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Volumn 48, Issue 3, 2014, Pages 385-399.e2

A pilot study of the experience of family caregivers of patients with advanced pancreatic cancer using a mixed methods approach

Author keywords

advanced pancreatic cancer; Family caregivers; mixed methods; qualitative research

Indexed keywords

ADULT; ADVANCED CANCER; AGED; ARTICLE; CANCER MORTALITY; CANCER PATIENT; CANCER STAGING; CAREGIVER; CAREGIVER BURDEN; CLINICAL ARTICLE; COPING BEHAVIOR; FEASIBILITY STUDY; FEMALE; HUMAN; LONGITUDINAL STUDY; MALE; PANCREAS CANCER; PERSONAL EXPERIENCE; PILOT STUDY; QUALITY OF LIFE; RISK FACTOR; ADAPTIVE BEHAVIOR; FAMILY; MENTAL STRESS; MIDDLE AGED; NURSING; PANCREAS TUMOR; PATIENT CARE; PSYCHOLOGY; SEVERITY OF ILLNESS INDEX; UNITED STATES; VERY ELDERLY;

EID: 84923514080     PISSN: 08853924     EISSN: 18736513     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2013.09.006     Document Type: Article
Times cited : (41)

References (46)
  • 3
    • 67649993396 scopus 로고    scopus 로고
    • Future of cancer incidence in the United States: Burdens upon an aging, changing nation
    • B.D. Smith, G.L. Smith, A. Hurria, G.N. Hortobagyi, and T.A. Buchholz Future of cancer incidence in the United States: burdens upon an aging, changing nation J Clin Oncol 27 2009 2758 2765
    • (2009) J Clin Oncol , vol.27 , pp. 2758-2765
    • Smith, B.D.1    Smith, G.L.2    Hurria, A.3    Hortobagyi, G.N.4    Buchholz, T.A.5
  • 4
    • 58149469895 scopus 로고    scopus 로고
    • Assessment of family caregivers: A research perspective
    • Family Caregiver Alliance Report from a national consensus development conference Family Caregiver Alliance San Francisco, CA
    • S. Zarit Assessment of family caregivers: a research perspective Family Caregiver Alliance Caregiver assessment: Voices and views from the field Report from a national consensus development conference Vol. II 2006 Family Caregiver Alliance San Francisco, CA 12 37
    • (2006) Caregiver Assessment: Voices and Views from the Field , vol.VOL. II , pp. 12-37
    • Zarit, S.1
  • 5
    • 39149139967 scopus 로고    scopus 로고
    • Caring for the brain tumor patient: Family caregiver burden and unmet needs
    • J.R. Schubart, M.B. Kinzie, and E. Farace Caring for the brain tumor patient: family caregiver burden and unmet needs Neuro Oncol 10 2008 61 72
    • (2008) Neuro Oncol , vol.10 , pp. 61-72
    • Schubart, J.R.1    Kinzie, M.B.2    Farace, E.3
  • 6
    • 73549116507 scopus 로고    scopus 로고
    • Caregiver assessment: Principles, guidelines and strategies for change
    • Family Caregiver Alliance Family Caregiver Alliance San Francisco, CA
    • Family Caregiver Alliance Caregiver assessment: Principles, guidelines and strategies for change Report from a national consensus development conference Vol. I 2006 Family Caregiver Alliance San Francisco, CA
    • (2006) Report from A National Consensus Development Conference , vol.VOL. I
  • 7
    • 27244442115 scopus 로고    scopus 로고
    • Psychiatric disorders and mental health service use among caregivers of advanced cancer patients
    • L.C. Vanderwerker, R.E. Laff, N.S. Kadan-Lottick, S. McColl, and H.G. Prigerson Psychiatric disorders and mental health service use among caregivers of advanced cancer patients J Clin Oncol 23 2005 6899 6907
    • (2005) J Clin Oncol , vol.23 , pp. 6899-6907
    • Vanderwerker, L.C.1    Laff, R.E.2    Kadan-Lottick, N.S.3    McColl, S.4    Prigerson, H.G.5
  • 8
    • 48049119655 scopus 로고    scopus 로고
    • End-of-life care and the grieving process: Family caregivers who have experienced the loss of a terminal-phase cancer patient
    • I. Dumont, S. Dumont, and S. Mongeau End-of-life care and the grieving process: family caregivers who have experienced the loss of a terminal-phase cancer patient Qual Health Res 18 2008 1049 1061
    • (2008) Qual Health Res , vol.18 , pp. 1049-1061
    • Dumont, I.1    Dumont, S.2    Mongeau, S.3
  • 10
    • 24944435359 scopus 로고    scopus 로고
    • Cancer caregiving and subjective stress: A multi-site, multi-dimensional analysis
    • J.E. Gaugler, N. Hanna, and J. Linder Cancer caregiving and subjective stress: a multi-site, multi-dimensional analysis Psychooncology 14 2005 771 785
    • (2005) Psychooncology , vol.14 , pp. 771-785
    • Gaugler, J.E.1    Hanna, N.2    Linder, J.3
  • 11
    • 46349097491 scopus 로고    scopus 로고
