Quality of life in Alzheimer disease a comparison of patients' and caregivers' points of view

Alzheimer Disease and Associated Disorders

Volumn 29, Issue 1, 2015, Pages 50-54

  Zucchella, Chiara ^a,b   Bartolo, Michelangelo ^c   Bernini, Sara ^a   Picascia, Marta ^a   Sinforiani, Elena ^a  

^a National Institute of Neurology Foundation   (Italy)

^b UNIVERSITY OF PAVIA   (Italy)

^c IRCCS NEUROMED   (Italy)

Author keywords

Alzheimer disease; caregivers; ICF; proxies; quality of life

Indexed keywords

AGED; ALZHEIMER DISEASE; ARTICLE; BEHAVIOR DISORDER; CAREGIVER BURDEN; DAILY LIFE ACTIVITY; DEPENDENT PERSONALITY DISORDER; DEPRESSION; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; MOOD DISORDER; PRIORITY JOURNAL; QUALITY OF LIFE; SELF EVALUATION; CAREGIVER; COMPARATIVE STUDY; MIDDLE AGED; PATIENT SATISFACTION; PSYCHOLOGY; QUESTIONNAIRE; VERY ELDERLY;

ACTIVITIES OF DAILY LIVING; AGED; AGED, 80 AND OVER; ALZHEIMER DISEASE; CAREGIVERS; FEMALE; HUMANS; MALE; MIDDLE AGED; PATIENT SATISFACTION; QUALITY OF LIFE; SURVEYS AND QUESTIONNAIRES;

EID: 84924233597     PISSN: 08930341     EISSN: None     Source Type: Journal    
DOI: 10.1097/WAD.0000000000000050     Document Type: Article

References (39)

