IndividualiZed quality of life in pa tients with low back pai n: Reliability and validity of the patient generated index

Journal of Rehabilitation Medicine

Volumn 46, Issue 8, 2014, Pages 781-787

  Løchting, Ida ^a,b   Grotle, Margreth ^a,c   Storheim, Kjersti ^a,d   Werner, Erik L ^e   Garratt, Andrew M ^f  

^a OSLO UNIVERSITY HOSPITAL   (Norway)

^b Department of Clinical Medicine ^*  (Norway)

^c OSLO METROPOLITAN UNIVERSITY   (Norway)

^d UNIVERSITY OF OSLO   (Norway)

^e Regional Centre for Child and Youth Mental Health and Child Welfare Uni Health Uni Research   (Norway)

^f NORWEGIAN KNOWLEDGE CENTRE FOR THE HEALTH SERVICES   (Norway)

Author keywords

Low back pain; Quality of life; Reliability; Validity

Indexed keywords

DAILY LIFE ACTIVITY; FEMALE; HUMAN; LOW BACK PAIN; MALE; MIDDLE AGED; NORWAY; PATHOPHYSIOLOGY; PSYCHOLOGY; QUALITY OF LIFE; QUESTIONNAIRE; REPRODUCIBILITY; SICKNESS IMPACT PROFILE; VALIDATION STUDY;

ACTIVITIES OF DAILY LIVING; FEMALE; HUMANS; LOW BACK PAIN; MALE; MIDDLE AGED; NORWAY; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SICKNESS IMPACT PROFILE;

EID: 84921965831     PISSN: 16501977     EISSN: 16512081     Source Type: Journal    
DOI: 10.2340/16501977-1826     Document Type: Article

References (45)

