What do relatives experience when supporting someone in early psychosis?

Psychology and Psychotherapy: Theory, Research and Practice

Volumn 88, Issue 1, 2015, Pages 105-119

  Wainwright, Laura D ^a   Glentworth, David ^b   Haddock, Gillian ^c   Bentley, Ros ^d   Lobban, Fiona ^a  

^a LANCASTER UNIVERSITY   (United Kingdom)

^b GREATER MANCHESTER MENTAL HEALTH NHS FOUNDATION TRUST   (United Kingdom)

^c UNIVERSITY OF MANCHESTER   (United Kingdom)

^d Preston Therapy Centre   (United Kingdom)

Author keywords

Caregivers caregiving; caregiving; early intervention; families; focus groups; mental health and illness; psychosis; qualitative analysis; Relatives; schizophrenia

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; ATTITUDE TO HEALTH; CAREGIVER; FAMILY; HUMAN; HUMAN RELATION; INFORMATION PROCESSING; MENTAL HEALTH SERVICE; NURSING; PSYCHOLOGY; PSYCHOSIS; STANDARDS;

ADAPTATION, PSYCHOLOGICAL; ADULT; CAREGIVERS; FAMILY; FOCUS GROUPS; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; MENTAL HEALTH SERVICES; PROFESSIONAL-FAMILY RELATIONS; PSYCHOTIC DISORDERS;

EID: 84921832794     PISSN: 14760835     EISSN: 20448341     Source Type: Journal    
DOI: 10.1111/papt.12024     Document Type: Article

References (31)

