Long-term health-related quality of life after complex and/or complicated esophageal atresia in adults and children registered in a German patient support group

Journal of Pediatric Surgery

Volumn 49, Issue 4, 2014, Pages 631-638

  Dingemann, Carmen ^a   Meyer, Annica ^a   Kircher, Gabriele ^b   Boemers, Thomas M ^b   Vaske, Bernhard ^a   Till, Holger ^c   Ure, Benno M ^a  

^a HANNOVER MEDICAL SCHOOL   (Germany)

^b German Support Group for Patients with Diseased Esophagus KEKS ^*  (Germany)

^c MEDICAL UNIVERSITY OF GRAZ   (Austria)

Author keywords

Children; Complicated esophageal atresia; Patient support group; Quality of life; Questionnaires; Symptoms

Indexed keywords

ANASTOMOSIS; ARTICLE; CHILD; CONTROLLED STUDY; DATA BASE; ESOPHAGUS ATRESIA; FEMALE; FOLLOW UP; GASTROINTESTINAL TRACT FUNCTION; HUMAN; MAJOR CLINICAL STUDY; MALE; MORBIDITY; MULTICENTER STUDY (TOPIC); PRIORITY JOURNAL; QUALITY OF LIFE; SCHOOL CHILD; SUPPORT GROUP; WELLBEING; ADULT; AGE; CASE CONTROL STUDY; COMPLICATION; ESOPHAGEAL ATRESIA; ESOPHAGUS RECONSTRUCTION; EVALUATION STUDY; GERMANY; PRESCHOOL CHILD; PROCEDURES; QUESTIONNAIRE; REGISTER; REOPERATION; SELF HELP; TREATMENT OUTCOME;

ADULT; AGE FACTORS; ANASTOMOSIS, SURGICAL; CASE-CONTROL STUDIES; CHILD; CHILD, PRESCHOOL; ESOPHAGEAL ATRESIA; ESOPHAGOPLASTY; FEMALE; FOLLOW-UP STUDIES; GERMANY; HUMANS; MALE; QUALITY OF LIFE; QUESTIONNAIRES; REGISTRIES; REOPERATION; SELF-HELP GROUPS; TREATMENT OUTCOME;

EID: 84921981775     PISSN: 00223468     EISSN: 15315037     Source Type: Journal    
DOI: 10.1016/j.jpedsurg.2013.11.068     Document Type: Article

References (43)

