Naming the dead: DNA-based identification of historical remains as an act of care

New Genetics and Society

Volumn 33, Issue 3, 2014, Pages 313-332

  Scully, Jackie Leach ^a  

^a NEWCASTLE UNIVERSITY   (United Kingdom)

Author keywords

DNA matching; DNA profiling; ethics of care; Fromelles; mass fatalities; World War I

Indexed keywords

MITOCHONDRIAL DNA;

ARTICLE; AUSTRALIAN; BIOETHICS; BODY REGIONS; DEATH; DNA DETERMINATION; DNA FINGERPRINTING; DNA SEQUENCE; ETHICAL DECISION MAKING; FAMILY COUNSELING; FORENSIC IDENTIFICATION; HISTORY; HUMAN; IDENTITY; INTERVIEW; MASS DISASTER; MOLECULAR PHYLOGENY; PRIORITY JOURNAL; QUALITATIVE RESEARCH; SOCIAL INTERACTION; WAR;

EID: 84926006774     PISSN: 14636778     EISSN: 14699915     Source Type: Journal    
DOI: 10.1080/14636778.2014.946002     Document Type: Article

References (57)

1. Barnes, M. 2012. Care in Everyday Life: An Ethic of Care in Practice. Bristol: The Policy Press.
2. Black, S., G. Walker, L. Hackman, and, C. Brooks., eds. 2010. Disaster Victim Identification: The Practitioner's Guide. Dundee: Dundee University Press.
3. Caenazzo, L., P. Tozzo, and, D. Rodriguez. 2013. " Ethical Issues in DNA Identification of Human Biological Material from Mass Disasters." Prehospital and Disaster Medicine 28 (4): 393-396.
4. Callahan, J. 1987. " On Harming the Dead." Ethics 97 (2): 341-352.
5. Cox, M. 2010. "The Scientific Overview and Identification." In Remembering Fromelles: A New Cemetery for a New Century, edited by J. Summers, 57-67. Maidenhead: Commonwealth War Graves Commission.
6. Cox, M. and P. Jones. 2014. "Ethical Considerations in the use of DNA as a Contribution towards the Determination of Identification in Historic Cases: Considerations from the Western Front." New Genetics and Society 33 (3): 295-312.
7. Department of Defence. 2010. First Fromelles Soldiers Identified, Press Release MSPA 032/10, March 17. Canberra: Department of Defence, ACT.
8. De Vries, R., L. Turner, K. Orfali, and, C. Bosk. 2006. " Social Science and Bioethics: The Way Forward." Sociology of Health and Illness 28 (6): 665-677.
9. Evison, M., E. Graham, E. Haimes, A. Ludwig, C. Maguire, J. L. Scully, V. Toom, and, R. Williams. 2012. " A Comment on the Hill-Turney Exchange: From Normative Antagonism to Interdisciplinary Collaboration." New Genetics and Society 31 (4): 385-390.
10. Haimes, E. 2002. " What Can the Social Sciences Contribute to the Study of Ethics? Theoretical, Empirical and Substantive Considerations." Bioethics 16 (2): 89-113.
11. Haimes, E. 2006. "Social and Ethical Issues in the use of Familial Searching in Forensic Investigations: Insights from Family and Kinship Studies." Journal of Law, Medicine and Ethics, 34 (2): 263-276.
12. Hauskeller, C. 2004. " Genes, Genomes and Identity. Projections on Matter." New Genetics and Society 23 (3): 285-299.
13. Hedgecoe, A. 2001. " Ethical Boundary Work: Geneticization, Philosophy and the Social Sciences." Medicine, Health Care and Philosophy 4 (3): 305-309.
14. Heffernan, M. 1995. " For ever England: The Western Front and the Politics of Remembrance in Britain." Ecumene 2 (3): 293-323.
15. Held, V. 2006. The Ethics of Care: Personal, Political, and Global. Oxford: Oxford University Press.
16. Holm, S. 2001. " The Privacy of Tutankhamen: Utilising the Genetic Information in Stored Tissue Samples." Theoretical Medicine and Bioethics 22 (5): 437-449.
17. ICRC (International Committee of the Red Cross). 2004. The Missing and Their Families. Documents of Reference. Geneva: ICRC. Accessed January 20, 2014. http://www.icrc.org/eng/resources/documents/publication/p0857.htm
18. ICRC (International Committee of the Red Cross). 2009. Missing People, DNA Analysis and Identification of Human Remains. A Guide to Best Practice in Armed Conflicts and other Situations of Armed Violence. Geneva: ICRC.
19. Interpol. 2009. Disaster Victim Identification Guide. Accessed January 20, 2014. http://www.interpol.int/INTERPOL-expertise/Forensics/DVI-Pages/DVI-guide
20. Jeffreys, A. J., V. Wilson, and, S. L. Thein. 1985. " Hypervariable Minisatellite Regions in Human DNA." Nature 314 (6006): 67-73.
21. Jones, P. 2010. "The Use of DNA Profiling." In Remembering Fromelles: A New Cemetery for a New Century, edited by J. Summers, 63-67. Maidenhead: Commonwealth War Graves Commission.
22. Knoppers, B. M., M. Saginur, and, H. Cash. 2006. " Ethical Issues in Secondary uses of Human Biological Materials from Mass Disasters." Journal of Law, Medicine and Ethics 34 (2): 352-365.
23. Kyle, J. 2013. " Protecting the World: Military Humanitarian Intervention and the Ethics of Care." Hypatia 28 (2): 257-273.
24. Lindsay, P. 2007. Fromelles. Richmond, Victoria: Hardie Grant Books.
25. Loe, L. 2010. "Uncovering the Fallen." In Remembering Fromelles: A New Cemetery for a New Century, edited by J. Summers, 27-33. Maidenhead: Commonwealth War Graves Commission.