1. Woolf AD. The bone and joint decade 2000-2010. Ann Rheum Dis 2000; 59: 81-82
2. Garratt A, Schmidt L, Mackintosh A, Fitzpatrick R. Quality of life measurement: Bibliographic study of patient assessed health outcome measures. BMJ 2002; 324: 1417
3. Garratt A. Patient reported outcome measures in trials. BMJ 2009; 338: A2597
4. Carr AJ, Higginson IJ. Are quality of life measures patient centred? BMJ 2001; 2: 1357-1360
5. Hush JM, Kamper SJ, Stanton TR, Ostelo R, Refshauge KM. Standardized measurement of recovery from nonspecific back pain. Arch Phys Med Rehabil 2012; 93: 849-855
6. Hewlett S, Carr M, Ryan S, Kirwan J, Richards P, Carr A, et al. Outcomes generated by patients with rheumatoid arthritis: how important are they? Musculoskeletal Care 2005; 3: 131-142
7. Sanderson T, Kirwan J. Patient-reported outcomes for arthritis: Time to focus on personal life impact measures? Arthritis Rheum 2009; 15: 1-3
8. Fayers PM, Machin D. Quality of life. The assessment, analysis and interpretation of patient- reported outcomes. 2nd ed. Chichester: Wiley; 2007
9. Gill TM, Feinstein AR. A critical appraisal of the quality of qualityof- life measurements. JAMA 1994; 272: 619-626
10. Dijkers MP. Individualization in quality of life measurement: instruments and approaches. Arch Phys Med Rehabil 2003; 84: S3-S14
11. Ruta DA, Garratt AM, Leng M, Russell IT, MacDonald LM. A new approach to the measurement of quality of life. The Patient- Generated Index. Med Care 1994; 32: 1109-1126
12. Garratt AM, Ruta D. The Patient Generated Index. In: O'Boyle CA, McGee H, Joyce CRB, editors. Individualised quality of life. Approaches to conceptualisation and assessment. Reading: Harwood Academic; 1999, p. 105-118
13. Calman KC. Quality of life in cancer patients - an hypothesis. J Med Ethics 1984; 10: 124-127
14. Martin F, Camfield L, Rodham K, Kliempt P, Ruta D. Twelve years' experience with the Patient Generated Index (PGI) of quality of life: A graded structured review. Qual Life Res 2007; 16: 705-715
15. Haywood KL, Garratt AM, Dziedzic K, Dawes PT. Patient centered assessment of ankylosing spondylitis-specific health related quality of life: evaluation of the Patient Generated Index. J Rheumatol 2003; 30: 764-773
16. Camfield L, Ruta D. 'Translation is not enough': using the Global Person Generated Index. Qual Life Res 2007; 16: 1039-1051
17. Tavernier SS, Totten AM, Beck SL. Assessing content validity of the patient generated index using cognitive interviews. Qual Health Res 2011; 21: 1729-1738
18. Terwee CB, Bot SD, de Boer MR, van der Windt DA, Knol DL, Dekker J, et al. Quality criteria were proposed for measurement properties of health status questionnaires. J Clin Epidemiol 2007; 60: 34-42
19. Altman DG. Practical statistics for medical research. London: Chapman & Hall; 1991
20. Lærum E, Brox JI, Storheim K. [Low Back Pain- With and without sciatica. National Clinical Guidelines.] Oslo: FORMI; 2007 (in Norwegian)
21. Tavernier SS, Beck SL, Clayton MF, Pett MA, Berry DL. Validity of the Patient Generated Index as a quality-of-life measure in Radiation Oncology. Oncol Nurs Forum 2011; 38: 319-329
22. Klokkerud M, Grotle M, Loechting I, Kjeken I, Hagen KB, Garratt AM. Psychometric properties of the Norwegian version of the Patient Genereated Index in patients with rheumatic diseases participating in rehabilitation or self-management programs. Rheumatology (Oxford) 2013; 52: 924-932
23. The EuroQol Group. EuroQol - a new facility for the measurement of health-related quality of life. Health Policy 1990; 16: 199-208
24. Solberg TK, Olsen JA, Ingebrigtsen T, Hofoss D, Nygaard Ø P. Health-related quality of life assessment by the EuroQol-5D can provide cost-utility data in the field of low-back surgery. Eur Spine J 2005; 14: 1000-1007
25. Roland M, Fairbank J. The Roland-Morris Disability Questionnaire and the Oswestry Disability Questionnaire. Spine 2000; 25: 3115-3124
26. Grotle M, Brox JI, Vollestad NK. Cross-cultural adaptation of the Norwegian versions of the Roland-Morris Disability Questionnaire and the Oswestry Disability Index. J Rehabil Med 2003; 35: 241-247
27. Derogatis LR, Lipman RS, Rickels K, Uhlenhuth EH, Covi L. The Hopkins Symptom Checklist (HSCL): A self-report symptom inventory. Behav Sci 1974; 19: 1-15
28. Hagen KB, Magnus P, Vetlesen K. Neck/shoulder and low-back disorders in the forestry industry: Relationship to work tasks and perceived psychosocial job stress. Ergonomics 1998; 41: 1510-1518
29. Haldorsen EMH, Indahl A, Ursin H. Patients with low back pain not returning to work: A 12-month follow-up study. Spine 1998; 23: 1202-1208
30. Broadbent E, Petrie KJ, Main J, Weinman J. The brief illness perception questionnaire. J Psychosom Res 2006; 60: 631-637
31. Sullivan MJL, Bishop SP, Pivik J. The Pain Catastrophizing Scale: development and validation. Psychological assessment 1995; 7: 524-532
32. Fernandes L, Storheim K, Lochting I, Grotle M. Cross-cultural adaption and validation of the Norwegian pain catastrophizing scale in patients with low back pain. BMC Musculoskelet Disord 2012; 13: 111
33. Waddell G, Newton M, Henderson I, Somerville D, Main CJ. A Fear-Avoidance Beliefs Questionnaire (FABQ) and the role of fear-avoidance beliefs in chronic low back pain and disability. Pain 1993; 52: 157-168
34. Grotle M, Brox JI, Vollestad NK. Reliability, validity and responsiveness of the fear-avoidance beliefs questionnaire: methodological aspects of the Norwegian version. J Rehabil Med 2006; 38: 346-353
35. Mokkink LB, Terwee CB, Patrick DL, Alonso J, Stratford PW, Knol DL, et al. The COSMIN checklist for assessing the methodological quality of studies on measurement properties of health status measurement instruments: An international Delphi study. Qual Life Res 2010; 19: 539-549
36. Andresen EM. Criteria for assessing the tools of disability outcomes research. Arch Phys Med Rehabil 2000; 81: S15-S20
37. Tully M, Cantrill J. The test-retest reliability of the modified Patient Generated Index. J Health Serv Res Policy 2002; 7: 81-89
38. de Vet HC, Terwee CB, Mokkink LB, Knol DL. Measurement in medicine. Cambridge: Cambridge University Press; 2011
39. Davidson M, Keating JL. A comparison of five low back pain disability questionnaires: Reliability and responsiveness. Physical Therapy 2002; 82: 8-24
40. Ruta DA, Garratt AM, Russell IT. Patient centred assessment of quality of life for patients with four common conditions. Qual Health Care 1999; 8: 22-29
41. Deyo RA, Battie M, Beurskens AJ, Bombardier C, Croft P, Koes B, et al. Outcome measures for low back pain research. A proposal for standardized use. Spine 1998; 23: 2003-2013
42. Hush JM, Refshauge K, Sullivan G, De SL, Maher CG, McAuley JH. Recovery: What does this mean to patients with low back pain? Arthritis Rheum 2009; 61: 124-131
43. Paterson C. Measuring outcomes in primary care: A patient generated measure, MYMOP, compared with the SF-36 health survey. BMJ 1996; 312: 1016-1020
44. McGee HM, O'Boyle CA, Hickey A, O'Malley K, Joyce CR. Assessing the quality of life of the individual: The SEIQoL with a health and a gastroenterology unit population. Psychol Med 1991; 21: 749-759
45. Streiner DL, Norman GR. Health measurement scales. A practical guide to their development and use. 4th ed. Oxford: Oxford University Press; 2008.