Experiences of ethical issues when caring for children with cancer

Cancer Nursing

Volumn 38, Issue 2, 2015, Pages 125-132

  Bartholdson, Cecilia ^a   Lützén, Kim ^a   Blomgren, Klas ^a   Pergert, Pernilla ^a  

^a KAROLINSKA UNIVERSITY HOSPITAL   (Sweden)

Author keywords

Cancer care; Ethics; Interprofessional care; Palliative care; Pediatrics

Indexed keywords

ARTICLE; CANCER DIAGNOSIS; CANCER THERAPY; CHILD CARE; CHILDHOOD CANCER; CONFIDENTIALITY; CONTENT ANALYSIS; HEALTH CARE PERSONNEL; HUMAN; MEDICAL ETHICS; MORALITY; NURSING STAFF; PATIENT AUTONOMY; PERCEPTION; PRIORITY JOURNAL; PROFESSIONAL STANDARD; QUALITATIVE ANALYSIS; TERMINAL CARE; ADULT; CHILD HEALTH; ETHICS; MALE; MIDDLE AGED; NEOPLASM; QUESTIONNAIRE; SWEDEN;

ADULT; CHILD HEALTH; ETHICS, NURSING; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; NURSING STAFF; SURVEYS AND QUESTIONNAIRES; SWEDEN;

EID: 84924230866     PISSN: 0162220X     EISSN: 15389804     Source Type: Journal    
DOI: 10.1097/NCC.0000000000000130     Document Type: Article

References (31)

1. National Board of Health and Welfare. Statistics from the Cancer Register 1970-2009. 2012. http://192.137.163.40/epcfs/index.asp?kod=engelska. Accessed January 23, 2013.
2. Socialstyrelsen, Cancerfonden. Cancer i siffror 2013 [Cancer in numbers 2013]. 2013. http://www.socialstyrelsen.se/Lists/Artikelkatalog/Attachments/19108/2013-6-5.pdf. Accessed December 17, 2013.
3. Hinds PS, Oakes L, Furman W, et al. End-of-life decision making by adolescents, parents, and healthcare providers in pediatric oncology: research to evidence-based practice guidelines. Cancer Nurs. 2001;24(2):122-134; quiz 135-136.
4. Solomon MZ, Sellers DE, Heller KS, et al. New and lingering controversies in pediatric end-of-life care. Pediatrics. 2005;116(4):872-883.
5. Sorlie V, Jansson L, Norberg A. The meaning of being in ethically difficult care situations in paediatric care as narrated by female registered nurses. Scand J Caring Sci. 2003;17(3):285-292.
6. Molewijk B, Zadelhoff E, Lendemeijer B, Widdershoven G. Implementing moral case deliberation in Dutch health care: improving moral competency of professionals and quality of care. Bioethics Forum. 2008; 1(1):57-65.
7. Hurst SA, Perrier A, Pegoraro R, et al. Ethical difficulties in clinical practice: experiences of European doctors. J Med Ethics. 2007;33(1): 51-57.
8. Soderberg A, Norberg A. Intensive care: situations of ethical difficulty. J Adv Nurs. 1993;18(12):2008-2014.
9. Bricher G. Paediatric nurses, children and the development of trust. J Clin Nurs. 1999;8(4):451-458.
10. Justitiedepartementet. The code relating to parenthood and guardianship [Föräldrabalk] (1949:381) 6:11. 2013. https://lagen.nu/1949:381#K6. Accessed December 6, 2013.
11. Elo S, Kyngas H. The qualitative content analysis process. J Adv Nurs. 2008;62(1):107-115.
12. Lundman B, Graneheim HU. Kvalitativ innehållsanalys. Tillämpad kvalitativ forskning inom hälso-och sjukvården [Qualitative content analysis. Applied qualitative research in health care] Lund, Sweden: Studentlitteratur; 2008.
13. QSR NVivo 9 new generation software for qualitative data analysis [computer program]. Doncaster, Australia: QSR International Pty Ltd.; 2010.
14. Lazzarin M, Biondi A, Di Mauro S. Moral distress in nurses in oncology and haematology units. Nurs Ethics. 2012;19(2):183-195.
15. Georges JJ, Grypdonck M. Moral problems experienced by nurses when caring for terminally ill people: a literature review. Nurs Ethics. 2002;9(2):155-178.
16. Wilkinson JM. Moral distress in nursing practice: experience and effect. Nurs Forum. 1988;23(1):16-29.
17. Pergert P, Lutzen K. Balancing truth-telling in the preservation of hope: a relational ethics approach. Nurs Ethics. 2012;19(1):21-29.
18. Hallstrom I, Elander G. Decision-making during hospitalization: parents' and children's involvement. J Clin Nurs. 2004;13(3):367-375.
19. Davies B, Sehring SA, Partridge JC, et al. Barriers to palliative care for children: perceptions of pediatric health care providers. Pediatrics. 2008;121(2):282-288.
20. Thompson LA, Knapp C, Madden V, Shenkman E. Pediatricians' perceptions of and preferred timing for pediatric palliative care. Pediatrics. 2009;123(5):e777-e782.
21. Stenmarker M, Hallberg U, Palmerus K, Marky I. Being a messenger of life-threatening conditions: experiences of pediatric oncologists. Pediatr Blood Cancer. 2010;55(3):478-484.
22. Lutzen K, Blom T, Ewalds-Kvist B, Winch S. Moral stress, moral climate and moral sensitivity among psychiatric professionals. Nurs Ethics. 2010;17(2):213-224.
23. Lutzen K, Cronqvist A, Magnusson A, Andersson L. Moral stress: synthesis of a concept. Nurs Ethics. 2003;10(3):312-322.
24. Cooper A. Soapbox: interprofessional working: choice or destiny? Clin Child Psychol Psychiatry. 2009;14(4):531-536.
25. Leininger MM. Cultures and tribes of nursing, hospitals, and the medical culture. In: Leininger MM, McFarland MR, eds. Transcultural Nursing: Concepts, Theories, Research and Practice. New York, NY: McGraw-Hill, Medical Pub. Division; 2002:181-204.
26. Öberg L. Varför svär inte svenska läkare ed? [Why don't Swedish doctors swears oath?]. Lakartidningen. 2001;98(37):3935-3937.
27. Socialstyrelsen. Kompetensbeskrivning för legitimerad sjuksköterska [Description of competence for registered nurses]. 2005. http://www.socialstyrelsen.se/lists/artikelkatalog/attachments/9879/2005-105-1-20051052.pdf. Accessed January 21, 2013.
28. Bjork M, Wiebe T, Hallstrom I. An everyday struggle-Swedish families' lived experiences during a child's cancer treatment. J Pediatr Nurs. 2009;24(5):423-432.
29. Svantesson M, Lofmark R, Thorsen H, Kallenberg K, Ahlstrom G. Learning a way through ethical problems: Swedish nurses' and doctors' experiences from one model of ethics rounds. J Med Ethics. 2008;34(5):399-406.
30. Lutzen K. Lack of moral time - a health care nemesis. Health Ethics Today. 2012;20(2):6-9.
31. Polit DC, Tatano B. Nursing Research. Philadelphia, PA: Lippincott Williams & Wilkins; 2008.