Environmental factors item development for persons with stroke, traumatic brain injury, and spinal cord injury

Archives of Physical Medicine and Rehabilitation

Volumn 96, Issue 4, 2015, Pages 589-595

  Heinemann, Allen W ^a,b   Magasi, Susan ^c   Hammel, Joy ^c   Carlozzi, Noelle E ^d   Garcia, Sofia F ^b   Hahn, Elizabeth A ^b   Lai, Jin Shei ^b   Tulsky, David ^e,f   Gray, David B ^g   Hollingsworth, Holly ^g   Jerousek, Sara ^a  

^a REHABILITATION INSTITUTE OF CHICAGO   (United States)

^b NORTHWESTERN UNIVERSITY   (United States)

^c UNIVERSITY OF ILLINOIS AT CHICAGO   (United States)

^d UNIVERSITY OF MICHIGAN MEDICAL SCHOOL   (United States)

^e NEW YORK UNIVERSITY MEDICAL CENTER   (United States)

^f KESSLER FOUNDATION   (United States)

^g WASHINGTON UNIVERSITY   (United States)

Author keywords

Environment; Qualitative research; Questionnaires; Rehabilitation

Indexed keywords

ACCESS TO INFORMATION; ARTICLE; ASSISTIVE TECHNOLOGY; BUILDING; CEREBROVASCULAR ACCIDENT; CLIMATE; COGNITION; COMPREHENSION; CONCEPTUAL FRAMEWORK; DISABILITY; EDUCATION; EMPLOYMENT; ENVIRONMENT; ENVIRONMENTAL FACTOR; FEEDBACK SYSTEM; HEALTH CARE DELIVERY; HEALTH CARE POLICY; HEALTH SERVICE; HOUSING; HUMAN; INDEPENDENT LIVING; INFORMATION TECHNOLOGY; INTERNATIONAL CLASSIFICATION OF FUNCTIONING, DISABILITY AND HEALTH; NATURAL DISASTER; OUTCOME ASSESSMENT; QUALITY OF LIFE; RATING SCALE; SOCIAL ENVIRONMENT; SOCIAL SUPPORT; SOCIAL WORK; SPINAL CORD INJURY; TELEPHONE INTERVIEW; TRAFFIC AND TRANSPORT; TRAUMATIC BRAIN INJURY; WALKING AID; WEATHER; WHEELCHAIR; BRAIN INJURIES; DISABLED PERSON; INFORMATION PROCESSING; POLICY; PSYCHOLOGY; PSYCHOMETRY; QUESTIONNAIRE; REPRODUCIBILITY; SPINAL CORD INJURIES; STROKE;

BRAIN INJURIES; DISABILITY EVALUATION; DISABLED PERSONS; ENVIRONMENT; FOCUS GROUPS; HUMANS; INTERNATIONAL CLASSIFICATION OF FUNCTIONING, DISABILITY AND HEALTH; POLICY; PSYCHOMETRICS; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SOCIAL ENVIRONMENT; SPINAL CORD INJURIES; STROKE;

EID: 84925411077     PISSN: 00039993     EISSN: 1532821X     Source Type: Journal    
DOI: 10.1016/j.apmr.2013.11.024     Document Type: Article

References (30)

