"A renewed sense of purpose": Mothers' and fathers' experience of having a child following a recent stillbirth

BMC Pregnancy and Childbirth

Volumn 14, Issue 1, 2014, Pages

  Campbell Jackson, Louise ^a   Bezance, Jessica ^a   Horsch, Antje ^b  

^a WARNEFORD HOSPITAL   (United Kingdom)

^b LAUSANNE UNIVERSITY HOSPITAL   (Switzerland)

Author keywords

Fathers; Grief; IPA; Mothers; Perinatal loss; Qualitative research; Stillbirth

Indexed keywords

ADULT; ANXIETY; ARTICLE; BEREAVEMENT; CHILD PARENT RELATION; CHILDBIRTH; COPING BEHAVIOR; FATHER; FEMALE; GESTATIONAL AGE; GRIEF; GUILT; HUMAN; IDENTITY; INTERVIEW; MALE; MOTHER; PERSONAL EXPERIENCE; PHENOMENOLOGY; PREGNANCY; QUALITATIVE ANALYSIS; STILLBIRTH; UNCERTAINTY; ADAPTIVE BEHAVIOR; ETIOLOGY; FATHER CHILD RELATION; INFANT; LIVE BIRTH; MOTHER FETUS RELATIONSHIP; PSYCHOLOGY;

ADAPTATION, PSYCHOLOGICAL; ADULT; ANXIETY; FATHER-CHILD RELATIONS; FATHERS; FEMALE; GRIEF; GUILT; HUMANS; INFANT; INTERVIEWS AS TOPIC; LIVE BIRTH; MALE; MATERNAL-FETAL RELATIONS; MOTHERS; PARENTING; STILLBIRTH; UNCERTAINTY;

EID: 84924145183     PISSN: None     EISSN: 14712393     Source Type: Journal    
DOI: 10.1186/s12884-014-0423-x     Document Type: Article

References (63)

