State legislation, regulations, and hospital guidelines for newborn screening for critical congenital heart defects — United States, 2011–2014

Morbidity and Mortality Weekly Report

Volumn 64, Issue 23, 2015, Pages 625-630

  Glidewell, Jill ^a   Olney, Richard S ^a   Hinton, Cynthia ^a   Pawelski, Jim ^b   Sontag, Marci ^c   Wood, Thalia ^d   Kucik, James E ^e   Daskalov, Rachel ^b   Hudson, Jeff ^b  

^a NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES   (United States)

^b AMERICAN ACADEMY OF PEDIATRICS   (United States)

^c UNIVERSITY OF COLORADO   (United States)

^d ASSOCIATION OF PUBLIC HEALTH LABORATORIES   (United States)

^e CENTERS FOR DISEASE CONTROL AND PREVENTION   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

HEART DEFECTS, CONGENITAL; HOSPITAL; HUMAN; INFORMATION PROCESSING; LEGISLATION AND JURISPRUDENCE; NEWBORN; NEWBORN SCREENING; PRACTICE GUIDELINE; STANDARDS; UNITED STATES;

DATA COLLECTION; HEART DEFECTS, CONGENITAL; HOSPITALS; HUMANS; INFANT, NEWBORN; NEONATAL SCREENING; PRACTICE GUIDELINES AS TOPIC; UNITED STATES;

EID: 84931834021     PISSN: 01492195     EISSN: 1545861X     Source Type: Journal    
DOI: None     Document Type: Article

References (9)

1. Mahle WT, Newburger JW, Matherne GP, et al.; American Heart Association Congenital Heart Defects Committee of the Council on Cardiovascular Disease in the Young, Council on Cardiovascular Nursing, and Interdisciplinary Council on Quality of Care and Outcomes Research; American Academy of Pediatrics Section on Cardiology And Cardiac Surgery; Committee On Fetus And Newborn. Role of pulse oximetry in examining newborns for congenital heart disease: a scientific statement from the AHA and AAP. Pediatrics 2009;124:823–36.
2. Pass KA, Lane PA, Fernhoff PM, et al. Statement of the Council of Regional Networks for Genetic Services (CORN). US newborn screening system guidelines II: follow-up of children, diagnosis, management, and evaluation. J Pediatr 2000;137(4 Suppl):S1–46.
3. Calonge N, Green NS, Rinaldo P, et al.; Advisory Committee on Heritable Disorders in Newborns and Children. Committee report: method for evaluating conditions nominated for population-based screening of newborns and children. Genet Med 2010;12:153–9.
4. Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children. HHS Secretary adopts recommendation to add critical congenital heart disease to the Recommended Uniform Screening Panel. September 21, 2011. Washington, DC: US Department of Health and Human Services; 2011. Available at http://www.hrsa.gov/ advisorycommittees/mchbadvisory/heritabledisorders/recommendations/ correspondence/cyanoticheartsecre09212011.pdf.
5. Therrell BL Jr. U.S. newborn screening policy dilemmas for the twenty-first century. Mol Genet Metab 2001;74:64–74.
6. NewSTEPs: Newborn Screening Technical assistance and Evaluation Program., Silver Spring, Maryland, Association of Public Health Laboratories. Available at https://www.newsteps.org.
7. Kemper AR, Mahle WT, Martin GR, et al. Strategies for implementing screening for critical congenital heart disease. Pediatrics 2011; 128:e1259–67.
8. Association of Maternal and Child Health Programs. Issue brief: state newborn screening and birth defects program roles in screening for CCHD. October 2013. Available at http://www.amchp.org/ programsandtopics/CHILD-HEALTH/projects/newborn-screening/ Documents/AMCHP_Screening_for_CCHD_Issue_Brief_FINAL-Oct2013.pdf.
9. CDC. Newborn screening for critical congenital heart disease: potential roles of birth defects surveillance programs—United States, 2010–2011. MMWR Morb Mortal Wkly Rep 2012;61:849–53.