메뉴 건너뛰기




Volumn 27, Issue 6, 2015, Pages 891-902

Needs of informal caregivers during transition from home towards institutional care in dementia: A systematic review of qualitative studies

Author keywords

care transition; dementia; informal care; institutional long term care; needs; nursing home; problems

Indexed keywords

CAREGIVER; DEMENTIA; GRIEF; HEALTH CARE SYSTEM; HOME CARE; HUMAN; INSTITUTIONAL CARE; LONG TERM CARE; MEDICAL INFORMATION; NURSING HOME; PATIENT COUNSELING; PUBLICATION; QUALITATIVE RESEARCH; REVIEW; SHAME; SYSTEMATIC REVIEW; THEMATIC ANALYSIS; AGED; HEALTH SERVICE; PSYCHOLOGY;

EID: 84929506852     PISSN: 10416102     EISSN: 1741203X     Source Type: Journal    
DOI: 10.1017/S1041610214002154     Document Type: Review
Times cited : (81)

References (44)
  • 1
    • 84893017603 scopus 로고    scopus 로고
    • Reasons for institutionalization of people with dementia: Informal caregiver reports from 8 European countries
    • Afram, B. et al. (2014). Reasons for institutionalization of people with dementia: informal caregiver reports from 8 European countries. Journal of the American Medical Directors Association, 15, 108-116.
    • (2014) Journal of the American Medical Directors Association , vol.15 , pp. 108-116
    • Afram, B.1
  • 3
    • 77952771512 scopus 로고    scopus 로고
    • World Alzheimer report 2009
    • M. Prince and J. Jackson (eds.) London: Alzheimer's Disease International
    • Alzheimer's Disease International (2009). World Alzheimer report 2009. In M. Prince and J. Jackson (eds.), World Alzheimer Report. London: Alzheimer's Disease International.
    • (2009) World Alzheimer Report.
    • Alzheimer's Disease International1
  • 4
    • 84896494790 scopus 로고    scopus 로고
    • World Alzheimer report 2013 journey of caring an analysis of long-term care for dementia
    • A. s. D. International (ed.) London: Alzheimer's Disease International
    • Alzheimer's Disease International (2013). World Alzheimer report 2013 journey of caring an analysis of long-term care for dementia. In A. s. D. International (ed.), World Alzheimer Report. London: Alzheimer's Disease International.
    • (2013) World Alzheimer Report
    • Alzheimer's Disease International1
  • 5
    • 0034606604 scopus 로고    scopus 로고
    • Factors affecting the decision to place a relative with dementia into residential care
    • Armstrong, M. (2000). Factors affecting the decision to place a relative with dementia into residential care. Nursing Standard, 14, 33-37. doi:10.7748/ns2000.01.14.16.33.c2737.
    • (2000) Nursing Standard , vol.14 , pp. 33-37
    • Armstrong, M.1
  • 6
    • 70349929482 scopus 로고    scopus 로고
    • Seeking connection: Family care experiences following long-term dementia care placement
    • Bramble, M., Moyle, W. and McAllister, M. (2009). Seeking connection: family care experiences following long-term dementia care placement. Journal of Clinical Nursing, 18, 3118-3125. doi:10.1111/j.1365-2702.2009.02878.x.
    • (2009) Journal of Clinical Nursing , vol.18 , pp. 3118-3125
    • Bramble, M.1    Moyle, W.2    McAllister, M.3
  • 8
    • 84868137482 scopus 로고    scopus 로고
    • Psychosocial factors that shape patient and carer experiences of dementia diagnosis and treatment: A systematic review of qualitative studies
    • Bunn, F. et al. (2012). Psychosocial factors that shape patient and carer experiences of dementia diagnosis and treatment: a systematic review of qualitative studies. Plos Medicine, 9, e1001331-e1001331. doi:10.1371/journal.pmed.1001331.
    • (2012) Plos Medicine , vol.9 , pp. e1001331-e1001331
    • Bunn, F.1
  • 9
    • 0035656207 scopus 로고    scopus 로고
