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Volumn 68, Issue 5, 2015, Pages 584-595

Family and professionals underestimate quality of life across diverse cultures and health conditions: Systematic review

Author keywords

Minimal clinically important difference; Proxy; Quality of life; Social comparison theory; Systematic review; WHOQOL BREF

Indexed keywords

CULTURAL ANTHROPOLOGY; ENVIRONMENTAL FACTOR; FAMILY; HEALTH PRACTITIONER; HEALTH STATUS; HUMAN; INTELLECTUAL IMPAIRMENT; MENTAL FUNCTION; PHYSICAL CAPACITY; PRIORITY JOURNAL; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; QUALITY OF LIFE ASSESSMENT; REVIEW; SCORING SYSTEM; SYSTEMATIC REVIEW; WORLD HEALTH ORGANIZATION QUALITY OF LIFE ASSESSMENT SHORT FORM; CAREGIVER; MENTAL HEALTH; MENTAL PATIENT; META ANALYSIS; PROXY; WORLD HEALTH ORGANIZATION;

EID: 84928304516     PISSN: 08954356     EISSN: 18785921     Source Type: Journal    
DOI: 10.1016/j.jclinepi.2014.12.007     Document Type: Review
Times cited : (33)

References (43)
  • 1
    • 0013429122 scopus 로고    scopus 로고
    • Proxy responding for subjective well-being: A review
    • R.A. Cummins Proxy responding for subjective well-being: a review Int Rev Res Ment Ret 25 2002 183 207
    • (2002) Int Rev Res Ment Ret , vol.25 , pp. 183-207
    • Cummins, R.A.1
  • 2
    • 0031133634 scopus 로고    scopus 로고
    • The use of significant others as proxy raters of the quality of life of patients with brain cancer
    • K.C. Sneeuw, N.K. Aaronson, D. Osoba, M.J. Muller, M.A. Hsu, and W.K. Yung The use of significant others as proxy raters of the quality of life of patients with brain cancer Med Care 35 1997 490 506
    • (1997) Med Care , vol.35 , pp. 490-506
    • Sneeuw, K.C.1    Aaronson, N.K.2    Osoba, D.3    Muller, M.J.4    Hsu, M.A.5    Yung, W.K.6
  • 3
    • 84928295684 scopus 로고    scopus 로고
    • Department of Health Department of Health (GB) London Available at Accessed December 21, 2013
    • Department of Health Guidance: collection and reporting of patient reported outcome measures (PROMs) data [Internet] 2012 Department of Health (GB) London Available at https://www.gov.uk/government/publications/collection-and-reporting-of-patient-reported-outcome-measures-proms-data Accessed December 21, 2013
    • (2012) Guidance: Collection and Reporting of Patient Reported Outcome Measures (PROMs) Data [Internet]
  • 4
    • 0027286145 scopus 로고
    • Study protocol for the World Health Organization project to develop a quality of life assessment instrument (WHOQOL)
    • World Health Organisation
    • World Health Organisation Study protocol for the World Health Organization project to develop a quality of life assessment instrument (WHOQOL) Qual Life Res 2 1993 153 159
    • (1993) Qual Life Res , vol.2 , pp. 153-159
  • 5
    • 85190919182 scopus 로고
    • A brief history of social comparison theory
    • J. Suls, T.A. Wills, Lawrence Erlbaum Hillsdale, NJ
    • L. Wheeler A brief history of social comparison theory J. Suls, T.A. Wills, Social comparison: contemporary theory and research 1991 Lawrence Erlbaum Hillsdale, NJ 3 22
    • (1991) Social Comparison: Contemporary Theory and Research , pp. 3-22
    • Wheeler, L.1
  • 6
    • 21344496064 scopus 로고
    • Social comparisons in cross-cultural quality of life assessment
    • S.M. Skevington Social comparisons in cross-cultural quality of life assessment Int J Ment Health 23 2 1994 29 47
    • (1994) Int J Ment Health , vol.23 , Issue.2 , pp. 29-47
    • Skevington, S.M.1
  • 7
    • 18844374145 scopus 로고    scopus 로고
    • Proxy evaluation of health-related quality of life: A conceptual framework for understanding multiple proxy perspectives
    • A.S. Pickard, and S.J. Knight Proxy evaluation of health-related quality of life: a conceptual framework for understanding multiple proxy perspectives Med Care 43 2005 493 499
