The need for palliative care in ireland: A population-based estimate of palliative care using routine mortality data, inclusive of nonmalignant conditions

Journal of Pain and Symptom Management

Volumn 49, Issue 4, 2015, Pages 726-733.e1

  Kane, Pauline M ^a   Daveson, Barbara A ^a   Ryan, Karen ^b   McQuillan, Regina ^c   Higginson, Irene J ^a   Murtagh, Fliss E M ^a  

^a KING'S COLLEGE LONDON   (United Kingdom)

^b MATER MISERICORDIAE UNIVERSITY HOSPITAL   (Ireland)

^c BEAUMONT HOSPITAL   (Ireland)

Author keywords

chronic illness; end of life care; Ireland; needs assessment; Palliative care; public health; terminal care

Indexed keywords

ARTICLE; CANCER MORTALITY; CAUSE OF DEATH; CEREBROVASCULAR DISEASE; CERTIFICATION; CLINICAL ASSESSMENT; DEATH; DEGENERATIVE DISEASE; DEMENTIA; HEALTH CARE NEED; HEALTH CARE PLANNING; HEALTH SERVICE; HEART DISEASE; HUMAN; ICD-10; IRELAND; KIDNEY DISEASE; LIVER DISEASE; MALIGNANT NEOPLASTIC DISEASE; MEDICAL SPECIALIST; PALLIATIVE THERAPY; POPULATION; QUALITY OF LIFE; RESPIRATORY TRACT DISEASE; CHRONIC DISEASE; EPIDEMIOLOGY; MORTALITY; STATISTICS AND NUMERICAL DATA;

CHRONIC DISEASE; HUMANS; IRELAND; PALLIATIVE CARE;

EID: 84925937060     PISSN: 08853924     EISSN: 18736513     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2014.09.011     Document Type: Article

References (49)

