Changing support needs of survivors of complex critical illness and their family caregivers across the care continuum: A qualitative pilot study of Towards RECOVER

Journal of Critical Care

Volumn 30, Issue 2, 2015, Pages 242-249

  Czerwonka, Anna I ^a   Herridge, Margaret S ^b,c   Chan, Linda ^a,b   Chu, Leslie Michele ^b   Matte, Andrea ^b   Cameron, Jill I ^a,d  

^a UNIVERSITY OF TORONTO   (Canada)

^b UNIVERSITY HEALTH NETWORK   (Canada)

^c UNIVERSITY OF TORONTO   (Canada)

^d TORONTO REHABILITATION INSTITUTE   (Canada)

Author keywords

Critical illness; Family caregiver; ICU; Long term mechanical ventilation; Outcomes; Qualitative

Indexed keywords

ADULT; APACHE; ARTICLE; ARTIFICIAL VENTILATION; CAREGIVER; CAREGIVER SUPPORT; CLINICAL ARTICLE; CLINICAL PRACTICE; CONTROLLED STUDY; CONVALESCENCE; CRITICAL ILLNESS; EARLY INTERVENTION; EMOTION; FEAR; FEASIBILITY STUDY; FEMALE; HOME CARE; HOSPITAL DISCHARGE; HUMAN; INTENSIVE CARE UNIT; LENGTH OF STAY; MALE; MEDICAL CARE; MOTIVATION; OUTPATIENT CARE; PATIENT CARE; PATIENT WORRY; PILOT STUDY; QUALITATIVE ANALYSIS; SURVIVOR; FAMILY; MIDDLE AGED; NEEDS ASSESSMENT; ORGANIZATION AND MANAGEMENT; PSYCHOLOGY; QUALITATIVE RESEARCH; STANDARDS;

ADULT; CAREGIVERS; CONTINUITY OF PATIENT CARE; CRITICAL ILLNESS; FAMILY; FEMALE; HOME CARE SERVICES, HOSPITAL-BASED; HUMANS; INTENSIVE CARE UNITS; MALE; MIDDLE AGED; NEEDS ASSESSMENT; PATIENT DISCHARGE; PILOT PROJECTS; QUALITATIVE RESEARCH; SURVIVORS;

EID: 84923012714     PISSN: 08839441     EISSN: 15578615     Source Type: Journal    
DOI: 10.1016/j.jcrc.2014.10.017     Document Type: Article

References (33)

