General practitioners perceptions on advance care planning for patients living with dementia Palliative care in other conditions

BMC Palliative Care

Volumn 14, Issue 1, 2015, Pages 1-6

  Brazil, Kevin ^a   Carter, Gillian ^a   Galway, Karen ^a   Watson, Max ^b   Van Der Steen, Jenny T ^c  

^a QUEEN'S UNIVERSITY BELFAST   (United Kingdom)

^b NORTHERN IRELAND HOSPICE   (United Kingdom)

^c VU UNIVERSITY MEDICAL CENTER   (Netherlands)

Author keywords

Advance care planning; Communication; Decision making; Dementia; General practice

Indexed keywords

ADULT; ARTICLE; CLUSTER ANALYSIS; CROSS-SECTIONAL STUDY; DECISION MAKING; DEMENTIA; FEMALE; GENERAL PRACTITIONER; HEALTH SURVEY; HUMAN; MALE; MEDICAL DOCUMENTATION; PALLIATIVE THERAPY; PATIENT CARE; PERCEPTION; PHYSICIAN; TERMINAL DISEASE; UNITED KINGDOM; ADVANCE CARE PLANNING; CAREGIVER; DOCTOR PATIENT RELATION; MIDDLE AGED; NORTHERN IRELAND; ORGANIZATION AND MANAGEMENT; PSYCHOLOGY;

ADULT; ADVANCE CARE PLANNING; CAREGIVERS; CROSS-SECTIONAL STUDIES; DEMENTIA; FEMALE; GENERAL PRACTITIONERS; HUMANS; MALE; MIDDLE AGED; NORTHERN IRELAND; PALLIATIVE CARE; PERCEPTION; PHYSICIAN-PATIENT RELATIONS;

EID: 84928533839     PISSN: None     EISSN: 1472684X     Source Type: Journal    
DOI: 10.1186/s12904-015-0019-x     Document Type: Article

References (25)

1. Olson E. Dementia and Neurodegenerative Diseases. In: Morrison S, Meier DE, editors. Geriatric Palliative Care. New York: Oxford University Press; 2003. p. 160-72.
2. van der Steen JT. Dying with dementia: what we know after more than a decade of research. JAD. 2010;22(1):37-55.
3. Zanetti O, Solerte SB, Cantoni F. Life Expectancy in ALzheimer's Disease (AD). Arch Gerontol Geriatr. 2009;49(Supplement(0)):237-43.
4. Blasi ZV, Hurley AC, Volicer L. End-of-life care in dementia: A review of problems, prospects and solutions in practice. J Am Med Dir Assoc. 2002;4(2):101-7.
5. Berger J, Majerovitz D. Stability of preferences for treatment among nursing home residents. Gerontologist. 1998;38(2):217-23.
6. Gillick MR. Adapting advance care planning for the nursing home. J Palliat Med. 2004;7(2):357-61.
7. Sl M, Kiely DK, Hamel M. Dying with advanced dementia in the nursing home. Arch Intern Med. 2004;164(3):321-6.
8. Di Giulio P, Toscani F, Villani D, Brunelli C, Gentile S, Spadin P. Dying with advanced dementia in long-term care geriatric institutions: A retrospective study. J Palliat Care. 2008;11(7):1023-8.
9. Mitchell SL, Teno JM, Kiely DK, Shaffer ML, Jones RN, Prigerson HG, et al. The clinical course of advanced dementia. N Engl J Med. 2009;361(16):1529-38.
10. Chan HYL, Pang SMC. Let me talk - an advance care planning programme for frail nursing home residents. J Clin Nurs. 2010;19(21-22):3073-84.
11. Karel MJ, Moye J, Bank A, Azar AR. Three methods of assessing values for advance care planning: Comparing persons with and without dementia. J Aging Health. 2007;19(1):123-51.
12. Cantor MD, Pearlman RA. Advance care planning in long-term care facilities. J Am Med Dir Assoc. 2003;4(2):101-8.
13. Ministry of Justice. Mental Capacity Act 2005 Code of Practice. London: Ministry of Justice; 2007.
14. Stein GL, Fineberg IC. Advance Care Planning in the USA and UK: A Comparative Analysis of Policy, Implementation and the Social Work Role. Br J Soc Work. 2013;43:233-48.
15. Cavalieri T, Latif W, Ciesielski J, CA C, Forman L. How physicians approach advance care planning in patients with mild to moderate Alzheimer's disease. J Am Osteopathic Assoc. 2002;102(10):541-4.
16. Livingston G, Pitfield C, Morris J, Manela M, Lewis-Holmes E, Jacobs H. Care at the end of life for people with dementia living in a care home: a qualitative study of staff experience and attitudes. Int JGeriatr Psychiatry. 2012;27(6):643-50.
17. Grisaffi K, Robinson L. Timing of end of life care in dementia; difficulties and dilemmas for GPs. Journal of Dementia Care. 2010;18(3):36-9.
18. Dillman D, Smyth J, Christian LH. Internet, Mail and Mixed-Mode Surveys: The Tailored Design Method. 3rd ed. Hoboken, New Jersey: John Wiley & Sons; 2009.
19. van der Steen JT, Radbruch L, Hertogh CM, de Boer ME, Hughes JC, Larkin P, et al. White paper defining optimal palliative care in older people with dementia: A Delphi study and recommendations from the European Association for Palliative Care. Palliat Med. 2014;28(3):197-209.
20. Arcand M, Brazil K, Nakanishi M, Nakashima T, Alix M, Desson JF, et al. Educating families about end-of-life care in advanced dementia: acceptability of a Canadian family booklet to nurses from Canada, France, and Japan. Int J Palliat Nurs. 2013;19(2):67-74.
21. van der Steen JT, Arcand M, Toscani F, de Graas T, Finetti S, Beaulieu M, et al. A Family Booklet About Comfort Care in Advanced Dementia: Three-Country Evaluation. J Am Med Dir Assoc. 2012;13(4):368-75.
22. van der Steen JT, De Graas T, Hertogh CMPM, Toscani F, Finetti S, Nakanishi M, et al. Physicians' and Nurses' Perceived Usefulness and Acceptability of a Family Information Booklet about Comfort Care in Advanced Dementia. J Palliat Med. 2011;14(5):614-22.
23. Ramsaroop SD, Reid MC, Adelman RD. Completing an Advance Directive in the Primary Care Setting: What Do We Need for Success? J Am Geriatr Soc. 2007;55(2):277-83.
24. Barclay S, Todd C, Finlay I, Grande G, Wyatt P. Not another questionnaire! Maximizing the response rate, predicting non-response and assessing non-response bias in postal questionnaire studies of GPs. Fam Pract. 2002;19:105-11.
25. Kaner EF, Haighton CA, McAvoy BR. 'So much post, so busy with practice-so, no time!': a telephone survey of general practitioners' reasons for not participating in postal questionnaire surveys. Br J Gen Pract. 1998;48(428):1067-9.