1. R. Cullen Ireland's VitalSigns 2013 2013 The Community Foundation for Ireland Dublin Available at: www.communityfoundation.ie Accessed March 3, 2104
2. Department of Health Health in Ireland: key trends 2013 Available at: www.doh.ie Accessed January 30, 2014
3. J.M. Wiener, and J. Tilly Population ageing in the United States of America: implications for public programmes Int J Epidemiol 31 2002 776 781
4. A. McNamara, C. Normand, and B. Whelan Patterns and determinants of health care utilisation in Ireland 2013 The Irish Longitudinal Study on Ageing Dublin Available at: http://tilda.tcd.ie/assets/pdf/Tilda%20Health%20Care%20Utilisation%20Report.pdf Accessed January 2, 2014
5. P. Connell, and D. Pringle Population ageing in Ireland: projections 2002-2021: report no. 81 2004 National Council on Ageing and Older People Dublin Available at: http://www.nuim.ie/staff/dpringle/ncaop-report.pdf Accessed January 27, 2014
6. B. Gomes, and I.J. Higginson Factors influencing death at home in terminally ill patients with cancer: systematic review BMJ 332 2006 515 521
7. K. McKeown, T. Haase, and S. Twomey The culture of end-of-life care in hospitals in Ireland: National Audit Report 4 2010 Irish Hospice Foundation Dublin Available at: www.hospicefriendlyhospices.net Accessed September 10, 2014
8. E.F. Hatziandreu, F. Archontakis, and A. Daly The potential cost savings of greater use of home- and hospice-based end of life care in England 2008 Rand Corporation Santa Monica, CA Available at: http://oai.dtic.mil/oai/oai?verb=getRecord&metadataPrefix=html&identifier=ADA496672 Accessed January 27, 2014
9. B. Gomes, N. Calanzani, V. Curiale, P. McCrone, and I.J. Higginson Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers Cochrane Database Syst Rev 2013 CD007760
10. J.S. Temel, J.A. Greer, and A. Muzikansky Early palliative care for patients with metastatic non-small-cell lung cancer N Engl J Med 363 2010 733 742
11. C. Zimmermann, R. Riechelmann, M. Krzyzanowska, G. Rodin, and I. Tannock Effectiveness of specialized palliative care - a systematic review JAMA 299 2008 1698 1709
12. K. Moens, I.J. Higginson, R. Harding EUROIMPACT Are there differences in the prevalence of palliative care-related problems in people living with advanced cancer and eight non-cancer conditions? A systematic review J Pain Symptom Manage 48 2014 660 677
13. J.P. Solano, B. Gomes, and I.J. Higginson A comparison of symptom prevalence in far advanced cancer, AIDS, heart disease, chronic obstructive pulmonary disease and renal disease J Pain Symptom Manage 31 2006 58 69
14. J. Addington-Hall, and I.J. Higginson Palliative care for non-cancer patients 2001 Oxford University Press Oxford
15. M. Lucey Quality and assessment in palliative care - current concepts and recent developments Eur J Palliat Care 19 2012 288 291
16. E. Murray How advocates use health economic data and projections: the Irish experience J Pain Symptom Manage 38 2009 97 104
17. Health Services Executive Glossary of terms: palliative care programme, clinical strategy and programmes directorate 2012 The Palliative Care Programme, HSE Clinical Strategy and Programmes Directorate Dublin
18. National Advisory Committee on Palliative Care. Report of the National Advisory Committee on Palliative Care. Dublin: Department of Health and Children, 2001:152.
19. Irish Hospice Foundation Access to specialist palliative care services and place of death in Ireland: what the data tells us: IHF Perspectives Series: No. 2 2013 Available at: http://hospicefoundation.ie/wp-content/uploads/2013/06/Access-to-specialist-palliative-care-services-place-of-death-in-Ireland.pdf Accessed February 10, 2014
20. M. McCarron, A. Higgins, and P. Larkin Evaluation of the programme to support palliative and hospice care in the Republic of Ireland: final report 2012 Trinity College Dublin Dublin
21. National Health Service Management Executive Assessing health care needs: a DHA discussion paper 1991 Department of Health London
22. A. Cohen, and N. Eastman Needs assessment for mentally disordered offenders: measurement of 'ability to benefit' and outcome Br J Psychiatry 177 2000 493 498
23. L.K. Rosenwax, B. McNamara, A.M. Blackmore, and C.D.J. Holman Estimating the size of a potential palliative care population Palliat Med 19 2005 556 562
24. F.E. Murtagh, C. Bausewein, and J. Verne How many people need palliative care? A study developing and comparing methods for population-based estimates Palliat Med 28 2014 49 58
25. I.J. Higginson Health care needs assessment: palliative and terminal care 1997 Radcliffe Medical Press Oxford
26. X. Gomez-Batiste, M. Martinez-Munoz, and C. Bloy Identifying needs and improving palliative care of chronically ill patients: a community-orientated, population-based, public-health approach Curr Opin Support Palliat Care 6 2012 371 378
