Social and Healthcare Professionals' Experiences of Giving Support to Families Where the Mother Has an Intellectual Disability: Focus on Children

Journal of Policy and Practice in Intellectual Disabilities

Volumn 11, Issue 4, 2014, Pages 293-301

  Weiber, Ingrid ^a   Tengland, Per Anders ^b   Berglund, Johan ^a   Eklund, Mona ^c  

^a BLEKINGE INSTITUTE OF TECHNOLOGY   (Sweden)

^b MALMÖ UNIVERSITY   (Sweden)

^c LUND UNIVERSITY   (Sweden)

Author keywords

Child's perspective; Intellectual disability; Mothers with intellectual disability; Pedagogical strategies; Support practices

Indexed keywords

EID: 84921506117     PISSN: 17411122     EISSN: 17411130     Source Type: Journal    
DOI: 10.1111/jppi.12091     Document Type: Article

References (49)

1. Bremberg, S., & Eriksson, L. (2010). Investera i barns hälsa [Investing in children's health]. Stockholm, Sweden: Gothia.
2. Broberg, A. (2006). Anknytningsteori: Betydelsen av nära känslomässiga relationer. Stockholm, Sweden: Natur och kultur.
3. Collings, S., & Llewellyn, G. (2012). Children of parents with intellectual disability: Facing poor outcomes or faring okay? Journal of Intellectual & Developmental Disability, 37, 65-82.
4. Edwinson Månsson, M. (1992). The value of informing children prior to investigations and procedure. Dissertation. University of Lund, Lund, Sweden.
5. Feldman, M. (2010). Parenting educational programs. In G. Llewellyn (Ed.), Parents with intellectual disabilities (pp. 121-136). Chichester, UK: Wiley-Blackwell.
6. Feldman, M. A. (1985). Parent education project I: Development and nurturance of children of mentally retarded parents. American Journal of Mental Deficiency, 90, 253-258.
7. Gillberg, C., & Geijer-Karlsson, M. (1983). Children born to mentally retarded women: A 1-21 year follow-up study of 41 cases. Psychological Medicine, 13, 891-894.
8. Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24, 105-112.
9. Guinea, S. M. (2001). Parents with a learning disability and their views on support received: A preliminary study. Journal of Intellectual Disabilities, 5, 43-56.
10. Hallberg, A.-C. (2006). Parental support in a changing society. Faculty of Medicine, Lund University, Malmö, Sweden.
11. Hewitt, A., & Larson, S. (2007). The direct support workforce in community supports to individuals with developmental disabilities: Issues, implications, and promising practices. Mental Retardation and Developmental Disabilities Research Reviews, 13, 178-187.
12. Hindberg, B. (2003). Barn till föräldrar med utvecklingsstörning [Children of parents with mental retardation]. Stockholm, Sweden: Gothia.
13. Ivanoff, S. D. (2002). Focus group discussions as a tool for developing a health education programme for elderly persons with visual impairment. Scandinavian Journal of Occupational Therapy, 9, 3-9.
14. Kaatz, J. (1992). Enhancing the parental skills of developmentally disabled parents: A nursing perspective. Journal of Community Health Nursing, 9, 209-219.
15. Keltner, B. (1994). Home environments of mothers with mental retardation. Mental Retardation, 32, 123-127.
16. Keltner, B., Wise, L., & Taylor, G. (1999). Mothers with intellectual limitations and their 2-year-old children's developmental outcomes. Journal of Intellectual & Developmental Disability, 24, 45-57.
17. Köhler, L., & Jakobsson, G. (1987). Children's health and well-being in the Nordic countries. London, UK: Blackwell.
18. Krippendorff, K. (2004). Content analysis: An introduction to its methodology. Thousand Oaks, CA: Sage.
19. Krueger, R. A., & Casey, M. A. (2009). Focus groups: A practical guide for applied research. Thousand Oaks, CA: Sage.
20. Lapan, S. D., Quartaroli, M. T., & Riemer, F. J. (2011). Qualitative research: An introduction to methods and designs. San Francisco, CA: Jossey-Bass.
21. Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Newbury Park, CA: Sage.
22. Llewellyn, G. (2010). Parents with intellectual disabilities: Past, present and futures. Malden, MA: Wiley-Blackwell.
23. Llewellyn, G., McConnell, D., & Bye, R. (1998). Perception of service needs by parents with intellectual disability, their significant others and their service workers. Research in Developmental Disabilities, 19, 245-260.
24. Llewellyn, G., McConnell, D., Russo, D., Mayes, R., & Honey, A. (2002). Home-based programmes for parents with intellectual disabilities: Lessons from practice. Journal of Applied Research in Intellectual Disabilities, 15, 341-353.
25. Magnusson, M. (2009). Barnhälsovård:att främja barns hälsa [Child health: Promoting children's health]. Stockholm, Sweden: Liber.
