Danish nationwide registers for public health and health-related research

Scandinavian Journal of Public Health

Volumn 43, Issue 4, 2015, Pages 333-339

  Erlangsen, Annette ^a   Fedyszyn, Izabela ^b  

^a JOHNS HOPKINS BLOOMBERG SCHOOL OF PUBLIC HEALTH   (United States)

^b Mental Health Centre Copenhagen   (Denmark)

Author keywords

mental health; population based study; public health; Register data

Indexed keywords

DENMARK; HUMAN; MEDICAL RESEARCH; PUBLIC HEALTH; REGISTER;

BIOMEDICAL RESEARCH; DENMARK; HUMANS; PUBLIC HEALTH; REGISTRIES;

EID: 84930513436     PISSN: 14034948     EISSN: 16511905     Source Type: Journal    
DOI: 10.1177/1403494815575193     Document Type: Review

References (51)

1. Frank L. When an entire country is a cohort. Science 2000;287:2398–9.
2. Rosen M. National Health Data Registers: A Nordic heritage to public health. Scand J Public Health 2002;30:81–85.
3. Pedersen C.B. Gøtzsche H. Møller JØ et al. The Danish Civil Registration System. Dan Med Bull 2006;53:441–9.
4. Nielsen H. CPR - Danmarks Folkeregister [The Centralised Civil Register - The population register of Denmark]. Koebenhavn: Indenrigsministeriet; 1991.
5. Pedersen C.B. The Danish Civil Registration System. Scand J Public Health 2011;39:22–25.
6. Det Centrale Person Register [The Civil Register System]. CPR 2014 May 14, https://cpr.dk/borgere/kan-jeg-faa-et-nyt-personnummer (accessed 16 February 2015).
7. Standarder for opbygning af navne og adresser i CPR [Standards for listing of names and addresses in CRS]. CPR 2014 May 14, https://cpr.dk/cpr-systemet/tegnsaet-og-standarder/#standarder (accessed 16 February 2015).
8. Borgerservice: Når du skal flytte[Citizen services: When you are moving]. Borger dk 2014 May 12, https://www.borger.dk/Sider/Naar-du-skal-flytte.aspx (accessed 16 February 2015).
9. Lov om registreret partnerskab [Law on registered partnership], LOV nr 372 af 07/06/1989, Danish Parliament (1989).
10. Petersen L. Sorensen T.I. The Danish Adoption Register. Scand J Public Health 2011;39:83–86.
11. Skytthe A. Kyvik K.O. Holm N.V. et al. The Danish Twin Registry. Scand J Public Health 2011;39:75–78.
12. Jensen V.M. Rasmussen A.W. Danish education registers. Scand J Public Health 2011;39:91–94.
13. Baadsgaard M. Quitzau J. Danish registers on personal income and transfer payments. Scand J Public Health 2011;39:103–5.
14. Petersson F. Baadsgaard M. Thygesen L.C. Danish registers on personal labour market affiliation. Scand J Public Health 2011;39:95–98.
15. Zeuthen H.E. Emerek R. Hansen P.V. et al. Integreret Database for Arbejdsmarkedsforskning [The Integrated Database for Longitudinal Labour Market Research]. Statistics Denmark 1990, http://www.dst.dk/upload/hovedrapport.pdf (accessed 30November 2009).
16. Graversen B. Nielsen J. Oversigt over databaser. Med relevans for overvågning, udredning og forskning på det sociale område [Overview over databases with relevance for surveillance, and research of social aspects]. Copenhagen: The Danish National Institute of Social Research; 2001.
17. Davis K. The Danish health system through an American lens. Health Policy 2002;59:119–32.
18. Pedersen K.M. Christiansen T. Bech M. The Danish health care system: evolution–not revolution–in a decentralized system. Health Econ 2005;14:S41-S57.
19. Andersen J.S. Olivarius N.F. Krasnik A. The Danish National Health Service Register. Scand J Public Health 2011;39:34–37.
20. Henvisning til psykolog [Referal to psychologist]. Danish National Board of Health 2014, http://sundhedsstyrelsen.dk/da/sundhed/planlaegning-og-beredskab/praksisomraadet/psykologer/henvisning-til-psykolog (accessed 16 February 2015).
21. Historien om elektronisk patientjournal (EPD) [The history of the electronic patient records]. Danish Regions 2014 May 5, http://www.regioner.dk/Sundhed/Sundheds-IT/~/media/Filer/IT%20og%20Kvalitet/Diverse/EPJ%20historien.ashx (accessed 16 February 2015)
22. Lynge E. Sandegaard J.L. Rebolj M. The Danish National Patient Register. Scand J Public Health 2011;39:30–33.
23. Mosbech J. J¢rgensen J. Madsen M. et al. Landspatientregisteret. Ugeskr Laeger 1995;157:3741–5.
24. World Health Organization. International Statistical Classification of Diseases and Related Health Problems. 8th revision ed. Geneva: WHO; 1965.
