메뉴 건너뛰기




Volumn 21, Issue 1, 2015, Pages 64-70

Adherence to prophylaxis is associated with better outcomes in moderate and severe haemophilia: Results of a patient survey

Author keywords

Adherence; Health related quality of life; Prophylaxis

Indexed keywords

ADULT; ARTICLE; AUSTRALIA; CANADA; CHILD; HEALTH SURVEY; HEMOPHILIA A; HEMOPHILIA B; HUMAN; MAJOR CLINICAL STUDY; MALE; MEDICATION COMPLIANCE; OUTCOME ASSESSMENT; PREVALENCE; PRIORITY JOURNAL; PROPHYLAXIS; QUALITY OF LIFE; SELF REPORT; SHORT FORM 10; SHORT FORM 12; SHORT FORM 6D; SUBSTITUTION THERAPY; UNITED STATES; CLINICAL TRIAL; INFORMATION PROCESSING; MULTICENTER STUDY; QUESTIONNAIRE; STATISTICS AND NUMERICAL DATA; TREATMENT OUTCOME;

EID: 84921609238     PISSN: 13518216     EISSN: 13652516     Source Type: Journal    
DOI: 10.1111/hae.12533     Document Type: Article
Times cited : (61)

References (29)
  • 1
    • 84860776846 scopus 로고    scopus 로고
    • Treatment of hemophilia: a review of current advances and ongoing issues
    • Coppola A, Di Capua M, Di Minno MN et al. Treatment of hemophilia: a review of current advances and ongoing issues. J Blood Med 2010; 1: 183-95.
    • (2010) J Blood Med , vol.1 , pp. 183-195
    • Coppola, A.1    Di, C.M.2    Di Minno, M.N.3
  • 2
    • 63049116835 scopus 로고    scopus 로고
    • Oral and general health-related quality of life among young patients with haemophilia
    • Alpkilic Baskirt E, Ak G, Zulfikar B. Oral and general health-related quality of life among young patients with haemophilia. Haemophilia 2009; 15: 193-8.
    • (2009) Haemophilia , vol.15 , pp. 193-198
    • Alpkilic Baskirt, E.1    Ak, G.2    Zulfikar, B.3
  • 3
    • 0014712689 scopus 로고
    • Our experience in Sweden with prophylaxis on haemophilia A
    • Nilsson IM, Blomback M, Ahlberg A. Our experience in Sweden with prophylaxis on haemophilia A. Bibl Haematol 1970; 34: 111-24.
    • (1970) Bibl Haematol , vol.34 , pp. 111-124
    • Nilsson, I.M.1    Blomback, M.2    Ahlberg, A.3
  • 4
    • 0141955858 scopus 로고    scopus 로고
    • Practice patterns in haemophilia A therapy-a survey of treatment centres in the United States
    • Butler RB, McClure W, Wulff K. Practice patterns in haemophilia A therapy-a survey of treatment centres in the United States. Haemophilia 2003; 9: 549-54.
    • (2003) Haemophilia , vol.9 , pp. 549-554
    • Butler, R.B.1    McClure, W.2    Wulff, K.3
  • 5
    • 56649103608 scopus 로고    scopus 로고
    • Primary prophylaxis in children with haemophilia
    • Coppola A, Di Capua M, De Simone C. Primary prophylaxis in children with haemophilia. Blood Transfus 2008; 6(Suppl 2): s4-11.
    • (2008) Blood Transfus , vol.6 , pp. s4-11
    • Coppola, A.1    Di Capua, M.2    De Simone, C.3
  • 6
    • 84857019132 scopus 로고    scopus 로고
    • Prophylaxis in children with hemophilia: evidence-based achievements, old and new challenges
    • Coppola A, Tagliaferri A, Di Capua M, Franchini M. Prophylaxis in children with hemophilia: evidence-based achievements, old and new challenges. Semin Thromb Hemost 2012; 38: 79-94.
    • (2012) Semin Thromb Hemost , vol.38 , pp. 79-94
    • Coppola, A.1    Tagliaferri, A.2    Di Capua, M.3    Franchini, M.4
  • 7
    • 84858290843 scopus 로고    scopus 로고
    • Lifelong prophylaxis in a large cohort of adult patients with severe haemophilia: a beneficial effect on orthopaedic outcome and quality of life
    • Khawaji M, Astermark J, Berntorp E. Lifelong prophylaxis in a large cohort of adult patients with severe haemophilia: a beneficial effect on orthopaedic outcome and quality of life. Eur J Haematol 2012; 88: 329-35.
    • (2012) Eur J Haematol , vol.88 , pp. 329-335
    • Khawaji, M.1    Astermark, J.2    Berntorp, E.3
  • 8
    • 84879460680 scopus 로고    scopus 로고
    • Patient-reported outcomes of 182 adults with severe haemophilia in Germany comparing prophylactic vs. on-demand replacement therapy
    • Mondorf W, Kalnins W, Klamroth R. Patient-reported outcomes of 182 adults with severe haemophilia in Germany comparing prophylactic vs. on-demand replacement therapy. Haemophilia 2013; 19: 558-63.
