25
    • Kharrazi, M.1    Kharrazi, L.D.2
  • 39
    • 0033046761 scopus 로고    scopus 로고
    • Disputed diagnoses: The cases of RSI and childhood cancer
    • Arksey H, Sloper P. Disputed diagnoses: the cases of RSI and childhood cancer. Soc Sci Med 1999;49:483-97.
    • (1999) Soc Sci Med , vol.49 , pp. 483-497
    • Arksey, H.1    Sloper, P.2
  • 40
    • 84933189040 scopus 로고    scopus 로고
    • A framework for breaking bad news
    • no date
    • Skills Cascade. A framework for breaking bad news. Secondary A Framework for Breaking Bad News no date. http://www.skillscascade.com/badnews.htm
    • Secondary a Framework for Breaking Bad News


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.