27. World Health Organization International statistical classification of diseases and related health problems 10th revision 2010 WHO Geneva
28. X. Gomez-Batiste, M. Martinez-Munoz, and C. Blay Prevalence and characteristics of patients with advanced chronic conditions in need of palliative care in the general population: a cross-sectional study Palliat Med 28 2014 302 311
29. Worldwide Palliative Care Alliance. WHO global atlas of palliative care at the end of life. Available at: http://www.thewhpca.org/resources/global-atlas-on-end-of-life-care. Accessed March 6, 2014.
30. Central Statistics Office. 2007. Available at: http://www.cso.ie/en/index.html. Accessed January 4, 2014.
31. International Agency for Research on Cancer. Globocan 2012: estimated cancer incidence, mortality and prevalence worldwide in 2012. Available at: http://globocan.iarc.fr/Pages/fact-sheets-cancer.aspx. Accessed August 24, 2014.
32. K.E. Sleeman, Y.K. Ho, and J. Verne Place of death, and its relation with underlying cause of death, in Parkinson's disease, motor neurone disease, and multiple sclerosis: a population-based study Palliat Med 27 2013 840 846
33. Irish Hospice Foundation A baseline study on the provision of hospice/specialist palliative care in Ireland 2006 Irish Hospice Foundation Dublin
34. National Cancer Registry Ireland Cancer projections for Ireland 2015-2040 2014 National Cancer Registry Ireland Cork
35. S.A. Murray, M. Kendall, K. Boyd, and A. Sheikh Illness trajectories and palliative care BMJ 330 2005 1007 1011
36. T.M. Gill, E.A. Gahbauer, L. Han, and H.G. Allore Trajectories of disability in the last year of life N Engl J Med 362 2010 1173 1180
37. House of the Oireachtas Health identifiers bill 2013 Available at: http://www.oireachtas.ie/viewdoc.asp?fn=/documents/bills28/bills/2013/13013/document1.htm Accessed January 4, 2014
38. Health Information and Quality Authority. International review of unique health identifiers for individuals. Available at: www.hiqa.ie/system/files/International%20Review%20of%20Unique%20Health%20Identifiers%20for%20Individuals.pdf patient unique identifier confidentiality. Accessed August 24, 2014.
39. National Health Service. Connecting for health. Personal demographics service - access and security. Available at: http://www.connectingforhealth.nhs.uk/systemsandservices/demographics/pds/ig. Accessed August 24, 2014.
40. B.A. Daveson, R. Harding, and N. Derycke The PRISMA Symposium 4: how should Europe progress end-of-life and palliative clinical care research? Recommendations from the proceedings J Pain Symptom Manage 42 2011 511 516
41. K. Eagar, P. Watters, D.C. Currow, S.M. Aoun, and P. Yates The Australian Palliative Care Outcomes Collaboration (PCOC) - measuring the quality and outcomes of palliative care on a routine basis Aust Health Rev 34 2010 186 192
42. R.R. Zilkens, K. Spilsbury, D.G. Bruce, and J.B. Semmens Linkage of hospital and death records increased identification of dementia cases and death rate estimates Neuroepidemiology 32 2009 61 69
43. S.L. Mitchell, J.M. Teno, and D.K. Kiely The clinical course of advanced dementia N Engl J Med 361 2009 1529 1538
44. G.A. Sachs, J.W. Shega, and D. Cox-Hayley Barriers to excellent end-of-life care for patients with dementia J Gen Intern Med 19 2004 1057 1063
45. Irish Hospice Foundation, The Alzheimer Society of Ireland Building consensus for the future: report of the feasibility study on palliative care for people with dementia 2012 Available at: http://hospicefoundation.ie/wp-content/uploads/2012/04/Building-consensus-for-the-future-report-of-the-feasibility-study-on-palliative-care-for-people-with-dementia.pdf Accessed October 22, 2013
46. Health Service Executive and Irish Hospice Foundation Palliative care for all: integrating palliative care into disease management frameworks 2008 Available at: http://hospicefoundation.ie/wp-content/uploads/2012/07/Palliative-Care-For-All-report.pdf/ Accessed January 20, 2014
47. T.Z. Saleem, I.J. Higginson, and K.R. Chaudhuri Symptom prevalence, severity and palliative care needs assessment using the Palliative Outcome Scale: a cross-sectional study of patients with Parkinson's disease and related neurological conditions Palliat Med 27 2013 722 731
48. I.J. Higginson, W. Gao, and T.Z. Saleem Symptoms and quality of life in late stage Parkinson syndromes: a longitudinal community study of predictive factors PLoS One 7 2012 e46327
49. C. Shipman, M. Gysels, and P. White Improving generalist end of life care: national consultation with practitioners, commissioners, academics, and service user groups BMJ 337 2008 a1720