It is the 'starting over' part that is so hard: Using an online group to support hospice bereavement

Palliative and Supportive Care

Volumn 13, Issue 2, 2015, Pages 351-357

  Wittenberg Lyles, Elaine ^a   Washington, Karla ^b   Oliver, Debra Parker ^b   Shaunfield, Sara ^c   Gage, L Ashley ^b   Mooney, Megan ^b   Lewis, Alexandria ^b  

^a CITY OF HOPE NATIONAL MEDICAL CENTER   (United States)

^b University of Missouri   (United States)

^c UNIVERSITY OF KENTUCKY   (United States)

Author keywords

Bereavement; Caregivers; Hospice; Internet

Indexed keywords

ADAPTIVE BEHAVIOR; ANXIETY; BEREAVEMENT; CAREGIVER; DEPRESSION; FEMALE; HOSPICE; HUMAN; MALE; MIDDLE AGED; PILOT STUDY; PREVENTION AND CONTROL; PSYCHOLOGY; SOCIAL MEDIA; SOCIAL SUPPORT;

ADAPTATION, PSYCHOLOGICAL; ANXIETY; BEREAVEMENT; CAREGIVERS; DEPRESSION; FEMALE; HOSPICES; HUMANS; MALE; MIDDLE AGED; PILOT PROJECTS; SOCIAL MEDIA; SOCIAL SUPPORT;

EID: 84928588969     PISSN: 14789515     EISSN: 14789523     Source Type: Journal    
DOI: 10.1017/S1478951513001235     Document Type: Article

References (18)

1. Barry, C.L., Carlson, M.D., Thompson, J.W., et al. (2012). Caring for grieving family members: Results from a national hospice survey. Medical Care, 50(7), 578-584.
2. Bender, J.L., Jimenez-Marroquin, M.C. & Jadad, A.R. (2011). Seeking support on Facebook: A content analysis of breast cancer groups. Journal of Medical Internet Research, 13(1), e16.
3. Bennett, K.M., Gibbons, K. & Mackenzie-Smith, S. (2010). Loss and restoration in later life: An examination of dual process model of coping with bereavement. Omega (Westport), 61(4), 315-332.
4. Buis, L.R. (2008). Emotional and informational support messages in an online hospice support community. Computers, Informatics Nursing, 26(6), 358-367.
5. Carr, D. (2010). New perspectives on the Dual Process Model (DPM): What have we learned? What questions remain? Omega (Westport), 61(4), 371-380.
6. Centers for Medicare and Medicaid Services (2008). 42 CFR ? 418, Medicare and Medicaid programs: Hospice conditions of participation. Available from http://www. law.cornell.edu/cfr/text/42/418.
7. Creswell, J.W. (1998). Qualitative inquiry and research design: Choosing among five traditions. Thousand Oaks, CA: Sage.
8. de la Torre-Diez, I., Diaz-Pernas, F.J. & Anton-Rodriguez, M. (2012). A content analysis of chronic diseases social groups on Facebook and Twitter. Telemedicine Journal and E-Health, 18(6), 404-408.
9. Diamond, H., Llewelyn, S., Relf, M., et al. (2012). Helpful aspects of bereavement support for adults following an expected death: Volunteers? and bereaved people?s perspectives. Death Studies, 36(6), 541-564.
10. Kroenke, K., Spitzer, R.L. & Williams, J.B.W. (2001). The PHQ-9: Validity of a brief depression severity measure. Journal of General Internal Medicine, 16(9), 606-613.
11. Lowe, B., Decker, O., Muller, S., et al. (2008). Validation and standardization of the Generalized Anxiety Disorder Screener (GAD-7) in the general population. Medical Care, 46(3), 266-274.
12. National Hospice and Palliative Care Organization (2012). NHPCO facts and figures: Hospice care in America. Available from http://www.nhpco.org.
13. Schut, H. & Stroebe, M.S. (2005). Interventions to enhance adaptation to bereavement, Journal of Palliative Medicine, 8(Suppl. 1), S140-S147.
14. Shear, M.K. (2010). Exploring the role of experiential avoidance from the perspective of attachment theory and the dual process model. Omega (Westport), 61(4), 357-369.
15. Stroebe, M. & Schut, H. (1999). The dual process model of coping with bereavement: Rationale and description. Death Studies, 23(3), 197-224.
16. Stroebe, M. & Schut, H. (2010). The dual process model of coping with bereavement: A decade on. Omega (Westport), 61(4), 273-289.
17. van der Eijk, M., Faber, M., Aarts, J.W.M., et al. (2013). Using online health communities to deliver patient-centered care to people with chronic conditions. Journal of Medical Internet Research, 15(6), e115.
18. Zhang, W. & Lane, B.S. (2013). Promoting neonatal staff nurses? comfort and involvement in end of life and bereavement care. Nursing Research and Practice, 2013, 365329. Available from http://www.hindawi.com/journals/nrp/2013/365329/.