How to manage patients with amyorphic lateral sclerosis;Comment prendre en charge un malade atteint de SLA ?

Pratique Neurologique - FMC

Volumn 6, Issue 1, 2015, Pages 13-18

  Brunaud Danel, V ^a   Tiffreau, V ^a   Danel Buhl, N ^a   Perez, T ^a   Moreau, C ^a   Destee, A ^a   Devos, D ^a   Defebvre, L ^a  

^a LILLE UNIVERSITY HOSPITAL   (France)

Author keywords

ALS tertiary center; Amyotrophic lateral; Ethical issues; Nutrition support; sclerosis; Ventilation strategies

Indexed keywords

AMYOTROPHIC LATERAL SCLEROSIS; ARTICLE; DISEASE COURSE; DRUG DEPENDENCE; DYSPHAGIA; GOLD STANDARD; HUMAN; INFECTION; MALNUTRITION; NUTRITIONAL STATUS; PALLIATIVE THERAPY; PATIENT AUTONOMY; PATIENT CARE; PROGNOSIS; QUALITY OF LIFE; RESPIRATORY FAILURE; SURVIVAL TIME;

EID: 84924112026     PISSN: 18787762     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.praneu.2014.12.002     Document Type: Short Survey

References (24)

1. Pupillo E, Messina P, Logroscino G, Beghi E, SLALOM Group. Long-term survival in amyotrophic lateral sclerosis: a populationbased study. Ann Neurol 2014;75(2):287-97.
2. Chiò A, Logroscino G, Hardiman O, Swingler R, Mitchell D, Beghi E, et al. Eurals Consortium. Prognostic factors in ALS: a critical review. Amyotroph Lateral Scler 2009;10(5-6):310-23.
3. Aridegbe T, Kandler R, Walters SJ, Walsh T, Shaw PJ, McDermott CJ. The natural history of motor neuron disease: assessing the impact of specialist care. Amyotroph Lateral Scler Frontotemporal Degener 2013;14(1):13-9.
4. Van den Berg JP, Kalmijn S, Lindeman E, Veldink JH, de Visser M, Van der Graaff MM, et al. Multidisciplinary ALS care improves quality of life in patients with ALS. Neurology 2005;65(8):1264-7.
5. Delassus E. L'information dans le contexte médical. Ethique Sante 2013;10:125-9.
6. Lacomblez L, Bensimon G, Leigh PN, Debove C, Bejuit R, Truffinet P, et al. Long-term safety of riluzole in amyotrophic lateral sclerosis. Amyotroph Lateral Scler Other Motor Neuron Disord 2002;3(1):23-9.
7. Morgan RK, McNally S, Alexander M, Conroy R, Hardiman O, Costello RW. Use of Sniff nasal-inspiratory force to predict survival in amyotrophic lateral sclerosis. Am J Respir Crit Care Med 2005;171(3):269-74.
8. Gil J, Funalot B, Verschueren A, Danel-Brunaud V, Camu W, Vandenberghe N, et al. Causes of death amongst French patients with amyotrophic lateral sclerosis: a prospective study. Eur J Neurol 2008;15(11):1245-51.
9. Bourke SC, Tomlinson M, Williams TL, Bullock RE, Shaw PJ, Gibson GJ. Effects of non-invasive ventilation on survival and quality of life in patients with amyotrophic lateral sclerosis: a randomised controlled trial. Lancet Neurol 2006;5(2):140-7.
10. Gruis KL, Lechtzin N. Respiratory therapies for amyotrophic lateral sclerosis: a primer. Muscle Nerve 2012;46(3):313-31.
11. Lechtzin N, Scott Y, Busse AM, Clawson LL, Kimball R, Wiener CM. Early use of non-invasive ventilation prolongs survival in subjects with ALS. Amyotroph Lateral Scler 2007;8(3):185-8.
12. Vitacca M, Vianello A, Scientific Group on Respiratory Intensive Care of the Italian Association of Hospital Pulmonologists. Respiratory outcomes of patients with amyotrophic lateral sclerosis: an Italian nationwide survey. Respir Care 2013;58(9):1433-41.
13. Volanti P, Cibella F, Sarvà M, De Cicco D, Spanevello A, Mora G, et al. Predictors of non-invasive ventilation tolerance in amyotrophic lateral sclerosis. J Neurol Sci 2011;303(1-2):114-8.
14. Marin B, Desport JC, Kajeu P, Jesus P, et al. Nutritional parameters are of major prognostic significance in ALS patients. J Neurol Neurosurg Psych 2011;82:628-34.
15. Sancho J, Servera E, Chiner E, Bañuls P, Gómez-Merino E, Sancho-Chust JN, et al. Noninvasive respiratory muscle aids during PEG placement in ALS patients with severe ventilatory impairment. J Neurol Sci 2010;297(1-2):55-9.
16. Atassi N, Cudkowicz ME, Schoenfeld DA. Advanced statistical methods to study the effects of gastric tube and non-invasive ventilation on functional decline and survival in amyotrophic lateral sclerosis. Amyotroph Lateral Scler 2011;12(4):272-7.
17. Spataro R, Ficano L, Piccoli F, La Bella V. Percutaneous endoscopic gastrostomy in amyotrophic lateral sclerosis: effect on survival. J Neurol Sci 2011;304(1-2):44-8.
18. Gordon PH, Cheng B, Salachas F, Pradat PF, Bruneteau G, Corcia P, et al. Progression in ALS is not linear but is curvilinear. J Neurol 2010;257(10):1713-7.
19. Limousin N, Blasco H, Corcia P, Arnulf I, Praline J. The high frequency of restless legs syndrome in patients with amyotrophic lateral sclerosis. Amyotroph Lateral Scler 2011;12(4):303-6.
20. Sancho J, Servera E, Díaz JL, Bañuls P, Marín J. Home tracheotomy mechanical ventilation in patients with amyotrophic lateral sclerosis: causes, complications and 1-year survival. Thorax 2011;66(11):948-52.
21. Chiò A, Calvo A, Ghiglione P, Mazzini L, Mutani R, Mora G. PARALS. Tracheostomy in amyotrophic lateral sclerosis: a 10-year population-based study in Italy. J Neurol Neurosurg Psychiatry 2010;81(10):1141-3.
22. Vianello A, Arcaro G, Palmieri A, Ermani M, Braccioni F, Gallan F, et al. Survival and quality of life after tracheostomy for acute respiratory failure in patients with amyotrophic lateral sclerosis. J Crit Care 2011;26(3):329.
23. Danel-Brunaud V, Laurier L, Parent K, Moreau C, Defebvre L, Jacquemin D, et al. Les enjeux de la loi Léonetti : participation des patients atteints de sclérose latérale amyotrophique à une discussion anticipée sur la réanimation respiratoire et les soins de fin de vie. Rev Neurol (Paris) 2009;165(2):170-7.
24. Rabkin JG, Albert SM, Tider T, Del Bene ML, O'Sullivan I, Rowland LP, et al. Predictors and course of elective long-term mechanical ventilation: a prospective study of ALS patients. Amyotroph Lateral Scler 2006;7(2):86-95.