    • Caregiver assessment of patients with advanced cancer: Concordance with patients, effect of burden and positivity
    • I.J. Higginson, and W. Gao Caregiver assessment of patients with advanced cancer: concordance with patients, effect of burden and positivity Health Qual Life Outcomes 6 2008 42
    • (2008) Health Qual Life Outcomes , vol.6 , pp. 42
    • Higginson, I.J.1    Gao, W.2
  • 12
    • 2142808892 scopus 로고    scopus 로고
    • Positive aspects and challenges associated with caring for a dying relative at home
    • discussion 65
    • P. Hudson Positive aspects and challenges associated with caring for a dying relative at home Int J Palliat Nurs 10 2004 58 65 discussion 65
    • (2004) Int J Palliat Nurs , vol.10 , pp. 58-65
    • Hudson, P.1
  • 13
    • 33646714444 scopus 로고    scopus 로고
    • The relationship between meaning of illness, social support, coping strategies, and quality of life for lung cancer patients and their family members
    • B. Downe-Wamboldt, L. Butler, and L. Coulter The relationship between meaning of illness, social support, coping strategies, and quality of life for lung cancer patients and their family members Cancer Nurs 29 2006 111 119
    • (2006) Cancer Nurs , vol.29 , pp. 111-119
    • Downe-Wamboldt, B.1    Butler, L.2    Coulter, L.3
  • 14
    • 48549103956 scopus 로고    scopus 로고
    • Caregivers' differing needs across key experiences of the advanced cancer disease trajectory
    • L.L. DuBenske, K.Y. Wen, and D.H. Gustafson Caregivers' differing needs across key experiences of the advanced cancer disease trajectory Palliat Support Care 6 2008 265 272
    • (2008) Palliat Support Care , vol.6 , pp. 265-272
    • Dubenske, L.L.1    Wen, K.Y.2    Gustafson, D.H.3
  • 15
    • 84860341192 scopus 로고    scopus 로고
    • Patient and family caregiver decision making in the context of advanced cancer
    • S.B. Edwards, K. Olson, P.M. Koop, and H.C. Northcott Patient and family caregiver decision making in the context of advanced cancer Cancer Nurs 35 2012 178 186
    • (2012) Cancer Nurs , vol.35 , pp. 178-186
    • Edwards, S.B.1    Olson, K.2    Koop, P.M.3    Northcott, H.C.4
  • 16
    • 56549103110 scopus 로고    scopus 로고
    • Self-care behaviors of spouses caring for significant others with Alzheimer's disease: The emergence of self-care worthiness as a salient condition
    • K.E. Furlong, and J. Wuest Self-care behaviors of spouses caring for significant others with Alzheimer's disease: the emergence of self-care worthiness as a salient condition Qual Health Res 18 2008 1662 1672
    • (2008) Qual Health Res , vol.18 , pp. 1662-1672
    • Furlong, K.E.1    Wuest, J.2
  • 17
    • 32044463055 scopus 로고    scopus 로고
    • Burden and depression among caregivers of patients with cancer at the end of life
    • B. Given, G. Wyatt, and C. Given Burden and depression among caregivers of patients with cancer at the end of life Oncol Nurs Forum 31 2004 1105 1117
    • (2004) Oncol Nurs Forum , vol.31 , pp. 1105-1117
    • Given, B.1    Wyatt, G.2    Given, C.3
  • 18
    • 84857653870 scopus 로고    scopus 로고
    • Family and caregiver needs over the course of the cancer trajectory
    • B.A. Given, C.W. Given, and P.R. Sherwood Family and caregiver needs over the course of the cancer trajectory J Support Oncol 10 2012 57 64
    • (2012) J Support Oncol , vol.10 , pp. 57-64
    • Given, B.A.1    Given, C.W.2    Sherwood, P.R.3
  • 19
    • 4444266441 scopus 로고    scopus 로고
    • Depression and physical health among family caregivers of geriatric patients with cancer - A longitudinal view
    • M.E. Kurtz, J.C. Kurtz, C.W. Given, and B.A. Given Depression and physical health among family caregivers of geriatric patients with cancer - a longitudinal view Med Sci Monit 10 2004 CR447 CR456
    • (2004) Med Sci Monit , vol.10 , pp. 447-CR456
    • Kurtz, M.E.1    Kurtz, J.C.2    Given, C.W.3    Given, B.A.4
  • 20
    • 29744442924 scopus 로고    scopus 로고
    • Impact of coping skills intervention with family caregivers of hospice patients with cancer: A randomized clinical trial
    • S.C. McMillan, B.J. Small, and M. Weitzner Impact of coping skills intervention with family caregivers of hospice patients with cancer: a randomized clinical trial Cancer 106 2006 214 222
    • (2006) Cancer , vol.106 , pp. 214-222
    • McMillan, S.C.1    Small, B.J.2    Weitzner, M.3
  • 21
    • 79952185138 scopus 로고    scopus 로고
    • The caregiving journey for family members of relatives with cancer: How do they cope?