    • Thematic analysis of the experience of making a decision to place a family member with Alzheimer's disease in a special care unit
    • Butcher, H. K., Holkup, P. A., Park, M. and Maas, M. (2001). Thematic analysis of the experience of making a decision to place a family member with Alzheimer's disease in a special care unit. Research in Nursing and Health, 24, 470-480.
    • (2001) Research in Nursing and Health , vol.24 , pp. 470-480
    • Butcher, H.K.1    Holkup, P.A.2    Park, M.3    Maas, M.4
  • 10
    • 33746621987 scopus 로고    scopus 로고
    • Deciding on institutionalisation for a relative with dementia: The most difficult decision for caregivers
    • Caron, C. D., Ducharme, F. and Griffith, J. (2006). Deciding on institutionalisation for a relative with dementia: the most difficult decision for caregivers. Canadian Journal on Aging, 25, 193-205.
    • (2006) Canadian Journal on Aging , vol.25 , pp. 193-205
    • Caron, C.D.1    Ducharme, F.2    Griffith, J.3
  • 11
    • 77954359836 scopus 로고    scopus 로고
    • Decision-making process of nursing home placement among Chinese family caregivers
    • Chang, Y.-P. and Kraenzle Schneider, J. (2010). Decision-making process of nursing home placement among Chinese family caregivers. Perspectives in Psychiatric Care, 46, 108-118. doi:10.1111/j.1744-6163.2010.00246.x.
    • (2010) Perspectives in Psychiatric Care , vol.46 , pp. 108-118
    • Chang, Y.-P.1    Kraenzle Schneider, J.2
  • 12
    • 80052561915 scopus 로고    scopus 로고
    • Decisional conflict among Chinese family caregivers regarding nursing home placement of older adults with dementia
    • Chang, Y.-P., Kraenzle Schneider, J. and Sessanna, L. (2011). Decisional conflict among Chinese family caregivers regarding nursing home placement of older adults with dementia. Journal of Aging Studies, 25, 436-444. doi:10.1016/j.jaging.2011.05.001.
    • (2011) Journal of Aging Studies , vol.25 , pp. 436-444
    • Chang, Y.-P.1    Kraenzle Schneider, J.2    Sessanna, L.3
  • 13
    • 84886727661 scopus 로고    scopus 로고
    • The impact of early dementia diagnosis and intervention on informal caregivers
    • de Vugt, M. E. and Verhey, F. R. (2013). The impact of early dementia diagnosis and intervention on informal caregivers. Progress in Neurobiology, 110, 54-62, doi:10.1016/j.pneurobio.2013.04.005.
    • (2013) Progress in Neurobiology , vol.110 , pp. 54-62
    • De Vugt, M.E.1    Verhey, F.R.2
  • 14
    • 0141483306 scopus 로고    scopus 로고
    • Care for the caregivers: A review of self-report instruments developed to measure the burden, needs, and quality of life of informal caregivers
    • Deeken, J. F., Taylor, K. L., Mangan, P., Yabroff, K. R. and Ingham, J. M. (2003). Care for the caregivers: a review of self-report instruments developed to measure the burden, needs, and quality of life of informal caregivers. Journal of Pain and Symptom Management, 26, 922-953. doi: 10.1016/S0885-3924(03)00327-0.
    • (2003) Journal of Pain and Symptom Management , vol.26 , pp. 922-953
    • Deeken, J.F.1    Taylor, K.L.2    Mangan, P.3    Yabroff, K.R.4    Ingham, J.M.5
  • 15
    • 0031264664 scopus 로고    scopus 로고
    • Admission to care: Facilitating role transition amongst family carers
    • Dellasega, C. and Nolan, M. (1997). Admission to care: facilitating role transition amongst family carers. Journal of Clinical Nursing, 6, 443-451.
    • (1997) Journal of Clinical Nursing , vol.6 , pp. 443-451
    • Dellasega, C.1    Nolan, M.2
  • 16
    • 59949105795 scopus 로고    scopus 로고
    • Development of an intervention program for Alzheimer's family caregivers following diagnostic disclosure
