메뉴 건너뛰기




Volumn 24, Issue 1, 2015, Pages 67-77

“We Don’t Know Her History, Her Background”: Adoptive Parents’ Perspectives on Whole Genome Sequencing Results

Author keywords

Adoption; Ancestry; Autonomy; Direct to consumer genetic testing; Exome sequencing; Return of results; Whole genome sequencing

Indexed keywords

ADOPTION; ATTITUDE TO HEALTH; CHILD; EXOME; FAMILY HEALTH; FEMALE; GENETIC SCREENING; HUMAN; HUMAN GENOME; INFORMATION PROCESSING; MALE; PARENT; PROCEDURES; PSYCHOLOGY;

EID: 84930695419     PISSN: 10597700     EISSN: 15733599     Source Type: Journal    
DOI: 10.1007/s10897-014-9738-z     Document Type: Article
Times cited : (19)

References (24)
  • 1
    • 84939924517 scopus 로고    scopus 로고
    • . November 5, 2013. Retrieved from
    • 23andMe Helps Man Find Family. November 5, 2013. Retrieved from http://blog.23andme.com/23andme-customer-stories/23andme-helps-man-find-family/.
    • 23andMe Helps Man Find Family
  • 2
    • 84939924518 scopus 로고    scopus 로고
    • February 11, 2013. Retrieved from
    • 23andMe’s Tools Help Solve Ancestry Mystery. February 11, 2013. Retrieved from http://blog.23andme.com/ancestry/23andmes-tools-help-solve-ancestry-mystery/.
    • 23andMe’s Tools Help Solve Ancestry Mystery.
  • 3
    • 84939924519 scopus 로고    scopus 로고
    • November 20, 2013. Retrieved from
    • Amy’s Story. November 20, 2013. Retrieved from http://blog.23andme.com/23andme-customer-stories/amys-story.
    • Amy’s Story.
  • 4
    • 84939924520 scopus 로고    scopus 로고
    • October 30, 2013. Retrieved from
    • An Unexpected Discovery. October 30, 2013. Retrieved from http://blog.23andme.com/23andme-customer-stories/an-unexpected-discovery/.
    • An Unexpected Discovery.
  • 5
    • 0028872836 scopus 로고
    • Points to consider: ethical, legal, and psychosocial implications of genetic testing in children and adolescents. American society of human genetics board of directors, american college of medical genetics board of directors
    • ASHG/ACMG. (1995). Points to consider: ethical, legal, and psychosocial implications of genetic testing in children and adolescents. American society of human genetics board of directors, american college of medical genetics board of directors. American Journal of Human Genetics, 57(5), 1233–1241.
    • (1995) American Journal of Human Genetics , vol.57 , Issue.5 , pp. 1233-1241
    • ASHG/ACMG1
  • 6
    • 0033912028 scopus 로고    scopus 로고
    • Genetic testing in adoption. The american society of human genetics social issues committee and the american college of medical genetics social, ethical, and legal issues committee
    • ASHG/ACMG. (2000). Genetic testing in adoption. The american society of human genetics social issues committee and the american college of medical genetics social, ethical, and legal issues committee. American Journal of Human Genetics, 66, 761–7.
    • (2000) American Journal of Human Genetics , vol.66 , pp. 761-767
    • ASHG/ACMG1
  • 7
    • 84939924521 scopus 로고    scopus 로고
    • CBSNews.com, Retrieved from:
    • Blackstone J. 2012. Online DNA mapping helps siblings find each other. CBSNews.com. Retrieved from http://www.cbsnews.com/news/online-dna-mapping-helps-siblings-find-each-other/http://www.cbsnews.com/news/online-dna-mapping-helps-siblings-find-each-other/.
    • (2012) Online DNA mapping helps siblings find each other
    • Blackstone, J.1
  • 9
    • 33947140872 scopus 로고    scopus 로고
    • The health and well-being of adopted children
    • PID: 17272586
    • Bramlett, M. D., Radel, L. F., & Blumberg, S. J. (2007). The health and well-being of adopted children. Pediatrics, 119(Suppl 1), S54–60.
    • (2007) Pediatrics , vol.119 , pp. S54-S60
    • Bramlett, M.D.1    Radel, L.F.2    Blumberg, S.J.3
  • 10
    • 84939894801 scopus 로고    scopus 로고
    • August 27, 2013. Retrieved from
    • Connecting With The Past. August 27, 2013. Retrieved from http://blog.23andme.com/ancestry/connecting-with-the-past/
    • Connecting With The Past.
  • 11
    • 84939898500 scopus 로고    scopus 로고
    • 2014. Retrieved from:
    • Genetic Testing and Adoption. 2014. Retrieved from: http://nsgc.org/p/bl/et/blogid=47&blogaid=152.
    • Genetic Testing and Adoption.
  • 12
    • 84939924522 scopus 로고    scopus 로고
    • 2013. Retrieved from