    • S. Northfield, and M. Nebauer The caregiving journey for family members of relatives with cancer: how do they cope? Clin J Oncol Nurs 14 2010 567 577
    • (2010) Clin J Oncol Nurs , vol.14 , pp. 567-577
    • Northfield, S.1    Nebauer, M.2
  • 22
    • 79958271498 scopus 로고    scopus 로고
    • Nurses' experience of delivering a supportive intervention for family members of patients with lung cancer
    • H. Plant, S. Moore, A. Richardson, A. Cornwall, J. Medina, and E. Ream Nurses' experience of delivering a supportive intervention for family members of patients with lung cancer Eur J Cancer Care (Engl) 20 2011 436 444
    • (2011) Eur J Cancer Care (Engl) , vol.20 , pp. 436-444
    • Plant, H.1    Moore, S.2    Richardson, A.3    Cornwall, A.4    Medina, J.5    Ream, E.6
  • 23
    • 37849023146 scopus 로고    scopus 로고
    • Factors influencing family caregivers' ability to cope with providing end-of-life cancer care at home
    • K.I. Stajduhar, W.L. Martin, D. Barwich, and G. Fyles Factors influencing family caregivers' ability to cope with providing end-of-life cancer care at home Cancer Nurs 31 2008 77 85
    • (2008) Cancer Nurs , vol.31 , pp. 77-85
    • Stajduhar, K.I.1    Martin, W.L.2    Barwich, D.3    Fyles, G.4
  • 24
    • 54549109927 scopus 로고    scopus 로고
    • Situated/being situated: Client and co-worker roles of family caregivers in hospice palliative care
    • K.I. Stajduhar, D.D. Nickel, W.L. Martin, and L. Funk Situated/being situated: client and co-worker roles of family caregivers in hospice palliative care Soc Sci Med 67 2008 1789 1797
    • (2008) Soc Sci Med , vol.67 , pp. 1789-1797
    • Stajduhar, K.I.1    Nickel, D.D.2    Martin, W.L.3    Funk, L.4
  • 25
    • 0141798849 scopus 로고    scopus 로고
    • Factors which influence coping: Home-based family caregiving of persons with advanced cancer
    • V.R. Strang, and P.M. Koop Factors which influence coping: home-based family caregiving of persons with advanced cancer J Palliat Care 19 2003 107 114
    • (2003) J Palliat Care , vol.19 , pp. 107-114
    • Strang, V.R.1    Koop, P.M.2
  • 26
    • 84855410917 scopus 로고    scopus 로고
    • Cancer family caregivers during the palliative, hospice, and bereavement phases: A review of the descriptive psychosocial literature
    • A.L. Williams, and R. McCorkle Cancer family caregivers during the palliative, hospice, and bereavement phases: a review of the descriptive psychosocial literature Palliat Support Care 9 2011 315 325
    • (2011) Palliat Support Care , vol.9 , pp. 315-325
    • Williams, A.L.1    McCorkle, R.2
  • 27
    • 73449092558 scopus 로고    scopus 로고
    • Adjusting to pancreatic cancer: Perspectives from first-degree relatives
    • K. Petrin, D.J. Bowen, C.M. Alfano, and R. Bennett Adjusting to pancreatic cancer: perspectives from first-degree relatives Palliat Support Care 7 2009 281 288
    • (2009) Palliat Support Care , vol.7 , pp. 281-288
    • Petrin, K.1    Bowen, D.J.2    Alfano, C.M.3    Bennett, R.4
  • 28
    • 35349027244 scopus 로고    scopus 로고
    • Symptom assessment of patients with advanced cancer and AIDS and their family caregivers: The results of a quality-of-life pilot study
    • D.W. Sherman, X.Y. Ye, and C. Beyer McSherry Symptom assessment of patients with advanced cancer and AIDS and their family caregivers: the results of a quality-of-life pilot study Am J Hosp Palliat Care 24 2007 350 365
    • (2007) Am J Hosp Palliat Care , vol.24 , pp. 350-365
    • Sherman, D.W.1    Ye, X.Y.2    Beyer McSherry, C.3
