Why visually impaired older adults often do not receive mental health services: the patient’s perspective

Quality of Life Research

Volumn 24, Issue 4, 2015, Pages 969-978

  van der Aa, Hilde P A ^a   Hoeben, Mirke ^a   Rainey, Linda ^a   van Rens, Ger H M B ^a,b   Vreeken, Hilde L ^a   van Nispen, Ruth M A ^a  

^a VU UNIVERSITY MEDICAL CENTER   (Netherlands)

^b ELKERLIEK HOSPITAL   (Netherlands)

Author keywords

Anxiety; Depression; Low vision; Mental health services; Perceived needs

Indexed keywords

ADULT; AGED; ANDERSEN BEHAVIORAL MODEL; ANXIETY; ANXIETY DISORDER; ARTICLE; ASSESSMENT OF HUMANS; CROSS-SECTIONAL STUDY; DISEASE SEVERITY; DSM-IV; FEMALE; HEALTH STATUS; HUMAN; LOW VISION; MAJOR CLINICAL STUDY; MAJOR DEPRESSION; MALE; MEDICAL HISTORY; MENTAL HEALTH SERVICE; MOOD DISORDER; OUTPATIENT CARE; PERCEIVED NEED FOR CARE QUESTIONNAIRE; PRIORITY JOURNAL; REHABILITATION CENTER; VISUAL IMPAIRMENT; ANXIETY DISORDERS; COMORBIDITY; DEPRESSIVE DISORDER; DIAGNOSTIC AND STATISTICAL MANUAL OF MENTAL DISORDERS; HEALTH CARE DELIVERY; HEALTH SERVICE; MENTAL DISORDERS; MIDDLE AGED; QUALITY OF LIFE; QUESTIONNAIRE; STATISTICS AND NUMERICAL DATA; UTILIZATION; VERY ELDERLY; VISION DISORDERS;

AGED; AGED, 80 AND OVER; ANXIETY DISORDERS; COMORBIDITY; CROSS-SECTIONAL STUDIES; DEPRESSIVE DISORDER; DIAGNOSTIC AND STATISTICAL MANUAL OF MENTAL DISORDERS; FEMALE; HEALTH SERVICES ACCESSIBILITY; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; MALE; MENTAL DISORDERS; MENTAL HEALTH SERVICES; MIDDLE AGED; QUALITY OF LIFE; QUESTIONNAIRES; SURVEYS AND QUESTIONNAIRES; VISION DISORDERS;

EID: 84925501488     PISSN: 09629343     EISSN: 15732649     Source Type: Journal    
DOI: 10.1007/s11136-014-0835-0     Document Type: Article

References (60)