    • Ducharme, F., Beaudet, L., Legault, A., Kergoat, M.-J., Lévesque, L. and Caron, C. (2009). Development of an intervention program for Alzheimer's family caregivers following diagnostic disclosure. Clinical Nursing Research, 18, 44-67. doi:10.1177/1054773808330093.
    • (2009) Clinical Nursing Research , vol.18 , pp. 44-67
    • Ducharme, F.1    Beaudet, L.2    Legault, A.3    Kergoat, M.-J.4    Lévesque, L.5    Caron, C.6
  • 18
    • 84865802264 scopus 로고    scopus 로고
    • Sources of stress for family members of nursing home residents with advanced dementia
    • Givens, J. L., Lopez, R. P., Mazor, K. M. and Mitchell, S. L. (2012). Sources of stress for family members of nursing home residents with advanced dementia. Alzheimer Disease And Associated Disorders, 26, 254-259. doi:10.1097/WAD.0b013e31823899e4.
    • (2012) Alzheimer Disease and Associated Disorders , vol.26 , pp. 254-259
    • Givens, J.L.1    Lopez, R.P.2    Mazor, K.M.3    Mitchell, S.L.4
  • 22
    • 84855368590 scopus 로고    scopus 로고
    • Meeting needs of family members of persons with life-threatening illness: A support group program during ongoing palliative care
    • Henriksson, A., Benzein, E., Ternestedt, B. M. and Andershed, B. (2011). Meeting needs of family members of persons with life-threatening illness: A support group program during ongoing palliative care. Palliative and Supportive Care, 9, 263-271. doi: 10.1017/S1478951511000216.
    • (2011) Palliative and Supportive Care , vol.9 , pp. 263-271
    • Henriksson, A.1    Benzein, E.2    Ternestedt, B.M.3    Andershed, B.4
  • 23
    • 0026874304 scopus 로고
    • Identifying the needs of home caregivers of patients with cancer
    • Hileman, J. W., Lackey, N. R. and Hassanein, R. S. (1992). Identifying the needs of home caregivers of patients with cancer. Oncology Nursing Forum, 19, 771-777.
    • (1992) Oncology Nursing Forum , vol.19 , pp. 771-777
    • Hileman, J.W.1    Lackey, N.R.2    Hassanein, R.S.3
  • 24
    • 33645101468 scopus 로고    scopus 로고
    • Caregiver unmet needs, burden, and satisfaction in symptomatic advanced cancer patients at a veterans affairs (VA) medical center
    • Hwang, S. S. et al. (2003). Caregiver unmet needs, burden, and satisfaction in symptomatic advanced cancer patients at a veterans affairs (VA) medical center. Palliative and Supportive Care, 1, 319-329.
    • (2003) Palliative and Supportive Care , vol.1 , pp. 319-329
    • Hwang, S.S.1
  • 26
    • 84871919339 scopus 로고    scopus 로고
    • Nursing home placement: The process of decision making and adaptation among adult children caregivers of demented parents in Korea
    • Kwon, S. H. and Tae, Y. S. (2012). Nursing home placement: the process of decision making and adaptation among adult children caregivers of demented parents in Korea. Asian Nursing Research, 6, 143-151. doi:10.1016/j.anr.2012.10.005.
    • (2012) Asian Nursing Research , vol.6 , pp. 143-151
    • Kwon, S.H.1    Tae, Y.S.2
  • 27
    • 0035262625 scopus 로고    scopus 로고
    • Caregivers in crisis: Moving a relative with Alzheimer's to assisted living
    • Liken, M. A. (2001). Caregivers in crisis: moving a relative with Alzheimer's to assisted living. Clinical Nursing Research, 10, 52-68.
    • (2001) Clinical Nursing Research , vol.10 , pp. 52-68
    • Liken, M.A.1
  • 28
    • 0034168014 scopus 로고    scopus 로고
    • "I really feel I've let him down:" supporting family carers during long-term care placement for elders
    • Nolan, M. and Dellasega, C. (2000). "I really feel I've let him down:" supporting family carers during long-term care placement for elders. Journal of Advanced Nursing, 31, 759-767. doi:10.1046/j.1365-2648.2000.01346.x.
    • (2000) Journal of Advanced Nursing , vol.31 , pp. 759-767
    • Nolan, M.1    Dellasega, C.2
  • 30