    • (2005) Med Care , vol.43 , pp. 493-499
    • Pickard, A.S.1    Knight, S.J.2
  • 8
    • 79951715397 scopus 로고    scopus 로고
    • Adding the patient perspective to comparative effectiveness research
    • A.W. Wu, C. Snyder, C.M. Clancy, and D.M. Steinwachs Adding the patient perspective to comparative effectiveness research Health Aff (Millwood) 29 10 2010 1863 1871
    • (2010) Health Aff (Millwood) , vol.29 , Issue.10 , pp. 1863-1871
    • Wu, A.W.1    Snyder, C.2    Clancy, C.M.3    Steinwachs, D.M.4
  • 9
    • 0041820105 scopus 로고    scopus 로고
    • Developing a national index of subjective well-being: The Australian Unity Well-being Index
    • R.A. Cummins, R. Eckersley, J. Pallant, J. van Vugt, and R.A. Misajon Developing a national index of subjective well-being: the Australian Unity Well-being Index Soc Indic Res 64 2 2003 159 190
    • (2003) Soc Indic Res , vol.64 , Issue.2 , pp. 159-190
    • Cummins, R.A.1    Eckersley, R.2    Pallant, J.3    Van Vugt, J.4    Misajon, R.A.5
  • 10
    • 0036868709 scopus 로고    scopus 로고
    • The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease
    • K.C. Sneeuw, M.A. Sprangers, and N.K. Aaronson The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease J Clin Epidemiol 55 2002 1130 1143
    • (2002) J Clin Epidemiol , vol.55 , pp. 1130-1143
    • Sneeuw, K.C.1    Sprangers, M.A.2    Aaronson, N.K.3
  • 11
    • 0031775905 scopus 로고    scopus 로고
    • Development of the World Health Organization WHOQOL-BREF quality of life assessment
    • The WHOQOL Group
    • The WHOQOL Group Development of the World Health Organization WHOQOL-BREF quality of life assessment Psychol Med 28 3 1998 551 558
    • (1998) Psychol Med , vol.28 , Issue.3 , pp. 551-558
  • 12
    • 1642338383 scopus 로고    scopus 로고
    • The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A report from the WHOQOL group
    • WHOQOL Group
    • S.M. Skevington, M. Lotfy, K.A. O'Connell WHOQOL Group The World Health Organization's WHOQOL-BREF quality of life assessment: psychometric properties and results of the international field trial. A report from the WHOQOL group Qual Life Res 13 2004 299 310
    • (2004) Qual Life Res , vol.13 , pp. 299-310
    • Skevington, S.M.1    Lotfy, M.2    O'Connell, K.A.3
  • 13
    • 5644245360 scopus 로고    scopus 로고
    • Developing methods for assessing quality of life in different cultural settings. the history of the WHOQOL instruments
    • WHOQOL Group
    • S.M. Skevington, N. Sartorius, M. Amir WHOQOL Group Developing methods for assessing quality of life in different cultural settings. The history of the WHOQOL instruments Soc Psychiatry Psychiatr Epidemiol 39 1 2004 1 8
    • (2004) Soc Psychiatry Psychiatr Epidemiol , vol.39 , Issue.1 , pp. 1-8
    • Skevington, S.M.1    Sartorius, N.2    Amir, M.3
  • 14
    • 0033430910 scopus 로고    scopus 로고
    • Measuring quality of life in Britain: Introducing the WHOQOL-100
    • S.M. Skevington Measuring quality of life in Britain: introducing the WHOQOL-100 J Psychosom Res 47 5 1999 449 459
    • (1999) J Psychosom Res , vol.47 , Issue.5 , pp. 449-459
    • Skevington, S.M.1
  • 15
    • 0041667813 scopus 로고    scopus 로고
    • A systematic and critical review of the process of translation and adaptation of generic health-related quality of life measures in Africa, Asia, Eastern Europe, the Middle East, South America
    • Review
    • A. Bowden, and J.A. Fox-Rushby A systematic and critical review of the process of translation and adaptation of generic health-related quality of life measures in Africa, Asia, Eastern Europe, the Middle East, South America Soc Sci Med 57 7 2003 1289 1306 Review
    • (2003) Soc Sci Med , vol.57 , Issue.7 , pp. 1289-1306
    • Bowden, A.1    Fox-Rushby, J.A.2
  • 16
    • 33746636391 scopus 로고    scopus 로고
