The importance of helplines in National Plans

Orphanet Journal of Rare Diseases

Volumn 9, Issue 1, 2014, Pages

  Mazzucato, Monica ^a   Houyez, François ^b   Facchin, Paola ^a  

^a Rare Diseases Coordinating Centre   (Italy)

^b EURORDIS   (France)

Author keywords

[No Author keywords available]

Indexed keywords

CONFERENCE PAPER; HEALTH CARE POLICY; HEALTH LITERACY; HEALTH SERVICE; HUMAN; INTERNET; PATIENT CARE; PRACTICE GUIDELINE; RARE DISEASE; TELECOMMUNICATION;

EID: 84928726470     PISSN: None     EISSN: 17501172     Source Type: Journal    
DOI: 10.1186/1750-1172-9-S1-O12     Document Type: Conference Paper

References (4)

1. Tozzi AE, Mingarelli R, Agricola E, Gonfiantini M, Pandolfi E, Carloni E, Gesualdo F, Dallapiccola B: The internet user profile of Italian families of patients with rare diseases: a web survey. Orphanet J Rare Dis 2013,8(1):76. 10.1186/1750-1172-8-76
2. Norman CD, Skinner HA: eHealth literacy: essential skills for consumer health in a networked world. J Med Internet Res 2006,8(2):e9. 10.2196/jmir.8.2.e9
3. Houyez F, Sanchez de Vega R, Brignol TN, Mazzucato M, Polizzi A: A European network of email and telephone help lines providing information and support on rare diseases: results from a 1-month activity survey. Interact J Med Res 2014,3(2):e9. 10.2196/ijmr.2867
4. European Commission: Special Eurobarometer 396: E-communications household survey Report. [http://ec.europa.eu/public-opinion/archives/ebs/ebs-396-en.pdf] 2013.