1. Cacciatore J: Psychological effects of stillbirth. Semin Fetal Neonatal Med 2013, 18:76-82.
2. Lamb EH: The impact of previous perinatal loss on subsequent pregnancy and parenting. J Perinat Ed 2002, 11:33-40.
3. Hsu M, Tseng Y, Banks J, Kuo L: Interpretations of stillbirth. J Adv Nurs 2004, 47:408-416.
4. Weaver-Hightower MB: Waltzing Matilda: An autoethnography of a father's stillbirth. J Contemp Ethnogr 2012, 41:462-491.
5. Saflund K, Wredling R: Differences within couples' experience of their hospital care and well-being three months after experiencing a stillbirth. Acta Obstet Gynecol Scand 2006, 85:1193-1199.
6. Campbell-Jackson L, Horsch A: The psychological impact of stillbirth: A systematic review. Illness, Crisis Loss 2014, 22(3):237-256.
7. Centre for Maternal and Child Enquiries (CMACE): Perinatal Mortality 2009: United Kingdom. London: CMACE; 2011.
8. Robinson GE: Dilemmas related to pregnancy loss. J Nerv Ment Dis 2011, 199:571-574.
9. Horsch A: Post traumatic stress disorder following childbirth and pregnancy loss. In Clinical Psychology in Practice. Edited by Beinart H, Kennedy P, Llewelyn S. Oxford: Blackwell, BPS; 2009:274-287.
10. Cacciatore J: The unique experiences of women and their families after the death of a baby. Soc Work Health Care 2010; 49:134-48.
11. Fletcher PN: Experiences in family bereavement. Fam Community Health 2002, 25:57-71.
12. Froen FJ, Cacciatore J, McClure EM, Kuti O, Jokhio AH, Islam M, Shiffman J: Stillbirths: why they matter. Lancet 2011, 377:1353-1366.
13. Cacciatore J, Barr P: Problematic emotions and maternal grief. OMEGA 2007, 56(4):331-348.
14. Barr P: Negative self-conscious emotion and grief: An actor-partner analysis in couples bereaved by stillbirth or neonatal death. Psychol Psychother Theory Res Pract 2012, 85:310-326.
15. Barr P: Guilt- and shame-proneness and the grief of perinatal bereavement. Psychol Psychother 2004, 77:493-510.
16. Wing DG, Burge-Callaway K, Clance PR, Armistead L: Understanding gender differences in bereavement following the death of an infant: implications for treatment. Psychotherapy 2001, 38:60-73.
17. Avelin P, Radestad I, Saflund K, Wredling R, Erlandsson K: Parental grief and relationships after the loss of a stillborn baby. Midwifery 2013, 29:668-673.
18. Franche L: Psychologic and Obstetric Predictors of Couples' Grief During Pregnancy After Miscarriage or Perinatal Death. Obstet Gynecology 2001, 97:597-602.
19. Mills TA, Ricklesford C, Cooke A, Heazell AEP, Whitworth M, Lavender T: Parents' experiences and expectations of care in pregnancy after stillbirth or neonatal death: a metasynthesis. BJOG 2014: doi:10.1111/1471-0528.12656.
20. Côté-Arsenault D, Donato K: Restrained expectations in late pregnancy following loss. J Obstet Gynecol Neonatal Nurs 2007, 36:550-557.
21. Turton P, Hughes P, Evans CDH, Fainman D: Incidence, correlates and predictors of post-traumatic stress disorder in the pregnancy after stillbirth. Br J Psychiatry 2001, 178:556-560.
22. Grote NK, Bridge JA, Gavin AR, Melville JL, Iyengar S, Katon WJ: A meta-analysis of depression during pregnancy and the risk of preterm birth, low birth weight and intrauterine growth restriction. Arch Gen Psychiatry 2010, 67:1012-1024.
23. Glover V, Bergman K, Sarkar P, O'Connor T: Association between maternal and amniotic fluid cortisol is moderated by maternal anxiety. Psychoneuroendocrino 2009, 34:430-435.
24. Van de Bergh BRH, Macoen A: High antenatal maternal anxiety is related to ADHD symptoms, externalizing problems and anxiety in 8 and 9 year olds. Child Dev 2004, 75:1085-1097.
25. O'Leary J, Thorwick C: Fathers' perspectives during pregnancy, postperinatal loss. JOGNN 2006, 35:78-86.
26. Samuelsson M, Radestad I, Segesen K: A waste of life: fathers' experience of losing a child before birth. Birth 2001, 28:124-130.
27. Cacciatore J, Erlandsson K, Radestad I: Fatherhood and suffering: A qualitative exploration of Swedish men's experiences of care after the death of a baby. Intern J Nurs Studies 2013, 50:664-670.
28. O'leary J, Thorwick C: Attachment to the unborn child and parental mental representations of pregnancy following perinatal loss. ATTACHMENT: New Dir Psychother Relational Psychoanal 2008, 2:292-320.
29. McCreight BS: A grief ignored: narratives of pregnancy loss from a male perspective. Sociol Health Illness 2004, 26:326-350.
30. Armstrong D, Hutti M: Pregnancy after perinatal loss: The relationship between anxiety and prenatal attachment. J Obstet Gynecol Neonatal Nurs 1998, 27:183-189.
31. Armstrong DS: Emotional distress and prenatal attachment in pregnancy after perinatal loss. J Nurs Scholarship 2002, 34:339-345.
32. Hughes P, Turton P, Hopper E, McGauley GA, Fonagy P: Disorganised attachment behaviour among infants born subsequent to stillbirth. J Child Psychol Psyc 2001, 42:791-801.