1. F. Friedmacher, and P. Puri Delayed primary anastomosis for management of long-gap esophageal atresia: a meta-analysis of complications and long-term outcome Pediatr Surg Int 28 2012 899 906
2. O. Ron, P. De Coppi, and A. Pierro The surgical approach to esophageal atresia repair and the management of long-gap atresia: results of a survey Semin Pediatr Surg 18 2009 44 49
3. N.A. Myers Oesophageal atresia: the epitome of modern surgery Ann R Coll Surg Engl 54 1974 277 287
4. K.D. Anderson, H. Noblett, and R. Belsey et al. Long-term follow-up of children with colon and gastric tube interposition for esophageal atresia Surgery 111 1992 131 136
5. A.J. Holland, O. Ron, and A. Pierro et al. Surgical outcomes of esophageal atresia without fistula for 24 years at a single institution J Pediatr Surg 44 2009 1928 1932
6. L. Spitz Esophageal atresia: past, present, and future J Pediatr Surg 31 1996 19 25
7. P. Bagolan, Iacobelli Bd, and P. De Angelis et al. Long gap esophageal atresia and esophageal replacement: moving toward a separation? J Pediatr Surg 39 2004 1084 1090
8. L. Spitz, E. Kiely, and A. Pierro Gastric transposition in children - a 21-year experience J Pediatr Surg 39 2004 276 281
9. A. Zani, S. Eaton, and M.E. Hoellwarth et al. International survey on the management of esophageal atresia Eur J Pediatr Surg 24 1 2014 3 8
10. S.P. Loukogeorgakis, and A. Pierro Replacement surgery for esophageal atresia Eur J Pediatr Surg 23 2013 182 190
11. S.J. Sistonen, A. Koivusalo, and U. Nieminen et al. Esophageal morbidity and function in adults with repaired esophageal atresia with tracheoesophageal fistula: a population-based long-term follow-up Ann Surg 251 2010 1167 1173
12. A. Koivusalo, M.P. Pakarinen, and P. Turunen et al. Health-related quality of life in adult patients with esophageal atresia - a questionnaire study J Pediatr Surg 40 2005 307 312
13. J.A. Deurloo, S. Ekkelkamp, and E.E. Hartman et al. Quality of life in adult survivors of correction of esophageal atresia Arch Surg 140 2005 976 980
14. B.M. Ure, E. Slany, and E.P. Eypasch et al. Quality of life more than 20 years after repair of esophageal atresia J Pediatr Surg 33 1998 511 515
15. G. Gallo, S. Zwaveling, and H. Groen et al. Long-gap esophageal atresia: a meta-analysis of jejunal interposition, colon interposition, and gastric pull-up Eur J Pediatr Surg 22 2012 420 425
16. C. Legrand, L. Michaud, and J. Salleron et al. Long-term outcome of children with oesophageal atresia type III Arch Dis Child 97 2012 808 811
17. V. Gatzinsky, L. Jönsson, and C. Johansson et al. Dysphagia in adults operated on for esophageal atresia-use of a symptom score to evaluate correlated factors Eur J Pediatr Surg 21 2011 94 98
18. F. Schier, S. Korn, and E. Michel Experiences of a parent support group with the long-term consequences of esophageal atresia J Pediatr Surg 36 2001 605 610
19. R.J. Rintala, and M.P. Pakarinen Long-term outcome of esophageal anastomosis Eur J Pediatr Surg 23 2013 219 225
20. B.M. Ure, E. Slany, and E.P. Eypasch et al. Long-term functional results and quality of life after colon interposition for long-gap oesophageal atresia Eur J Pediatr Surg 5 1995 206 210
21. L. Ludman, and L. Spitz Quality of life after gastric transposition for oesophageal atresia J Pediatr Surg 38 2003 53 57
22. J.E. Foker, T.C. Kendall Krosch, and K. Catton et al. Long-gap esophageal atresia treated by growth induction: the biological potential and early follow-up results Semin Pediatr Surg 18 2009 23 29
23. R.A. Cowles, and A.G. Coran Gastric transposition in infants and children Pediatr Surg Int 26 2010 1129 1134 [Review]
24. J.A. Deurloo, E.C. Klinkenberg, and S. Ekkelkamp et al. Adults with corrected oesophageal atresia: is oesophageal function associated with complaints and/or quality of life? Pediatr Surg Int 24 2008 537 541
25. M.G. Peetsold, H.A. Heij, and J.A. Deurloo et al. Health-related quality of life and its determinants in children and adolescents born with oesophageal atresia Acta Paediatr 99 2010 411 417
26. E. Eypasch, H. Troidl, and S. Wood-Dauphinee et al. Quality of life and gastrointestinal surgery - a clinimetric approach to developing an instrument for its measurement Theor Surg 5 1990 3 10
27. E. Eypasch, J.I. Williams, and S. Wood-Dauphinee et al. Gastrointestinal Quality of Life Index: development, validation and application of a new instrument Br J Surg 82 1995 216 222
28. A. Forgione, J. Leroy, and R.A. Cahill et al. Prospective evaluation of functional outcome after laparoscopic sigmoid colectomy Ann Surg 249 2009 218 224
29. World Health Organization Regional Office for Europe and the International Diabetes Federation Europe Diabetes mellitus in Europe: a problem at all ages and in all countries A model for prevention and self care. Meeting Giorn Ital Diabetol 10 (suppl) 1990
30. P. Bech, C. Gudex, and K.S. Johansen The WHO (Ten) Well-Being Index: validation in diabetes Psychother Psychosom 65 1996 183 190
31. P. Bech Quality of life in the psychiatric patient 1998 Mosby-Wolfe London
32. P. Bech Male depression: stress and aggression as pathways to major depression A. Dawson, A. Tylee, Depression: social and economic timebomb 2001 BMJ Books London 63 66
33. K. Slim, J. Bousquet, and F. Kwiatkowski et al. First validation of the French version of the Gastrointestinal Quality of Life Index (GIQLI) Gastroenterol Clin Biol 23 1999 25 31
34. E. Eypasch, S. Wood-Dauphinée, and J.I. Williams et al. The Gastrointestinal Quality of Life Index. A clinical index for measuring patient status in gastroenterologic surgery Chirurg 64 1993 264 274 [German]
35. J.A. Tovar, and A.C. Fragoso Gastroesophageal reflux after repair of esophageal atresia Eur J Pediatr Surg 23 2013 Jun 175 181
36. D.J. Lafer, and S.J. Boley Primary repair in esophageal atresia with elongation of the lower segment J Pediatr Surg 1 1966 585 587
37. F. Rehbein, and N. Schweder Reconstruction of the esophagus without colon transplantation in cases of atresia J Pediatr Surg 6 1971 746 752
38. A. Livaditis, L. Rådberg, and G. Odensjö Esophageal end-to-end anastomosis. Reduction of anastomotic tension by circular myotomy Scand J Thorac Cardiovasc Surg 6 1972 206 214
39. J.E. Foker, B.C. Linden, and E.M. Boyle Jr. et al. Development of a true primary repair for the full spectrum of esophageal atresia Ann Surg 226 1997 533 541
40. M. Lacher, S. Froehlich, and D. von Schweinitz et al. Early and long term outcome in children with esophageal atresia treated over the last 22 years Klin Padiatr 222 2010 296 301
41. H. Lindahl, R. Rintala, and H. Sariola Chronic esophagitis and gastric metaplasia are frequent late complications of esophageal atresia J Pediatr Surg 28 1993 1178 1180
42. M. Davenport, G.P. Hosie, and R.C. Tasker et al. Long-term effects of gastric transposition in children: a physiological study J Pediatr Surg 31 1996 588 593
43. J.A. Deurloo, S. Ekkelkamp, and J.F. Bartelsman et al. Gastroesophageal reflux: prevalence in adults older than 28 years after correction of esophageal atresia Ann Surg 238 2003 686 689