26. London, A. J., L. S. Parker, and, J. D. Aronson. 2013. " DNA Identification after Conflict or Disaster." Science 341 (6141): 1178-1179.
27. Lucassen, A., and, M. Parker. 2001. " Revealing False Paternity: Some Ethical Considerations." Lancet 357 (9261): 1033-1035.
28. Lynch, M., S. A. Cole, E. McNally, and, K. Jordan. 2011. Truth Machine: The Contentious History of DNA Fingerprinting. Chicago, IL: University of Chicago Press.
29. Masterton, M., G. Helgesson, A. T. Hoeglund, and, M. G. Hansson. 2007. " Queen Christina's Moral Claim on the Living: Justification of a Tenacious Moral Intuition." Medicine, Health Care and Philosophy 10 (3): 321-327.
30. Nagel, T. 1970. " Death." Noûs 4 (1): 73-80.
31. Nelson, A. 2008. " Bio Science: Genetic Ancestry Testing and the Pursuit of African Ancestry." Social Studies of Science 38 (5): 759-783.
32. Nordgren, A. and E. T. Juengst. 2009. "Can Genomics tell me Who I am? Essentialistic Rhetoric in Direct-to-Consumer DNA Testing." New Genetics and Society 28 (2): 157-172.
33. Novas, C., and, N. Rose. 2000. " Genetic Risk and the Birth of the Somatic Individual." Economy and Society 29 (4): 485-513.
34. Oikonnen, V. 2013. " Narrative Analysis as a Feminist Method: The Case of Genetic Ancestry Tests." European Journal of Women's Studies 20 (3): 295-308.
35. Palo, J. U., M. Hedman, N. Söderholm, and, A. Sajantila. 2007. " Repatriation and Identification of Finnish World War II Soldiers." Croatian Medical Journal 48 (4): 528-535.
36. Parker, L. S., A. J. London, and, J. D. Aronson. 2013. " Incidental Findings in the Use of DNA to Identify Human Remains: An Ethical Assessment." Forensic Science International: Genetics 7 (2): 221-229.
37. Pettersen, T. 2011. " The Ethics of Care: Normative Structures and Empirical Implications." Health Care Analysis 19 (1): 51-64.
38. Pitcher, G. 1984. " The Misfortunes of the Dead." American Philosophical Quarterly 21 (2): 183-188.
39. Rehmann-Sutter, C., and, H. J. Mueller. 2009. Disclosure Dilemmas: Ethics of Genetic Prognosis after the Right to Know/Not to Know Debate. Farnham: Ashgate.
40. Rehmann-Sutter, C., R. Porz, and, J. L. Scully. 2012. " How to Relate the Empirical to the Normative: Toward a phenomenologically Informed Hermeneutic Approach to Bioethics." Cambridge Quarterly of Healthcare Ethics 21 (4): 436-447.
41. Scarre, G. 2012. " Speaking of the Dead." Mortality 17 (1): 36-50.
42. Scully, J. L., and, R. Woodward. 2012. " Naming the Unknown of Fromelles: DNA Profiling, Ethics and the Identification of First World War Bodies." Journal of War and Culture Studies 5 (1): 59-72.
43. Scully, M. 2013. " Remediating Viking Origins." Sociology 47 (5): 921-938.
44. Shaler, R. 2005. Who They Were: Inside the World Trade Center DNA Story. The Unprecedented Effort to Identify the Missing. New York: Free Trade Press.
45. Simpson, B. 2000. "Imagined Genetic Communities: Ethnicity and Essentialism in the Twenty-first Century." Anthropology Today 16 (3): 3-6.
46. Smith, B. 2010. "This lad now has his name back: Search for lost Digger comes to an end". The Age. Accessed March 16, 2010. http://www.theage.com.au/national/this-lad-now-has-his-name-back-search-for-lost-digger-comes-to-an-end-20100316-qbbd.html
47. Summers, J. 2010. Remembering Fromelles: A New Cemetery for a New Century. Maidenhead: Commonwealth War Graves Commission.
48. TallBear, K. 2013. " Genetic Articulations of Indigeneity." Social Studies of Science 43 (4): 509-533.
49. Totaro, P. 2010. "Scientists Identify Lost Diggers of Fromelles." Sydney Morning Herald, March 16. Accessed January 4, 2012. http://www.smh.com.au/national/scientists-identify-lost-diggers-of-fromelles-20100316-qavx.html
50. Tronto, J. 1993. Moral Boundaries: A Political Argument for an Ethics of Care. London: Routledge.
51. Turney, L. 2010. " The Failure of DNA Forensic Testing: A Case Study of the 2009 Australian Bushfire Disaster." New Genetics and Society 29 (3): 225-240.
52. Tutton, R. 2002. " They Want to Know Where They Came From: Population Genetics, Identity, and Family Genealogy." New Genetics and Society 23 (1): 105-120.
53. Wagner, S. 2008. To Know Where He Lies: DNA Technology and the Search for Srebrenica's Missing. Los Angeles: University of California Press.
54. Williams, R., and, P. Johnson. 2008. Genetic Policing: The Use of DNA in Criminal Investigations. Cullompton: Willan.
55. Wilson, R. 2012. " The Burial of the Dead: The British Army on the Western Front, 1914-18." War and Society 31 (1): 22-41.
56. Winter, J. 1992. " Catastrophe and Culture: Recent Trends in the Historiography of the First World War." Journal of Modern History 64 (3): 525-532.
57. Zwart, H. 2009. " Genomics and Identity: The Bioinformatisation of Human Life." Medicine, Health Care and Philosophy 12 (2): 125-136.