Developing the Person–Environment Apathy Rating for persons with dementia

Aging and Mental Health

Volumn 20, Issue 8, 2016, Pages 861-870

  Jao, Ying Ling ^a,b   Algase, Donna L ^c   Specht, Janet K ^b,d   Williams, Kristine ^b,d  

^a PENNSYLVANIA STATE UNIVERSITY   (United States)

^b UNIVERSITY OF IOWA COLLEGE OF NURSING   (United States)

^c UNIVERSITY OF MICHIGAN   (United States)

^d John A Hartford Center for Geriatric Nursing Excellence   (United States)

Author keywords

Alzheimer's disease; apathy; care environment; dementia and cognitive disorders; neuropsychiatric symptom

Indexed keywords

AGED; APATHY; DEMENTIA; FEMALE; HUMAN; MALE; NEUROPSYCHOLOGICAL TEST; PILOT STUDY; PSYCHOLOGY; PSYCHOMETRY; REPRODUCIBILITY; STANDARDS; VERY ELDERLY;

AGED; AGED, 80 AND OVER; APATHY; DEMENTIA; FEMALE; HUMANS; MALE; NEUROPSYCHOLOGICAL TESTS; PILOT PROJECTS; PSYCHOMETRICS; REPRODUCIBILITY OF RESULTS;

EID: 84929600685     PISSN: 13607863     EISSN: 13646915     Source Type: Journal    
DOI: 10.1080/13607863.2015.1043618     Document Type: Article

References (33)

