Parent-reported outcomes of a shared decision-making portal in asthma: A practice-based RCT

Pediatrics

Volumn 135, Issue 4, 2015, Pages e965-e973

  Fiks, Alexander G ^a,b,c,d,e   Mayne, Stephanie L ^c,d   Karavite, Dean J ^b   Suh, Andrew ^c,d   O'Hara, Ryan ^b   Localio, A Russell ^e   Ross, Michelle ^e   Grundmeier, Robert W ^a,b,e  

^a Pediatric Research Consortium   (United States)

^b Center for Biomedical Informatics   (United States)

^c PolicyLab   (United States)

^d CHILDREN S HOSPITAL OF PHILADELPHIA   (United States)

^e UNIVERSITY OF PENNSYLVANIA   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

BETA ADRENERGIC RECEPTOR STIMULATING AGENT; MONTELUKAST; SALBUTAMOL; STEROID; ANTIASTHMATIC AGENT;

ABSENTEEISM; ARTICLE; ASTHMA; ATTITUDE TO HEALTH; CHILD; CHILD HEALTH CARE; CONTROLLED STUDY; DECISION SUPPORT SYSTEM; DISEASE CONTROL; DISEASE EXACERBATION; DISEASE SEVERITY; DOCTOR PATIENT RELATION; DRUG USE; ELECTRONIC MEDICAL RECORD; FEASIBILITY STUDY; HEALTH CARE UTILIZATION; HUMAN; INTERPERSONAL COMMUNICATION; MAJOR CLINICAL STUDY; MEDICAL INFORMATICS; MODERATE PERSISTENT ASTHMA; MULTICENTER STUDY; OUTCOME ASSESSMENT; PARENT; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; PROGRAM ACCEPTABILITY; PROSPECTIVE STUDY; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIAL; SATISFACTION; SEVERE PERSISTENT ASTHMA; ADOLESCENT; CLINICAL TRIAL; DECISION MAKING; ELECTRONIC HEALTH RECORD; FEMALE; HOSPITALIZATION; HUMAN RELATION; MALE; MEDICATION COMPLIANCE; PRIMARY HEALTH CARE; TREATMENT OUTCOME; UNITED STATES;

ABSENTEEISM; ADOLESCENT; ANTI-ASTHMATIC AGENTS; ASTHMA; DECISION MAKING; DECISION SUPPORT TECHNIQUES; ELECTRONIC HEALTH RECORDS; FEASIBILITY STUDIES; FEMALE; HOSPITALIZATION; HUMANS; MALE; MEDICATION ADHERENCE; PARENTS; PRIMARY HEALTH CARE; PROFESSIONAL-FAMILY RELATIONS; PROSPECTIVE STUDIES; TREATMENT OUTCOME; UNITED STATES;

EID: 84927709101     PISSN: 00314005     EISSN: 10984275     Source Type: Journal    
DOI: 10.1542/peds.2014-3167     Document Type: Article

References (40)

