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Volumn 32, Issue 1, 2015, Pages 41-52

Instrument for scoring clinical outcome of research for epidermolysis bullosa: A consensus-generated clinical research tool

Author keywords

[No Author keywords available]

Indexed keywords

ABNORMAL LABORATORY RESULT; ARTICLE; CLINICAL ARTICLE; CLINICAL RESEARCH; CONSENSUS; CONTENT ANALYSIS; DAILY LIFE ACTIVITY; DISEASE SEVERITY; EPIDERMOLYSIS BULLOSA; EPIDERMOLYSIS BULLOSA DYSTROPHICA; EPIDERMOLYSIS BULLOSA SIMPLEX; FAMILY; HEALTH SURVEY; HUMAN; INTERNET; INTERVENTION STUDY; LEISURE; LIKERT SCALE; MOOD; MUCOSA; OUTCOME ASSESSMENT; PAIN; PHYSICIAN; PRIORITY JOURNAL; PROCEDURES; PRURITUS; QUALITATIVE ANALYSIS; SCORING SYSTEM; SKIN; SLEEP; ADULT; CHILD; CLASSIFICATION; DEVICES; EPIDERMOLYSIS BULLOSA, JUNCTIONAL; EVALUATION STUDY; FEMALE; MALE; MEDICAL RESEARCH; PATHOLOGY; PATHOPHYSIOLOGY; SEVERITY OF ILLNESS INDEX;

EID: 84921875968     PISSN: 07368046     EISSN: 15251470     Source Type: Journal    
DOI: 10.1111/pde.12317     Document Type: Article
Times cited : (27)

