Experiences of paradox: A qualitative analysis of living with cancer using a framework approach

Psycho-Oncology

Volumn 24, Issue 2, 2015, Pages 138-146

  Leal, Isabel ^a,b   Engebretson, Joan ^c   Cohen, Lorenzo ^b   Rodriguez, Alma ^b   Wangyal, Tenzin ^d   Lopez, Gabriel ^b   Chaoul, Alejandro ^b  

^a UNIVERSITY OF TEXAS SCHOOL OF PUBLIC HEALTH   (United States)

^b UNIVERSITY OF TEXAS   (United States)

^c UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON   (United States)

^d Ligmincha Institute   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; CANCER MORTALITY; CLINICAL ARTICLE; CONCEPTUAL FRAMEWORK; CONFUSION (UNCERTAINTY); CONTENT ANALYSIS; CULTURAL ANTHROPOLOGY; DATA ANALYSIS; DEATH; DISAPPOINTMENT; EMOTION; EMOTIONAL STRESS; FEMALE; HAPPINESS; HUMAN; ILLNESS TRAJECTORY; LIVING WITH PARADOX; MALE; MORTALITY; NEOPLASM; OPEN ENDED QUESTIONNAIRE; OPTIMISM; PERSONAL EXPERIENCE; QUALITATIVE ANALYSIS; QUALITATIVE RESEARCH; RELIGION; SELF CONTROL; SOCIAL SUPPORT; THEMATIC ANALYSIS; WELLBEING; LONGITUDINAL STUDY; LYMPHOMA; MENTAL STRESS; MIDDLE AGED; PSYCHOLOGY; YOUNG ADULT;

ADULT; AGED; FEMALE; HUMANS; LONGITUDINAL STUDIES; LYMPHOMA; MALE; MIDDLE AGED; QUALITATIVE RESEARCH; STRESS, PSYCHOLOGICAL; YOUNG ADULT;

EID: 84921362980     PISSN: 10579249     EISSN: 10991611     Source Type: Journal    
DOI: 10.1002/pon.3578     Document Type: Article

References (57)