25. World Health Organization. International Statistical Classification of Diseases and Related Health Problems. World Health Organization 2007, http://apps.who.int/classifications/apps/icd/icd10online/ (accessed 24 November 2009).
26. Andersen T.F. Madsen M. Jørgensen J. et al. The Danish National Hospital Register. Dan Med Bull 46, 263–268. 1999.
27. Vestergaard M. Obel C. Henriksen T.B. et al. The Danish National Hospital Register is a valuable study base for epidemiologic research in febrile seizures. J Clin Epidemiol 2006;59:61–66.
28. Thomsen R.W. Lange P. Hellquist B. et al. Validity and underrecording of diagnosis of COPD in the Danish National Patient Registry. Respir Med 2011;105:1063–8.
29. Christensen J. Vestergaard M. Olsen J. et al. Validation of epilepsy diagnoses in the Danish National Hospital Register. Epilepsy Res 2007;75:162–70.
30. Munk-Jørgensen P. Mortensen P.B. The Danish Psychiatric Central Register. Dan Med Bull 1997;44:82–84.
31. Mors O. Perto G.P. Mortensen P.B. The Danish Psychiatric Central Research Register. Scand J Public Health 2011;39:54–57.
32. Phung T.K. Andersen B.B. Hogh P. et al. Validity of dementia diagnoses in the Danish hospital registers. Dement Geriatr Cogn Disord 2007;24:220–8.
33. Gaist D. Sørensen H.T. Hallas J. The Danish prescription registers. Dan Med Bull 1997;44:445–8.
34. Kildemoes H.W. Sorensen H.T. Hallas J. The Danish National Prescription Registry. Scand J Public Health 2011;39:38–41.
35. The WHO Collaborating Centre for Drug Statistics Methodology. Norwegian Institute of Public Health 2008, http://www.whocc.no/atcddd/ (accessed 25 April 2008).
36. Green A. Danish clinical databases: an overview. Scand J Public Health 2011;39:68–71.
37. Godkendte kliniske kvalitetsdatabaser [Approved clinical quality databases]. Serum Inst 14 A.D. May 13, http://www.ssi.dk/Sundhedsdataogit/Indberetning%20og%20patientregistrering/~/media/Indhold/DK%20-%20dansk/Sundhedsdata%20og%20it/NSF/Indberetning/Kliniske%20kvalitetsdatabaser/ListeOverGodkendteKKDB.ashx (accessed 16 February 2015).
38. Juel K. Helweg-Larsen K. The Danish registers of causes of death. Dan Med Bull 1999;46:354–7.
39. Helweg-Larsen K. The Danish Register of Causes of Death. Scand J Public Health 2011;39:26–29.
40. Qin P. Mortensen P.B. Waltoft B.L. et al. Allergy is associated with suicide completion with a possible mediating role of mood disorder - a population-based study. Allergy 2011;66:658–64.
41. Agerbo E. Sterne J.A. Gunnell D.J. Combining individual and ecological data to determine compositional and contextual socio-economic risk factors for suicide. Soc Sci Med 2007;64:451–61.
42. Andersen U.A. Andersen M. Rosholm J.U. et al. Contacts to the health care system prior to suicide: a comprehensive analysis using registers for general and psychiatric hospital admissions, contacts to general practitioners and practicing specialists and drug prescriptions. Acta Psychiatr Scand 2000;102:126–34.
43. Baker J.L. Olsen L.W. Sorensen T.I. Childhood body-mass index and the risk of coronary heart disease in adulthood. N Engl J Med 2007;357:2329–37.
44. Thorup A. Petersen L. Jeppesen P. et al. Gender differences in young adults with firstepisode schizophrenia specturm disorders at baseline in the Danish OPUS study. J Nerv Ment Dis 2007;195:396–405.
45. Eriksen J. Jensen M.K. Sjogren P. et al. Epidemiology of chronic non-malignant pain in Denmark. Pain 2003;106:221–8.
46. Ipsych. University of Aarhus, Denmark 2014, http://ipsych.au.dk/
47. The Danish Neonatal Screening Biobank. Serum Institute, Denmark 2014 May 18, http://www.ssi.dk/diagnostik/klinisk%20information/~/media/Indhold/DK%20-%20dansk/Diagnostik/Klinisk%20information/Blodproeve%20fra%20nyfoedte/The%20Danish%20Neonatal%20Screening%20Biobank%2028092012.ashx (accessed 16 February 20115).
48. Jacobsen N. Jensen H. Goldschmidt E. Prevalence of myopia in Danish conscripts. Acta Ophthalmol Scand 2007;85:165–70.
49. Ehrenstein V. Pedersen L. Grijota M. et al. Association of Apgar score at five minutes with long-term neurologic disability and cognitive function in a prevalence study of Danish conscripts. BMC Pregnancy Childbirth 2009;9:14.
50. Ældreområdet - indikatorer [Indicators - Senior Citizen care]. Statistics Denmark 2014, http://www.dst.dk/da/Statistik/dokumentation/kvalitetsdeklarationer/aeldreomraadet–indikatorer.aspx (accessed 16 February 2015).
51. Christensen K. Doblhammer G. Rau R. et al. Ageing populations: the challenges ahead. Lancet 2009;374:1196–208.