    • Synchrony of change in depressive symptoms, health status, and quality of life in persons with clinical depression
    • Available at Accessed December 21, 2013
    • P.H. Diehr, A.M. Derleth, S.P. McKenna, M.L. Martin, D.M. Bushnell, and G. Simon Synchrony of change in depressive symptoms, health status, and quality of life in persons with clinical depression Health Qual Life Outcomes 4 1 2006 27 Available at http://www.hqlo.com/content/4/1/27 Accessed December 21, 2013
    • (2006) Health Qual Life Outcomes , vol.4 , Issue.1 , pp. 27
    • Diehr, P.H.1    Derleth, A.M.2    McKenna, S.P.3    Martin, M.L.4    Bushnell, D.M.5    Simon, G.6
  • 17
    • 84857357320 scopus 로고    scopus 로고
    • Expecting a good quality of life in health: Assessing people with diverse diseases and conditions using the WHOQOL-BREF
    • S.M. Skevington, and F.M. McCrate Expecting a good quality of life in health: assessing people with diverse diseases and conditions using the WHOQOL-BREF Health Expect 15 2012 49 62
    • (2012) Health Expect , vol.15 , pp. 49-62
    • Skevington, S.M.1    McCrate, F.M.2
  • 18
    • 0036236559 scopus 로고    scopus 로고
    • Advancing cross-cultural research on quality of life: Observations drawn from the WHOQOL development. World Health Organisation Quality of Life Assessment
    • S.M. Skevington Advancing cross-cultural research on quality of life: observations drawn from the WHOQOL development. World Health Organisation Quality of Life Assessment Qual Life Res 11 2002 135 144
    • (2002) Qual Life Res , vol.11 , pp. 135-144
    • Skevington, S.M.1
  • 20
    • 34347375058 scopus 로고    scopus 로고
    • An overview on assessing agreement with continuous measurements
    • H.X. Barnhart, M.J. Haber, and L.I. Lin An overview on assessing agreement with continuous measurements J Biopharm Stat 17 4 2007 529 569
    • (2007) J Biopharm Stat , vol.17 , Issue.4 , pp. 529-569
    • Barnhart, H.X.1    Haber, M.J.2    Lin, L.I.3
  • 21
    • 84876665617 scopus 로고    scopus 로고
    • Editor's spotlight/take 5: Comparative responsiveness and minimal clinically important differences for idiopathic ulnar impaction syndrome
    • S.S. Leopold Editor's spotlight/take 5: comparative responsiveness and minimal clinically important differences for idiopathic ulnar impaction syndrome Clin Orthop Relat Res 471 5 2013 1403 1405
    • (2013) Clin Orthop Relat Res , vol.471 , Issue.5 , pp. 1403-1405
    • Leopold, S.S.1
  • 22
    • 17744385303 scopus 로고    scopus 로고
    • Estimating clinically significant differences in quality of life outcomes
    • Clinical Significance Consensus Meeting Group
    • K.W. Wyrwich, M. Bullinger, N. Aaronson, R.D. Hays, D.L. Patrick, T. Symonds Clinical Significance Consensus Meeting Group Estimating clinically significant differences in quality of life outcomes Qual Life Res 14 2005 285 295
    • (2005) Qual Life Res , vol.14 , pp. 285-295
    • Wyrwich, K.W.1    Bullinger, M.2    Aaronson, N.3    Hays, R.D.4    Patrick, D.L.5    Symonds, T.6
  • 24
    • 0002510810 scopus 로고
    • Evaluating coding decisions
    • H. Cooper, L.V. Hedges, 1st ed. Russell Sage Foundation New York, NY
    • R.G. Orwin Evaluating coding decisions H. Cooper, L.V. Hedges, The handbook of research synthesis 1st ed. 1994 Russell Sage Foundation New York, NY 139 163
    • (1994) The Handbook of Research Synthesis , pp. 139-163
    • Orwin, R.G.1
  • 25
    • 35548955042 scopus 로고    scopus 로고
    • Relationship of depression, disability, and family caregiver attitudes to the quality of life of Kuwaiti persons with multiple sclerosis: A controlled study
    • A.F. Alshubaili, A.W. Awadalla, J.U. Ohaeri, and A.A. Mabrouk Relationship of depression, disability, and family caregiver attitudes to the quality of life of Kuwaiti persons with multiple sclerosis: a controlled study BMC Neurol 7 2007 31
    • (2007) BMC Neurol , vol.7 , pp. 31