1. Carlson LE, Angen M, Cullum J, et al. High levels of untreated distress and fatigue in cancer patients. Br J Cancer 2004;90:2297-2304.
2. Kenne Sarenmalm E, Odén A, Ohlén J, Gaston-Johansson F, Holmberg SB. Changes in health-related quality of life may predict recurrent breast cancer. Eur J Oncol Nurs 2009;13:323-329. DOI: 10.1016/j.ejon.2009.05.002
3. Turnbull GC, Macdonald M, Baldassarre F, et al. Psychosocial care for cancer: a framework to guide practice, and actionable recommendations for Ontario. Curr Oncol 2012; 19:209-216. DOI: 10.3747/co.19.981
4. Carlson LE, Ursuliak Z, Goddey E, Angen M, Speca M. The effects of mindfulness meditation based stress reduction program on mood and symptoms of stress in cancer outpatients: six month follow-up. Support Care Cancer 2001;9:112-123.
5. Vachon MLS. Meaning, Spirituality and Wellness in Cancer Survivors. Semin Oncol Nurs 2008;24:218-225.
6. Weisman AD, Worden JW. The existential plight of cancer: significance of the first 100 days. Int J Psychiatry Med 1976;54: 489-517.
7. Lee V. The existential plight of cancer: meaning-making as a concrete approach to the intangible search for meaning. Support Care Cancer 2008;16:779-785.
8. Park CL, Folkman S. Meaning in the context of stress and coping. Rev Gen Psychol 1997; 1:115-144.
9. Zabora JR, Blanchard CG, Smith ED, Roberts CS. Prevalence of psychological distress among cancer patients across the disease continuum. J Psychosoc Oncol 1997;15:73-87
10. Andrykowski M, Lykins E, Floyd A. Psychological Health in Cancer Survivors. Semin Oncol Nurs 2008;24:193-201.
11. Gil F, Costa G, Hilker I, Benito L. First anxiety, afterwards depression: psychological distress in cancer patients at diagnosis and after medical treatment. Stress Health 2012; 28:362-367. DOI: 10.1002/smi.2445
12. Mehnert A, Koch U. Psychological comorbidity and health-related quality of life and its association with awareness, utilization, and need for psychosocial support in a cancer register-based sample of long-term breast cancer survivors. J Psychosom Res 2008;64:383-391.
13. Spiegel D. Psychological aspects of breast cancer treatment. Semin Oncol 1997;24:36-47.
14. Andrykowski MA, Curran SL, Studts JL, et al. Psychosocial adjustment and quality of life in women with breast cancer and benign breast problems: a controlled comparison. J Clin Epidemiol 1996;49:827-834.
15. Hefferon K, Grealy M, Mutrie N. Posttraumatic growth and life threatening physical illness: a systematic review of the qualitative literature. Br J Health Psychol 2009;14: 343-378. DOI: 10.1348/135910708X332936
16. Horgan O, Holcombe C, Salmon P. Experiencing positive change after a diagnosis of breast cancer: a grounded theory analysis. Psycho-Oncology 2011;20:1116-1125.
17. Tedeschi RG, Calhoun LG. Posttraumatic growth in clinical practice. In Handbook of Post-traumatic Growth, Calhoun LG, Tedeschi RG (eds). Lawrence Erlbaum Associates: New York, 2006; 291-310.
18. Koutroulis N, Anagnostopoulos F, Potamianos G. Posttraumatic stress disorder and posttraumatic growth in breast cancer patients: a systematic review. Women Health 2012;52:503-516
19. Stanton AL, Bower JE, Low CA. Posttraumatic growth after cancer. In Handbook of Post-traumatic Growth, Calhoun LG, Tedeschi RG (eds). Lawrence Erlbaum Associates: New York, 2006; 138-175.
20. Zoellner T, Maercker A. Posttraumatic growth in clinical psychology-a critical review and introduction of a two-component model. Clin Psychol Rev 2006;26:626-653
21. Henoch I, Danielson E. Existential concerns of patients with cancer and interventions to meet them: an integrative literature review. Psycho-Oncology 2009;18:225-236
22. Hovind IL, Bredal IS, Dihle A. Women's experience of acute and chronic pain following breast surgery. J Clin Nurs 2013;22: 1044-1052.
23. Logan J, Hackbusch-Pinto R, De Grasse CE. Women undergoing breast diagnostics: the lived experience of spirituality. Oncol Nurs Forum 2006;33:121-126.
24. Larsson G, Haglund K, Von Essen L. Distress, quality of life and strategies to "keep a good mood" in patients with carcinoid tumors: patient and staff perceptions. Eur J Cancer Care 2003;22:46-57.
25. Verhoef MJ, Vanderheyden LC, Dryeden T, et al. Evaluating complementary and alternative medicine interventions: in search of appropriate patient-centered outcome measures. BMC Complement Altern Med 2006;6:6-38.