    • 7244233041 scopus 로고    scopus 로고
    • A thematic analysis of Korean family caregivers' experiences in making the decision to place a family member with dementia in a long-term care facility
    • Park, M., Butcher, H. K. and Maas, M. L. (2004). A thematic analysis of Korean family caregivers' experiences in making the decision to place a family member with dementia in a long-term care facility. Research in Nursing and Health, 27, 345-356. doi:10.1002/nur.20031.
    • (2004) Research in Nursing and Health , vol.27 , pp. 345-356
    • Park, M.1    Butcher, H.K.2    Maas, M.L.3
  • 31
    • 33745635932 scopus 로고    scopus 로고
    • Hearing and healing the hurts of dementia, part 1: Nursing home placement of persons with Alzheimer's disease
    • Paun, O. and Farran, C. J. (2006). Hearing and healing the hurts of dementia, part 1: nursing home placement of persons with Alzheimer's disease. Alzheimer's Care Quarterly, 7, 104-114.
    • (2006) Alzheimer's Care Quarterly , vol.7 , pp. 104-114
    • Paun, O.1    Farran, C.J.2
  • 32
    • 77953057067 scopus 로고    scopus 로고
    • Informal caregivers of persons with dementia, their use of and needs for specific professional support: A survey of the national dementia programme
    • Peeters, J. M., Van Beek, A. P. A., Meerveld, J. H. C., Spreeuwenberg, P. M. M. and Francke, A. L. (2010). Informal caregivers of persons with dementia, their use of and needs for specific professional support: a survey of the national dementia programme. BMC Nursing, 9, 9p. doi:10.1186/1472-6955-9-9.
    • (2010) BMC Nursing , vol.9
    • Peeters, J.M.1    Van Beek, A.P.A.2    Meerveld, J.H.C.3    Spreeuwenberg, P.M.M.4    Francke, A.L.5
  • 33
    • 84870979764 scopus 로고    scopus 로고
    • Transitions in dementia care: Theoretical support for nursing roles
    • Rose, K. M. and Palan Lopez, R. (2012). Transitions in dementia care: theoretical support for nursing roles. Online Journal of Issues in Nursing, 17, 1-1. doi:10.3912/OJIN.Vol17No02Man04.
    • (2012) Online Journal of Issues in Nursing , vol.17 , pp. 1-1
    • Rose, K.M.1    Palan Lopez, R.2
  • 34
    • 34250763642 scopus 로고    scopus 로고
    • Support needs of family caregivers of people who experience mental illness and the role of mental health services
    • Shankar, J. and Muthuswamy, S. S. (2007). Support needs of family caregivers of people who experience mental illness and the role of mental health services. Families in Society-the Journal of Contemporary Social Services, 88, 302-310. doi: 10.1606/1044-3894.3628.
    • (2007) Families in Society-the Journal of Contemporary Social Services , vol.88 , pp. 302-310
    • Shankar, J.1    Muthuswamy, S.S.2
  • 36
    • 84901060551 scopus 로고    scopus 로고
    • Understanding the needs of family caregivers of older adults dying with dementia
    • Thompson, G. N. and Roger, K. (2013). Understanding the needs of family caregivers of older adults dying with dementia. Palliative and Supportive Care, 1-9. doi:10.1017/S1478951513000461.
    • (2013) Palliative and Supportive Care , pp. 1-9
    • Thompson, G.N.1    Roger, K.2
  • 37
    • 84937329990 scopus 로고    scopus 로고
    • Meaning as outcome: Understanding the complexity of decision-making around residential placement in aged care
    • Tilse, C. (2000). Meaning as outcome: Understanding the complexity of decision-making around residential placement in aged care. Australian Social Work, 53, 15-19. doi:10.1080/03124070008415216.
    • (2000) Australian Social Work , vol.53 , pp. 15-19
    • Tilse, C.1
  • 38
    • 70350496353 scopus 로고    scopus 로고
    • What do community-dwelling people with dementia need? A survey of those who are known to care and welfare services
