RARE-Bestpractices: A platform for sharing best practices for the management of rare diseases

Orphanet Journal of Rare Diseases

Volumn 9, Issue 1, 2014, Pages

  Taruscio, D ^a   Morciano, C ^a   Laricchiuta, P ^a   Mincarone, P ^b   Palazzo, F ^b   Leo, C G ^b   Sabina, S ^b   Guarino, R ^b   Auld, J ^c   Sejersen, T ^d   Gavhed, D ^d   Ritchie, K ^e   Hilton Boon, M ^e   Manson, J ^e   Kanavos, P G ^f   Tordrup, D ^f   Tzouma, V ^f   Le Cam, Y ^g   Senecat, J ^g   Filippini, G ^h   Minozzi, S ^h   Del Giovane, C ^h   Schunemann H ⁱ   Meerpohl, J J ⁱ   Prediger, B ⁱ   Schell, L ⁱ   Stefanov, R ^j   Iskrov, G ^j   Miteva Katrandzhieva, T ^j   Serrano Aguilar, P ^k   Perestelo Perez, L ^k   Trujillo Martin M M ^k   Perez Ramos J ^k   Rivero Santana, A ^k   Brand, A ^l   Van Kranen, H ^l   Bushby, K ^m   Atalaia, A ^m   Ramet, J ⁿ   Siderius, L ⁿ   Posada, M ^o   Abaitua Borda, I ^o   Ferreira, V Alonso ^o   Hens Perez M ^o   Manzanares, F J ^o   more..

^a ISTITUTO SUPERIORE DI SANITÀ   (Italy)

^b CNR   (Italy)

^c Jamarau   (United Kingdom)

^d KAROLINSKA INSTITUTE   (Sweden)

^e HEALTHCARE IMPROVEMENT SCOTLAND   (United Kingdom)

^f LONDON SCHOOL OF ECONOMICS   (United Kingdom)

^g EURORDIS   (France)

^h Associazione per la Ricerca sull'Efficacia dell'Assistenza Sanitaria Centro Cochrane Italiano   (Italy)

ⁱ UNIVERSITY OF FREIBURG   (Germany)

^j Bulgarian Association for Promotion of Education and Science   (Bulgaria)

^k Fundación Canaria de Investigación y Salud FUNCIS   (Spain)

^l MAASTRICHT UNIVERSITY   (Netherlands)

^m NEWCASTLE UNIVERSITY   (United Kingdom)

ⁿ European Academy of Paediatrics   (Switzerland)

^o Instituto de Salud Carlos III   (Spain)

more..

Author keywords

[No Author keywords available]

Indexed keywords

CLINICAL RESEARCH; CONFERENCE PAPER; DATA BASE; EVALUATION STUDY; HEALTH CARE QUALITY; PATIENT CARE; PRACTICE GUIDELINE; PUBLICATION; RARE BESTPRACTICES; RARE DISEASE; STANDARD; TRAINING;

EID: 84928747941     PISSN: None     EISSN: 17501172     Source Type: Journal    
DOI: 10.1186/1750-1172-9-S1-O14     Document Type: Conference Paper

References (0)