Development of a health index in patients with ankylosing spondylitis (ASAS HI): Final result of a global initiative based on the ICF guided by ASAS

Annals of the Rheumatic Diseases

Volumn 74, Issue 5, 2015, Pages 830-835

  Kiltz, U ^a   Van Der Heijde, D ^b   Boonen, A ^c   Cieza, A ^d   Stucki, G ^e,f,g   Khan, M A ^h   Maksymowych, W P ⁱ   Marzo Ortega, H ^j   Reveille, J ^k   Stebbings, S ^l   Bostan, C ^f,g   Braun, J ^a  

^a RHEUMAZENTRUM RUHRGEBIET   (Germany)

^b LEIDEN UNIVERSITY MEDICAL CENTER   (Netherlands)

^c MAASTRICHT UNIVERSITY MEDICAL CENTER   (Netherlands)

^d UNIVERSITY OF SOUTHAMPTON   (United Kingdom)

^e UNIVERSITY OF LUCERNE   (Switzerland)

^f SWISS PARAPLEGIC RESEARCH   (Switzerland)

^g ICF Research Branch in Cooperation with   (Germany)

^h CASE WESTERN RESERVE UNIVERSITY   (United States)

ⁱ UNIVERSITY OF ALBERTA   (Canada)

^j Chapel Allerton Hospital   (United Kingdom)

^k UNIVERSITY OF TEXAS MEDICAL SCHOOL   (United States)

^l UNIVERSITY OF OTAGO   (New Zealand)

more..

Author keywords

[No Author keywords available]

Indexed keywords

ANKYLOSING SPONDYLITIS; ARTICLE; ASSESSMENT OF SPONDYLOARTHRITIS INTERNATIONAL SOCIETY; CONTROLLED STUDY; CROSS-SECTIONAL STUDY; DISEASE ACTIVITY; DISEASE CLASSIFICATION; DISEASE SEVERITY; HEALTH STATUS; HUMAN; INTERNATIONAL CLASSIFICATION OF FUNCTIONING, DISABILITY AND HEALTH; MAJOR CLINICAL STUDY; MEDICAL SOCIETY; PRIORITY JOURNAL; RASCH ANALYSIS; RELIABILITY; SOCIAL PARTICIPATION; ADAPTIVE BEHAVIOR; ADULT; AGED; CONSENSUS; DAILY LIFE ACTIVITY; FEMALE; HEALTH STATUS INDICATOR; MALE; MIDDLE AGED; PATHOPHYSIOLOGY; PSYCHOLOGY; QUALITY OF LIFE; QUESTIONNAIRE;

ACTIVITIES OF DAILY LIVING; ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; CONSENSUS; CROSS-SECTIONAL STUDIES; FEMALE; HEALTH STATUS INDICATORS; HUMANS; MALE; MIDDLE AGED; QUALITY OF LIFE; SPONDYLITIS, ANKYLOSING; SURVEYS AND QUESTIONNAIRES;

EID: 84926656063     PISSN: 00034967     EISSN: 14682060     Source Type: Journal    
DOI: 10.1136/annrheumdis-2013-203967     Document Type: Article

References (21)

1. Vander Cruyssen B, Ribbens C, Boonen A, et al. The epidemiology of ankylosing spondylitis and the commencement of anti-TNF therapy in daily rheumatology practice. Ann Rheum Dis 2007; 66: 1072-7.
2. van Echteld I, Cieza A, Boonen A, et al. Identification of the most common problems by patients with ankylosing spondylitis using the international classification of functioning, disability and health. J Rheumatol 2006; 33: 2475-83.
3. Ward MM. Health-related quality of life in ankylosing spondylitis: A survey of 175 patients. Arthritis Care Res 1999; 12: 247-55.
4. Machado P, Landewé R, Braun J, et al. A stratified model for health outcomes in ankylosing spondylitis. Ann Rheum Dis 2011; 70: 1758-64.
5. The International Classification of Functioning Disability and Health. Geneva: World Health Organization, 2001.
6. Boonen A, Braun J, van Der Horst-Bruinsma IE, et al. ASAS/WHO ICF Core Sets for ankylosing spondylitis (AS): How to classify the impact of AS on functioning and health. Ann Rheum Dis 2010; 69: 102-7.
7. Gordeev VS, Maksymowych WP, Evers SM, et al. Role of contextual factors in health-related quality of life in ankylosing spondylitis. Ann Rheum Dis 2010; 69: 108-12.
8. Boers M, Idzerda L, Kirwan J, et al. Towards a generalized framework of core measurement areas in clinical trials: A position paper for OMERACT 11. J Rheumatol (accepted) 2013.
9. Cieza A, Bickenbach J, Chatterji S. The ICF as a conceptual platform to specify and discuss health and health-related concepts. Gesundheitswesen 2008; 70: E47-56.
10. Cieza A, Hilfiker R, Boonen A, et al. Towards an ICF-based clinical measure of functioning in people with ankylosing spondylitis: A methodological exploration. Disabil Rehabil 2009; 31: 528-37.
11. Kiltz U, van Der heijde D, Cieza A, et al. Developing and validating an index for measuring health in patients with ankylosing spondylitis. Rheumatology 2011; 50: 894-8.
12. Cieza A, Brockow T, Ewert T, et al. Linking health-status measurements to the international classification of functioning, disability and health. J Rehabil Med 2002; 34: 205-10.
13. Cieza A, Geyh S, Chatterji S, et al. ICF linking rules: An update based on lessons learned. J Rehabil Med 2005; 37: 212-18.
14. Calin A, Garrett S, Whitelock H, et al. A new approach to defining functional ability in ankylosing spondylitis: The development of the Bath Ankylosing Spondylitis Functional Index. J Rheumatol 1994; 21: 2281-5.
15. Garrett S, Jenkinson T, Kennedy LG, et al. A new approach to defining disease status in ankylosing spondylitis: The Bath Ankylosing Spondylitis Disease Activity Index. J Rheumatol 1994; 21: 2286-91.
16. Jones SD, Steiner A, Garrett SL, et al. The Bath Ankylosing Spondylitis Patient Global Score (BAS-G). Br J Rheumatol 1996; 35: 66-71.
17. Doward LC, Spoorenberg A, Cook SA, et al. Development of the ASQoL: A quality of life instrument specific to ankylosing spondylitis. Ann Rheum Dis 2003; 62: 20-6.
18. Boonen A, van Berkel M, Cieza A, et al. Which aspects of functioning are relevant for patients with ankylosing spondylitis: Results of focus group interviews. J Rheumatol 2009; 36: 2501-11.
19. Sigl T, Cieza A, van Der Heijde D, et al. ICF based comparison of disease specific instruments measuring physical functional ability in ankylosing spondylitis. Ann Rheum Dis 2005; 64: 1576-81.
20. Rudwaleit M, van Der Heijde D, Landewé R, et al. The development of Assessment of SpondyloArthritis international Society classification criteria for axial spondyloarthritis ( part II): Validation and final selection. Ann Rheum Dis 2009; 68: 777-83.
21. Rudwaleit M, van Der Heijde D, Landewé R, et al. The Assessment of SpondyloArthritis International Society classification criteria for peripheral spondyloarthritis and for spondyloarthritis in general. Ann Rheum Dis 2011; 70: 25-31.