1. Mariotto, S. P. (2012). Global data on visual impairments 2010. Resource document. World Health Organisation. Accessed August 29, 2014 from http://www.who.int/blindness/GLOBALDATAFINALforweb.pdf.
2. Brody, B. L., Gamst, A. C., Williams, R. A., Smith, A. R., Lau, P. W., Dolnak, D., et al. (2001). Depression, visual acuity, comorbidity, and disability associated with age-related macular degeneration. Ophthalmology,108(10), 1893–1900.
3. Bookwala, J., & Lawson, B. (2011). Poor vision, functioning, and depressive symptoms: A test of the activity restriction model. Gerontologist,51(6), 798–808.
4. Hayman, K. J., Kerse, N. M., La Grow, S. J., Wouldes, T., Robertson, M. C., & Campbell, A. J. (2007). Depression in older people: Visual impairment and subjective ratings of health. Optometry and Vision Science,84(11), 1024–1030.
5. Kempen, G. I., Ballemans, J., Ranchor, A. V., van Rens, G. H., & Zijlstra, G. A. (2012). The impact of low vision on activities of daily living, symptoms of depression, feelings of anxiety and social support in community-living older adults seeking vision rehabilitation services. Quality of Life Research,21(8), 1405–1411.
6. Huang, C. Q., Dong, B. R., Lu, Z. C., Yue, J. R., & Liu, Q. X. (2010). Chronic diseases and risk for depression in old age: A meta-analysis of published literature. Ageing Research Reviews,9(2), 131–141.
7. Evans, J. R., Fletcher, A. E., & Wormald, R. P. L. (2007). Depression and anxiety in visually impaired older people. Ophthalmology,114(2), 283–288.
8. Casten, R. J., Rovner, B. W., & Tasman, W. (2004). Age-related macular degeneration and depression: A review of recent research. Current Opinion in Ophthalmology,15(3), 181–183.
9. Casten, R. J., & Rovner, B. W. (2013). Update on depression and age-related macular degeneration. Current Opinion in Ophthalmology,24(3), 239–243.
10. Beekman, A. T., Copeland, J. R., & Prince, M. J. (1999). Review of community prevalence of depression in later life. British Journal of Psychiatry,174, 307–311.
11. Geiselmann, B., Linden, M., & Helmchen, H. (2001). Psychiatrists’ diagnoses of subthreshold depression in old age: Frequency and correlates. Psychological Medicine,31(1), 51–63.
12. Bryant, C., Jackson, H., & Ames, D. (2008). The prevalence of anxiety in older adults: Methodological issues and a review of the literature. Journal of Affective Disorders,109(3), 233–250.
13. Hermens, M. L., van Hout, H. P., Terluin, B., van der Windt, D. A., Beekman, A. T., van Dyck, R., & de Haan, M. (2004). The prognosis of minor depression in the general population: A systematic review. General Hospital Psychiatry,26(6), 453–462.
14. Licht-Strunk, E., van der Windt, D. A. W. M., van Marwijk, H. W. J., de Haan, M., & Beekman, A. T. F. (2007). The prognosis of depression in older patients in general practice and the community: A systematic review. Family Practice,24(2), 168–180.
15. Karlsson, J. (1998). Self-reports of psychological distress in connection with various degrees of visual impairment. Journal of Visual Impairment & Blindness,92(7), 483–490.
16. King, E., Sarah, E., & Peveler, R. (2006). Psychosocial needs of elderly visually impaired patients: Pilot study of patients’ perspectives. Primary Care Mental Health,4(3), 185–197.
17. Fitzgerald, R. G., Ebert, J. N., & Chambers, M. (1987). Reactions to blindness: A four-year follow-up study. Perceptual and Motor Skills,64(2), 363–378.
18. Horowitz, A., Reinhardt, J. P., & Kennedy, G. J. (2005). Major and subthreshold depression among older adults seeking vision rehabilitation services. The American Journal of Geriatric Psychiatry,13(3), 180–187.
19. Casten, R., & Rovner, B. (2008). Depression in age-related macular degeneration. Journal of Visual Impairment & Blindness,102(10), 591–599.
20. Jones, G. C., Rovner, B. W., Crews, J. E., & Danielson, M. L. (2009). Effects of depressive symptoms on health behavior practices among older adults with vision loss. Rehabilitation Psychology,54(2), 164–172.
21. Augustin, A., Sahel, J. A., Bandello, F., Dardennes, R., Maurel, F., Negrini, C., et al. (2007). Anxiety and depression prevalence rates in age-related macular degeneration. Investigative Ophthalmology & Visual Science,48(4), 1498–1503.
22. Horowitz, A., Reinhardt, J. P., Boerner, K., & Travis, L. A. (2003). The influence of health, social support quality and rehabilitation on depression among disabled elders. Aging & Mental Health,7(5), 342–350.