    • (2013) Haemophilia , vol.19 , pp. 558-563
    • Mondorf, W.1    Kalnins, W.2    Klamroth, R.3
  • 9
    • 0036210038 scopus 로고    scopus 로고
    • Clinical outcomes and resource utilization associated with haemophilia care in Europe
    • Schramm W, Royal S, Kroner B et al. Clinical outcomes and resource utilization associated with haemophilia care in Europe. Haemophilia 2002; 8: 33-43.
    • (2002) Haemophilia , vol.8 , pp. 33-43
    • Schramm, W.1    Royal, S.2    Kroner, B.3
  • 10
    • 79951985004 scopus 로고    scopus 로고
    • Secondary prophylaxis treatment versus on-demand treatment for patients with severe haemophilia A: comparisons of cost and outcomes in Taiwan
    • Liou WS, Tu TC, Cheng SN et al. Secondary prophylaxis treatment versus on-demand treatment for patients with severe haemophilia A: comparisons of cost and outcomes in Taiwan. Haemophilia 2011; 17: 45-54.
    • (2011) Haemophilia , vol.17 , pp. 45-54
    • Liou, W.S.1    Tu, T.C.2    Cheng, S.N.3
  • 11
    • 84876198379 scopus 로고    scopus 로고
    • The effect of secondary prophylaxis versus episodic treatment on the range of motion of target joints in patients with haemophilia
    • Gupta S, Siddiqi AE, Soucie JM et al. The effect of secondary prophylaxis versus episodic treatment on the range of motion of target joints in patients with haemophilia. Br J Haematol 2013; 161: 424-33.
    • (2013) Br J Haematol , vol.161 , pp. 424-433
    • Gupta, S.1    Siddiqi, A.E.2    Soucie, J.M.3
  • 12
    • 34547757915 scopus 로고    scopus 로고
    • Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia
    • Manco-Johnson MJ, Abshire TC, Shapiro AD et al. Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia. N Engl J Med 2007; 357: 535-44.
    • (2007) N Engl J Med , vol.357 , pp. 535-544
    • Manco-Johnson, M.J.1    Abshire, T.C.2    Shapiro, A.D.3
  • 13
    • 70449562279 scopus 로고    scopus 로고
    • Joint outcomes in patients with haemophilia: the importance of adherence to preventive regimens
    • Berntorp E. Joint outcomes in patients with haemophilia: the importance of adherence to preventive regimens. Haemophilia 2009; 15: 1219-27.
    • (2009) Haemophilia , vol.15 , pp. 1219-1227
    • Berntorp, E.1
  • 14
    • 59849093369 scopus 로고    scopus 로고
    • Break-through bleeding in relation to predicted factor VIII levels in patients receiving prophylactic treatment for severe hemophilia A
    • Collins PW, Blanchette VS, Fischer K et al. Break-through bleeding in relation to predicted factor VIII levels in patients receiving prophylactic treatment for severe hemophilia A. J Thromb Haemost 2009; 7: 413-20.
    • (2009) J Thromb Haemost , vol.7 , pp. 413-420
    • Collins, P.W.1    Blanchette, V.S.2    Fischer, K.3
  • 15
    • 77950240992 scopus 로고    scopus 로고
    • VERITAS-Pro: a new measure of adherence to prophylactic regimens in haemophilia
    • Duncan N, Kronenberger W, Roberson C, Shapiro A. VERITAS-Pro: a new measure of adherence to prophylactic regimens in haemophilia. Haemophilia 2010; 16: 247-55.
    • (2010) Haemophilia , vol.16 , pp. 247-255
    • Duncan, N.1    Kronenberger, W.2    Roberson, C.3    Shapiro, A.4
  • 16
    • 84865558828 scopus 로고    scopus 로고
    • Treatment patterns, health-related quality of life and adherence to prophylaxis among haemophilia A patients in the United States
    • Duncan N, Shapiro A, Ye X, Epstein J, Luo MP. Treatment patterns, health-related quality of life and adherence to prophylaxis among haemophilia A patients in the United States. Haemophilia 2012; 18: 760-5.
    • (2012) Haemophilia , vol.18 , pp. 760-765
    • Duncan, N.1    Shapiro, A.2    Ye, X.3    Epstein, J.4    Luo, M.P.5
  • 17
    • 84904742068 scopus 로고    scopus 로고
    • Better adherence to prescribed treatment regimen is related to less chronic pain among adolescents and young adults with moderate or severe haemophilia
    • McLaughlin JM, Witkop ML, Lambing A, Anderson TL, Munn J, Tortella B. Better adherence to prescribed treatment regimen is related to less chronic pain among adolescents and young adults with moderate or severe haemophilia. Haemophilia 2014; 20: 506-12.
