Improving national hospice/palliative care service symptom outcomes systematically through point-of-care data collection, structured feedback and benchmarking

Supportive Care in Cancer

Volumn 23, Issue 2, 2015, Pages 307-315

  Currow, David C ^a   Allingham, Samuel ^b   Yates, Patsy ^c   Johnson, Claire ^d   Clark, Katherine ^e   Eagar, Kathy ^b  

^a FLINDERS UNIVERSITY   (Australia)

^b UNIVERSITY OF WOLLONGONG   (Australia)

^c QUEENSLAND UNIVERSITY OF TECHNOLOGY   (Australia)

^d UNIVERSITY OF WESTERN AUSTRALIA   (Australia)

^e Calvary Mater Health   (Australia)

Author keywords

Clinical benchmarking; Palliative care; Performance measurement; Symptom control

Indexed keywords

ADOLESCENT; ADULT; AGED; AUSTRALIA; BENCHMARKING; CHILD; COOPERATION; FEEDBACK SYSTEM; FEMALE; HOSPICE; HOSPICE CARE; HUMAN; INFANT; INFORMATION PROCESSING; MALE; MIDDLE AGED; NEOPLASMS; NEWBORN; OUTCOME ASSESSMENT; PALLIATIVE THERAPY; PRESCHOOL CHILD; PSYCHOLOGY; STATISTICS AND NUMERICAL DATA; VERY ELDERLY; YOUNG ADULT;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; AUSTRALIA; BENCHMARKING; CHILD; CHILD, PRESCHOOL; COOPERATIVE BEHAVIOR; DATA COLLECTION; FEEDBACK; FEMALE; HOSPICE CARE; HOSPICES; HUMANS; INFANT; INFANT, NEWBORN; MALE; MIDDLE AGED; NEOPLASMS; PALLIATIVE CARE; PATIENT OUTCOME ASSESSMENT; YOUNG ADULT;

EID: 84925866366     PISSN: 09414355     EISSN: 14337339     Source Type: Journal    
DOI: 10.1007/s00520-014-2351-8     Document Type: Article

References (21)

1. Keay TJ, Fredman L, Taler GA, Datta S, Leverson SA (1994) Indicators of quality medical care for the terminally ill in nursing homes. J Am Geriatr Soc 42(8):853–860
2. Hales S, Zimmermann C, Rodin G (2008) The quality of dying and death. Arch Intern Med 168(9):912–918
3. Patrick DL, Curtis JR, Engelberg RA, Nielsen E, McCown E (2003) Measuring and improving the quality of dying and death. Ann Intern Med 139(5 Pt 2):410–415
4. Currow DC, Abernethy AP, Fazekas BS (2004) Specialist palliative care needs of whole populations: a feasibility study using a novel approach. Palliat Med 18(3):239–247
5. Waller A, Girgis A, Currow D, Lecathelinais C, Palliative Care Research Program Team (2008) Development of the palliative care needs assessment tool (PC-NAT) for use by multi-disciplinary health professionals. Palliat Med 22(8):956–964
6. Currow DC, Eagar K, Aoun S, Fildes D, Yates O et al (2008) Is it feasible and desirable to collect voluntarily quality and outcome data nationally in palliative oncology care? J Clin Oncol 26(23):3853–3859. doi:10.1200/JCO.2008.16.5761
7. Eagar K, Watters P, Currow DC, Aoun SM, Yates P (2010) The Australian Palliative Care Outcomes Collaboration (PCOC)—measuring the quality and outcomes of palliative care on a routine basis. Aust Health Rev 34(2):186–192. doi:10.1071/AH08718
8. Currow DC, Tieman JJ, Greene A, Zafar SY, Wheeler JL et al (2012) Refining a checklist for reporting patient populations and service characteristics in hospice and palliative care research. J Pain Symptom Manag 43(5):902–910. doi:10.1016/j.jpainsymman.2011.05.015
9. Eagar K, Gordon R, Green J, Smith M (2004a) An Australian casemix classification for palliative care: lessons and policy implications of a national study. Palliat Med 18(3):227–233
10. Eagar K, Green J, Gordon R (2004b) An Australian casemix classification for palliative care: technical development and results. Palliat Med 18(3):217–226
11. Hanson LC, Scheunemann LP, Zimmerman S, Rokoske FS, Schenck AP (2010) The PEACE project review of clinical instruments for hospice and palliative care. J Palliat Med 13(10):1253–1260
12. Pasman HRW, Brandt HE, Deliens L, Francke AL (2009) Quality indicators for palliative care: a systematic review. J Pain Symptom Manag 38(1):145–156
13. Aoun SM, Monterosso L, Kristjanson LJ, McConigley R (2011) Measuring symptom distress in palliative care: psychometric properties of the Symptom Assessment Scale (SAS). 14(3): 315-21, doi: 10.1089/jpm.2010.0412.
14. To THM, Ong WY, Rawlings D, Greene A, Currow DC (2012) The disparity between patient and nurse symptom rating in a hospice population. J Palliat Med 15(5):542–547
15. Trauer T (2010) Assessment of change in outcome management. In: Trauer T (ed) Outcome measurement in mental health. Cambridge University Press, Cambridge, pp 206–218
16. Barbera L, Seow H, Howell D, Sutradhar R, Earle C, et al. (2010) Symptom burden and performance status in a population-based cohort of ambulatory cancer patients. 116(24): 5767-5776, doi: 10.1002/cncr.25681
17. Kamal AH, Bull J, Stinson C, Blue D, Smith R et al (2011) Collecting data on quality is feasible in community-based palliative care. J Pain Symptom Manag 42(5):663–667. doi:10.1016/j.jpainsymman.2011.07.003
18. Casarett DJ, Harrold J, Oldanie B, Prince-Paul M, Teno J (2012) Advancing thescience of hospice care: coalition of hospices organized to investigate comparative effectiveness. Curr Opin Support Palliat Care 6(4):459–464
19. Lunney JR, Lynn J, Foley DJ, Lipson S, Guralnik JM (2003) Patterns of functional decline at the end of life. JAMA 289(18):2387–2392
20. Currow DC, Agar M, Sanderson C, Abernethy A (2008) Populations who die without specialist palliative care: does lower uptake equate with unmet need? Palliat Med 22(1):43–50
21. Currow DC, Wheeler JL, Abernethy AP (2011) International perspective: outcomes of palliative oncology. Semin Oncol 38(3):343–350