1. Addington, J., Coldham, E. L., Jones, B., Ko, T., &, Addington, D., (2003). The first episode of psychosis: The experience of relatives. Acta Psychiatrica Scandinavica, 108 (4), 285-289.
2. Barker, T., Lavender, N., &, Morant, S., (2001). Client and family narratives on schizophrenia. Journal of Mental Health, 10 (2), 199-212. doi: 10.1080/09638230123705
3. Baronet, A. M., (1999). Factors associated with caregiver burden in mental illness: A critical review of the research literature. Clinical Psychology Review, 19 (7), 819-841.
4. Barrowclough, C., &, Parle, M., (1997). Appraisal, psychological adjustment and expressed emotion in relatives of patients suffering from schizophrenia. The British Journal of Psychiatry, 171, 26-30. doi: 10.1192/bjp.171.1.26
5. Benzies, C., Butcher, G., &, Linton, T., (2009). The cool approach. In, F. Lobban, &, C. Barrowclough, (Eds.), A casebook of family interventions for psychosis (pp. 339-354). Chichester, UK: Wiley-Blackwell.
6. Bird, V., Premkumar, P., Kendall, T., Whittington, C., Mitchell, J., &, Kuipers, E., (2010). Early intervention services, cognitive-behavioural therapy and family intervention in early psychosis: Systematic review. British Journal of Psychiatry, 197 (5), 350-356.
7. Braun, V., &, Clarke, V., (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3 (2), 77-101. doi: 10.1191/1478088706qp063oa
8. Department of Health. (2006). Sharing mental health information with carers: Pointers to good practice for service providers, continuity of care briefing paper. London, UK: Author.
9. Department of Health. (2008a). Carers at the heart of 21st-century families and communities. London, UK: The Author.
10. Department of Health. (2008b). Refocusing the care programme approach: Policy and positive practice guidance. London, UK: The Author.
11. Fadden, G., (2006). Training and disseminating family interventions for schizophrenia: Developing family intervention skills with multi-disciplinary groups. Journal of Family Therapy, 28 (1), 23-38. doi: 10.1111/j.1467-6427.2006.00335.x
12. Fadden, G., Bebbington, P., &, Kuipers, L., (1987). The burden of care: The impact of functional psychiatric-illness on the patients family. British Journal of Psychiatry, 150, 285-292.
13. Jones, K., (2009). Addressing the needs of carers during early psychosis. Early Intervention in Psychiatry, 3, S22-S26. doi: 10.1111/j.1751-7893.2009.00127.x
14. Lobban, F., &, Barrowclough, C., (Eds.) (2009). A casebook of family interventions for psychosis. Retrieved from: http://www.Wiley.com
15. Lobban, F., Glentworth, D., Chapman, L., Wainwright, L., Postlethwaite, A., Dunn, G.,..., Haddock, G,. (2013). Feasibility of a supported self-management intervention for relatives of people with recent onset psychosis: REACT study. British Journal of Psychiatry, 203, 366-372. doi: 10.1192/bjp.bp.112.113613
16. Lobban, F., Glentworth, D., Haddock, G., Wainwright, L., Clancy, A., Bentley, R., & The REACT Team. (2011). The views of relatives of young people with psychosis on how to design a Relatives Education And Coping Toolkit (REACT). Journal of Mental Health, 20, 567-579. doi: 10.3109/09638237.2011.593592
17. Lobban, F., Glentworth, D., Wainwright, L., Pinfold, V., Chapman, L., Larkin, W.,..., Haddock, G,. (2011). Relatives Education And Coping Toolkit-REACT. Study protocol of a randomised controlled trial to assess the feasibility and effectiveness of a supported self management package for relatives of people with recent onset psychosis. BMC Psychiatry, 11, 100. doi: 10.1186/1471-244X-11-100
18. Lobban, F., Postlethwaite, A., Glentworth, D., Pinfold, V., Wainwright, L., Dunn, G.,..., Haddock, G., (2013). A systematic review of randomised controlled trials of interventions reporting outcomes for relatives of people with psychosis. Clinical Psychology Review, 33 (3), 372-382. doi: 10.1016/j.cpr.2012.12.004
19. Lowyck, B., De Hert, M., Peeters, E., Wampers, A., Gilis, P., &, Peuskens, J., (2004). A study of the family burden of 150 family members of schizophrenic patients. European Psychiatry, 19, 395-401.
20. MacCarthy, B., Lesage, A., Brewin, C. R., Brugha, T. S., Mangen, S., &, Wing, J. K., (1989). Needs for care among the relatives of long-term users of day-care: A report from the camberwell high contact survey. Psychological Medicine, 19, 725-736.
21. Martens, L., &, Addington, J., (2001). The psychological well-being of family members of individuals with schizophrenia. Social Psychiatry and Psychiatric Epidemiology, 36 (3), 128-133.
22. Mental Health Network. (2011). Early intervention in psychosis services, Briefing, Vol. 219. London, UK: NHS Confederation.
23. NICE. (2009). Core interventions in the treatment and management of schizophrenia in adults in primary and secondary care (update). London, UK: The Author.
24. Pharoah, F., Mari, J., Rathbone, J., &, Wong, W., (2010). Family Intervention for Schizophrenia. Cochrane Database of Systematic Reviews, 12, 1-108. doi: 10.1002/14651858.CD000088.pub2
25. Rose, L., Mallinson, R. K., &, Walton-Moss, B., (2002). A grounded theory of families responding to mental illness. Western Journal of Nursing Research, 24, 516-536.
26. Rossberg, J. I., Johannessen, J. O., Klungsoyr, O., Opjordsmoen, S., Evensen, J., Fjell, A.,..., McGlashan, T., (2010). Are multi family groups appropriate for patients with first episode psychosis? A 5-year naturalistic follow-up study. Acta Psychiatrica Scandinavica, 122, 384-394. doi: 10.1111/j.1600-0447.2010.01571.x
27. Sin, J., Moone, N., &, Wellman, N., (2005). Developing services for the carers of young adults with early-onset psychosis-Listening to their experiences and needs. Journal of Psychiatric and Mental Health Nursing, 12, 589-597.
28. Szmukler, G., Burgess, P., Herrman, H., Benson, A., Colusa, S., &, Bloch, S., (1996). Caring for relatives with serious mental illness: The development of the experience of caregiving inventory. Social Psychiatry and Psychiatric Epidemiology, 31, 137-148.
29. Tennakoon, L., Fannon, D., Doku, V., O'Ceallaigh, S., Soni, W., Santamaria, M.,..., Sharma, T., (2000). Experience of caregiving: Relatives of people experiencing a first episode of psychosis. British Journal of Psychiatry, 177, 529-533.
30. Time to Change. (2008 -Present). Time to change: Let's end mental health discrimination. London, UK: The Author.
31. Willig, C., (2001). Qualitative Research Design. In, C. Willing, (Ed.), Introducing qualitative research in psychology: Adventures in theory and method (pp. 15-31). Buckingham, UK: Open University.