1. Van Cleave J, Gortmaker SL, Perrin JM. Dynamics of obesity and chronic health conditions among children and youth. JAMA. 2010;303(7):623-630
2. Andrews R, Morgan JD, Addy DP, McNeish AS. Understanding non-attendance in outpatient paediatric clinics. Arch Dis Child. 1990;65(2):192-195
3. Cabana MD, Bruckman D, Bratton SL, Kemper AR, Clark NM. Association between outpatient follow-up and pediatric emergency department asthma visits. J Asthma. 2003;40(7):741-749
4. Fiks AG, Grundmeier RW, Mayne S, et al. Effectiveness of decision support for families, clinicians, or both on HPV vaccine receipt. Pediatrics. 2013;131(6):1114-1124
5. Charles C, Gafni A, Whelan T. Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Soc Sci Med. 1997;44(5):681-692
6. Stacey D, Légaré F, Col NF, et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev. 2014;1:CD001431
7. Friedberg MW, Van Busum K, Wexler R, Bowen M, Schneider EC. A demonstration of shared decision making in primary care highlights barriers to adoption and potential remedies. Health Aff (Millwood). 2013;32(2):268-275
8. Centers for Medicare and Medicaid Services. Medicaid electronic health record incentive payments for eligible professionals. 2010. Available at: http://www.cms.gov/Regulations-and-Guidance/Legislation/EHRIncentivePrograms/index.html?redirect=/ehrincentiveprograms/. Accessed January 29, 2015
9. Institute of Medicine. Committee on Comparative Effectiveness Research Prioritization. Initial National Priorities for Comparative Effectiveness Research. Washington, DC: National Academies Press; 2009
10. Ammenwerth E, Schnell-Inderst P, Hoerbst A. The impact of electronic patient portals on patient care: a systematic review of controlled trials. J Med Internet Res. 2012;14(6):e162
11. Bourgeois FC, Mandl KD, Shaw D, Flemming D, Nigrin DJ. Mychildren's: integration of a personally controlled health record with a tethered patient portal for a pediatric and adolescent population. AMIA Annu Symp Proc. 2009;2009:65-69
12. Silvestre AL, Sue VM, Allen JY. If you build it, will they come? The Kaiser Permanente model of online health care. Health Aff (Millwood). 2009;28(2):334-344
13. Bloom B, Cohen RA, Freeman G. Summary health statistics for US children: National Health Interview Survey, 2010. Vital Health Stat 10. 2011; (250):1-80
14. Dean BB, Calimlim BM, Kindermann SL, Khandker RK, Tinkelman D. The impact of uncontrolled asthma on absenteeism and health-related quality of life. J Asthma. 2009;46(9):861-866
15. Laforest L, Yin D, Kocevar VS, et al. Association between asthma control in children and loss of workdays by caregivers. Ann Allergy Asthma Immunol. 2004;93(3):265-271
16. Schmier JK, Manjunath R, Halpern MT, Jones ML, Thompson K, Diette GB. The impact of inadequately controlled asthma in urban children on quality of life and productivity. Ann Allergy Asthma Immunol. 2007;98(3):245-251
17. Guilbert TW, Garris C, Jhingran P, et al. Asthma that is not well-controlled is associated with increased healthcare utilization and decreased quality of life. J Asthma. 2011;48(2):126-132
18. Akinbami L; Centers for Disease Control and Prevention National Center for Health Statistics. The state of childhood asthma, United States, 1980-2005. Adv Data. 2006; (381):1-24
19. Hartman ME, Linde-Zwirble WT, Angus DC, Watson RS. Trends in admissions for pediatric status asthmaticus in New Jersey over a 15-year period. Pediatrics. 2010;126 (4). Available at: www.pediatrics.org/cgi/content/full/126/4/e904
20. Fiks AG, Localio AR, Alessandrini EA, Asch DA, Guevara JP. Shared decision-making in pediatrics: a national perspective. Pediatrics. 2010;126(2):306-314
21. Fiks AG, Mayne S, Localio AR, Alessandrini EA, Guevara JP. Shared decision-making and health care expenditures among children with special health care needs. Pediatrics. 2012;129(1):99-107
22. Fiks AG, Grundmeier RW, Margolis B, et al. Comparative effectiveness research using the electronic medical record: an emerging area of investigation in pediatric primary care. J Pediatr. 2012;160(5):719-724
23. Fiks AG, Mayne S, Karavite DJ, DeBartolo E, Grundmeier RW. A shared e-decision support portal for pediatric asthma. J Ambul Care Manage. 2014;37(2):120-126
24. National Heart, Lung, and Blood Institute, National Asthma Education and Prevention Program. Expert Panel Report 3: Guidelines for the Diagnosis and Management of Asthma. Bethesda, MD: National Heart, Lung, and Blood Institute; 2007
25. Bell LM, Grundmeier R, Localio R, et al. Electronic health record-based decision support to improve asthma care: a cluster-randomized trial. Pediatrics. 2010;125 (4). Available at: www.pediatrics.org/cgi/content/full/125/4/e770
26. Harris PA, Taylor R, Thielke R, Payne J, Gonzalez N, Conde JG. Research electronic data capture (REDCap) - a metadata-driven methodology and workflow process for providing translational research informatics support. J Biomed Inform. 2009;42(2):377-381
27. Hibbard JH, Mahoney ER, Stockard J, Tusler M. Development and testing of a short form of the patient activation measure. Health Serv Res. 2005;40(6 pt 1):1918-1930
28. Bukstein DA, McGrath MM, Buchner DA, Landgraf J, Goss TF. Evaluation of a short form for measuring health-related quality of life among pediatric asthma patients. J Allergy Clin Immunol. 2000;105(2 pt 1):245-251
29. Zorc JJ, Pawlowski NA, Allen JL, et al. Development and validation of an instrument to measure asthma symptom control in children. J Asthma. 2006;43(10):753-758
30. Guendelman S, Meade K, Benson M, Chen YQ, Samuels S. Improving asthma outcomes and self-management behaviors of inner-city children: a randomized trial of the Health Buddy interactive device and an asthma diary. Arch Pediatr Adolesc Med. 2002;156(2):114-120
31. Gustafson D, Wise M, Bhattacharya A, et al. The effects of combining Web-based eHealth with telephone nurse case management for pediatric asthma control: a randomized controlled trial. J Med Internet Res. 2012;14(4):e101
32. Jan RL, Wang JY, Huang MC, Tseng SM, Su HJ, Liu LF. An Internet-based interactive telemonitoring system for improving childhood asthma outcomes in Taiwan. Telemed J E Health. 2007;13(3):257-268
33. Joseph CL, Ownby DR, Havstad SL, et al; Research team members. Evaluation of a web-based asthma management intervention program for urban teenagers: reaching the hard to reach. J Adolesc Health. 2013;52(4):419-426
34. Joseph CL, Peterson E, Havstad S, et al; Asthma in Adolescents Research Team. A web-based, tailored asthma management program for urban African-American high school students. Am J Respir Crit Care Med. 2007;175(9):888-895
35. Viswanath K, Kreuter MW. Health disparities, communication inequalities, and eHealth. Am J Prev Med. 2007;32(suppl 5):S131-S133
36. Lorence DP, Park H, Fox S. Racial disparities in health information access: resilience of the Digital Divide. J Med Syst. 2006;30(4):241-249
37. Shields AE, Shin P, Leu MG, et al. Adoption of health information technology in community health centers: results of a national survey. Health Aff (Millwood). 2007;26(5):1373-1383
38. Smith A. Smartphone Ownership 2012. Washington, DC: Pew Internet and American Life Project; 2012
39. Fox S. Mobile Health 2012. Washington, DC: Pew Internet and American Life Project; 2012
40. Adams WG, Fuhlbrigge AL, Miller CW, et al. TLC-Asthma: an integrated information system for patient-centered monitoring, case management, and point-of-care decision support. AMIA Annu Symp Proc. 2003:1-5