26. Mayes, R., & Sigurjónsdóttir, H. B. (2010). Becoming a mother-becoming a father. In G. Llewellyn, R. Traustadóttir, D. McConnell, & H. B. Sigurjónsdóttir (Eds.), Parents with intellectual disabilities (pp. 15-31). Chichester, UK: Wiley-Blackwell.
27. McConnell, D., Llewellyn, G., Mayes, R., Russo, D., & Honey, A. (2003). Developmental profiles of children born to mothers with intellectual disability. Journal of Intellectual & Developmental Disability, 28, 122-134.
28. McConnell, D., Matthews, J., Llewellyn, G., Mildon, R., & Hindmarsh, G. (2008). "Healthy start." A national strategy for parents with intellectual disabilities and their children. Journal of Policy and Practice in Intellectual Disabilities, 5, 194-202.
29. McGaw, S., Ball, K., & Clark, A. (2002). The effect of group intervention on the relationships of parents with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 15, 354-366.
30. Mildon, R., Wade, C., & Matthews, J. (2008). Considering the contextual fit of an intervention for families headed by parents with an intellectual disability: An exploratory study. Journal of Applied Research in Intellectual Disabilities, 21, 377-387.
31. Ministry of Health and Social Affairs. (2001). Social service act. 2001:453. Stockholm, Sweden.
32. Ministry of Justice. (2009). Public access to information and secrecy act. 2009:400. Stockholm, Sweden.
33. Mørch, W.-T., Skår, J., & Andersgård, A. B. (1997). Mentally retarded persons as parents: Prevalence and the situation of their children. Scandinavian Journal of Psychology, 38, 343-348.
34. National Board of Health and Welfare. (2007). Barn som har föräldrar med utvecklingsstörning[Children who have parents with intellectual disabilities]. Stockholm, Sweden: Socialstyrelsen.
35. National Board of Health and Welfare. (2009). Folkhälsorapport 2009 [Public health report 2009]. Stockholm, Sweden: Socialstyrelsen.
36. Perkins, T. S., Holburn, S., Deaux, K., Flory, M. J., & Vietze, P. M. (2002). Children of mothers with intellectual disability: Stigma, mother-child relationship and self-esteem. Journal of Applied Research in Intellectual Disabilities, 15, 297-313.
37. Pipping, L. (2004). Kärlek och stålull: Att växa upp med en utvecklingsstörd mamma [Love and steel wool: Growing up with a mentally retarded mother]. Stockholm, Sweden: Gothia.
38. Sheerin, F. (1998). Parents with learning disabilities: A review of the literature. Journal of Advanced Nursing, 28, 126-133.
39. Socialdepartementet. (2008). Föräldrastöd-en vinst för alla: Nationell strategi för samhällets stöd och hjälp till föräldrar i deras föräldraskap: Betänkande [Parental support-a win for all: National strategy for community support and assistance to parents in their parenting: Report]. Stockholm, Sweden: Fritze.
40. Söderbäck, M., Coyne, I., & Harder, M. (2011). The importance of including both a child perspective and the child's perspective within health care settings to provide truly child-centred care. Journal of Child Health Care, 15, 99-106.
41. Starke, M. (2011). Supporting families with parents with intellectual disability: Views and experiences of professionals in the field. Journal of Policy and Practice in Intellectual Disabilities, 8, 163-171.
42. Starke, M., Mildon, R., & Wade, C. (2012). Social validity of the Swedish version of PYC. Journal of Intellectual Disability Research, 56, 743-748.
43. Stinehart, M. A., Scott, D. A., & Barfield, H. G. (2012). Reactive attachment disorder in adopted and foster care children: Implications for mental health professionals. The Family Journal, 20, 355-360.
44. UNICEF. (2009). Barnkonventionen: FN's konvention om barnets rättigheter [CRC: United Nations Convention on the Rights of the Child]. Stockholm, Sweden: UNICEF Sverige.
45. Wade, C., Llewellyn, G., & Matthews, J. (2008). Review of parent training interventions for parents with intellectual disability. Journal of Applied Research in Intellectual Disabilities, 21, 351-366.
46. Ward, L. (2010). Supporting parents, supporting families: Changing approaches to parents with intellectual disability. Advances in Mental Health and Intellectual Disabilities, 4, 38-43.
47. Weiber, I., Berglund, J., Tengland, P. A., & Eklund, M. (2011). Children born to women with intellectual disabilities - 5-year incidence in a Swedish county. Journal of Intellectual Disability Research, 55, 1078-1085.
48. Weiber, I., Eklund, M., & Tengland, P.-A. (in press). The characteristics of local support systems, and the roles of professionals, in supporting families where a mother has an intellectual disability. Journal of Applied Research in Intellectual Disabilities.
49. Zingale, M., Belfiore, G., Mongelli, V., Trubia, G., & Buono, S. (2008). Organization of a family training service pertaining to intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 5, 69-72.