    • Global Adoptee Genealogy Project. 2013. Retrieved from http://www.mixedrootsfoundation.org/category-s/1858.htm.
    • Global Adoptee Genealogy Project.
  • 14
    • 27844518793 scopus 로고    scopus 로고
    • Three approaches to qualitative content analysis
    • PID: 16204405
    • Hsieh, H. F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288.
    • (2005) Qualitative Health Research , vol.15 , Issue.9 , pp. 1277-1288
    • Hsieh, H.F.1    Shannon, S.E.2
  • 15
    • 84855254558 scopus 로고    scopus 로고
    • Comprehensive health evaluation of the newly adopted child
    • PID: 22201151
    • Jones, V. F., High, P. C., Donoghue, E., Fussell, J. J., Gleason, M. M., Jaudes, P. K., et al. (2012). Comprehensive health evaluation of the newly adopted child. Pediatrics, 129(1), e214–23.
    • (2012) Pediatrics , vol.129 , Issue.1 , pp. e214-e223
    • Jones, V.F.1    High, P.C.2    Donoghue, E.3    Fussell, J.J.4    Gleason, M.M.5    Jaudes, P.K.6
  • 16
    • 84890795800 scopus 로고    scopus 로고
    • 3G international paediatrics platform
    • 3G international paediatrics platform. Eur J Hum Genet 22: 3–5.
    • (2014) Eur J Hum Genet , vol.22 , pp. 3-5
  • 17
    • 84939924523 scopus 로고    scopus 로고
    • Genetics’ impact on adoption records: Advances in gene research strengthen the case for adoptees who want to know their birth parents’ medical history
    • McCullough M. 1996. “Genetics’ impact on adoption records: Advances in gene research strengthen the case for adoptees who want to know their birth parents’ medical history.” Baltimore Sun 7/23/1996. http://articles.baltimoresun.com/1996-07-23/features/1996205094_1_adoptees-birth-parents-adoption-records.
    • (1996) Baltimore Sun 7/23/1996
    • McCullough, M.1
  • 18
    • 84875178404 scopus 로고    scopus 로고
    • Technical report: ethical and policy issues in genetic testing and screening of children
    • PID: 23429433
    • Ross, L. F., Saal, H. M., David, K. L., & Anderson, R. R. (2013). Technical report: ethical and policy issues in genetic testing and screening of children. Genetics in Medicine, 15(3), 234–45.
    • (2013) Genetics in Medicine , vol.15 , Issue.3 , pp. 234-245
    • Ross, L.F.1    Saal, H.M.2    David, K.L.3    Anderson, R.R.4
  • 19
    • 84939924524 scopus 로고    scopus 로고
    • Openness in Adoption: From Secrecy and Stigma to Knowledge and Connections. Evan B. Donaldson Adoption Institute
    • Siegel DH, Smith SL. 2012. Openness in Adoption: From Secrecy and Stigma to Knowledge and Connections. Evan B. Donaldson Adoption Institute.
    • (2012) Smith SL
    • Siegel, D.H.1
  • 20
    • 84939924525 scopus 로고    scopus 로고
    • July 2, 2013. Retrieved from
    • Sisters Connect with 23andMe. July 2, 2013. Retrieved from http://blog.23andme.com/23andme-customer-stories/sister-connect-with-23andme/.
    • Sisters Connect with 23andMe.
  • 21
    • 84939924526 scopus 로고    scopus 로고
    • , Bro”. August 18, 2011. Retrieved from
    • Stories From 23andMe: “Hey, Bro”. August 18, 2011. Retrieved from http://blog.23andme.com/23andme-customer-stories/stories-from-23andme-neil-schwartzman/.
    • Stories From 23andMe: “Hey
  • 22
    • 84939924527 scopus 로고    scopus 로고
    • With DNA testing, suddenly they are family
    • New York: NY
    • Swarns R. 2012. With DNA testing, suddenly they are family. The New York Times. New York, NY.
    • (2012) The New York Times
    • Swarns, R.1
  • 23
    • 84939883693 scopus 로고    scopus 로고
    • Trends and Policies, New York:
    • UN Department of economic and social affairs. 2009. Child Adoption: Trends and Policies. New York.
    • (2009) Child Adoption
  • 24
    • 85028105769 scopus 로고    scopus 로고
    • Attitudes of African Americans toward return of results from exome and whole genome sequencing
    • PID: 23610051
    • Yu, J. H., Crouch, J., Jamal, S. M., Tabor, H. K., & Bamshad, M. J. (2013). Attitudes of African Americans toward return of results from exome and whole genome sequencing. American Journal of Medical Genetics. Part A, 161A(5), 1064–72.
    • (2013) American Journal of Medical Genetics. Part A , vol.161A , Issue.5 , pp. 1064-1072
    • Yu, J.H.1    Crouch, J.2    Jamal, S.M.3    Tabor, H.K.4    Bamshad, M.J.5


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.