26. Winstanley JB, White EG, Boyle FM, Thompson JF. What are the pertinent quality-of-life issues for melanoma patients? Aiming for the development of a new module to accompany the new EORTC core questionnaire. Melanoma Res 2013;23:167-174.
27. Sachs E, Kolva E, Pessin H, Rosenfeld B, Breitbart W. On sinking and swimming: the dialectic of hope, hopelessness, and acceptance in terminal cancer. Am J Hosp Palliat Med 2013;30:121-127.
28. Boehmke MM, Dickerson SS. The diagnosis of breast cancer: transition from health to illness. Oncol Nurs Forum 2006;3:1121-1127.
29. Cohen L, Warneke C, Fouladi R, Rodriguez MA, Chaoul-Reich A. Psychological adjustment and sleep quality in a randomized trial of the effects of a Tibetan yoga intervention in patients with lymphoma. Cancer 2004; 100:2253-2260.
30. Ritchie J, Lewis J. Qualitative Research Practice. Sage: London, 2005.
31. Toombs SK. The Meaning of Illness: A Phenomenological Account of the Different Perspectives of Physician and Patient. Kluwer Academic Publishers: Netherlands, 1993.
32. Smith J, Firth R. Qualitative data analysis: the framework approach. Nurse Res 2011;18: 52-62.
33. Green J, Thorogood N. Qualitative Methods for Health Research (2nd edn). Sage: London, 2009.
34. Ritchie J, Spencer L. Qualitative data analysis for applied policy research. In Analyzing Qualitative Data, Bryman A, Burgess RG (eds). Routledge: London, 1994; 174-194.
35. Paradox. (n.d.). Dictionary.com Unabridged. Available from Dictionary.com website: http://dictionary.reference.com/browse/paradox [17 February 2014].
36. Maxwell JA. Using numbers in qualitative research. Qual Inq 2010;16:475-482.
37. Yerushalmi H. Paradox and personal growth during crisis. Am J Psychoanal 2007;67: 359-380.
38. Harris Interactive. MetLife Foundation Alzheimer's Survey, 2011. Available from: https://www.metlife.com/assets/cao/foundation/alzheimers-2011.pdf [13 February 14].
39. Lock M. Introduction. In Biomedicine Examined, Lock M, Gordon G (eds). Kluwer Academic Publishers: Boston, 1988.
40. Kleinman A. Patients and Healers in the Context of Culture. University of California Press: Berkeley, 1980.
41. Cordova MJ, Cunningham LC, Carlson CR, Andrykowski MA. Posttraumatic growth following breast cancer: a controlled comparison study. Health Psychol 2001;20: 176-185.
42. Frankl V. Man's Search for Meaning. Beacon Press: Boston, 1959.
43. Fromm E. The Anatomy of Human Destructiveness. Holt, Rinehart and Winston: New York, 1973.
44. Nietzsche F. Beyond Good and Evil (C.Rowan, trans). Henry Regnery: Chicago, 1955
45. Halstead MT, Hull M. Struggling with paradox: the process of spiritual development in women with cancer. Oncol Nurs Forum 2001;28:1534-1544.
46. Greene JC. Mixed Methods in Social Inquiry. Jossey-Bass: San Francisco, 2007.
47. Arman M, Rehnsfeldt A. The hidden suffering among breast cancer patients: a qualitative metasynthesis. Qual Health Res 2003; 13:510-527.
48. Burgess C, Cornelius V, Love S, Graham J, Richards M, Ramirez A. Depression and anxiety in women with early breast cancer: five-year observational cohort study. BMJ 2005;330:702. DOI: 10.1136/bmj.38343.670868.D3
49. Mundy-Bosse BL, Thornton LM, Yang H-C, Anderson BL, Carson WE. Psychological stress is associated with altered levels of myeloid-derived suppressor cells in breast cancer patients. Cell Immunol 2011;270: 80-87. DOI: 10.1016/j.cellimm.2011.04.003
50. Bidstrup PE, Johansen C, Mitchell AJ, Screening for cancer-related distress: summary of evidence from tools to programmes. Acta Oncol 2011;50:194-204.
51. Bultz BD, Carlson LE. Emotional distress: the sixth vital sign-future directions in cancer care. Psycho-Oncology 2006;15:93-95.
52. Kangas M, Henry JL, Bryant RA. Posttraumatic stress disorder following cancer: a conceptual and empirical review. Clin Psychol Rev 2002;22:499-524.
53. Palesh O, Koopman C. Post-traumatic stress disorder-prevalent and persistent. Nat Rev Clin Oncol 2013;10:252-254
54. Bruce A, Schreiber R, Petrovskaya O, Boston P. Longing for ground in a ground(less) world: a qualitative inquiry of existential suffering. BMC Nurs 2011;10:2.
55. Costanzo ES, Ryff CD, Singer BH. Psychosocial adjustment among cancer survivors: findings from a national survey of health and well-being. Health Psychol 2009;28:147-156.
56. Ryff CD, Keyes CLM. The structure of psychological well-being revisited. J Pers Soc Psychol 1995;4:719-727.
57. Simpson A. Involving service users and carers in the education of mental health nurses. Mental Health Pract 2006;10:20-24.