  • 29
    • 33747889460 scopus 로고    scopus 로고
    • Quality of life of patients with advanced cancer and acquired immune deficiency syndrome and their family caregivers
    • D.W. Sherman, X.Y. Ye, and C. McSherry Quality of life of patients with advanced cancer and acquired immune deficiency syndrome and their family caregivers J Palliat Med 9 2006 948 963
    • (2006) J Palliat Med , vol.9 , pp. 948-963
    • Sherman, D.W.1    Ye, X.Y.2    McSherry, C.3
  • 30
    • 32044448535 scopus 로고    scopus 로고
    • Measuring end-of-life care outcomes prospectively
    • K.E. Steinhauser Measuring end-of-life care outcomes prospectively J Palliat Med 8 Suppl 1 2005 S30 S41
    • (2005) J Palliat Med , vol.8 , pp. 30-S41
    • Steinhauser, K.E.1
  • 31
    • 35548994908 scopus 로고    scopus 로고
    • Improving well-being in caregivers of terminally ill patients. Making the case for patient suffering as a focus for intervention research
    • R.S. Hebert, R.M. Arnold, and R. Schulz Improving well-being in caregivers of terminally ill patients. Making the case for patient suffering as a focus for intervention research J Pain Symptom Manage 34 2007 539 546
    • (2007) J Pain Symptom Manage , vol.34 , pp. 539-546
    • Hebert, R.S.1    Arnold, R.M.2    Schulz, R.3
  • 32
    • 84857491316 scopus 로고    scopus 로고
    • Systematic review of cancer presentations with a median survival of six months or less
    • S.R. Salpeter, D.S. Malter, E.J. Luo, A.Y. Lin, and B. Stuart Systematic review of cancer presentations with a median survival of six months or less J Palliat Med 15 2012 175 185
    • (2012) J Palliat Med , vol.15 , pp. 175-185
    • Salpeter, S.R.1    Malter, D.S.2    Luo, E.J.3    Lin, A.Y.4    Stuart, B.5
  • 33
    • 0025053956 scopus 로고
    • Caregiving and the stress process: An overview of concepts and their measures
    • L.I. Pearlin, J.T. Mullan, S.J. Semple, and M.M. Skaff Caregiving and the stress process: an overview of concepts and their measures Gerontologist 30 1990 583 594
    • (1990) Gerontologist , vol.30 , pp. 583-594
    • Pearlin, L.I.1    Mullan, J.T.2    Semple, S.J.3    Skaff, M.M.4
  • 34
    • 0016837052 scopus 로고
    • A short portable mental status questionnaire for the assessment of organic brain deficit in elderly patients
    • E. Pfeiffer A short portable mental status questionnaire for the assessment of organic brain deficit in elderly patients J Am Geriatr Soc 23 1975 433 441
    • (1975) J Am Geriatr Soc , vol.23 , pp. 433-441
    • Pfeiffer, E.1
  • 36
    • 84455194321 scopus 로고    scopus 로고
    • Significant others' lived experiences following a lung cancer trajectory: From diagnosis through and after the death of a family member
    • S. Pusa, C. Persson, and K. Sundin Significant others' lived experiences following a lung cancer trajectory: from diagnosis through and after the death of a family member Eur J Oncol Nurs 16 2012 34 41
    • (2012) Eur J Oncol Nurs , vol.16 , pp. 34-41
    • Pusa, S.1    Persson, C.2    Sundin, K.3
  • 37
    • 70349561238 scopus 로고    scopus 로고
    • Differences in physical, emotional, and social adjustment of intimate, family, and nonfamily patient-partner dyads based on a breast cancer intervention study
    • D.W. Sherman, J. Haber, and C.N. Hoskins Differences in physical, emotional, and social adjustment of intimate, family, and nonfamily patient-partner dyads based on a breast cancer intervention study Oncol Nurs Forum 36 2009 E185 E197
    • (2009) Oncol Nurs Forum , vol.36 , pp. 185-E197