    • Alshubaili, A.F.1    Awadalla, A.W.2    Ohaeri, J.U.3    Mabrouk, A.A.4
  • 26
    • 24644468245 scopus 로고    scopus 로고
    • Subjective quality of life of community living Sudanese psychiatric patients: Comparison with family caregivers' impressions and control group
    • A.W. Awadalla, J.U. Ohaeri, A.A. Salih, and A.M. Tawfiq Subjective quality of life of community living Sudanese psychiatric patients: comparison with family caregivers' impressions and control group Qual Life Res 14 2005 1855 1867
    • (2005) Qual Life Res , vol.14 , pp. 1855-1867
    • Awadalla, A.W.1    Ohaeri, J.U.2    Salih, A.A.3    Tawfiq, A.M.4
  • 27
    • 33646500784 scopus 로고    scopus 로고
    • Subjective quality of life of outpatients with diabetes: Comparison with family caregivers' impressions and control group
    • A.W. Awadalla, J.U. Ohaeri, A.M. Tawfiq, and S.A. Al-Awadi Subjective quality of life of outpatients with diabetes: comparison with family caregivers' impressions and control group J Natl Med Assoc 98 5 2006 737 745
    • (2006) J Natl Med Assoc , vol.98 , Issue.5 , pp. 737-745
    • Awadalla, A.W.1    Ohaeri, J.U.2    Tawfiq, A.M.3    Al-Awadi, S.A.4
  • 28
    • 58149171669 scopus 로고    scopus 로고
    • Patients' quality of life: A comparison of patient and nurse perceptions
    • M. Bahrami, S. Parker, and I. Blackman Patients' quality of life: a comparison of patient and nurse perceptions Contemp Nurse 29 1 2008 67 79
    • (2008) Contemp Nurse , vol.29 , Issue.1 , pp. 67-79
    • Bahrami, M.1    Parker, S.2    Blackman, I.3
  • 29
    • 84928288861 scopus 로고    scopus 로고
    • Quality of life in dementia patients in a developing country: Comparison of three approaches
    • R.P. Bhandari, and S.R. Joshi Quality of life in dementia patients in a developing country: comparison of three approaches Alzheimers Demen 7 4 Suppl 2011 S638
    • (2011) Alzheimers Demen , vol.7 , Issue.4 , pp. S638
    • Bhandari, R.P.1    Joshi, S.R.2
  • 32
    • 77956393938 scopus 로고    scopus 로고
    • Proxy and patients ratings on quality of life in patients with schizophrenia and bipolar disorder in Korea
    • E.J. Kim, D.H. Song, S.J. Kim, J.Y. Park, E. Lee, and J.H. Seok Proxy and patients ratings on quality of life in patients with schizophrenia and bipolar disorder in Korea Qual Life Res 19 2010 521 529
    • (2010) Qual Life Res , vol.19 , pp. 521-529
    • Kim, E.J.1    Song, D.H.2    Kim, S.J.3    Park, J.Y.4    Lee, E.5    Seok, J.H.6
  • 33
    • 77954442057 scopus 로고    scopus 로고
    • Validation of the Brazilian version of the quality of life scale for patients with Alzheimer's disease and their caregivers (QOL-AD)
    • M.M. Novelli, R. Nitrini, and P. Caramelli Validation of the Brazilian version of the quality of life scale for patients with Alzheimer's disease and their caregivers (QOL-AD) Aging Ment Health 14 5 2010 624 631
    • (2010) Aging Ment Health , vol.14 , Issue.5 , pp. 624-631
    • Novelli, M.M.1    Nitrini, R.2    Caramelli, P.3
  • 34
    • 67650742234 scopus 로고    scopus 로고
    • Depression and perceptions of quality of life of breast cancer survivors and their male partners
    • E.G. Rabin, E. Heldt, V.N. Hirakata, A.C. Bittelbrunn, E. Chachamovich, and M.P. Fleck Depression and perceptions of quality of life of breast cancer survivors and their male partners Oncol Nurs Forum 36 3 2009 E153 E158
    • (2009) Oncol Nurs Forum , vol.36 , Issue.3 , pp. E153-E158
    • Rabin, E.G.1    Heldt, E.2    Hirakata, V.N.3    Bittelbrunn, A.C.4    Chachamovich, E.5    Fleck, M.P.6
  • 35
    • 77953363340 scopus 로고    scopus 로고
    • Self and proxy rating of quality of life in adults with intellectual disabilities: Results from the DISQOL study
    • S. Schmidt, M. Power, A. Green, R. Lucas-Carrasco, E. Eser, and E. Dragomirecka Self and proxy rating of quality of life in adults with intellectual disabilities: results from the DISQOL study Res Dev Disabil 31 5 2010 1015 1026