1. Whitehouse PJ, Patterson MB, Sami SA. Quality of life in dementia: ten years later. Alzheimer Dis Assoc Disord. 2003;17:199-200.
2. World Health Organization. International Classification of Functioning, Disability and Health (ICF). Geneva, Switzerland: WHO; 2001.
3. Smith SC, Murray J, Banerjee S, et al. What constitutes healthrelated quality of life in dementia? Development of a conceptual framework for people with dementia and their carers. Int J Geriatr Psychiatry. 2005;20:889-895.
4. Shin IS, Carter M, Masterman D, et al. Neuropsychiatric symptoms and quality of life in Alzheimer's disease. Am J Geriatr Psychiatry. 2005;13:469-474.
5. Jonsson L, Andreasen N, Kilander L, et al. Patient-and proxyreported utility in Alzheimer's disease using the EuroQoL. Alzheimer Dis Assoc Disord. 2006;20:49e55.
6. Zhao H, Novella JL, Dramè M, et al. Factors associated with caregivers' underestimation of quality of life in patients with Alzheimer's disease. Dement Geriatr Cogn Disord. 2012; 33:11-17.
7. Nelson LM, Longstreth WTJ, Koepsell TD, et al. Proxy respondents in epidemiologic research. Epidemiol Rev. 1990; 12:71-86.
8. Seckler AB, Meier DE, Mulvihill M, et al. Substituted judgment: how accurate are proxy predictions? Ann Intern Med. 1991;115:92-98.
9. Ready RE, Ott B, Grace J. Patient versus informant perspectives of quality of life in mild cognitive impairment and Alzheimer's disease. Int J Geriatr Psychiatry. 2004;19: 256-265.
10. Vogel A, Mortensen EL, Hasselbalch SG, et al. Patient versus informant reported quality of life in the earliest phases of Alzheimer's disease. Int J Geriatr Psychiatry. 2006;21: 1132-1138.
11. Sneeuw KCA, Sprangers MAG, Aaronson NK. The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease. J Clin Epidemiol. 2002;55:1130-1143.
12. McPhail S, Beller E, Haines T. Two perspectives of proxy reporting of health-related quality of life using the euroqol-5D, an investigation of agreement. Med Care. 2008;46:1140-1148.
13. Arons AM, Krabbe PF, Schö lzel-Dorenbos CJ, et al. Quality of life in dementia: a study on proxy bias. BMC Med Res Methodol. 2013;13:110.
14. Sands LP, Ferreira P, Stewart AL, et al. What explains differences between dementia patients' and their caregivers' ratings of patients' quality of life? Am J Geriat Psychiat. 2004;12:272-280.
15. Logsdon RG, Gibbons LE, McCurry SM, et al. Quality of life in Alzheimer's disease: patient and caregiver reports. J Mental Health Aging. 1999;5:21-32.
16. Mckhann G, Drachman D, FolsteinM, et al. Clinical diagnosis of Alzheimer's disease: report of the NINCDS-ADRDA Work Group under the auspices of Department of Health and Human Services Task Force on Alzheimer's Disease. Neurology. 1984;34:939-944.
17. Martinez-Martin P, Forjaz MJ, Frades-Payo B, et al. Caregiver burden in Parkinson's disease. Mov Disord. 2007;22: 924-931.
18. Folstein MF, Folstein SE, McHugh PR. Mini Mental State. J Psychiatr Res. 1975;12:189-198.
19. Yesavage JA, Brink TL, Rose TL, et al. Development and validation of a geriatric depression screening scale: a preliminary report. J Psychiatr Res. 1982-83;17:37-49.
20. Lawton MP. Scales to measure competence in everyday activities. Psychopharmacol Bull. 1988;24:609-614.
21. Lawton MP, Brody EM. Assessment of older people: selfmaintaining and instrumental activities of daily living. Gerontology. 1969;9:179-186.
22. Cummings JL, Mega M, Gray K, et al. The Neuropsychiatric Inventory: comprehensive assessment of psychopathology in dementia. Neurology. 1994;44:2308-2314.
23. Beck AT, Ward CH, Mendelson M, et al. An Inventory for measuring depression. Arch Gen Psychiatr. 1961;4:561-571.
24. Novak M, Guest C. Application of a multidimensional caregiver burden inventory. Gerontologist. 1989;29:798-803.
25. Hoe J, Katona C, Roch B, et al. Use of the QOL-AD for measuring quality of life in people with severe dementia-the LASER-AD study. Age Aging. 2005;34:130-135.
26. Conde-Sala JL, Garre-Olmo J, Turró-Garriga O, et al. Factors related to perceived quality of life in patients with Alzheimer's disease: the patient's perception compared with that of caregivers. Int J Geriatr Psychiatry. 2009;24:585-594.
27. Gó mez-Gallego M, Gó mez-Amor J, Gó mez-Garc?á J. Determinants of quality of life in Alzheimer's disease: perspective of patients, informal caregivers, and professional caregivers. Int Psychogeriatr. 2012;24:1805-1815.
28. Leó n-Salas B, Olazarán J, Cruz-Orduñ a I, et al. Quality of life (QoL) in community-dwelling and institutionalized Alzheimer's disease (AD) patients. Arch Gerontol Geriatr. 2013; 57:257-262.
29. Matsumoto N, Ikeda M, Fukuhara R, et al. Caregiver burden associated with behavioral and psychological symptoms of dementia in elderly people in the local community. Dement Geriatr Cogn Disord. 2007;23:219-224.
30. Andersen CK, Wittrup-Jensen KU, Lolk A, et al. Ability to perform activities of daily living is the main factor affecting quality of life in patients with dementia. Health Qual Life Outcomes. 2004;2:52.
31. Edelman P, Fulton BR, Kuhn D, et al. A comparison of three methods of measuring dementia-specific quality of life: perspectives of residents, staff, and observers. Gerontologist. 2005;45:27-36.
32. Fuh J, Wang S. Assessing quality of life in Taiwanese patients with Alzheimer's disease. Int J Geriatr Psychiatry. 2006; 21:103-107.
33. Thomas P, Lalloue F, Preux PM, et al. Dementia patients caregivers quality of life: the PIXEL study. Int J Geriatr Psychiatry. 2006;21:50-56.
34. Albrecht GL, Devlieger PJ. The disability paradox: high quality of life against all odds. Soc Sci Med. 1999;48:977-988.
35. Banerjee S, Samsi K, Petrie CD, et al. What do we know about quality of life in dementia? A review of the emerging evidence on the predictive and explanatory value of disease specific measures of health related quality of life in people with dementia. Int J Geriatr Psychiatry. 2009;24:15-24.
36. Bartolo M, De Luca D, Serrao M, et al. Caregiver burden and needs in community neurorehabilitation. J Rehabil Med. 2010;42:818-822.
37. D'Aoust RF, Brewster G, Rowe MA. Depression in informal caregivers of persons with dementia. Int J Older People Nurs. 2014. doi: 10.1111/opn.12043. [Epub ahead of print].
38. Conde-Sala JL, Reñé-Ramrez R, Turró-Garriga O, et al. Factors associated with the variability in caregiver assessments of the capacities of patients with Alzheimer disease. J Geriatr Psychiatry Neurol. 2013;26:86-94.
39. Zucchella C, Bartolo M, Pasotti C, et al. Caregiver burden and coping in early-stage Alzheimer disease. Alzheimer Dis Assoc Disord. 2012;26:55-60.