1. D.L.Algase,, C.Antonakos,, E.Beattie,, C.Beel-Bates,, & J.A.Song, (2011). Estimates of crowding in long-term care: Comparing two approaches. Herd, 4(2), 61–74.
2. D.L.Algase,, L.Yao,, G.R.Hong,, E.R.Beattie,, C.Beck,, & A.F.Whall, (2007). Initial psychometrics of the ambiance scale: A tool to study person-environment interaction in dementia. Aging & Mental Health, 11(3), 266–272. doi: 10.1080/13607860600963604
3. American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, VA: Routledge.
4. A.Burns,, S.Folstein,, J.Brandt,, & M.Folstein, (1990). Clinical assessment of irritability, aggression, and apathy in Huntington and Alzheimer disease. Journal of Nervous and Mental Disease, 178(1), 20–26.
5. D.E.Clarke,, J.Y.Ko,, E.A.Kuhl,, R.van Reekum,, R.Salvador,, & R.S.Marin, (2011). Are the available apathy measures reliable and valid? A review of the psychometric evidence. Journal of Psychosomatic Research, 70(1), 73–97. doi: 10.1016/j.jpsychores.2010.01.012
6. J.Cohen, (1968). Weighted kappa: Normal scale agreement with provsion for scaled disagreement or partial credit. Psychological Bulletin, 70, 213–220.
7. J.W.Cohen (1988). Statistical power analysis for the behavioral science (2nd ed.). Hillsdale, NJ: Routledge.
8. K.B.Colling, (1999). Passive behaviors in dementia: Clinical application of the need-driven dementia-compromised behavior model. Journal of Gerontological Nursing, 25(9), 27. doi: 10.3928/0098-9134-19990901-08
9. K.B.Colling, (2000). A taxonomy of passive behaviors in people with Alzheimer's disease: Concept synthesis. Journal of Nursing Scholarship, 32(3), 239–244. doi: 10.1111/j.1547-5069.2000.00239.x
10. J.L.Cummings,, M.Mega,, K.Gray,, S.Rosenberg-Thompson,, D.A.Carusi,, & J.Gornbein, (1994). The neuropsychiatric inventory comprehensive assessment of psychopathology in dementia. Neurology, 44(12), 2308–2314. doi: 10.1212/WNL.44.12.2308
11. L.J.Cutler, (2007). Physical environments of assisted living: Research needs and challenges. The Gerontologist, 47(Suppl. 1), 68–82. doi: 10.1093/geront/47.Supplement_1.68
12. E.B.Fauth,, & A.Gibbons, (2013). Which behavioral and psychological symptoms of dementia are the most problematic? Variability by prevalence, intensity, distress ratings, and associations with caregiver depressive symptoms. International Journal of Geriatric Psychiatry, 29(3), 263–267. doi: 10.1002/gps.4002
13. M.Folstein,, S.E.Folstein,, & P.R.McHugh, (1975). ‘Mini-mental state’. A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12(3); 189–198.
14. J.D.Hoglund,, & S.D.Ledewitz, (1999). Designing to meet the needs of people with Alzheimer's disease. In D.Schwartz & R.Brent (Eds.), Aging, autonomy, and architecture: Advances in assisted living (pp. 229–261). Baltimore, MD: Routledge.
15. Y.-L.Jao, (2014). Apathy and care environments in persons with dementia and measures of activity. (Unpublished doctoral dissertation). Routledge, Iowa City, IA.
16. Y.-L.Jao,, D.L.Algase,, J.K.Specht,, & K.Williams, (in press). Association between care environments and apathy in long-term care residents with dementia. The Gerontologist.
17. S.Kaplan,, & R.Kaplan, (1936). Cognition and environment: Functioning in an uncertain world. Ann Arbor, MI: Routledge.
18. A.M.Kolanowski,, M.Litaker,, & L.Buettner, (2005). Efficacy of theory-based activities for behavioral symptoms of dementia. Nursing Research, 54(4), 219–228. doi: 10.1097/00006199-200507000-00003
19. A.M.Landes,, S.D.Sperry,, M.E.Strauss,, & D.S.Geldmacher, (2001). Apathy in Alzheimer's disease. Journal of the American Geriatrics Society, 49(12), 1700–1707. doi: 10.1046/j.1532-5415.2001.49282.x
20. E.Leone,, A.Deudon,, J.Piano,, P.Robert,, & A.Dechamps, (2012). Are dementia patient's engagement using tailored stimuli the same? The apathy dilemma in nursing home residents. Current Gerontology and Geriatrics Research, 2012, Article ID: 942640. doi: 10.1155/2012/942640
21. R.Levy,, & B.Dubois, (2006). Apathy and the functional anatomy of the prefrontal cortex-basal ganglia circuits. Cerebral Cortex, 16(7), 916–928. doi: 10.1093/cercor/bhj043
22. R.S.Marin, (1996). Apathy: Concept, syndrome, neural mechanisms and treatment. Seminars in Clinical Neuropsychiatry, 1(4), 304–314. doi: 10.1053/SCNP00100304
23. N.Matsumoto,, M.Ikeda,, R.Fukuhara,, S.Shinagawa,, T.Ishikawa,, T.Mori,, … H.Tanabe, (2007). Caregiver burden associated with behavioral and psychological symptoms of dementia in elderly people in the local community. Dementia and Geriatric Cognitive Disorders, 23(4), 219–224. doi: 10.1159/000099472
24. P.Robert,, C.U.Onyike,, A.F.Leentjens,, K.Dujardin,, P.Aalten,, S.Starkstein,, … J.Byrne, (2009). Proposed diagnostic criteria for apathy in Alzheimer's disease and other neuropsychiatric disorders. European Psychiatry, 24(2), 98–104. doi: 10.1016/j.eurpsy.2008.09.001
25. M.M.Sajatovic,, & L.F.Ramirez, (2003). Rating scales in mental health (2nd ed.). Hudson, OH: Routledge.
26. J.Sim,, & C.C.Wright, (2005). The kappa statistic in reliability studies: Use, interpretation, and sample size requirements. Physical Therapy, 85(3), 257–268.
27. P.D.Sloane,, M.Mitchell,, G.Weisman,, S.Zimmerman,, K.M.L.Foley,, M.Lynn,, … R.Montgomery, (2002). The Therapeutic Environment Screening Survey for Nursing Home (TESS-NH): An observational instrument for assessing the physical environment of institutional settings for persons with dementia. Journal of Gerontology: Social Sciences, 57B(2), S69–S78.
28. G.C.Smith,, & S.K.Whitbourne, (1990). Validity of the Sheltered Care Environment Scale. Psychology and Aging, 5(2), 28–235.
29. S.E.Starkstein,, L.Ingram,, M.L.Garau,, & R.Mizrahi, (2005). On the overlap between apathy and depression in dementia. Journal of Neurology, Neurosurgery, and Psychiatry, 76(8), 1070–1074. doi: 10.1136/jnnp.2004.052795
30. S.E.Starkstein,, R.Jorge,, & R.Mizrahi, (2006). The prevalence, clinical correlates and treatment of apathy in Alzheimer's disease. European Journal of Psychiatry, 20(2), 96–106. doi: 10.4321/S0213-61632006000200005
31. S.E.Starkstein,, & A.F.Leentjens, (2008). The nosological position of apathy in clinical practice. Journal of Neurology, Neurosurgery, and Psychiatry, 79(10), 1088–1092. doi: 10.1136/jnnp.2007.136895
32. M.E.Strauss,, & S.D.Sperry, (2002). An informant-based assessment of apathy in Alzheimer disease. Neuropsychiatry, Neuropsychology, and Behavioral Neurology, 15(3), 176–183.
33. C.F.Waltz,, O.L.Strickland,, & E.R.Lenz, (1991). Measurement in nursing research (2nd ed.). Philadelphia, PA: Routledge.