Apoyo con Cariño: A pilot randomized controlled trial of a patient navigator intervention to improve palliative care outcomes for latinos with serious illness

Journal of Pain and Symptom Management

Volumn 49, Issue 4, 2015, Pages 657-665

  Fischer, Stacy M ^a   Cervantes, Lilia ^b   Fink, Regina M ^c,d   Kutner, Jean S ^a  

^a UNIVERSITY OF COLORADO SCHOOL OF MEDICINE   (United States)

^b DENVER HEALTH AND HOSPITAL AUTHORITY   (United States)

^c UNIVERSITY OF COLORADO HOSPITAL   (United States)

^d UNIVERSITY OF COLORADO   (United States)

Author keywords

health disparities; palliative care; Patient navigation

Indexed keywords

ADULT; ANALGESIA; ARTICLE; CLINICAL ARTICLE; CLINICAL EFFECTIVENESS; CONTROLLED STUDY; DURABLE POWER OF ATTORNEY; FEASIBILITY STUDY; FEMALE; HEALTH CARE UTILIZATION; HEALTH EDUCATION; HISPANIC; HOSPICE CARE; HUMAN; LENGTH OF STAY; LIVING WILL; MALE; MEDICAL DOCUMENTATION; MEDICAL RECORD; PALLIATIVE THERAPY; PATIENT CARE; PATIENT NAVIGATOR INTERVENTION; PILOT STUDY; PROFESSIONAL PRACTICE; RANDOMIZED CONTROLLED TRIAL; TREATMENT OUTCOME; FOLLOW UP; HEALTH AUXILIARY; MIDDLE AGED; MULTILINGUALISM; PROCEDURES; STATISTICS AND NUMERICAL DATA; TRANSCULTURAL CARE;

ADVANCE CARE PLANNING; COMMUNITY HEALTH WORKERS; CULTURALLY COMPETENT CARE; FEASIBILITY STUDIES; FEMALE; FOLLOW-UP STUDIES; HISPANIC AMERICANS; HOSPICE CARE; HOUSE CALLS; HUMANS; MALE; MIDDLE AGED; MULTILINGUALISM; PAIN MANAGEMENT; PALLIATIVE CARE; PATIENT NAVIGATION; PILOT PROJECTS;

EID: 84925965578     PISSN: 08853924     EISSN: 18736513     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2014.08.011     Document Type: Article

References (55)

