Participatory design in Parkinson's research with focus on the symptomatic domains to be measured

Journal of Parkinson's Disease

Volumn 5, Issue 1, 2015, Pages 187-196

  Serrano, J Artur ^a,b   Larsen, Frank ^a   Isaacs, Tom ^c   Matthews, Helen ^c   Duffen, Joy ^c   Riggare, Sara ^d   Capitanio, Fulvio ^e   Ferreira, Joaquim J ^e,f   Domingos, Josefa ^e,f   Maetzler, Walter ^g,h   Graessner, Holm ⁱ  

^a UNIVERSITY HOSPITAL OF NORTH NORWAY   (Norway)

^b UNIVERSITY OF TROMSØ   (Norway)

^c Cure Parkinson's Trust   (United Kingdom)

^d KAROLINSKA INSTITUTE   (Sweden)

^e Portal Unidos Contra El Parkinson ^*  (Portugal)

^f INSTITUTO DE MEDICINA MOLECULAR   (Portugal)

^g UNIVERSITY OF TÜBINGEN   (Germany)

^h GERMAN CENTER FOR NEURODEGENERATIVE DISEASES DZNE   (Germany)

ⁱ UNIVERSITY OF TÜBINGEN   (Germany)

Author keywords

assessment strategies; biomarkers; chronic disease management; combined methods; degenerative disease; diagnostic markers; focus group; monitoring; Parkinson's Disease (PD); participatory design; People with Parkinson's (PwPs); symptomatic domain

Indexed keywords

ADULT; AGED; ANXIETY; ARTICLE; BALANCE IMPAIRMENT; BEHAVIOR CHANGE; BRADYKINESIA; CLINICAL ASSESSMENT; CLINICAL PRACTICE; COGNITION; COLD INJURY; CONSTIPATION; CONTROLLED STUDY; DAYTIME SOMNOLENCE; DEGENERATIVE DISEASE; DELPHI STUDY; DEPRESSION; DOCTOR PATIENT RELATION; DYSKINESIA; DYSPHAGIA; DYSTONIA; EXHAUSTION; FALLING; FATIGUE; FEMALE; GAIT DISORDER; HALLUCINATION; HEALTH CARE PERSONNEL; HUMAN; HYPERSEXUALITY; HYPOKINESIA; INFORMATION PROCESSING; INTERNET; MAJOR CLINICAL STUDY; MALE; MEDICAL SOCIETY; MEMORY DISORDER; METHODOLOGY; MUSCLE RIGIDITY; OBSESSIVE COMPULSIVE DISORDER; PAIN; PARKINSON DISEASE; PARTICIPATORY RESEARCH; PATIENT MONITORING; QUALITY OF LIFE; SLEEP; SMELLING DISORDER; SPEECH DISORDER; SWEAT GLAND DISEASE; SYMPTOM; SYMPTOMATOLOGY; TREMOR; VERY ELDERLY; VISUAL DISORDER; WEIGHT GAIN; WEIGHT REDUCTION; WORKSHOP; AGE; CLINICAL TRIAL (TOPIC); HEALTH SURVEY; MIDDLE AGED; PATHOPHYSIOLOGY; STATISTICS;

ADULT; AGE FACTORS; AGED; AGED, 80 AND OVER; CLINICAL TRIALS AS TOPIC; FEMALE; FOCUS GROUPS; HEALTH SURVEYS; HUMANS; INTERNET; MALE; MIDDLE AGED; PARKINSON DISEASE; RESEARCH DESIGN; STATISTICS AS TOPIC;

EID: 84923172199     PISSN: 18777171     EISSN: 1877718X     Source Type: Journal    
DOI: 10.3233/JPD-140472     Document Type: Article

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