23. Horowitz, A., & Reinhardt, J. P. (2006). Adequacy of the mental health system in meeting the needs of adults who are visually impaired. Journal of Visual Impairment & Blindness,100, 871–874.
24. Rees, G., Fenwick, E. K., Keeffe, J. E., Mellor, D., & Lamoureux, E. L. (2009). Detection of depression in patients with low vision. Optometry and Vision Science,86(12), 1328–1336.
25. Fenwick, E. K., Lamoureux, E. L., Keeffe, J. E., Mellor, D., & Rees, G. (2009). Detection and management of depression in patients with vision impairment. Optometry and Vision Science,86(8), 948–954.
26. Prins, M. A., Verhaak, P. F. M., Bensing, J. M., & van der Meer, K. (2008). Health beliefs and perceived need for mental health care of anxiety and depression: The patients’ perspective explored. Clinical Psychology Review,28(6), 1038–1058.
27. Babitsch, B., Gohl, D., & Von Lengerke, T. (2012). Re-revisiting Andersen’s Behavioral Model of Health Services Use: A systematic review of studies from 1998 to 2011. GMS Psycho-Social-Medicine, 9, Doc11.
28. Garrido, M. M., Kane, R. L., Kaas, M., & Kane, R. A. (2009). Perceived need for mental health care among community-dwelling older adults. Journals of Gerontology Series B: Psychological Sciences and Social Sciences,64(6), 704–712.
29. Mojtabai, R., Olfson, M., & Mechanic, D. (2002). Perceived need and help-seeking in adults with mood, anxiety, or substance use disorders. Archives of General Psychiatry,59(1), 77–84.
30. Seekles, W. M., Cuijpers, P., van de Ven, P., Penninx, B. W., Verhaak, P. F., Beekman, A. T., et al. (2012). Personality and perceived need for mental health care among primary care patients. Journal of Affective Disorders,136(3), 666–674.
31. van Beljouw, I., Verhaak, P., Prins, M., Cuijpers, P., Penninx, B., & Bensing, J. (2010). Reasons and determinants for not receiving treatment for common mental disorders. Psychiatric Services (Washington, DC),61(3), 250–257.
32. Sturrock, B. A., Xie, J., Holloway, E. E., Lamoureux, E. L., Keeffe, J. E., Fenwick, E. K., & Rees, G. (2014). The prevalence and determinants of desire for and use of psychosocial support in patients with low vision. Asia-Pacific Journal of Ophthalmology,. doi:10.1097/APO.0000000000000012.
33. van der Aa, H. P., van Rens, G. H., Comijs, H. C., Bosmans, J. E., Margrain, T. H., & van Nispen, R. M. (2013). Stepped-care to prevent depression and anxiety in visually impaired older adults-design of a randomised controlled trial. BMC Psychiatry,13, 209.
34. Vreeken, H., van Rens, G., Limburg, H., & van Nispen, R. (2011). Definitions, epidemiology and organisation of care for the blind and visually impaired in the Netherlands. In G. van Rens, H. Vreeken & R. van Nispen (Eds.), Guideline vision disorders: Rehabilitation and referral (pp. 15–30). Resource document. http://www.rep-online.nl/uploads/hC/sf/hCsfyQHBvekdnF3fp-z2xw/Richtlijn-visusstoornissen-revalidatie-en-verwijzing.pdf. Accessed 12 Nov 2014.
35. Callahan, C. M., Unverzagt, F. W., Hui, S. L., Perkins, A. J., & Hendrie, H. C. (2002). Six-item screener to identify cognitive impairment among potential subjects for clinical research. Medical Care,40(9), 771–781.
36. Meadows, G., Harvey, C., Fossey, E., & Burgess, P. (2000). Assessing perceived need for mental health care in a community survey: Development of the Perceived Need for Care Questionnaire (PNCQ). Social Psychiatry and Psychiatric Epidemiology,35(9), 427–435.
37. Penninx, B. W. J. H., Beekman, A. T. F., Smit, J. H., Zitman, F. G., Nolen, W. A., & Spinhoven, P. (2008). The Netherlands Study of Depression and Anxiety (NESDA): Rationale, objectives and methods. International Journal of Methods in Psychiatric Research,17(3), 121–140.
38. Haringsma, R., Engels, G. I., Beekman, A. T., & Spinhoven, P. (2004). The criterion validity of the Center for Epidemiological Studies Depression Scale (CES-D) in a sample of self-referred elders with depressive symptomatology. International Journal of Geriatric Psychiatry,19(6), 558–563.
39. Beekman, A. T., Deeg, D. J., van Limbeek, J., Braam, A. W., De Vries, M. Z., & van Tilburg, W. (1997). Criterion validity of the Center for Epidemiologic Studies Depression scale (CES-D): Results from a community-based sample of older subjects in The Netherlands. Psychological Medicine,27(1), 231–235.
40. Breslau, N. (1985). Depressive symptoms, major depression, and generalized anxiety: A comparison of self-reports on CES-D and results from diagnostic interviews. Psychiatry Research,15(3), 219–229.