    • van der Roest, H. G. et al. (2009). What do community-dwelling people with dementia need? A survey of those who are known to care and welfare services. International Psychogeriatrics, 21, 949-965.
    • (2009) International Psychogeriatrics , vol.21 , pp. 949-965
    • Van Der Roest, H.G.1
  • 39
    • 84899072992 scopus 로고    scopus 로고
    • Home-based palliative care: A systematic literature review of the self-reported unmet needs of patients and carers
    • Ventura, A. D., Burney, S., Brooker, J., Fletcher, J. and Ricciardelli, L. (2013). Home-based palliative care: a systematic literature review of the self-reported unmet needs of patients and carers. Palliative Medicine. doi:10.1177/0269216313511141.
    • (2013) Palliative Medicine.
    • Ventura, A.D.1    Burney, S.2    Brooker, J.3    Fletcher, J.4    Ricciardelli, L.5
  • 40
    • 17144393782 scopus 로고    scopus 로고
    • The needs and experiences of family members of adult patients in an intensive care unit: A review of the literature
    • Verhaeghe, S., Defloor, T., Van Zuuren, F., Duijnstee, M. and Grypdonck, M. (2005). The needs and experiences of family members of adult patients in an intensive care unit: a review of the literature. Journal of Clinical Nursing, 14, 501-509. doi: 10.1111/j.1365-2702.2004.01081.x.
    • (2005) Journal of Clinical Nursing , vol.14 , pp. 501-509
    • Verhaeghe, S.1    Defloor, T.2    Van Zuuren, F.3    Duijnstee, M.4    Grypdonck, M.5
  • 41
    • 0026228147 scopus 로고
    • Predictors of burden in spouse caregivers of individuals with Alzheimer's disease
    • Vitaliano, P. P., Russo, J., Young, H. M., Teri, L. and Maiuro, R. D. (1991). Predictors of burden in spouse caregivers of individuals with Alzheimer's disease. Psychology and Aging, 6, 392-402.
    • (1991) Psychology and Aging , vol.6 , pp. 392-402
    • Vitaliano, P.P.1    Russo, J.2    Young, H.M.3    Teri, L.4    Maiuro, R.D.5
  • 42
    • 79952213105 scopus 로고    scopus 로고
    • Systematic review: The effect on surrogates of making treatment decisions for others
    • Wendler, D. and Rid, A. (2011). Systematic review: the effect on surrogates of making treatment decisions for others. Annals of Internal Medicine, 154, 336-U208. doi: 10.1059/0003-4819-154-5-201103010-00008.
    • (2011) Annals of Internal Medicine , vol.154 , pp. 336-U208
    • Wendler, D.1    Rid, A.2
  • 43
    • 78649426939 scopus 로고    scopus 로고
    • Empowered or overpowered? Service use, needs, wants and demands in elderly patients with cognitive impairments
    • Wolfs, C. A. G., de Vugt, M. E., Verkaaik, M., Verkade, P.-J. and Verhey, F. R. J. (2010). Empowered or overpowered? Service use, needs, wants and demands in elderly patients with cognitive impairments. International Journal of Geriatric Psychiatry, 25, 1006-1012. doi:10.1002/gps.2451.
    • (2010) International Journal of Geriatric Psychiatry , vol.25 , pp. 1006-1012
    • Wolfs, C.A.G.1    De Vugt, M.E.2    Verkaaik, M.3    Verkade, P.-J.4    Verhey, F.R.J.5
  • 44
    • 77957321162 scopus 로고    scopus 로고
    • Problemen en wensen van mantelzorgers van mensen met dementie: Een vergelijking tussen de beginfase en latere fasen in het ziekteproces
    • Zwaanswijk, M., van Beek, A. P. A., Peeters, J., Meerveld, J. and Francke, A. L. (2010). Problemen en wensen van mantelzorgers van mensen met dementie: Een vergelijking tussen de beginfase en latere fasen in het ziekteproces. Tijdschrift Voor Gerontologie En Geriatrie, 41, 162-171.
    • (2010) Tijdschrift Voor Gerontologie en Geriatrie , vol.41 , pp. 162-171
    • Zwaanswijk, M.1    Van Beek, A.P.A.2    Peeters, J.3    Meerveld, J.4    Francke, A.L.5


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.