33. Poznanski ED: The "replacement child": a saga of unresolved parental grief. J Pediatr 1972, 81:1190-1193.
34. Akhtar S, Thomson JA: Overview: Narcissistic personality disorder. Am J Psychiat 1982, 139:12-20.
35. Goodman R, Ford T, Simmons H, Gatward R, Meltzer H: Using the Strengths and Difficulties Questionnaire (SDQ) to screen for child psychiatric disorders in a community sample. Brit J of Psychiat 2000, 177:534-539.
36. Warland J, O'Leary J, McCutcheon H, Williamson V: Parenting Paradox: Parenting after infant loss. Midwifery 2011, 27:163-169.
37. Smith J, Flowers P, Larkin M: Interpretative Phenomenological Analysis: Theory, Method and Research. London: Sage; 2009.
38. Shaw RL: Why use interpretative phenomenological analysis in health psychology? Health Psychol Update 2001, 10:48-52.
39. Brocki JM, Wearden AJ: A critical evaluation of the use of interpretative phenomenological analysis (IPA) in health psychology. Psychol Health 2006, 21:87-108.
40. Smith J: Beyond the divide between cognition and discourse: Using interpretative phenomenological analysis in health psychology. Psychol Health 1996, 11:261-271.
41. Conrad P: The experience of illness: recent and new directions. Res Soc Health Care 1987, 6:1-31.
42. Smith JA: Interpretative Phenomenological Analysis and the new genetics. J Health Psychol 2002, 7:125-130.
43. Guidelines for Minimum Standards of Ethical Approval in Psychological Research [internet]. Leicester: BPS; 2004 - [cited 2014 May 6]; Available from http://www.abdn.ac.uk/psychology/documents/ethics/BPS_july2004_Guidelines_for_Ethical_Approval.pdf.
44. Malterud K: Qualitative research: standards challenges and guidelines. Lancet 2001, 358:483-488.
45. Yardley L: Dilemmas in qualitative health research. Psychol Health 2000, 15:215-228.
46. Silverman D: Interpreting Qualitative Data: Methods for Analysing Talk, Text and Interaction. 2nd edition. London: Sage, 2001.
47. Elliot R, Fischer CT, Rennie DL: Evolving guidelines for publication of qualitative research studies in psychology. J Clin Psychol 1999, 38:215-229.
48. Larkin M, Thompson AR: Interpretative phenomenological analysis. In Qualitative Research Methods in Mental Health and Psychotherapy: A Guide for Students and Practitioners. Edited by Harper D, Thompson AR. Chichester: John Wiley & Sons; 2012:101-116.
49. Rachman S: Health anxiety disorders: A cognitive construal. Behav Res Ther 2012, 50:502-512.
50. Philipp D, Carr M: Normal and medically complicated pregnancies. In Psychological Aspects of Women's Healthcare: The Interface Between Psychiatry & Obstetrics & Gynecology. Edited by Stewart D, Stotland N. Washington DC: American Psychiatric Association; 2001:13-32.
51. Turton P, Evans C, Hughes P: Long-term psychosocial sequelae of stillbirth: Phase II of a nested case-control cohort study. Arch Women Ment Health 2009, 12:35-41.
52. Hunfield JAM, Taselaar-Kloos AKG, Agterberg G, Wladimiroff JW, Passchier J: Trait anxiety, negative emotions, and the mothers' adaptation to an infant born subsequent to late pregnancy loss: a case-control study. Prenatal Diagn 1997, 17:843-851.
53. Leon I: The invisible loss: The impact of perinatal death on siblings. J Psychosom Obstet Gynaecol 1986, 5:1-14.
54. Lee L, McKenzie-McHarg K, Horsch A: Women's decision making and experience of subsequent pregnancy following stillbirth. J Midwifery Women's Health 2013, 58(4):431-439.
55. O'Leary JM: Grief and its impact on prenatal attachment in the subsequent pregnancy. Arch Women Ment Health 2004, 7:7-18.
56. Brownlee K, Oikonen J: Toward a Theoretical Framework for Perinatal Bereavement. The Brit J Soc Work 2004, 34:517-529.
57. Yamazaki A: Living with stillborn babies as family members: Japanese women who experienced intrauterine fetal death after 28 weeks gestation. Health Care Women Intern 2010, 31:921-937.
58. Badenhorst W, Riches S, Turton P, Hughes P: The psychological effects of stillbirth and neonatal death on fathers: Systematic review. J Psychosom Obstet Gynaecol 2006, 27:245-256.
59. Callan VJ, Murray J: The role of therapists in helping couples cope with stillbirth and newborn death. Fam Rel 1989, 38:248-253.
60. Hopper R: Conversation. Bloomington, IN: Indiana University Press; 1992.
61. Cote-Arsenault D, Schwartz K, Krowchuck H, McCoy TP: Evidence based intervention with women pregnant after perinatal loss. MCN Am J Matern Child Nurs 2014, 39(3):177-186.
62. Cacciatore J, Flint M: ATTEND: Towards a mindfulness-based bereavement care model. Death Stud 2012, 36:61-82.
63. Cacciatore J, Froen JF, Killian M: Condeming Self, Condeming other: blame and mental health in women suffering stillbirth. J Mental Health Counselling 2013, 5(4):342-359.