1. Resolution adopted by the General Assembly of the United Nations. The Standard Rules on the Equalization of Opportunities for persons with Disabilities. 48th Session, agenda item 109. 1994. Available at: www.un.org/disabilities/default.asp?id=26. Accessed February 26, 2015.
2. National Disability Rights Network. Available at: http://www.ndrn.org/index.php. Accessed April 13, 2013.
3. World Health Organization. International Classification of Functioning, Disability, and Health (ICF) 2001. Geneva: WHO.
4. M.J. Field, and A. Jette The future of disability in America 2007 National Academies Pr Washington (DC)
5. G. Whiteneck, and M.P. Dijkers Difficult to measure constructs: conceptual and methodological issues concerning participation and environmental factors Arch Phys Med Rehabil 90 11 Suppl 2009 S22 S35
6. J. Alvarelhão, A. Silva, and A. Martins Comparing the content of instruments assessing environmental factors using the International Classification of Functioning, Disability and Health J Rehabil Med 44 2012 1 6
7. E.M. Badley Enhancing the conceptual clarity of the activity and participation components of the International Classification of Functioning, Disability, and Health Soc Sci Med 66 2008 2335 2345
8. T. Mallinson, and J. Hammel Measurement of participation: intersecting person, task, and environment Arch Phys Med Rehabil 91 9 Suppl 2010 S29 S33
9. L. Noreau, and K. Boschen Intersection of participation and environmental factors: a complex interactive process Arch Phys Med Rehabil 91 9 Suppl 2010 S44 S53
10. H. Hollingsworth, and D.B. Gray Structural equation modeling of the relationships between participation in leisure activities and community environments by people with mobility impairments Arch Phys Med Rehabil 91 2010 1174 1181
11. Magasi S, Wong A, Wang C, et al. Theoretical foundations for the measurement of enviromental factors and participation among people with disabilities. Arch Phys Med Rehabil 2015;96:569-77.
12. D.A. DeWalt, N. Rothrock, S. Yount, A.A. Stone, and P.C. Group Evaluation of item candidates: the PROMIS qualitative item review Med Care 45 5 Suppl 1 2007 S12 S21
13. Hammel J, Magasi S, Heinemann AW, et al. Environmental barriers and supports to participation: an insider perspective from people with disabilities. Arch Phys Med Rehabil 2015;96:578-88.
14. D.B. Gray, H.H. Hollingsworth, S.L. Stark, and K.A. Morgan Participation survey/mobility: psychometric properties of a measure of participation for people with mobility impairments and limitations Arch Phys Med Rehabil 87 2006 189 197
15. J. Hammel, S. Magasi, A. Heinemann, G. Whiteneck, J. Bogner, and E. Rodriguez What does participation mean? An insider perspective from people with disabilities Disabil Rehabil 30 2008 1445 1460
16. N.E. Carlozzi, D.S. Tulsky, and P.A. Kisala Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury Arch Phys Med Rehabil 92 10 Suppl 2011 S52 S60
17. Heinemann AW, Magasi S, Bode RK, et al. Measuring enfranchisement: importance and control of participation by people with disabilities. Arch Phys Med Rehabil 2013;94:2157-65.
18. D.S. Tulsky, P.A. Kisala, and D. Victorson Developing a contemporary patient-reported outcomes measure for spinal cord injury Arch Phys Med Rehabil 92 10 Suppl 2011 S44 S51
19. A.L. Strauss, and J.M. Corbin Basics of qualitative research: techniques and procedures for developing grounded theory 2nd ed. 1998 Sage Thousand Oaks
20. D. Cella, S.B. Clauser, and K.E. Flynn Standardizing patient-reported outcomes assessment in cancer clinical trials: a PROMIS initiative J Clin Oncol 25 2007 5106 5112
21. S. Magasi, J. Hammel, A.W. Heinemann, G. Whiteneck, and J. Bogner Participation: a comparative analysis of multiple rehabilitation stakeholders' perspectives J Rehabil Med 41 2009 936 944
22. E.A. Hahn, and D. Cella Health outcomes assessment in vulnerable populations: measurement challenges and recommendations Arch Phys Med Rehabil 84 4 Suppl 2 2003 S35 S42
23. A. Stenner, I. Horabin, D. Smith, and M. Smith The Lexile framework 1998 Metametrics Durham
24. National Institutes of Health. PROMIS® Instrument Development and Psychometric Evaluation Scientific Standards. 2012. Available at: http://www.nihpromis.org/Documents/PROMIS-Standards-050212.pdf. Accessed February 11, 2013.
25. D. Rao, S.W. Choi, and D. Victorson Measuring stigma across neurological conditions: the development of the stigma scale for chronic illness (SSCI) Qual Life Res 18 2009 585 595
26. Garcia SF, Hahn EA, Magasi S, et al. Development of self-report measures of social attitudes that act as environmental barriers and facilitators for people with disabilities. Arch Phys Med Rehabil 2015;96:596-603.
27. J.D. Reinhardt, and M.W. Post Measurement and evidence of environmental determinants of participation in spinal cord injury: a systematic review of the literature Top Spinal Cord Inj Rehabil 15 2010 26 48
28. R. Escorpizo, S. Graf, and A. Marti Domain sets and measurement instruments on participation and environmental factors in spinal cord injury research Am J Phys Med Rehabil 90 11 Suppl 2 2011 S66 S78
29. Tulsky DS, Kisala PA, Lai JS, Carlozzi N, Hammel J, Heinemann A. Developing an item bank to measure economic quality of life for individuals with disabilities. Arch Phys Med Rehabil; 2015;96:604-13.
30. B.B. Reeve, R.D. Hays, and J.B. Bjorner Psychometric evaluation and calibration of health-related quality of life item banks: plans for the Patient-Reported Outcomes Measurement Information System (PROMIS) Med Care 45 5 Suppl 1 2007 S22 S31