1. A. Hanchate, A.C. Kronman, Y. Young-Xu, A.S. Ash, and E. Emanuel Racial and ethnic differences in end-of-life costs: why do minorities cost more than whites? Arch Intern Med 169 2009 493 501
2. K.O. Anderson, C.R. Green, and R. Payne Racial and ethnic disparities in pain: causes and consequences of unequal care J Pain 10 2009 1187 1204
3. R.K. Portenoy, C. Ugarte, I. Fuller, and G. Haas Population-based survey of pain in the United States: differences among white, African American, and Hispanic subjects J Pain 5 2004 317 328
4. K.O. Anderson, S.P. Richman, and J. Hurley Cancer pain management among underserved minority outpatients: perceived needs and barriers to optimal control Cancer 94 2002 2295 2304
5. E.T. Lewis, A. Combs, and J.A. Trafton Reasons for under-use of prescribed opioid medications by patients in pain Pain Med 11 2010 861 871
6. C.S. Cleeland, R. Gonin, L. Baez, P. Loehrer, and K.J. Pandya Pain and treatment of pain in minority patients with cancer Ann Intern Med 127 1997 813 816
7. K.O. Anderson, T.R. Mendoza, and V. Valero Minority cancer patients and their providers: pain management attitudes and practice Cancer 88 2000 1929 1938
8. L.L. Cohen Racial/ethnic disparities in hospice care: a systematic review J Palliat Med 11 2008 763 768
9. A.K. Smith, C.C. Earle, and E.P. McCarthy Racial and ethnic differences in end-of-life care in fee-for-service Medicare beneficiaries with advanced cancer J Am Geriatr Soc 57 2009 153 158
10. W. Born, K.A. Greiner, E. Sylvia, J. Butler, and J.S. Ahluwalia Knowledge, attitudes, and beliefs about end-of-life care among inner-city African Americans and Latinos J Palliat Med 7 2004 247 256
11. S.A. Duffy, F.C. Jackson, S.M. Schim, D.L. Ronis, and K.E. Fowler Racial/ethnic preferences, sex preferences, and perceived discrimination related to end-of-life care J Am Geriatr Soc 54 2006 150 157
12. A.K. Smith, E.P. McCarthy, and E. Paulk Racial and ethnic differences in advance care planning among patients with cancer: impact of terminal illness acknowledgment, religiousness, and treatment preferences J Clin Oncol 26 2008 4131 4137
13. P. Tellez-Giron Providing culturally sensitive end-of-life care for the Latino/a community WMJ 106 2007 402 406
14. T. Taylor, E. Serrano, J. Anderson, and P. Kendall Knowledge, skills, and behavior improvements on peer educators and low-income Hispanic participants after a stage of change-based bilingual nutrition education program J Community Health 25 2000 241 262
15. Institute of Medicine Unequal treatment 2003 National Academies Press Washington, DC
16. P. Freiere Pedagogy of the oppressed 1930 Continuum New York
17. S.M. Swider Outcome effectiveness of community health workers: an integrative literature review Public Health Nurs 19 2002 11 20
18. L.J. Romero, R.D. Lindeman, K.M. Koehler, and A. Allen Influence of ethnicity on advance directives and end-of-life decisions [letter] JAMA 277 1997 298
19. R.S. Morrison, E.W. Morrison, and D.F. Glickman Physician reluctance to discuss advance directives. An empiric investigation of potential barriers Arch Intern Med 154 1994 2311 2318
20. E.D. McKinley, J.M. Garrett, A.T. Evans, and M. Danis Differences in end-of-life decision making among black and white ambulatory cancer patients J Gen Intern Med 11 1996 651 656
21. L.B. Shepardson, S.J. Younger, and J. Speroff Variation in the use of do-not-resuscitate orders for patients with a stroke Arch Intern Med 157 1997 1841 1847
22. N.S. Wenger, M.L. Pearson, and K.A. Desmond Epidemiology of do-not-resuscitate orders. Disparity by age, diagnosis, gender, race, and functional impairment Arch Intern Med 155 1995 2056 2062
23. J.M. Garrett, R.P. Harris, J.K. Norburn, D.L. Patrick, and M. Danis Life sustaining treatments during terminal illness: who wants what? J Gen Intern Med 8 1993 361 368
24. G.P. Gramelspacher, X.H. Zhou, M.P. Hanna, and W.M. Tierney Preferences of physicians and their patients for end-of-life care J Gen Intern Med 12 1997 346 351
25. J.S. Haas, J.S. Weissman, and P.D. Cleary Discussion preferences for life-sustaining care by persons with AIDS Arch Intern Med 153 1993 1241 1248
26. S.C. Weiss, L.L. Emanuel, D.L. Fairclough, and E.J. Emanuel Understanding the experience of pain in terminally ill patients Lancet 357 2001 1311 1315
27. J.A. McNeill, J. Reynolds, and M.L. Ney Unequal quality of cancer pain management: disparity in perceived control and proposed solutions Oncol Nurs Forum 34 2007 1121 1128