References (23)
  • 1
    • 43449084027 scopus 로고    scopus 로고
    • The classification of inherited epidermolysis bullosa (EB): Report of the Third International Consensus Meeting on Diagnosis and Classification of EB
    • Fine JD, Eady RA, Bauer EA, et al. The classification of inherited epidermolysis bullosa (EB): report of the Third International Consensus Meeting on Diagnosis and Classification of EB. J Am Acad Dermatol 2008; 58: 931-950.
    • (2008) J Am Acad Dermatol , vol.58 , pp. 931-950
    • Fine, J.D.1    Eady, R.A.2    Bauer, E.A.3
  • 2
    • 79954558531 scopus 로고    scopus 로고
    • Lack of plakoglobin leads to lethal congenital epidermolysis bullosa
    • Pigors M, Kiritsi D, Krümpelmann S, et al. Lack of plakoglobin leads to lethal congenital epidermolysis bullosa. Hum Mol Genet 2011; 20: 1811-1819.
    • (2011) Hum Mol Genet , vol.20 , pp. 1811-1819
    • Pigors, M.1    Kiritsi, D.2    Krümpelmann, S.3
  • 3
    • 28144445201 scopus 로고    scopus 로고
    • A homozygous missense mutation in TGM5 abolishes epidermal transglutaminase 5 activity and causes acral peeling skin syndrome
    • Cassidy AJ, van Steensel MA, Steijlen PM, et al. A homozygous missense mutation in TGM5 abolishes epidermal transglutaminase 5 activity and causes acral peeling skin syndrome. Am J Hum Genet 2005; 77: 909-917.
    • (2005) Am J Hum Genet , vol.77 , pp. 909-917
    • Cassidy, A.J.1    Van Steensel, M.A.2    Steijlen, P.M.3
  • 4
    • 84859826518 scopus 로고    scopus 로고
    • Integrin α3 mutations with kidney, lung, and skin disease
    • Has C, Spartà G, Kiritsi D, et al. Integrin α3 mutations with kidney, lung, and skin disease. N Engl J Med 2012; 366: 1508-1514.
    • (2012) N Engl J Med , vol.366 , pp. 1508-1514
    • Has, C.1    Spartà, G.2    Kiritsi, D.3
  • 5
    • 84894105730 scopus 로고    scopus 로고
    • Molecular heterogeneity of epidermolysis bullosa simplex: Contribution of EXPH5 mutations
    • Sep 4 [Epub ahead of print]. PMID: 24005056
    • Pigors M, Schwieger-Briel A, Leppert J, et al. Molecular heterogeneity of epidermolysis bullosa simplex: contribution of EXPH5 mutations. J Invest Dermatol 2013 Sep 4. doi: 10.1038/jid.2013.373 [Epub ahead of print]. PMID: 24005056
    • (2013) J Invest Dermatol
    • Pigors, M.1    Schwieger-Briel, A.2    Leppert, J.3
  • 6
    • 77952508673 scopus 로고    scopus 로고
    • Epidemiology of epidermolysis bullosa in the antipodes: The Australasian Epidermolysis Bullosa Registry with a focus on Herlitz junctional epidermolysis bullosa
    • Kho YC, Rhodes LM, Robertson S, et al. Epidemiology of epidermolysis bullosa in the antipodes: the Australasian Epidermolysis Bullosa Registry with a focus on Herlitz junctional epidermolysis bullosa. J Arch Dermatol 2010; 146: 635-640.
    • (2010) J Arch Dermatol , vol.146 , pp. 635-640
    • Kho, Y.C.1    Rhodes, L.M.2    Robertson, S.3
  • 7
    • 38549141973 scopus 로고    scopus 로고
    • Gastrointestinal complications of inherited epidermolysis bullosa: Cumulative experience of the National Epidermolysis Bullosa Registry
    • Fine JD, Johnson LB, Weiner M, et al. Gastrointestinal complications of inherited epidermolysis bullosa: cumulative experience of the National Epidermolysis Bullosa Registry. J Pediatr Gastroenterol Nutr 2008; 46: 147-158.
    • (2008) J Pediatr Gastroenterol Nutr , vol.46 , pp. 147-158
    • Fine, J.D.1    Johnson, L.B.2    Weiner, M.3
  • 8
    • 64849104735 scopus 로고    scopus 로고
    • The Birmingham Epidermolysis Bullosa Severity score: Development and validation
    • Moss C, Wong A, Davies P,. The Birmingham Epidermolysis Bullosa Severity score: development and validation. Br J Dermatol 2009; 160: 1057-1065.
    • (2009) Br J Dermatol , vol.160 , pp. 1057-1065
    • Moss, C.1    Wong, A.2    Davies, P.3
  • 9
    • 0037622121 scopus 로고    scopus 로고
    • Japanese guidelines for diagnosis and treatment of junctional and dystrophic epidermolysis bullosa
    • Tamai K, Hashimoto I, Hanada K, et al. Japanese guidelines for diagnosis and treatment of junctional and dystrophic epidermolysis bullosa. Arch Dermatol Res 2003; 295: 24-28.
    • (2003) Arch Dermatol Res , vol.295 , pp. 24-28
    • Tamai, K.1    Hashimoto, I.2    Hanada, K.3
  • 10
    • 77952931943 scopus 로고    scopus 로고