    • (2010) Res Dev Disabil , vol.31 , Issue.5 , pp. 1015-1026
    • Schmidt, S.1    Power, M.2    Green, A.3    Lucas-Carrasco, R.4    Eser, E.5    Dragomirecka, E.6
  • 36
    • 55149109656 scopus 로고    scopus 로고
    • Family caregiver quality of life in multiple sclerosis among Kuwaitis: A controlled study
    • A.F. Alshubaili, J.U. Ohaeri, A.W. Awadalla, and A.A. Mabrouk Family caregiver quality of life in multiple sclerosis among Kuwaitis: a controlled study BMC Health Serv Res 8 2008 206
    • (2008) BMC Health Serv Res , vol.8 , pp. 206
    • Alshubaili, A.F.1    Ohaeri, J.U.2    Awadalla, A.W.3    Mabrouk, A.A.4
  • 37
    • 26944494848 scopus 로고    scopus 로고
    • Subjective quality of life of family caregivers of community living Sudanese psychiatric patients
    • A.W. Awadalla, J.U. Ohaeri, A.A. Salih, and A.M. Tawfiq Subjective quality of life of family caregivers of community living Sudanese psychiatric patients Soc Psychiatry Psychiatr Epidemiol 40 9 2005 755 763
    • (2005) Soc Psychiatry Psychiatr Epidemiol , vol.40 , Issue.9 , pp. 755-763
    • Awadalla, A.W.1    Ohaeri, J.U.2    Salih, A.A.3    Tawfiq, A.M.4
  • 38
    • 33646530063 scopus 로고    scopus 로고
    • Diabetes mellitus patients' family caregivers' subjective quality of life
    • A.W. Awadalla, J.U. Ohaeri, S.A. Al-Awadi, and A.M. Tawfiq Diabetes mellitus patients' family caregivers' subjective quality of life J Natl Med Assoc 98 5 2006 727 736
    • (2006) J Natl Med Assoc , vol.98 , Issue.5 , pp. 727-736
    • Awadalla, A.W.1    Ohaeri, J.U.2    Al-Awadi, S.A.3    Tawfiq, A.M.4
  • 39
    • 84928292228 scopus 로고    scopus 로고
    • Quality of life in patients with schizophrenia and bipolar disorder: Comparison of self-report and proxy assessment
    • E.J. Kim, S.J. Kim, and H.S. Cho Quality of life in patients with schizophrenia and bipolar disorder: comparison of self-report and proxy assessment Eur Psychiatry 24 Suppl 1 2009 S569
    • (2009) Eur Psychiatry , vol.24 , pp. S569
    • Kim, E.J.1    Kim, S.J.2    Cho, H.S.3
  • 40
    • 84989483218 scopus 로고
    • Objective assessments of quality of life: How much do they agree with each other?
    • J. Perry, and D. Felce Objective assessments of quality of life: how much do they agree with each other? J Community Appl Soc Psychol 5 1 1995 1 19
    • (1995) J Community Appl Soc Psychol , vol.5 , Issue.1 , pp. 1-19
    • Perry, J.1    Felce, D.2
  • 41
    • 0032984825 scopus 로고    scopus 로고
    • Integrating response shift into health-related quality of life research: A theoretical model
    • M.A. Sprangers, and C.E. Schwartz Integrating response shift into health-related quality of life research: a theoretical model Soc Sci Med 48 11 1999 1507 1515
    • (1999) Soc Sci Med , vol.48 , Issue.11 , pp. 1507-1515
    • Sprangers, M.A.1    Schwartz, C.E.2
  • 42
    • 59049086523 scopus 로고    scopus 로고
    • Proxy assessment of health-related quality of life in African American and white respondents with prostate cancer: Perspective matters
    • A.S. Pickard, H.W. Lin, S.J. Knight, R. Sharifi, Z. Wu, and S.Y. Hung Proxy assessment of health-related quality of life in African American and white respondents with prostate cancer: perspective matters Med Care 47 2009 176 183
    • (2009) Med Care , vol.47 , pp. 176-183
    • Pickard, A.S.1    Lin, H.W.2    Knight, S.J.3    Sharifi, R.4    Wu, Z.5    Hung, S.Y.6
  • 43
    • 77956392206 scopus 로고    scopus 로고
    • Development of the WHOQOL disabilities module
    • WHOQOL-Dis Group
    • M.J. Power, A.M. Green WHOQOL-Dis Group Development of the WHOQOL disabilities module Qual Life Res 19 2010 571 584
    • (2010) Qual Life Res , vol.19 , pp. 571-584
    • Power, M.J.1    Green, A.M.2


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