28. American Geriatrics Society Panel on Chronic Pain in Older Persons. Clinical practice guideline: the management of chronic pain in older persons J Am Geriatr Soc 46 1998 635 651
29. E. Chiauzzi, R.A. Black, and K. Frayjo Health care provider perceptions of pain treatment in Hispanic patients Pain Pract 11 2011 267 277
30. R.S. Morrison, S. Wallenstein, D.K. Natale, R.S. Senzel, and L.L. Huang "We don't carry that" - failure of pharmacies in predominantly nonwhite neighborhoods to stock opioid analgesics N Engl J Med 342 2000 1023 1026
31. B. Ng, J.E. Dimsdale, G.P. Shragg, and R. Deutsch Ethnic differences in analgesic consumption for post-operative pain Psychosom Med 58 1996 125 129
32. L. Montague, and C.R. Green Cancer and breakthrough pain's impact on a diverse population Pain Med 10 2009 549 561
33. C.R. Green, L. Montague, and T.A. Hart-Johnson Consistent and breakthrough pain in diverse advanced cancer patients: a longitudinal examination J Pain Symptom Manage 37 2009 831 847
34. E.O. Im, W. Chee, and E. Guevara Gender and ethnic differences in cancer pain experience: a multiethnic survey in the United States Nurs Res 56 2007 296 306
35. R. Jayadevappa, J.C. Johnson, S. Chhatre, A.J. Wein, and S.B. Malkowicz Ethnic variation in return to baseline values of patient-reported outcomes in older prostate cancer patients Cancer 109 2007 2229 2238
36. L.D. Castel, B.R. Saville, and V. Depuy Racial differences in pain during 1 year among women with metastatic breast cancer: a hazards analysis of interval-censored data Cancer 112 2008 162 170
37. National Hospice and Palliative Care Organization NHPCO facts and figures 2002 NHPCO Alexandria, VA
38. K.A. Greiner, S. Perera, and J.S. Ahluwalia Hospice usage by minorities in the last year of life: results from the National Mortality Feedback Survey J Am Geriatr Soc 51 2003 970 978
39. A.K. Gordon Deterrents to access and service for blacks and Hispanics: the Medicare Hospice Benefit, healthcare utilization, and cultural barriers Hosp J 10 1995 65 83
40. H.P. Freeman, and K.C. Chu Determinants of cancer disparities: barriers to cancer screening, diagnosis, and treatment Surg Oncol Clin N Am 14 2005 655 669 [v]
41. H.P. Freeman Patient navigation: a community centered approach to reducing cancer mortality J Cancer Educ 21 2006 S11 S14
42. H.P. Freeman Patient navigation: a community based strategy to reduce cancer disparities J Urban Health 83 2006 139 141
43. H.P. Freeman, B.J. Muth, and J.F. Kerner Expanding access to cancer screening and clinical follow-up among the medically underserved Cancer Pract 3 1995 19 30
44. E.D. Paskett, J.P. Harrop, and K.J. Wells Patient navigation: an update on the state of the science CA Cancer J Clin 61 2011 237 249
45. E.A. Calhoun, E.M. Whitley, and A. Esparza A national patient navigator training program Health Promot Pract 11 2010 205 215
46. K.J. Wells, T.A. Battaglia, and D.J. Dudley Patient navigation: state of the art or is it science? Cancer 113 2008 1999 2010
47. M.L. Steinberg, A. Fremont, and D.C. Khan Lay patient navigator program implementation for equal access to cancer care and clinical trials: essential steps and initial challenges Cancer 107 2006 2669 2677
48. S.M. Fischer, A. Sauaia, and J.S. Kutner Patient navigation: a culturally competent strategy to address disparities in palliative care J Palliat Med 10 2007 1023 1028
49. S.M. Fischer, W. Gozansky, and A. Sauaia A practical tool to identify patients who may benefit from a palliative approach: the CARING criteria J Pain Symptom Manage 31 2005 285 292
50. J. Youngwerth, S.J. Min, B. Statland, R. Allyn, and S. Fischer Caring about prognosis: a validation study of the CARING criteria to identify hospitalized patients at high risk for death at 1 year J Hosp Med 8 2013 696 701
51. R.L. Sudore, C.S. Landefeld, and D.E. Barnes An advance directive redesigned to meet the literacy level of most adults: a randomized trial Patient Educ Couns 69 2007 165 195
52. C.S. Cleeland, and K.M. Ryan Pain assessment: global use of the Brief Pain Inventory Ann Acad Med Singapore 23 1994 129 138
53. B.A. Guadagnolo, D. Dohan, and P. Raich Metrics for evaluating patient navigation during cancer diagnosis and treatment: crafting a policy-relevant research agenda for patient navigation in cancer care Cancer 117 2011 3565 3574
54. D. Lupu Estimate of current hospice and palliative medicine physician workforce shortage J Pain Symptom Manage 40 2010 899 911
55. T.E. Quill, and A.P. Abernethy Generalist plus specialist palliative care - creating a more sustainable model N Engl J Med 368 2013 1173 1175