41. Olssøn, I., Mykletun, A., & Dahl, A. A. (2005). The Hospital Anxiety and Depression Rating Scale: A cross-sectional study of psychometrics and case finding abilities in general practice. BMC Psychiatry,14(5), 46.
42. Bjelland, I., Dahl, A. A., Haug, T. T., & Neckelmann, D. (2002). The validity of the Hospital Anxiety and Depression Scale: An updated literature review. Journal of Psychosomatic Research,52(2), 69–77.
43. Mykletun, A., Stordal, E., & Dahl, A. A. (2001). Hospital Anxiety and Depression (HAD) scale: Factor structure, item analyses and internal consistency in a large population. The British Journal of Psychiatry,179, 540–544.
44. van Vliet, I., & de Beurs, E. (2007). The MINI-International Neuropsychiatric Interview: A brief structured diagnostic psychiatric interview for DSM-IV en ICD-10 psychiatric disorders. Tijdschrift voor psychiatrie,49(6), 393–397.
45. Sheehan, D. V., Lecrubier, Y., Sheehan, K. H., Amorim, P., Janavs, J., Weiller, E., et al. (1998). The Mini-International Neuropsychiatric Interview (MINI): The development and validation of a structured diagnostic psychiatric interview for DSM-IV and ICD-10. Journal of Clinical Psychiatry,59(Suppl 20), 22–33.
46. Lamers, L. M., Stalmeier, P. F., McDonnell, J., Krabbe, P. F., & van Busschbach, J. J. (2005). Measuring the quality of life in economic evaluations: The Dutch EQ-5D tariff. Nederlands Tijdschrift voor Geneeskunde,149(28), 1574–1578.
47. Meadows, G., Burgess, P., Bobevski, I., Fossey, E., Harvey, C., & Liaw, S. T. (2002). Perceived need for mental health care: Influences of diagnosis, demography and disability. Psychological Medicine,32(2), 299–309.
48. Klap, R., Unroe, K. T., & Unutzer, J. (2003). Caring for mental illness in the United States: A focus on older adults. The American Journal of Geriatric Psychiatry,11(5), 517–524.
49. Mackenzie, C. S., Pagura, J., & Sareen, J. (2010). Correlates of perceived need for and use of mental health services by older adults in the collaborative psychiatric epidemiology surveys. The American Journal of Geriatric psychiatry,18(12), 1103–1115.
50. Wetherell, J. L., Kaplan, R. M., Kallenberg, G., Dresselhaus, T. R., Sieber, W. J., & Lang, A. J. (2004). Mental health treatment preferences of older and younger primary care patients. International Journal of Psychiatry in Medicine,34(3), 219–233.
51. Wang, S., & Boerner, K. (2008). Staying connected: Re-establishing social relationships following vision loss. Clinical Rehabilitation,22(9), 816–824.
52. Boerner, K., & Wang, S. (2010). How it matters when it happens: Life changes related to functional loss in younger and older adults. International Journal of Aging and Human Development,70(2), 163–179.
53. Kroenke, K., Spitzer, R. L., Williams, J. B., & Löwe, B. (2009). An ultra-brief screening scale for anxiety and depression: The PHQ-4. Psychosomatics,50(6), 613–621.
54. Holloway, E. E., Sturrock, B. A., Lamoureux, E. L., Keeffe, J. E., & Rees, G. (2014). Depression screening among older adults attending low-vision rehabilitation and eye-care services: Characteristics of those who screen positive and client acceptability of screening. Australasian Journal on Ageing,. doi:10.1111/ajag.12159.
55. Samoocha, D., Bruinvels, D. J., Elbers, N. A., Anema, J. R., & van der Beek, A. J. (2010). Effectiveness of web-based interventions on patient empowerment: A systematic review and meta-analysis. Journal of Medical Internet Research,12(2), e23.
56. Bower, P., Richards, D., & Lovell, K. (2001). The clinical and cost-effectiveness of self-help treatments for anxiety and depressive disorders in primary care: A systematic review. British Journal of General Practice,51(471), 838–845.
57. Spek, V., Cuijpers, P., Nyklicek, I., Riper, H., Keyzer, J., & Pop, V. (2007). Internet-based cognitive behaviour therapy for symptoms of depression and anxiety: A meta-analysis. Psychological Medicine,37(3), 319–328.
58. Brody, B. L., Roch-Levecq, A. C., Kaplan, R. M., Moutier, C. Y., & Brown, S. I. (2006). Age-related macular degeneration: Self-management and reduction of depressive symptoms in a randomized, controlled study. Journal of the American Geriatrics Society,54(10), 1557–1562.
59. Girdler, S. J., Boldy, D. P., Dhaliwal, S. S., Crowley, M., & Packer, T. L. (2010). Vision self-management for older adults: A randomised controlled trial. British Journal of Ophthalmology,94(2), 223–228.
60. Rovner, B. W., & Casten, R. J. (2008). Preventing late-life depression in age-related macular degeneration. The American Journal of Geriatric Psychiatry,16(6), 454–459.