1. Lee C.M., Herridge M.S., Matte A., Cameron J.I. Education and support needs during recovery in acute respiratory distress syndrome survivors. Crit Care 2009, 13:R153-R164.
2. Sinuff T., Cook D.J., Giacomini M. How qualitative research can contribute to research in the intensive care unit. J Crit Care 2007, 22:104-111.
3. Campbell M., Fitzpatrick R., Haines A., Kinmonth A.L., Sandercock P., Spiegelhalter D., et al. Framework for design and evaluation of complex interventions to improve health. BMJ 2000, 321:694-696.
4. Field K., Prinjha S., Rowan K. "One patient amongst many": a qualitative analysis of intensive care unit patients' experiences of transferring to the general ward. Crit Care 2008, 12:R21-R30.
5. Corrigan I., Samuelson K.A., Fridlund B., Thome B. The meaning of posttraumatic stress-reactions following critical illness or injury and intensive care treatment. Intensive Crit Care Nurs 2007, 23:206-215.
6. Prinjha S., Field K., Rowan K. What patients think about ICU follow-up services: a qualitative study. Crit Care 2009, 13:R46-R56.
7. Jamerson P.A., Scheibmeir M., Bott M.J., Crighton F., Hinton R.H., Cobb A.K. The experiences of families with a relative in the intensive care unit. Heart Lung 1996, 25:467-474.
8. Kutash M., Northrop L. Family members' experiences of the intensive care unit waiting room. J Adv Nurs 2007, 60:384-388.
9. Eggenberger S.K., Nelms T.P. Being family: the family experience when an adult member is hospitalized with a critical illness. J Clin Nurs 2007, 16:1618-1628.
10. Nelson J.E., Kinjo K., Meier D.E., Ahmad K., Morrison R.S. When critical illness becomes chronic: informational needs of patients and families. J Crit Care 2005, 20:79-89.
11. Cypress B.S. The intensive care unit: experiences of patients, families, and their nurses. Dimens Crit Care Nurs 2010, 29:94-101.
12. Chiang V.C. Surviving a critical illness through mutually being there with each other: a grounded theory study. Intensive Crit Care Nurs 2011, 27:317-330.
13. Cox C.E., Docherty S.L., Brandon D.H., Whaley C., Attix D.K., Clay A.S., et al. Surviving critical illness: acute respiratory distress syndrome as experienced by patients and their caregivers. Crit Care Med 2009, 37:2702-2708.
14. Cameron J.I., Gignac M.A. "Timing It Right": a conceptual framework for addressing the support needs of family caregivers to stroke survivors from the hospital to the home. Patient Educ Couns 2008, 70:305-314.
15. Cohen S., Underwood L.G., Gottlieb B.H. Social support measurement and intervention 2000, Oxford University Press, New York.
16. Novick G. Is there a bias against telephone interviews in qualitative research?. Res Nurs Health 2008, 31(4):391-398. [Wiley Subscription Services, Inc., A Wiley Company, Wiley Subscription Services, Inc., A Wiley Company].
17. Sturges J.E., Hanrahan K.J. Comparing telephone and face-to-face qualitative interviewing: a research note. Qual Res 2004, 4(1):107-118. [4-1].
18. Rabiee F. Focus-group interview and data analysis. Proc Nutr Soc 2004, 63:655-660.
19. Ritchie J., Spencer L. Qualitative data analysis for applied policy research. Analyzing qualitative data 1994, 173-194. Routledge, New York. A. Bryman, R.G. Burgess (Eds.).
20. McReynolds C.J., Koch L.C., Rumrill P.D. Qualitative research strategies in rehabilitation. Work 2001, 16:57-65.
21. Giacomini M.K., Cook D.J. Users' guides to the medical literature: XXIII. Qualitative research in health care A. Are the results of the study valid? Evidence-Based Medicine Working Group. JAMA 2000, 284:357-362.
22. NVivo qualitative data analysis software. [2.0] 2002, QSR International Pty Ltd.
23. Campbell N.C., Murray E., Darbyshire J., Emery J., Farmer A., Griffiths F., et al. Designing and evaluating complex interventions to improve health care. BMJ 2007, 334:455-459.
24. Azoulay E., Pochard F., Chevret S., Lemaire F., Mokhtari M., Le G., et al. Meeting the needs of intensive care unit patient families: a multicenter study. Am J Respir Crit Care Med 2001, 163:135-139.
25. Coyle M.A. Transfer anxiety: preparing to leave intensive care. Intensive Crit Care Nurs 2001, 17:138-143.
26. Mitchell M.L., Courtney M., Coyer F. Understanding uncertainty and minimizing families' anxiety at the time of transfer from intensive care. Nurs Health Sci 2003, 5:207-217.
27. Chaboyer W. Intensive care and beyond: improving the transitional experiences for critically ill patients and their families. Intensive Crit Care Nurs 2006, 22:187-193.
28. Adhikari N.K., Tansey C.M., McAndrews M.P., Matte A., Pinto R., Cheung A.M., et al. Self-reported depressive symptoms and memory complaints in survivors five years after ARDS. Chest 2011, 140:1484-1493.
29. Bienvenu O.J., Colantuoni E., Mendez-Tellez P.A., Dinglas V.D., Shanholtz C., Husain N., et al. Depressive symptoms and impaired physical function after acute lung injury: a 2-year longitudinal study. Am J Respir Crit Care Med 2012, 185:517-524.
30. Davidson J.E., Jones C., Bienvenu O.J. Family response to critical illness: postintensive care syndrome-family. Crit Care Med 2012, 40:618-624.
31. Daly B.J., Douglas S.L., Kelley C.G., O'toole E., Montenegro H. Trial of a disease management program to reduce hospital readmissions of the chronically critically ill. Chest 2005, 128:507-517.
32. Douglas S.L., Daly B.J., Kelley C.G., O'toole E., Montenegro H. Impact of a disease management program upon caregivers of chronically critically ill patients. Chest 2005, 128:3925-3936.
33. Rosland A.M., Heisler M., Piette J.D. The impact of family behaviors and communication patterns on chronic illness outcomes: a systematic review. J Behav Med 2012, 35:221-239.