    • Sherman, D.W.1    Haber, J.2    Hoskins, C.N.3
  • 38
    • 22244467691 scopus 로고    scopus 로고
    • Recruitment and retention in a longitudinal palliative care study
    • D.W. Sherman, C.B. McSherry, and V. Parkas Recruitment and retention in a longitudinal palliative care study Appl Nurs Res 18 2005 167 177
    • (2005) Appl Nurs Res , vol.18 , pp. 167-177
    • Sherman, D.W.1    McSherry, C.B.2    Parkas, V.3
  • 39
    • 26444583354 scopus 로고    scopus 로고
    • Spiritual well-being as a dimension of quality of life for patients with advanced cancer and AIDS and their family caregivers: Results of a longitudinal study
    • D.W. Sherman, X.Y. Ye, and C. McSherry Spiritual well-being as a dimension of quality of life for patients with advanced cancer and AIDS and their family caregivers: results of a longitudinal study Am J Hosp Palliat Care 22 2005 349 362
    • (2005) Am J Hosp Palliat Care , vol.22 , pp. 349-362
    • Sherman, D.W.1    Ye, X.Y.2    McSherry, C.3
  • 40
    • 80053462441 scopus 로고    scopus 로고
    • Support for caregivers of cancer patients: Transition after active treatment
    • B.A. Given, P. Sherwood, and C.W. Given Support for caregivers of cancer patients: transition after active treatment Cancer Epidemiol Biomarkers Prev 20 2011 2015 2021
    • (2011) Cancer Epidemiol Biomarkers Prev , vol.20 , pp. 2015-2021
    • Given, B.A.1    Sherwood, P.2    Given, C.W.3
  • 41
    • 77958164187 scopus 로고    scopus 로고
    • Understanding the experience of caregivers: A focus on transitions
    • K. Blum, and D.W. Sherman Understanding the experience of caregivers: a focus on transitions Semin Oncol Nurs 26 2010 243 258
    • (2010) Semin Oncol Nurs , vol.26 , pp. 243-258
    • Blum, K.1    Sherman, D.W.2
  • 42
    • 85016983516 scopus 로고    scopus 로고
    • Reciprocal suffering: The need to improve family caregivers' quality of life through palliative care
    • D.W. Sherman Reciprocal suffering: the need to improve family caregivers' quality of life through palliative care J Palliat Med 1 1998 357 366
    • (1998) J Palliat Med , vol.1 , pp. 357-366
    • Sherman, D.W.1
  • 43
    • 34248525275 scopus 로고    scopus 로고
    • A study of information seeking by cancer patients and their carers
    • N. James, H. Daniels, and R. Rahman A study of information seeking by cancer patients and their carers Clin Oncol (R Coll Radiol) 19 2007 356 362
    • (2007) Clin Oncol (R Coll Radiol) , vol.19 , pp. 356-362
    • James, N.1    Daniels, H.2    Rahman, R.3
  • 44
    • 34250887652 scopus 로고    scopus 로고
    • Providing patient information - Part 1: Assessing information needs of patients
    • B. van der Molen Providing patient information - Part 1: assessing information needs of patients Eur J Cancer Care (Engl) 16 2007 312
    • (2007) Eur J Cancer Care (Engl) , vol.16 , pp. 312
    • Van Der Molen, B.1
  • 45
    • 0025616883 scopus 로고
    • Reconceptualization of the uncertainty in illness theory
    • M.H. Mishel Reconceptualization of the uncertainty in illness theory Image J Nurs Sch 22 1990 256 262
    • (1990) Image J Nurs Sch , vol.22 , pp. 256-262
    • Mishel, M.H.1
  • 46
    • 84869009431 scopus 로고    scopus 로고
    • Palliative care and end of life: The caregiver
    • D.B. McGuire, M. Grant, and J. Park Palliative care and end of life: the caregiver Nurs Outlook 60 2012 351 356
    • (2012) Nurs Outlook , vol.60 , pp. 351-356
    • McGuire, D.B.1    Grant, M.2    Park, J.3


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