    • (2014) Haemophilia , vol.20 , pp. 506-512
    • McLaughlin, J.M.1    Witkop, M.L.2    Lambing, A.3    Anderson, T.L.4    Munn, J.5    Tortella, B.6
  • 20
    • 5444246327 scopus 로고    scopus 로고
    • Half standard deviation estimate of the minimally important difference in HRQOL scores?
    • Farivar SS, Liu H, Hays RD. Half standard deviation estimate of the minimally important difference in HRQOL scores? Expert Rev Pharmacoecon Outcomes Res 2004; 4: 515-23.
    • (2004) Expert Rev Pharmacoecon Outcomes Res , vol.4 , pp. 515-523
    • Farivar, S.S.1    Liu, H.2    Hays, R.D.3
  • 21
    • 20544476950 scopus 로고    scopus 로고
    • Comparison of the minimally important difference for two health state utility measures: EQ-5D and SF-6D
    • Walters SJ, Brazier JE. Comparison of the minimally important difference for two health state utility measures: EQ-5D and SF-6D. Qual Life Res 2005; 14: 1523-32.
    • (2005) Qual Life Res , vol.14 , pp. 1523-1532
    • Walters, S.J.1    Brazier, J.E.2
  • 23
    • 44249085317 scopus 로고    scopus 로고
    • Internal and external determinants of bleeding patterns on prophylaxis for severe haemophilia A
    • Abstract)
    • Fischer K, Collins P, Astermark J et al. Internal and external determinants of bleeding patterns on prophylaxis for severe haemophilia A. Blood 2007; 110: 1145. (Abstract)
    • (2007) Blood , vol.110 , pp. 1145
    • Fischer, K.1    Collins, P.2    Astermark, J.3
  • 24
    • 69849098585 scopus 로고    scopus 로고
    • Effect of medication dosing frequency on adheremce in chronic diseases
    • Saini SD, Schoenfeld P, Kaulback K, Dubinsky MC. Effect of medication dosing frequency on adheremce in chronic diseases. Am J Manag Care 2009; 15: e22-33.
    • (2009) Am J Manag Care , vol.15 , pp. e22-e33
    • Saini, S.D.1    Schoenfeld, P.2    Kaulback, K.3    Dubinsky, M.C.4
  • 25
    • 21344464904 scopus 로고    scopus 로고
    • Effect of dosing frequency on bisphosphonate medication adherence in a large longitudinal cohort of women
    • Recker RR, Gallagher R, MacCosbe PE. Effect of dosing frequency on bisphosphonate medication adherence in a large longitudinal cohort of women. Mayo Clin Proc 2005; 80: 856-61.
    • (2005) Mayo Clin Proc , vol.80 , pp. 856-861
    • Recker, R.R.1    Gallagher, R.2    MacCosbe, P.E.3
  • 26
    • 84893123337 scopus 로고    scopus 로고
    • Phase 3 study of recombinant factor VIII fusion protein in severe hemophilia A
    • Mahlangu J, Powell JS, Ragni MV et al. Phase 3 study of recombinant factor VIII fusion protein in severe hemophilia A. Blood 123: 317-325.
    • Blood , vol.123 , pp. 317-325
    • Mahlangu, J.1    Powell, J.S.2    Ragni, M.V.3
  • 27
    • 84867159931 scopus 로고    scopus 로고
    • Communication during pediatric asthma visits and self-reported asthma medication adherence
    • Sleath B, Carpenter DM, Slota C et al. Communication during pediatric asthma visits and self-reported asthma medication adherence. Pediatrics 2012; 130: 627-33.
    • (2012) Pediatrics , vol.130 , pp. 627-633
    • Sleath, B.1    Carpenter, D.M.2    Slota, C.3
  • 28
    • 67650308856 scopus 로고    scopus 로고
    • Medication adherence in the MTA: saliva methylphenidate samples versus parent report and mediating effect of concomitant behavioral treatment
    • Pappadopulos E, Jensen PS, Chait AR et al. Medication adherence in the MTA: saliva methylphenidate samples versus parent report and mediating effect of concomitant behavioral treatment. J Am Acad Child Adolesc Psychiatry 2009; 48: 501-10.
    • (2009) J Am Acad Child Adolesc Psychiatry , vol.48 , pp. 501-510
    • Pappadopulos, E.1    Jensen, P.S.2    Chait, A.R.3
  • 29
    • 84881519452 scopus 로고    scopus 로고
    • Development of long-acting recombinant FVIII and FIX Fc fusion proteins for the management of hemophilia
    • Shapiro A. Development of long-acting recombinant FVIII and FIX Fc fusion proteins for the management of hemophilia. Expert Opin Biol Ther 2013; 13: 1287-97.
    • (2013) Expert Opin Biol Ther , vol.13 , pp. 1287-1297
    • Shapiro, A.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.