    • Determinants of awareness, initiation and maintenance of physical activity among the over-fifties: A Delphi study
    • van Stralen MM, Lechner L, Mudde AN, et al. Determinants of awareness, initiation and maintenance of physical activity among the over-fifties: a Delphi study. Health Educ Res 2010; 25: 233-247.
    • (2010) Health Educ Res , vol.25 , pp. 233-247
    • Van Stralen, M.M.1    Lechner, L.2    Mudde, A.N.3
  • 11
    • 84986065181 scopus 로고    scopus 로고
    • The Delphi method and health research
    • Meyrick D,. The Delphi method and health research. Health Educ 2003; 103: 7-16.
    • (2003) Health Educ , vol.103 , pp. 7-16
    • Meyrick, D.1
  • 12
    • 0034303001 scopus 로고    scopus 로고
    • Research guidelines for the Delphi survey technique
    • Hasson F, Keeney S, McKenna H,. Research guidelines for the Delphi survey technique. J Adv Nurs 2000; 32: 1008-1015.
    • (2000) J Adv Nurs , vol.32 , pp. 1008-1015
    • Hasson, F.1    Keeney, S.2    McKenna, H.3
  • 14
    • 0001859044 scopus 로고
    • A technique for the measurement of attitudes
    • Likert R,. A technique for the measurement of attitudes. Arch Psychol 1932; 140: 1-55.
    • (1932) Arch Psychol , vol.140 , pp. 1-55
    • Likert, R.1
  • 15
    • 78649906763 scopus 로고    scopus 로고
    • Likert scales, levels of measurement and the "laws" of statistics
    • Norman G,. Likert scales, levels of measurement and the "laws" of statistics. Adv Health Sci Educ 2010; 15: 625-632.
    • (2010) Adv Health Sci Educ , vol.15 , pp. 625-632
    • Norman, G.1
  • 16
    • 56649084868 scopus 로고    scopus 로고
    • Resolving the 50-year debate around using and misusing Likert scales
    • Carifio J, Perla R,. Resolving the 50-year debate around using and misusing Likert scales. Med Educ 2008; 42: 1150-1152.
    • (2008) Med Educ , vol.42 , pp. 1150-1152
    • Carifio, J.1    Perla, R.2
  • 17
    • 10644233945 scopus 로고    scopus 로고
    • Likert scales: How to (ab)use them
    • Jamieson S,. Likert scales: how to (ab)use them. Med Educ 2004; 38: 1217-1218.
    • (2004) Med Educ , vol.38 , pp. 1217-1218
    • Jamieson, S.1
  • 18
    • 27844518793 scopus 로고    scopus 로고
    • Three approaches to qualitative content analysis
    • Hsieh HF, Shannon SE,. Three approaches to qualitative content analysis. Qual Health Res 2005; 15: 1277-1288.
    • (2005) Qual Health Res , vol.15 , pp. 1277-1288
    • Hsieh, H.F.1    Shannon, S.E.2
  • 19
    • 70349323600 scopus 로고    scopus 로고
    • Quality of life in patients with epidermolysis bullosa
    • Tabolli S, Sampogna F, Di Pietro C, et al. Quality of life in patients with epidermolysis bullosa. Br J Dermatol 2009; 161: 869-877.
    • (2009) Br J Dermatol , vol.161 , pp. 869-877
    • Tabolli, S.1    Sampogna, F.2    Di Pietro, C.3
  • 20
    • 0347124793 scopus 로고    scopus 로고
    • Assessing response rates and nonresponse bias in Web and paper surveys
    • Sax LJ, Gilmartin SK, Bryant AN,. Assessing response rates and nonresponse bias in Web and paper surveys. Res Higher Educ 2003; 44: 409-432.
    • (2003) Res Higher Educ , vol.44 , pp. 409-432
    • Sax, L.J.1    Gilmartin, S.K.2    Bryant, A.N.3
  • 21
    • 0034339676 scopus 로고    scopus 로고
    • A meta-analysis of response rates in Web- or Internet-based surveys
    • Cook C, Heath F, Thompson RL,. A meta-analysis of response rates in Web- or Internet-based surveys. Educ Psychol Meas 2000; 60: 821-836.
    • (2000) Educ Psychol Meas , vol.60 , pp. 821-836
    • Cook, C.1    Heath, F.2    Thompson, R.L.3
  • 22
    • 41949104360 scopus 로고    scopus 로고
    • Main problems experienced by children with epidermolysis bullosa: A qualitative study with semi-structured interviews
    • van Scheppingen C, Lettinga AT, Duipmans JC, et al. Main problems experienced by children with epidermolysis bullosa: a qualitative study with semi-structured interviews. Acta Derm Venereol 2008; 88: 143-150.
    • (2008) Acta Derm Venereol , vol.88 , pp. 143-150
    • Van Scheppingen, C.1    Lettinga, A.T.2    Duipmans, J.C.3
  • 23
    • 0036454780 scopus 로고    scopus 로고
    • Quality of life in epidermolysis bullosa
    • Horn HM, Tidman MJ,. Quality of life in epidermolysis bullosa. Clin Exp Dermatol 2002; 27: 707-710.
    • (2002) Clin Exp Dermatol , vol.27 , pp. 707-710
    • Horn, H.M.1    Tidman, M.J.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.